Chronic pain after prostatectomy - Advanced Prostate...

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Chronic pain after prostatectomy

Sineah profile image
7 Replies

My friend had robotic prostatectomy in May 2019. In the almost 5 years since he has experienced daily abdominal pain. He has seen numerous doctors but none of them have been able to diagnose the source of the pain. He is an invalid due to this problem. Does anyone else know of a similar case? Any suggestions giving direction towards his getting his life back would be most appreciated.

Thank you all very much.

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Sineah profile image
Sineah
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7 Replies
Juju1979 profile image
Juju1979

I had the same robotic surgery in 2022. After healing, I experienced difficulty in walking, especially up and down stairs. The pain was awful. My oncologist, urologist and surgeon couldn't figure out the cause. Finally, they sent me off to a physical therapist that deals with pelvic floor issues. They were familiar with the issue and came up with a treatment plan with some simple exercises. After 4-5 treatments the pain resolved. I went through 10 treatments altogether and the pain never returned. It surprised the physicians and was a miracle for me.

Sailameme profile image
Sailameme in reply to Juju1979

Will you please offer up in some form of detail what these treatments were please. I thank you for your time.

Juju1979 profile image
Juju1979 in reply to Sailameme

There is a lot of info on YouTube. This shouldn’t replace a doctor’s or therapist’s instructions. I am not a doctor and don’t recommend the exercises without professional assistance.

Two videos I listed below. Four exercises the therapists had me do are listed after. The key is to activate the pelvic floor muscles while doing the appropriate exercises. I got results within 4-5 sessions.

youtube.com/watch?v=MJ7EfGu... Kegel for Men (Key is to visualize using your muscles to pull your penis into your body before starting the movement. Try to make your penis smaller.

youtube.com/watch?v=HpzxdFW...

1. Sit on the edge of a chair. Place a 8” to 12” light rubber ball in between your knees. Stand up and set down for 10 reps. while activating pelvic muscles. Don't use arms. Increase the number of sets as you are able.

2. Get an elastic band. More on the stretchy side. Tie it in a circle about the diameter of your shoulders. Place it near your ankles and side step using the resistance band. Move your other leg over to a starting position and take another step with the first leg. Do 20- 30 steps. Then alternate legs.

3. Lie on back, activate your pelvic floor muscles and do a bicycling motion with your legs while hold in the pelvic floor muscles.

4. Lie on your back, activate your pelvic muscles and push your pelvis towards the ceiling. Hold 10 count and release. Repeat.

Sounds simple but it really did change my life.

Sailameme profile image
Sailameme in reply to Juju1979

I really thank you for your time. Take care.

Sineah profile image
Sineah

Thank you Juju1979 for your response.

j-o-h-n profile image
j-o-h-n

I only can guess...since I had the old fashion slice and dice method.... I would think it was due to the implement used robotically. You must have your friend see that original surgeon and report his pain....if the doctor doesn't help...... tell y our friend to threaten or start legal action..

Good Luck, Good Health and Good Humor.

j-o-h-n

Shorter profile image
Shorter

Hi Sineah, I sent you a message in chat.

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