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black out
Hi. I’m wondering if anyone else has experienced this. My mum who has CBS finds that when she laughs now she blacks out and feels faint. She is finding that this is happening more and more so is worrying. It’s very hard when we try and keep things upbeat but she’s scared of laughter. Any advice please
Hi. I’m wondering if anyone else has experienced this. My mum who has CBS finds that when she laughs now she blacks out and feels faint. She is finding that this is happening more and more so is worrying. It’s very hard when we try and keep things upbeat but she’s scared of laughter. Any advice please
Helsbell
in
PSP Association
2 months ago
Confused and upset- scleroderma and esophagus
Hello, I hope everyone is staying warm if it is winter where you are ❤️ I am reaching out for support and possibly simalar experiences... Yesterday I went to see a GI specialist after getting test results back from my esophageal manometry that was done. I've been having a lot of stomach upset, acid
Hello, I hope everyone is staying warm if it is winter where you are ❤️ I am reaching out for support and possibly simalar experiences... Yesterday I went to see a GI specialist after getting test results back from my esophageal manometry that was done. I've been having a lot of stomach upset, acid
AnimalLover115
in
LUPUS UK
5 months ago
New job, Anxiety Attack
Hello all. I’ve been struggling with the decision to pursue a job requiring me to move over 2000 miles away from Florida to Arizona. Ever since interviewing for the job I’ve been preparing for the move by applying for rental housing and other preparations in case I got the offer. Yesterday I received
Hello all. I’ve been struggling with the decision to pursue a job requiring me to move over 2000 miles away from Florida to Arizona. Ever since interviewing for the job I’ve been preparing for the move by applying for rental housing and other preparations in case I got the offer. Yesterday I received
CatDogLover
in
Anxiety and Depression Support
2 months ago
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Bowel resection with total hysterectomy
I’m seeking advice from anyone who has had to have a bowel resection with a total hysterectomy. I’m 48yo and have endo, adeno and fibroids. My endo is stage 4 with my bowel and right ovary stuck to my womb, bits of recto-vaginal area also stuck together. I have surgery planned in Feb/Mar to remove a
I’m seeking advice from anyone who has had to have a bowel resection with a total hysterectomy. I’m 48yo and have endo, adeno and fibroids. My endo is stage 4 with my bowel and right ovary stuck to my womb, bits of recto-vaginal area also stuck together. I have surgery planned in Feb/Mar to remove a
Drakesie
in
Endometriosis UK
5 months ago
iron panel test
Would it be best to do iron panel test as I am now free of B12 and b complex or start taking them and then do?
Would it be best to do iron panel test as I am now free of B12 and b complex or start taking them and then do?
Fluffyone
in
Pernicious Anaemia Society
5 months ago
feelings of palpitations in torso and faint ..
I am new to this sight . Having B12 every 10 weeks since 2019 .. took 2 years to feel better and lose majority of symptoms. Diagnosed with IFA deficiency.. why do I get periods when I feel well and then get a dip even after a B12 jab ? I am wondering if I should be taking folate (folic acid) ? I also
I am new to this sight . Having B12 every 10 weeks since 2019 .. took 2 years to feel better and lose majority of symptoms. Diagnosed with IFA deficiency.. why do I get periods when I feel well and then get a dip even after a B12 jab ? I am wondering if I should be taking folate (folic acid) ? I also
Altinkum50
in
Pernicious Anaemia Society
5 months ago
Surgery to remove FNH
Hi all, I have been here before but it was quite a while ago. (10 months) Over the last two years, I have been in pain on my upper right quadrant, had lots of scans, tests which included an unpleasant ERCP being done as one thought was that the sphincter of oddi could have been the culprit. For a
Hi all, I have been here before but it was quite a while ago. (10 months) Over the last two years, I have been in pain on my upper right quadrant, had lots of scans, tests which included an unpleasant ERCP being done as one thought was that the sphincter of oddi could have been the culprit. For a
Elverra30
in
British Liver Trust
2 months ago
Depo and panic attacks?
So, I've had my first depo provera shot last week, and today, I think I've had 3 panic attacks, all seemingly out of the blue. As far as I can remember, I haven't had one before. I do have very mild anxiety but nothing I take medication for. Are panic attacks associated with depo? Have any of you experienced
So, I've had my first depo provera shot last week, and today, I think I've had 3 panic attacks, all seemingly out of the blue. As far as I can remember, I haven't had one before. I do have very mild anxiety but nothing I take medication for. Are panic attacks associated with depo? Have any of you experienced
Violetskyss
in
Endometriosis UK
2 months ago
Metastasized to Bones
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
hopefull99
in
Advanced Prostate Cancer
8 months ago
IBS and B12
good evening, I hope everyone is doing well I am wondering about the link between B12 deficiency and IBS. I have been getting bi weekly injections for almost 2.5 years now. Doing fairly well and the vast majority of my symptoms and nerve issues have subsided. I have no tested positive for PA but
good evening, I hope everyone is doing well I am wondering about the link between B12 deficiency and IBS. I have been getting bi weekly injections for almost 2.5 years now. Doing fairly well and the vast majority of my symptoms and nerve issues have subsided. I have no tested positive for PA but
Ctadds1
in
Pernicious Anaemia Society
5 months ago
Prostate cancer in liver
Have recently had a PSMA scan. This did show some hot spots for sure. But also, three smaller spots on my liver that did not give off PSMA. Did a liver Biopsy. which is rather painful I might add. Will meet with my 0ncologist on Monday to look at options. Any suggestion for the three rather small spots
Have recently had a PSMA scan. This did show some hot spots for sure. But also, three smaller spots on my liver that did not give off PSMA. Did a liver Biopsy. which is rather painful I might add. Will meet with my 0ncologist on Monday to look at options. Any suggestion for the three rather small spots
Parscore
in
Advanced Prostate Cancer
8 months ago
Thank you all
I wanted to get on here and thank everyone for there input on my questions about PIQRAY. After all my do diligence on PIQRAY my oncologist threw me a curve ball and decided to go with Verzenio faslodex and xgeva. Because i had higher % of Ers1 mutations then Pik3ca mutations. So this past thursday i
I wanted to get on here and thank everyone for there input on my questions about PIQRAY. After all my do diligence on PIQRAY my oncologist threw me a curve ball and decided to go with Verzenio faslodex and xgeva. Because i had higher % of Ers1 mutations then Pik3ca mutations. So this past thursday i
Justme153
in
SHARE Metastatic Breast Cancer
8 months ago
Wendy
My husband was diagnosed in 2010 at the age of 40. 2013 he had FCR. 11 years later, he is in week 5 of venteclax, Rituximab to follow next month. Swollen lymph nodes have disappeared.
