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Asking employer for accommodations - yes, no, maybe?
Quick background:BCRed about 2.5 years after adjuvant RT to prostatic bed after RARP. Started Firmagon in May 2022 after nothing seen on PSMA PET/CT with PSA at 0.4. Switched to Orgovyx in November since injection site reaction was compromising QoL. Just before BCR was detected, I started taking adderall
Quick background:BCRed about 2.5 years after adjuvant RT to prostatic bed after RARP. Started Firmagon in May 2022 after nothing seen on PSMA PET/CT with PSA at 0.4. Switched to Orgovyx in November since injection site reaction was compromising QoL. Just before BCR was detected, I started taking adderall
farmanerd
in
Advanced Prostate Cancer
1 year ago
Neupro Patch
I saw a consultant in the UK a month or so ago and explained that my transition from Mirapexin to Pregabalin was not going well. At that time, I was taking 150mg Pregabalin and 4 x 0.088 Mirapexin and that at that level i was getting some relief but that any reduction from that in the Mirapexin left
I saw a consultant in the UK a month or so ago and explained that my transition from Mirapexin to Pregabalin was not going well. At that time, I was taking 150mg Pregabalin and 4 x 0.088 Mirapexin and that at that level i was getting some relief but that any reduction from that in the Mirapexin left
Ced60
in
Restless Legs Syndrome
1 year ago
CPAP Machines and Chest Infections
Recently, I had a flare up of Bronchiectasis. I was issued Doxy that has helped and I'm due for a CT Scan in a couple of weeks. I was pondering why it suddenly flared up and my wife suggested my CPAP machine. I thought I was pretty good at keeping the reservoir, hose and mask free from mould. However
Recently, I had a flare up of Bronchiectasis. I was issued Doxy that has helped and I'm due for a CT Scan in a couple of weeks. I was pondering why it suddenly flared up and my wife suggested my CPAP machine. I thought I was pretty good at keeping the reservoir, hose and mask free from mould. However
Curryandchips
in
Lung Conditions Community Forum
1 year ago
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FND diagnosis and not coping well with it
Saw neurologist today for my brain MRI results. Confirmed results as normal , no abnormalities seen. Wasn’t shown MRI which I thought I would . Diagnosed me with FND as symptoms not relative to any other neurological disorder. Been told no medication will help , it’s all in my sub conscious/mind and
Saw neurologist today for my brain MRI results. Confirmed results as normal , no abnormalities seen. Wasn’t shown MRI which I thought I would . Diagnosed me with FND as symptoms not relative to any other neurological disorder. Been told no medication will help , it’s all in my sub conscious/mind and
Hidden
in
Functional Neurological Disorder - FND Hope
1 year ago
Taking collagen
Is collagen worth taking? I have been diagnosed with osteopenia and am taking Risedronate. I am also taking Anastrozole after having a mastectomy . I take vitD and K , my diet is good and I walk every day. Just wondering if there’s anything else I can do to improve my bone health. Thanks.
Is collagen worth taking? I have been diagnosed with osteopenia and am taking Risedronate. I am also taking Anastrozole after having a mastectomy . I take vitD and K , my diet is good and I walk every day. Just wondering if there’s anything else I can do to improve my bone health. Thanks.
Lucy1578
in
Bone Health and Osteoporosis UK
2 years ago
Afib, sleep apnea and diverticulitis from aerophagia
Hi. I have afib and sleep apnea. As you know, some think that sleep apnea may be a causitive factor in afib. I have been using cpap and bipap machines for some years for the apnea, and have a problem of swallowing air (aerophagia). Before the improvements in cpap technology, I would wake up after a
Hi. I have afib and sleep apnea. As you know, some think that sleep apnea may be a causitive factor in afib. I have been using cpap and bipap machines for some years for the apnea, and have a problem of swallowing air (aerophagia). Before the improvements in cpap technology, I would wake up after a
nmack
in
Atrial Fibrillation Support
1 year ago
OA in hip and right shoulder
I've tried Voltaren, Duloxetine ( which did not stop the pain) Aleve, Tylenol, shot in the hip. I really don't want surgery, I'm 69. I even tried castor oil poultice.Id like just like to manage pain at night so I can sleep.... During the day when I'm up I can deal but nights are the worst.
