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Clinical trial discussion with Black and African American men in the USA
A pharmaceutical company wants to discuss clinical trials with Black and African American men in the USA. If interested, please email me at darryl@malecare.org Here's what's on offer: Each advisory board would be conducted a single, 2-hour virtual meeting (early May 2023 timing – exact date/time TBD
A pharmaceutical company wants to discuss clinical trials with Black and African American men in the USA. If interested, please email me at darryl@malecare.org Here's what's on offer: Each advisory board would be conducted a single, 2-hour virtual meeting (early May 2023 timing – exact date/time TBD
Darryl
Partner
in
Advanced Prostate Cancer
1 year ago
boils and lupus
Hi all, Still fighting to get any support even though it has been confirmed I have lupus! I now have started to get giant boils in my groin and armpit. Does anyone else get these? Sorry about the graphic image 😞 I am in so much pain and all my neck glands are up too.
Hi all, Still fighting to get any support even though it has been confirmed I have lupus! I now have started to get giant boils in my groin and armpit. Does anyone else get these? Sorry about the graphic image 😞 I am in so much pain and all my neck glands are up too.
M0wnt
in
LUPUS UK
1 year ago
Recent Diagnosed - Gleason 4+4=8
Initial diagnosis in February with PSA 4.38. Biopsy shows highest Gleason 8. CT scan found 3 lung nodules, in both lower lobes with largest approx 5mm, but undetermined. Bone scan clear as well as rest of CT scan. Surgery (DaVinci) scheduled April 5th. Any thoughts or experiences based on this much
Initial diagnosis in February with PSA 4.38. Biopsy shows highest Gleason 8. CT scan found 3 lung nodules, in both lower lobes with largest approx 5mm, but undetermined. Bone scan clear as well as rest of CT scan. Surgery (DaVinci) scheduled April 5th. Any thoughts or experiences based on this much
Eightydeuce
in
Advanced Prostate Cancer
1 year ago
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Waiting for biopsy results
I recently had a mammogram and it was quickly followed up with a second appointment. The night before my second appointment I checked my breasts, and was horrified to find quite a large lump in my left breast. Prior to that I had not had any pain, dimpling or suspicion of an abnormality. I went to
I recently had a mammogram and it was quickly followed up with a second appointment. The night before my second appointment I checked my breasts, and was horrified to find quite a large lump in my left breast. Prior to that I had not had any pain, dimpling or suspicion of an abnormality. I went to
13cats-lives
in
My Breast Cancer Community
1 year ago
Radiotherapy
Hello ; I've posted on this previously ; I thought I would try again , in the hope some members might see it this time that may have missed it last time : I have long standing APS and SLE and am about to embark on radiotherapy treatment for Prostate Cancer. Does anyone have any knowledge or opinions
Hello ; I've posted on this previously ; I thought I would try again , in the hope some members might see it this time that may have missed it last time : I have long standing APS and SLE and am about to embark on radiotherapy treatment for Prostate Cancer. Does anyone have any knowledge or opinions
jamesroybuck
in
LUPUS UK
1 year ago
Berberine - does anyone have experience of taking this for PAF?
I’m going to have a pace and ablate in a few weeks time, so I started watching videos about it by the York Cadiologist (great guy!). On one of the videos I tripped across a comment where a chap said he had to stop taking Flecainide because of the adverse side effects (that’s me too!) and had started
I’m going to have a pace and ablate in a few weeks time, so I started watching videos about it by the York Cadiologist (great guy!). On one of the videos I tripped across a comment where a chap said he had to stop taking Flecainide because of the adverse side effects (that’s me too!) and had started
Dippy22
in
AF Association
1 year ago
Decided to have a robot assisted laparoscopic radical prostatectomy - update
Reasons for my decision: I made a decision based on my understanding, see below. Radiation - no effect on urinary leakage, sexual function initially preserved but wanes for most, limited options for salvage - if cancer recurs treatment is palliative/non curative, long term radiation damage to bladder
Reasons for my decision: I made a decision based on my understanding, see below. Radiation - no effect on urinary leakage, sexual function initially preserved but wanes for most, limited options for salvage - if cancer recurs treatment is palliative/non curative, long term radiation damage to bladder
Hockeyforever
in
Prostate Cancer Network
1 year ago
Positive Margins -- Will I need additional treatment?