My husband was diagnosed in 2010 at the age of 40. 2013 he had FCR. 11 years later, he is in week 5 of venteclax, Rituximab to follow next month. Swollen lymph nodes have disappeared.
Fluxthecat10
in
CLL Support
2 months ago
nhs stopping b12 injections
I have heard that nhs are stopping b12 injections due to the work load on surgeries.the nurse said that people will have blood tests and those who are above the level will then go onto oral medication.my concern is if they give you a blood test just after your b12 injection then levels will be high and
I have heard that nhs are stopping b12 injections due to the work load on surgeries.the nurse said that people will have blood tests and those who are above the level will then go onto oral medication.my concern is if they give you a blood test just after your b12 injection then levels will be high and
Triggert5656
in
Pernicious Anaemia Society
5 months ago
ive lost myself
hi guys. just came back to give an update. so i got diagnosed with ocd, panic disorder, gad, whatever. i started buspirone because im generally sensitive to ssris and i thought it was working for a bit, but then it started giving me problems. i went off of it and then it gave me more problems. now i
hi guys. just came back to give an update. so i got diagnosed with ocd, panic disorder, gad, whatever. i started buspirone because im generally sensitive to ssris and i thought it was working for a bit, but then it started giving me problems. i went off of it and then it gave me more problems. now i
thegoat123
in
Anxiety and Depression Support
2 months ago
ET and colon cancer!
Hi Some days ago this video popped in my youtube about link between ET and colon or lung cancer. It said something like around 16% of ET patiens could develop lung or colon cancer. Anyone got some info or insight about this thing. I am diagnosed for 1 year wit JAK2 ET. Platelets are steady in the range
Hi Some days ago this video popped in my youtube about link between ET and colon or lung cancer. It said something like around 16% of ET patiens could develop lung or colon cancer. Anyone got some info or insight about this thing. I am diagnosed for 1 year wit JAK2 ET. Platelets are steady in the range
Myers75
in
MPN Voice
5 months ago
Blood in Stool
I have found some blood in stool. I had a postive Qfit Test but just postive at 14. My GP said he was not overly concerned. I have an external hemorrid. I was referred and saw a Gastronelogist today he did a rectal exam and said there was not concerning. I did tell him that I was concerned of
I have found some blood in stool. I had a postive Qfit Test but just postive at 14. My GP said he was not overly concerned. I have an external hemorrid. I was referred and saw a Gastronelogist today he did a rectal exam and said there was not concerning. I did tell him that I was concerned of
Shanlissanna
in
Colon Cancer Connected
8 months ago
Pelvic pain and bloating,
Female aged 78,have suffered for a year with pain bloating and soreness in lower abdomen,have had all the tests,CT scan, gastrostoscopy ,colonoscopy nothing found,also gluten free diet,but pain still occurring the pain seems to come at random the only thing that helps is Amitriptyline,don't know what
Female aged 78,have suffered for a year with pain bloating and soreness in lower abdomen,have had all the tests,CT scan, gastrostoscopy ,colonoscopy nothing found,also gluten free diet,but pain still occurring the pain seems to come at random the only thing that helps is Amitriptyline,don't know what
Lawnmow
in
Pelvic Pain Support Network
5 months ago
colonoscopy and ct scan
recently had colonoscopy and then 3 weeks later Ct scan on colon. Both of these procedures I had to take bowel prep. So with in 3 weeks 2 lots of bowel prep. Now, nearly 3 weeks on I keep getting stomach pains and feeling nauseous. Anyone else had this?
recently had colonoscopy and then 3 weeks later Ct scan on colon. Both of these procedures I had to take bowel prep. So with in 3 weeks 2 lots of bowel prep. Now, nearly 3 weeks on I keep getting stomach pains and feeling nauseous. Anyone else had this?
jsee
in
IBS Network
7 months ago
Colonoscopy report
Hi folks, I had my colonoscopy this morning, no sedation, didn't even need gas and air. Hopefully this will reassure those of you waiting for one. The prep wasn't as bad as last time. Maybe they've improved things since then. I didn't mind the taste of the Moviprep, though it was too sweet and because
Hi folks, I had my colonoscopy this morning, no sedation, didn't even need gas and air. Hopefully this will reassure those of you waiting for one. The prep wasn't as bad as last time. Maybe they've improved things since then. I didn't mind the taste of the Moviprep, though it was too sweet and because
Broseley
in
PMRGCAuk
5 months ago
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