I've tried Voltaren, Duloxetine ( which did not stop the pain) Aleve, Tylenol, shot in the hip. I really don't want surgery, I'm 69. I even tried castor oil poultice.Id like just like to manage pain at night so I can sleep.... During the day when I'm up I can deal but nights are the worst.
Que27
in
Osteoarthritis Action
1 year ago
Former art teacher with a passion for travel
Former art teacher. I started traveling in my fifties and it became my passion (I’ve visited 41 countries so far!) until Covid and then my stage 4 diagnosis came. Diagnosed with IDC stage 3 in 2015. My great-grandmother had breast cancer in the 1920s, and an aunt had it when she was in her mid-eighties
Former art teacher. I started traveling in my fifties and it became my passion (I’ve visited 41 countries so far!) until Covid and then my stage 4 diagnosis came. Diagnosed with IDC stage 3 in 2015. My great-grandmother had breast cancer in the 1920s, and an aunt had it when she was in her mid-eighties
Chamisa
in
SHARE Metastatic Breast Cancer
2 years ago
Anyone tried Sulbutiamine to help with fatigue etc?? If so how did you get on??
Just had a broad spectrum blood test as I still feel like I have just been dug up from the local cemetery … Everything seems fine (Liver, kidneys, B12, adrenals, they even mentioned my bones) … But I (As most of us poor lot do) feel like crap, and utterly fatigued .. Now I’m looking into some stuff like
Just had a broad spectrum blood test as I still feel like I have just been dug up from the local cemetery … Everything seems fine (Liver, kidneys, B12, adrenals, they even mentioned my bones) … But I (As most of us poor lot do) feel like crap, and utterly fatigued .. Now I’m looking into some stuff like
Quasarlis
in
Thyroid UK
1 year ago
Does anyone use ‘Active Iron’ in UK?
I searched for ferrous bisglycinate on Amazon UK which came up with Active Iron 25mg. I’ve now received it and found it contains ferrous sulfate 25mg! Now I don’t know if this is the right product or dose. Can anyone help?
I searched for ferrous bisglycinate on Amazon UK which came up with Active Iron 25mg. I’ve now received it and found it contains ferrous sulfate 25mg! Now I don’t know if this is the right product or dose. Can anyone help?
Dires
in
Restless Legs Syndrome
1 year ago
tirosint 50
Hi everyone, Up till now I have been taking Thybon T3 only but my doctor wanted me to add T4 , so I added Tirosint 50. I did feel tired so I reduced my T3 slightly. My question is, do I take the T4 with the T3 in the morning, or before? I also take T3 in evening. I am trying to do bloods, tried twice
Hi everyone, Up till now I have been taking Thybon T3 only but my doctor wanted me to add T4 , so I added Tirosint 50. I did feel tired so I reduced my T3 slightly. My question is, do I take the T4 with the T3 in the morning, or before? I also take T3 in evening. I am trying to do bloods, tried twice
jand123
in
Thyroid UK
1 year ago
New pain, flare or new issues?
I recently posted about new severe pain in my back, left hip, and right ankle, affecting my sleep and walking. I was diagnosed 3 years ago with PMR and GCA. I’ve been stuck at 9 mg pred since last summer. Last week I saw my primary care doctor’s Nurse Practitioner who said the back
I recently posted about new severe pain in my back, left hip, and right ankle, affecting my sleep and walking. I was diagnosed 3 years ago with PMR and GCA. I’ve been stuck at 9 mg pred since last summer. Last week I saw my primary care doctor’s Nurse Practitioner who said the back
Mstiles
in
PMRGCAuk
1 year ago
Guidelines
Hi I'm wondering if there are guidelines in the UK regarding TSH numbers by which a doctor is advised treatment should be an option? I did my first private blood test in 2017 and the doctors remarks were to see my GP regarding treatment for an underactive thyroid. I was so pleased to finally have clarification
Hi I'm wondering if there are guidelines in the UK regarding TSH numbers by which a doctor is advised treatment should be an option? I did my first private blood test in 2017 and the doctors remarks were to see my GP regarding treatment for an underactive thyroid. I was so pleased to finally have clarification
Linac
in
Thyroid UK
1 year ago
Stiffness when tapering
Well I have already posted my history, although I should maybe update my profile to date, but now I have decreased fairly quickly, as per rheumy,s instructions, since Dec at 40 mgs, (due to suspected GCA), which apparently did not show in temporal ultrasound, at any rate, now down to 10 mgs, for this
