Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and moved on with my life. PSA went to 0 in about 6months, I have adjusted to the SE of PC after the RT & Lupron. I always had been a very healthy person, never caught a cold, never missed a day of work due to illness in 52 years. Am 70 now.
MO said “5 years ago I would have given you 3-5 years to live, now I would say 8-10 years and probably longer”. Due to the progressions/advances in PC medicines, I figured I would die with the disease and not because of the disease.
On the one year anniversary of the original PSMA Pet scan the MO ordered another PSMA Pet scan because he said that in 5% of PC cases the PC could still be growing but not showing up on a PSA test.
The results of the Pet scan were good, several of the lymph nodes had reduced to no evidence, the T2 vertebra spot had gone from a SUV value of 74 in 2023 to SUV of 24 in 2024. Basically the PC was still there, growing smaller and under control.
Then came the bombshell, the scan also revealed a 4.4 CM mass on my pancreas. Went through biopsy, it is pancreatic cancer Stage 1B or 2A. As I have come to find out Pancreatic Cancer is the worst cancer a person can get and the only way it is cured is to remove the tumor before it metastasizes. It is an extremely fast growing cancer and there are no blood tests or any other tests that will reveal it before it metastasizes and starts shutting organs down. Average life expectancy after it metastasizes is about 3 months, 70-80% of people discover the cancer that way.
I was a little lucky in that my cancer was discovered accidentally, which is the only way that people catch the cancer in time to cure it. Went to see the doctor, he declared that my treatment was going to be “curative and not pallative”.
I have started a course of 6 months of Chemo, then 1 month rest, then a distal Pancreatomy which removes the tail of the Pancreas and the Spleen. I have just started the Chemo which is really nasty. I had drugs dripped into me for 7 hours, they instructed my that I should use a bathroom at home that no one else should use, keep toilet lid down so that the chemicals do not affect anyone else. Not only did I have a 7 hour infusion but I have another pump that continues to pump a medicine into my body for 46 hours after the initial infusion.
MO says he gives me 50% chance of being alive in 5 years. Interestingly he also said he considers PC to be the most easily treated, most survivable internal cancer that a person can get, and Pancreatic Cancer to be the absolute worst aggressive cancer a person can have. After the operation I will get scans every 2 months to see if I have any other places where the cancer pops up, if nothing appears after one year, things are looking good, after 5 years, I am considered cured.
My plan is to beat the Pancreatic cancer and then go on to my battle with PC.
How lucky can one person get?