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Watching Chuck get his new hat in tiaras and our Royal Robes…(well bath robes) Did you watch too?
Hello ladies! I hope that you all has a fabulous coronation weekend like I did. I got coronation breakfast tickets to Pilgrim Museum where I volunteer. Had a few friends sleep over since it was a 6am start. They had the festivies up in the big movie screen and served a big English breakfast with clotted
Hello ladies! I hope that you all has a fabulous coronation weekend like I did. I got coronation breakfast tickets to Pilgrim Museum where I volunteer. Had a few friends sleep over since it was a 6am start. They had the festivies up in the big movie screen and served a big English breakfast with clotted
Bettybuckets
in
SHARE Metastatic Breast Cancer
1 year ago
Trodelvy
Well, Carboplatin was a disaster - it did nothing at all so I have effectively had 8 weeks of no treatment and my cancer went crazy. I understand that sounds super negative but that's how I feel right now. So, having a scan to prove the cancer spread matches the blood work (for example my CA15 was in
Well, Carboplatin was a disaster - it did nothing at all so I have effectively had 8 weeks of no treatment and my cancer went crazy. I understand that sounds super negative but that's how I feel right now. So, having a scan to prove the cancer spread matches the blood work (for example my CA15 was in
Iwasborntodothis
in
SHARE Metastatic Breast Cancer
1 year ago
Radiation Treatment for Gleason 8 with Rectal Lymph Node
Looking for recommendations and advice....newly diagnosed . I am 67 PSA at annual physical March 1st was 26 then rose to 32 two weeks later with second test. Going to Mayo Clinic in Jacksonville. Have had an MRI, Biopsy, Gleason (4+4)=8, and PSMA Pet Scan last week confirming it has spread to my Rectal
Looking for recommendations and advice....newly diagnosed . I am 67 PSA at annual physical March 1st was 26 then rose to 32 two weeks later with second test. Going to Mayo Clinic in Jacksonville. Have had an MRI, Biopsy, Gleason (4+4)=8, and PSMA Pet Scan last week confirming it has spread to my Rectal
MustangGuy
in
Advanced Prostate Cancer
1 year ago
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Relay for Life Bakersfield
Hey y'all, one of the AIS Radiation Techs told me about the American Cancer Society Relay on Saturday, I said sure. Didn't know that she had a melanoma removed from arm 7 yrs ago 🙁 It was a lovely day, we walked the Survivor's Lap and other AIS staff were there too💙 Chatted up other Survivors The
Hey y'all, one of the AIS Radiation Techs told me about the American Cancer Society Relay on Saturday, I said sure. Didn't know that she had a melanoma removed from arm 7 yrs ago 🙁 It was a lovely day, we walked the Survivor's Lap and other AIS staff were there too💙 Chatted up other Survivors The
dockam
in
Advanced Prostate Cancer
1 year ago
Does Herceptin cause Pulmonary Hypertension
I’m new to this site and have found it to be very helpful. I was diagnosed with MBC in 2015 and was treated mostly with Herceptin and Perjeta which was very successful. However I began to experience shortness of breath and in 2019 was diagnosed with Pulmonary Arterial Hypertension. A lung specialist
I’m new to this site and have found it to be very helpful. I was diagnosed with MBC in 2015 and was treated mostly with Herceptin and Perjeta which was very successful. However I began to experience shortness of breath and in 2019 was diagnosed with Pulmonary Arterial Hypertension. A lung specialist
Timida
in
SHARE Metastatic Breast Cancer
1 year ago
Zometa Tips???