3 months post RALP and PSA is undetectable by standard test. My surgical pathology results are pasted below. Do you think I will need additional treatment? I have not spoken to my urologist yet, since the PSA results just came in. Whatever he says, I may consider getting a 2nd opinion from Johns
3 months post RALP and PSA is undetectable by standard test. My surgical pathology results are pasted below. Do you think I will need additional treatment? I have not spoken to my urologist yet, since the PSA results just came in. Whatever he says, I may consider getting a 2nd opinion from Johns
SmasherOfAjumma
in
Prostate Cancer Network
1 year ago
tumor markers
hi everyone! I’m new to the MBC community! After 7 years of being clear and told I was “cured” of BC it came back 8/2022 in my pelvis. I’m just curious about my tumor markers! They have been slowly going up and then down and the. Up again. This last month my ca 153 went up by 20 while my ca 2729 went
hi everyone! I’m new to the MBC community! After 7 years of being clear and told I was “cured” of BC it came back 8/2022 in my pelvis. I’m just curious about my tumor markers! They have been slowly going up and then down and the. Up again. This last month my ca 153 went up by 20 while my ca 2729 went
DianaSav
in
SHARE Metastatic Breast Cancer
1 year ago
CA 27.29 Blood Testing
Hi All, It's been about 3 years(2020) since I was diagnosed with HER2 + breast cancer. I had undergone a double mastectomy and a full year of chemo. During my twice a year check-ups (every 6 months) I was always given a Cancer Antigen( CA 27.29) blood test, but with this visit this test was not done
Hi All, It's been about 3 years(2020) since I was diagnosed with HER2 + breast cancer. I had undergone a double mastectomy and a full year of chemo. During my twice a year check-ups (every 6 months) I was always given a Cancer Antigen( CA 27.29) blood test, but with this visit this test was not done
Karina66
in
SHARE Breast Cancer Support
1 year ago
Diet & Fasting/Chemo
Hi all, new here, and diagnosed with Ovarian cancer. I had a huge tumor removed last week; now waiting for the biopsy results. A second surgery is planned to removed the womb, other ovary and lymph nodes, just in case of spread, though the surgeon is confident that he got the whole tumor out in one and
Hi all, new here, and diagnosed with Ovarian cancer. I had a huge tumor removed last week; now waiting for the biopsy results. A second surgery is planned to removed the womb, other ovary and lymph nodes, just in case of spread, though the surgeon is confident that he got the whole tumor out in one and
Hailun
in
My Ovacome
1 year ago
Almost forgot I have PC
I have been off the grid for a while. Back in late November, I started having bladder problems including bleeding, urgency, frequency and incontinence. In December I was diagnosed with stage 3/b bladder cancer. In late January I had open Cystectomy and was in the hospital for 10 days. My MO put my PC
I have been off the grid for a while. Back in late November, I started having bladder problems including bleeding, urgency, frequency and incontinence. In December I was diagnosed with stage 3/b bladder cancer. In late January I had open Cystectomy and was in the hospital for 10 days. My MO put my PC
old64horn
in
Advanced Prostate Cancer
1 year ago
Small Vestibular Schwannoma
On 12/21/22, I was sitting at home and my left ear suddenly began to ring. It did not stop, so the next morning I called my doctor and set up an appointment. He wanted to make sure that I didn't have a sinus issue, so he put my on some common sinus medication for two weeks and told me to advise
On 12/21/22, I was sitting at home and my left ear suddenly began to ring. It did not stop, so the next morning I called my doctor and set up an appointment. He wanted to make sure that I didn't have a sinus issue, so he put my on some common sinus medication for two weeks and told me to advise
DBC82
in
Acoustic Neuroma Support
1 year ago
constipation after cabazitaxel
Hello everyone I have a lot of constipation after my first infusion what are the ways to mitigate Best regards
Hello everyone I have a lot of constipation after my first infusion what are the ways to mitigate Best regards
Wakaka
in
Advanced Prostate Cancer
1 year ago
Berberine / Curcurmin essential oils?
