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New to the form
hello, My mum sent me this information with the hopes that I can find support and information as I’m starting out my journey. I had been having irregular periods and lower back pain for a few months. I would take medication and just push on. In December, I had such severe pain I called my husband
hello, My mum sent me this information with the hopes that I can find support and information as I’m starting out my journey. I had been having irregular periods and lower back pain for a few months. I would take medication and just push on. In December, I had such severe pain I called my husband
Trixie-boo
in
My Ovacome
6 months ago
Scan shows spreading despite chemo but surgery going ahead..confused 🤔
Hello alI I have stage 4 clear cell carcinoma, had a scan this week and got the results today. My gynae nurse said she could only tell me what was written on a scrap bit of paper which left me with more questions than answers (not impressed with this). I will call again next week but meantime wondered
Hello alI I have stage 4 clear cell carcinoma, had a scan this week and got the results today. My gynae nurse said she could only tell me what was written on a scrap bit of paper which left me with more questions than answers (not impressed with this). I will call again next week but meantime wondered
Kazzh
in
My Ovacome
6 months ago
confused
Hi ladies So….. I had my scan results from 23rd December yesterday . I was told by Onc nurse that the cancer was stable ( it is inoperable) My CA125 at diagnosis back in March 23 was 9000 but during chemo treatment there was a steady decline and prior to the scan it stood at 2000. I don’t understand
Hi ladies So….. I had my scan results from 23rd December yesterday . I was told by Onc nurse that the cancer was stable ( it is inoperable) My CA125 at diagnosis back in March 23 was 9000 but during chemo treatment there was a steady decline and prior to the scan it stood at 2000. I don’t understand
Beaver54
in
My Ovacome
6 months ago
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Operations
I was just wondering if anyone has gone through an operation that's nothing to do with your liver. I have two fingers on my right hand that are completely bent over and I have no movement. The hospital gave me four options:- 1. leave it as it is. 2. A slight operation that could partially make them straight
I was just wondering if anyone has gone through an operation that's nothing to do with your liver. I have two fingers on my right hand that are completely bent over and I have no movement. The hospital gave me four options:- 1. leave it as it is. 2. A slight operation that could partially make them straight
Furpal
in
British Liver Trust
1 year ago
Update re carbimazole.
I haven't posted for a while since my husband ended up in hospital.The update is he was taken off carbimazole as he could not tolerate it. Saw Endocrinologist last Friday and he will be having Radioactive Iodine treatment to deal with his remaining half of the gland. Surgery isn't an option nor is
I haven't posted for a while since my husband ended up in hospital.The update is he was taken off carbimazole as he could not tolerate it. Saw Endocrinologist last Friday and he will be having Radioactive Iodine treatment to deal with his remaining half of the gland. Surgery isn't an option nor is
1digits0
in
Thyroid UK
1 year ago
Any insight into # platinum chemo cycles?
So I'm about to start cisplatinum + etoposide chemo cycles on wed. next week for NECP/SCCP. The first irritant I have of which I'm sure will not be the only one is: I have no idea what the treatment plan is, I don't know how many cycles I'm scheduled for and what the treatment goal is. Researching
So I'm about to start cisplatinum + etoposide chemo cycles on wed. next week for NECP/SCCP. The first irritant I have of which I'm sure will not be the only one is: I have no idea what the treatment plan is, I don't know how many cycles I'm scheduled for and what the treatment goal is. Researching
skiingfiend
in
Advanced Prostate Cancer
6 months ago
Sacituzumab govitecan
I recently had more scans and unfortunately my cancer has spread to my lungs and more in my liver.My bone mets are not to bad but two active ones in my T2 and Right hip even though I had recently had radiotherapy on them again for palliative pain relief. I have been on four lines of treatment in 17 months
I recently had more scans and unfortunately my cancer has spread to my lungs and more in my liver.My bone mets are not to bad but two active ones in my T2 and Right hip even though I had recently had radiotherapy on them again for palliative pain relief. I have been on four lines of treatment in 17 months
Cherry38
in
SHARE Metastatic Breast Cancer
6 months ago
Xeloda Anxiety
I was supposed to begin Xeloda today. For some reason, I am paranoid. First, I'm thinking my dose is too high. I weigh 168 pounds, 5’4” and my team has me scheduled to take 2000 mg twice a day. I think that’s a lot. Anyone else similar in size to me taking this high of a dose? Am I just paranoid. I
I was supposed to begin Xeloda today. For some reason, I am paranoid. First, I'm thinking my dose is too high. I weigh 168 pounds, 5’4” and my team has me scheduled to take 2000 mg twice a day. I think that’s a lot. Anyone else similar in size to me taking this high of a dose? Am I just paranoid. I
CTGirl1962
in
SHARE Metastatic Breast Cancer
6 months ago
Skin cancer does not discriminate!