Well I have already posted my history, although I should maybe update my profile to date, but now I have decreased fairly quickly, as per rheumy,s instructions, since Dec at 40 mgs, (due to suspected GCA), which apparently did not show in temporal ultrasound, at any rate, now down to 10 mgs, for this
arvine
in
PMRGCAuk
1 year ago
Not Tolerating Xtandi
I started Xtandi 11/30/22 on top of Orgovix when PSA was 29 . Late January23 PSA was down to 4.1 and i was tolerating it well i thought. I dont want to let the beast loose but dont want to kill myself either. Recently 4/7/23 had an issue with my neck and shoulder causing so much pain I could not turn
I started Xtandi 11/30/22 on top of Orgovix when PSA was 29 . Late January23 PSA was down to 4.1 and i was tolerating it well i thought. I dont want to let the beast loose but dont want to kill myself either. Recently 4/7/23 had an issue with my neck and shoulder causing so much pain I could not turn
rick8637
in
Advanced Prostate Cancer
1 year ago
Periodic Limb Movement Disorder
Hello everyone. Several weeks ago I started taking Pregabalin whilst weaning off Pramipexole. I’m now on 150mg of Pregab. 3 weeks ago, I took my last Pram! Yayyyyyy!!!!! Since then, the RLS has almost completely gone, which is a lovely result. However, my night time PLMD is quite bad. Sleep deprivation
Hello everyone. Several weeks ago I started taking Pregabalin whilst weaning off Pramipexole. I’m now on 150mg of Pregab. 3 weeks ago, I took my last Pram! Yayyyyyy!!!!! Since then, the RLS has almost completely gone, which is a lovely result. However, my night time PLMD is quite bad. Sleep deprivation
Theonlypetied
in
Restless Legs Syndrome
1 year ago
share experience. chemo weekly.
Invasive breast cancer stage 1a Grade2 mastectomy 0n 12/01/22 single. Chemo to start on 02/06/23 taxol/carb weekly for 12 weeks. please share any information on just what to expect and including side effects and overall experiences. Thanks
Invasive breast cancer stage 1a Grade2 mastectomy 0n 12/01/22 single. Chemo to start on 02/06/23 taxol/carb weekly for 12 weeks. please share any information on just what to expect and including side effects and overall experiences. Thanks
papadoll
in
SHARE Breast Cancer Support
2 years ago
COPD and Radiation for Breast Cancer
I am trying to find information on the potential effects on my existing COPD if I have radiation therapy for breast cancer. I am being treated at a top cancer center in the US and they definitely promote lumpectomy plus radiation over mastectomy. I am almost 70 years old and a widow, and I really don't
I am trying to find information on the potential effects on my existing COPD if I have radiation therapy for breast cancer. I am being treated at a top cancer center in the US and they definitely promote lumpectomy plus radiation over mastectomy. I am almost 70 years old and a widow, and I really don't
kathleen123
in
Lung Conditions Community Forum
2 years ago
Gastrostomy
My mother is suffering from PSP for last 6 years. She has already lost most of her abilities due to disease. Last October, her doctor prescribed to instal gastrostomy. It was great idea, since she has been loosing ability to be eat via mouth. We installed one type of gastrostoma, then another, after
My mother is suffering from PSP for last 6 years. She has already lost most of her abilities due to disease. Last October, her doctor prescribed to instal gastrostomy. It was great idea, since she has been loosing ability to be eat via mouth. We installed one type of gastrostoma, then another, after
Dend88
in
PSP Association
2 years ago
Researchers discover a potential cause of Parkinson's disease
In 2021, Professor Per Saris's group published results demonstrating that bacteria of the Desulfovibrio bacterial genus correlate with Parkinson's disease, and that their higher number also correlates with the severity of the symptoms of the disease. Replicating the same study, Chinese researchers came
In 2021, Professor Per Saris's group published results demonstrating that bacteria of the Desulfovibrio bacterial genus correlate with Parkinson's disease, and that their higher number also correlates with the severity of the symptoms of the disease. Replicating the same study, Chinese researchers came
Farooqji
in
Cure Parkinson's
1 year ago
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