I’ve been reading about use of Berberine, curcurmin, clove and cinnamon oils for SIBO/ SIFO symptoms. (In Dr William Davies book supergut) I’m pretty much there with resolving my GI issues so reticent to mess around, but you know how it goes, I’m also curious as to whether it could be even better.
I’ve been reading about use of Berberine, curcurmin, clove and cinnamon oils for SIBO/ SIFO symptoms. (In Dr William Davies book supergut) I’m pretty much there with resolving my GI issues so reticent to mess around, but you know how it goes, I’m also curious as to whether it could be even better.
Regenallotment
in
Thyroid UK
1 year ago
Having pectus carinatum and PC would radiotherapy or chemotherapy affect the strength of the rib cage structure?
I have PC but also epilepsy which I have had for over fifty years, over 400 + seizures thus weakened my rib cage structure [affected by pectus carinatum/pigeon chest] over the years thus likely to refracture. I have had radiotherapy but would that or chemotherapy affect the bone strength of my rib cage
I have PC but also epilepsy which I have had for over fifty years, over 400 + seizures thus weakened my rib cage structure [affected by pectus carinatum/pigeon chest] over the years thus likely to refracture. I have had radiotherapy but would that or chemotherapy affect the bone strength of my rib cage
Adlon57
in
Advanced Prostate Cancer
1 year ago
(1) Update on Novartis Pluvicto shortage . . . and (2) FDA’s (sNDA) for Illuccix to help with it.
(1)
Here is a update via MedPage Today on the shortage of Novartis' Plucvicto LU-177 drug and the sNDA for Illuccix. The following statement from Novartis summarizes the current situation and projections for the next year: *********************************************************************
(1)
Here is a update via MedPage Today on the shortage of Novartis' Plucvicto LU-177 drug and the sNDA for Illuccix. The following statement from Novartis summarizes the current situation and projections for the next year: *********************************************************************
cujoe
in
Fight Prostate Cancer
1 year ago
can’t eat
I’m on Kisqali and exemestane and can’t taste most food. Everything else either tastes like chemicals or something equally awful. The bottom line, I’m not eating. Once I get the wrong reaction, I start to be repulsed by the idea of anything going into my mouth. Any suggestions?
I’m on Kisqali and exemestane and can’t taste most food. Everything else either tastes like chemicals or something equally awful. The bottom line, I’m not eating. Once I get the wrong reaction, I start to be repulsed by the idea of anything going into my mouth. Any suggestions?
kkrouse
in
SHARE Metastatic Breast Cancer
1 year ago
Starting Xeloda soon
I am a rare case for Johns Hopkins. Dx de novo ER/Pr +, Her2 - almost 8 years ago. Two very tiny liver mets only. Did extremely well and achieved NED status on Ibrance and AI for 6.5 years when we noticed the primary site of cancer in the breast was growing. Switched to Faslodex and Fulvestrant.
I am a rare case for Johns Hopkins. Dx de novo ER/Pr +, Her2 - almost 8 years ago. Two very tiny liver mets only. Did extremely well and achieved NED status on Ibrance and AI for 6.5 years when we noticed the primary site of cancer in the breast was growing. Switched to Faslodex and Fulvestrant.
MeeyaNicole
in
SHARE Metastatic Breast Cancer
1 year ago
Subtype Switch
Has anyone experienced a switch in their subtype? I went from ER+PR+HER2- to TNBC/HER2Low. Curious as to others experience with this and treatment. Currently on Enhertu which I started actually a month before confirming unfortunate mutation to TNBC. We already realized I was HER2Low and wanted to
Has anyone experienced a switch in their subtype? I went from ER+PR+HER2- to TNBC/HER2Low. Curious as to others experience with this and treatment. Currently on Enhertu which I started actually a month before confirming unfortunate mutation to TNBC. We already realized I was HER2Low and wanted to
Dancer1000
in
SHARE Metastatic Breast Cancer
1 year ago
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