After 12 years of surgery, EBRT, ADT1 and ADT2, chemo, SBRT, and completing 6 doses of Pluvicto my PSA is down to 0.10. Other than dealing with persistent anemia, I'm feeling pretty good!I just learned, however, that my MO wants to start me on Zometa. I won't know the dosage, timing, etc., until the
After 12 years of surgery, EBRT, ADT1 and ADT2, chemo, SBRT, and completing 6 doses of Pluvicto my PSA is down to 0.10. Other than dealing with persistent anemia, I'm feeling pretty good!I just learned, however, that my MO wants to start me on Zometa. I won't know the dosage, timing, etc., until the
Pwjpp55
in
Advanced Prostate Cancer
1 year ago
Cannabidiol and Cannabis Sativa as a potential treatment in vitro prostate cancer cells silenced with RBBp6 and PC3 xenograft
I have been using CBD since before diagnosis. Thought this might be of interest ------------ Mol Biol Rep . 2023 May;50(5):4039-4047. doi: 10.1007/s11033-022-08197-0. Epub 2023 Feb 28. Cannabidiol and Cannabis Sativa as a potential treatment in vitro prostate cancer cells silenced with RBBp6
I have been using CBD since before diagnosis. Thought this might be of interest ------------ Mol Biol Rep . 2023 May;50(5):4039-4047. doi: 10.1007/s11033-022-08197-0. Epub 2023 Feb 28. Cannabidiol and Cannabis Sativa as a potential treatment in vitro prostate cancer cells silenced with RBBp6
NewPotatoCaboose
in
Advanced Prostate Cancer
1 year ago
question about being NED
hello everyone- my name is Jenn I’m an MSK registered nurse and my dad was diagnosed with MBC last June of 2022 with Mets to bone. He has the BRCA2 gene which is what caused his male BC. He was started on Ibrance, letrozole, monthly lupron shots, and xjeva for bone Mets. his PET scan last September
hello everyone- my name is Jenn I’m an MSK registered nurse and my dad was diagnosed with MBC last June of 2022 with Mets to bone. He has the BRCA2 gene which is what caused his male BC. He was started on Ibrance, letrozole, monthly lupron shots, and xjeva for bone Mets. his PET scan last September
Jenniferp2122
in
SHARE Metastatic Breast Cancer
1 year ago
PIP ASSESSMENT FORMS
I had a brain tumour removed some years ago. I am about to have another operation to remove a tumour from behind my eye, which is rapidly taking my sight. I have been in receipt of PIP for a number of years, my forms were obviously looked at by reasonably intelligent people. My current PIP claim was
I had a brain tumour removed some years ago. I am about to have another operation to remove a tumour from behind my eye, which is rapidly taking my sight. I have been in receipt of PIP for a number of years, my forms were obviously looked at by reasonably intelligent people. My current PIP claim was
Bellemare
in
Headway
1 year ago
Starting Xeloda
Hello Folks, I am now officially metastatic. For the past several years I was considered "Advanced Local Recurrence" with lesions on my chest wall, I also took Ibrance which is one reason I was on this site. Now I have mets to the bone. A lesion in the scull bone right on top of my head, and a rib
Hello Folks, I am now officially metastatic. For the past several years I was considered "Advanced Local Recurrence" with lesions on my chest wall, I also took Ibrance which is one reason I was on this site. Now I have mets to the bone. A lesion in the scull bone right on top of my head, and a rib
Maddyandherkittens
in
SHARE Metastatic Breast Cancer
1 year ago
A New Direction
After seven years of fighting this disease with chemo, radiation, ADT, and abiraterone, I suffer from fatigue, nerve damage and paralysis and nerve pain in my left foot from radiation treatment, as well as depression, and a constant feeling of uncertainty. However, I am now free to let go of the life
After seven years of fighting this disease with chemo, radiation, ADT, and abiraterone, I suffer from fatigue, nerve damage and paralysis and nerve pain in my left foot from radiation treatment, as well as depression, and a constant feeling of uncertainty. However, I am now free to let go of the life
dmt1121
in
Advanced Prostate Cancer
1 year ago
Best Wishes
Hello Friends, I wanted to take the time to share that I am leaving this forum. I joined in 2016 after being apart os a Usenet group on advanced prostate cancer for 12 years...... yes, I was first diagnosed with Stage 4 metastatic prostate cancer with two metastatic lesions in my spine on May 3, 2004
Hello Friends, I wanted to take the time to share that I am leaving this forum. I joined in 2016 after being apart os a Usenet group on advanced prostate cancer for 12 years...... yes, I was first diagnosed with Stage 4 metastatic prostate cancer with two metastatic lesions in my spine on May 3, 2004
Hidden
in
Advanced Prostate Cancer
1 year ago
Not PC; still possibly relevant--TMB and response to immunotherapy
Across cancer types, advanced cancers with high tumor mutation burden had better responses to immunotherapy: https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2804390
Across cancer types, advanced cancers with high tumor mutation burden had better responses to immunotherapy: https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2804390
dentaltwin
in
Advanced Prostate Cancer
1 year ago
Bladder retaining more once again after radiation..