It’s a common misconception that people with darker skin tones are immune to skin cancer. Individuals of all skin types, from all ethnicities can develop skin cancer. The term ’skin of colour’ refers to diverse skin colours which includes people of Asian, African, Latino, Middle Eastern and Native
It’s a common misconception that people with darker skin tones are immune to skin cancer. Individuals of all skin types, from all ethnicities can develop skin cancer. The term ’skin of colour’ refers to diverse skin colours which includes people of Asian, African, Latino, Middle Eastern and Native
SkcinHQ
Partner
in
Skin Cancer UK
1 year ago
Lower Right Abdominal Pain
Hi Everyone, I am 24 years old, and been having stomach problems since last September (6 months), I have pain in the lower right side of the abdomen and sometimes I see drops of bright or streaks of red blood in my stool, and after poo*** my anus burns and itches, I noticed that blood only appears
Hi Everyone, I am 24 years old, and been having stomach problems since last September (6 months), I have pain in the lower right side of the abdomen and sometimes I see drops of bright or streaks of red blood in my stool, and after poo*** my anus burns and itches, I noticed that blood only appears
bianco9685
in
IBS Network
6 months ago
NOT SURE
Hey all, I am new to this forum. I have had a lot of health issues over the last 4 years with my heart. During a PET scan of the heart the tests showed a "hot spot" on my ovary. The SUV is 3.9, the mass is on a 3.5cm ovarian cyst and is 1.5 cm soft tissue. I also had a CT back in 2020 that revealed
Hey all, I am new to this forum. I have had a lot of health issues over the last 4 years with my heart. During a PET scan of the heart the tests showed a "hot spot" on my ovary. The SUV is 3.9, the mass is on a 3.5cm ovarian cyst and is 1.5 cm soft tissue. I also had a CT back in 2020 that revealed
Gigioffour
in
My Ovacome
6 months ago
Mother Diagnosed with Stage 4 OC, recurrence, now liver traces
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only
akhilsalwan
in
My Ovacome
6 months ago
Mother Diagnosed with Stage 4 OC - Recurrence, now Liver traces
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only to
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only to
akhilsalwan
in
OvaCare
6 months ago
Prostate MRI results - Advice appreciated
Hello Everyone, I would like to provide update and seek advice since I got a Prostate MRI at Johns Hopkins a week ago. I have included links to my past post for reference: https://healthunlocked.com/prostate-cancer-community/posts/149682755/sadly-ive-joined-the-pca-club-... https://healthunlocked.com
Hello Everyone, I would like to provide update and seek advice since I got a Prostate MRI at Johns Hopkins a week ago. I have included links to my past post for reference: https://healthunlocked.com/prostate-cancer-community/posts/149682755/sadly-ive-joined-the-pca-club-... https://healthunlocked.com
nvidia-ati
in
Prostate Cancer Network
6 months ago
On treating micro-metastatic disease
I watched a video posted by PCRI recently on YouTube. In the video entitled "Treating micro-metastatic disease", Dr Mark Scholz mentioned that undergoing one year of ADT is sufficient post radiation. Thereafter just monitor the PSA for any rise, and use PSMA PET scan to locate any cancer and to radiate
I watched a video posted by PCRI recently on YouTube. In the video entitled "Treating micro-metastatic disease", Dr Mark Scholz mentioned that undergoing one year of ADT is sufficient post radiation. Thereafter just monitor the PSA for any rise, and use PSMA PET scan to locate any cancer and to radiate
John347
in
Advanced Prostate Cancer
6 months ago
Colon cancer after CLL diagnosis
Things were going so well. At 63 and while living in France for a work contract, my husband, who already has HF low EF (which I managed to improve recently to an EF of 43%) and who has always been in excellent shape with diet and physical exercise, was diagnosed with CLL in the spring of 2023 . We
Things were going so well. At 63 and while living in France for a work contract, my husband, who already has HF low EF (which I managed to improve recently to an EF of 43%) and who has always been in excellent shape with diet and physical exercise, was diagnosed with CLL in the spring of 2023 . We
Minou1
in
CLL Support
6 months ago
pet scan result ?? Meaning?