Hi All, Thinking of you all always Curious about bladder retention after radiation. So prior to hormone treatment my dad couldn't pee.. literally just trickle.. extreme pain and discomfort but he battled out half a year like this sleeping maybe an 1-2 hours total a night. Hes a fighter.. he just did
Hi All, Thinking of you all always Curious about bladder retention after radiation. So prior to hormone treatment my dad couldn't pee.. literally just trickle.. extreme pain and discomfort but he battled out half a year like this sleeping maybe an 1-2 hours total a night. Hes a fighter.. he just did
FormulaRob
in
Advanced Prostate Cancer
1 year ago
Eclipse Trial Update - Lutetium-Lu 177
Just received lab results from my 2nd dose of Lu177, 2 weeks ago. My PSA dropped from 2.0 to 0.3. Had CT and Bone scans done, at the same time, and they show healing and no new mets. My 3rd dose will be 5-31-23. So far my only side effects, I think, were some appetite suppression and constipation
Just received lab results from my 2nd dose of Lu177, 2 weeks ago. My PSA dropped from 2.0 to 0.3. Had CT and Bone scans done, at the same time, and they show healing and no new mets. My 3rd dose will be 5-31-23. So far my only side effects, I think, were some appetite suppression and constipation
john4803
in
Advanced Prostate Cancer
1 year ago
brain spread
hi ladies, I haven’t posted for ages but check in on you all regularly. My story, urg!! Diagnosed stage 4 in June 2017, removed left ovary and Fallopian tube along with omentum and part of bowel then had six sessions of carbo and taxol then on avastin infusions.. Recovered well but reoccurred 12 months
hi ladies, I haven’t posted for ages but check in on you all regularly. My story, urg!! Diagnosed stage 4 in June 2017, removed left ovary and Fallopian tube along with omentum and part of bowel then had six sessions of carbo and taxol then on avastin infusions.. Recovered well but reoccurred 12 months
Joanie12
in
My Ovacome
1 year ago
Reanalysis of Biopsy and switch to AS
I had written in only last week to describe my debate between HIFU and LDR BT. I was diagnosed with G7 (3+4). The comments were helpful. Today I got called after my new urologist had agreed my biopsy should be reexamined. He said their senior person along with the original reader came to a conclusion
I had written in only last week to describe my debate between HIFU and LDR BT. I was diagnosed with G7 (3+4). The comments were helpful. Today I got called after my new urologist had agreed my biopsy should be reexamined. He said their senior person along with the original reader came to a conclusion
Gus_Tec
in
Prostate Cancer Network
1 year ago
Confused clear cell concerns
So went for chemo no.4 today, as no. 3 had made me ill with terrible side effects they decided to stop the paclitaxel and just do the carboplatin. White blood cells were low but still ok to go for the carboplatin.My CA125 is now down to 10. Just very scared and confused as clear cell is rare and known
So went for chemo no.4 today, as no. 3 had made me ill with terrible side effects they decided to stop the paclitaxel and just do the carboplatin. White blood cells were low but still ok to go for the carboplatin.My CA125 is now down to 10. Just very scared and confused as clear cell is rare and known
Hidden
in
My Ovacome
1 year ago
Patient Engagement Day UCL Cancer Trials Centre 23 June 2023
Hello All This is to let you know about a Patient Engagement Day being run by Cancer Research UK and UCL Cancer Trials Centre. The organisers have five patient spaces left available, and asked if any of our members would like to attend. It will be taking place in central London on Friday 23 June 2023
Hello All This is to let you know about a Patient Engagement Day being run by Cancer Research UK and UCL Cancer Trials Centre. The organisers have five patient spaces left available, and asked if any of our members would like to attend. It will be taking place in central London on Friday 23 June 2023
OvacomeSupport
My Ovacome Team
in
My Ovacome
1 year ago
In the A&E and need your help please
Hi again,I had contacted you all last week to ask you advice about a possible PMR attack. The pain was addressed at 15mg, but I started having those dreadful headaches in my temples/jaw/neck, etc and had been icing my head to get relief. I moved up to 20mg to try to address this as I suspected that
Hi again,I had contacted you all last week to ask you advice about a possible PMR attack. The pain was addressed at 15mg, but I started having those dreadful headaches in my temples/jaw/neck, etc and had been icing my head to get relief. I moved up to 20mg to try to address this as I suspected that
Feathercraft
in
PMRGCAuk
1 year ago
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