There is tracer uptake within both lobes of the thyroid, left significantly more than the right. The high-grade tracer uptake within the left lobe of thyroid corresponds to a 19 mm nodule. Physiological brown fat within bilateral neck, supraclavicular fossa and mediastinum. Physiological tracer uptake
There is tracer uptake within both lobes of the thyroid, left significantly more than the right. The high-grade tracer uptake within the left lobe of thyroid corresponds to a 19 mm nodule. Physiological brown fat within bilateral neck, supraclavicular fossa and mediastinum. Physiological tracer uptake
Jo-boo64
in
Thyroid UK
6 months ago
Pericardial Window
I had my 2cd thoracentesis. It was more painful and for a very long time. They did drain a little more 950 ml. I am waiting for a thoracic surgery appointment. We will discuss possible placement of a pleural catheter for drainage, possible pleurodesis. And something new: turns out a lot of the chest
I had my 2cd thoracentesis. It was more painful and for a very long time. They did drain a little more 950 ml. I am waiting for a thoracic surgery appointment. We will discuss possible placement of a pleural catheter for drainage, possible pleurodesis. And something new: turns out a lot of the chest
NPmary
in
SHARE Metastatic Breast Cancer
6 months ago
64Cu-SAR-bisPSMA Is Safe and Highly Effective in Detecting Tumours in Prostate Cancer Patients: results from COBRA trial
This could mean being way more precise in finding micro metastasis and in guided surgery! https://www.urotoday.com/recent-abstracts/urologic-oncology/prostate-cancer/149903-initial-cobra-results-clarity-s-sar-bispsma-is-safe-and-highly-effective-in-detecting-tumours-in-prostate-cancer-patients-phase
This could mean being way more precise in finding micro metastasis and in guided surgery! https://www.urotoday.com/recent-abstracts/urologic-oncology/prostate-cancer/149903-initial-cobra-results-clarity-s-sar-bispsma-is-safe-and-highly-effective-in-detecting-tumours-in-prostate-cancer-patients-phase
Maxone73
in
Advanced Prostate Cancer
6 months ago
High volume, advanced metastatic prostate cancer
Hello. I am looking for guidance. My dad (now 81) was diagnosed with metastatic prostate cancer at the initial point of diagnosis in the ER on 10/25/2022. It had spread to 8 bones and was all over his spine, hip, base of skull, etc, but also as far as the base of the skull, and shoulder. His PSA was
Hello. I am looking for guidance. My dad (now 81) was diagnosed with metastatic prostate cancer at the initial point of diagnosis in the ER on 10/25/2022. It had spread to 8 bones and was all over his spine, hip, base of skull, etc, but also as far as the base of the skull, and shoulder. His PSA was
lgutman
in
Advanced Prostate Cancer
6 months ago
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