I was just wondering if anyone has gone through an operation that's nothing to do with your liver. I have two fingers on my right hand that are completely bent over and I have no movement. The hospital gave me four options:- 1. leave it as it is. 2. A slight operation that could partially make them straight but no guarantee.
3. ( this is the one that concerns me) have a full operation including skin grafts which they basically said it could end up as your life or your fingers. Due to blood loss and not being able to heal.
4. Amputation.
Has anyone had this predicament before not necessarily with your fingers but any type of operation ? I would like you to let me know what you did to help me weigh up my options.
In anticipation
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Furpal
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I have reverse flow so I think that's what they are on about. Would you believe nobody has actually told me how bad it is. All they say is people with cirrhosis can live a long while. I have asked my doctor and my consultant.
Hi again. You need to check this with your hepatolgist as someone else said. I ended up in a serious situation when I fractured my femur. At the same time, i also tested pos for Covid in a & e.
I only thought I had mild cihrossis just before this op. I had the op done awake, heavily sedated. I went into a coma 2 days after my operation for nearly 5 weeks. I nearly died twice of multiple organ failure. My hepatologist does not know how much Covid played a part in this. I was diagnosed with hepatic encephalopathy (coma) whilst in hospital. My son says I had full jaundice, ascites and I nearly died twice of kidney and liver failure. My liver just couldn't cope with healing my leg (also fractured my spine) as it was damaged.
I'd never had ascites or jaundice before. In hospital I was diagnosed with HE and Decompensated cihrossis. 3 months later my liver was compensated. Could have been Covid related. From my experience of what happened to me I don't want any more operations. I'm supposed to have my gallbladder removed as its full of stones. I'm not having this done unless it's 100% necessary. Definitely get all the facts first. Good luck with everything x
Crikey, you have been through the mill. Yes thanks to people like you chatting to me I obviously have a lot to think about. I hope you are doing well. My next step is my doctors so hopefully I will know more then.Much appreciated.
Yes I am due to do that but just wondering if anyone had a similar problem. It was more for the emotional support. I don't intend to do anything until I have covered all bases.
When I had my hip replacement op, I was given an epidural anaesthetic as a precaution. I also had to have the op in the main hospital, as opposed to the "private" wing in case of emergency bleeding. I also had a coagulation test immediately before the op. All went well, no excessive bleed. You need to ensure that the consultant operating on your fingers liaises with your hematologist - hospital departments are not good at communicating with each other.
Thank you, right now I am feeling a bit left out of my diagnosis. I have booked an appointment to see my doctor see what they say. Your input has been great thank you.
Hello love. Erm, where to start.....I'd had a large hernia for 18 month before any of my serious cirrhosis symptoms began....due to heavy manual job.....
I had an appointment for it to be operated on, in the February, in the previous November, taken in to hospital with bad ascites and jaundice.......
Back out of hospital for Xmas,middle of January rushed back in to hospital with serious variceal bleed......ascites, jaundiced, all the serious symptoms you can think of.
By the time I was discharged, and back home, a letter was waiting to say my hernia op had been cancelled.
They would not perform it,as my bloods were way out of range......and coagulation issues.
I phoned up about it, the nurse who I spoke with said,that I may not of come of the table alive!!!!. Obviously that scared me, so I understood why it couldn't be done.
Things did slowly improve....operation was done approx 12 month later.
Thanks Chris I came out of that hospital last Friday in tears. It is obviously very dangerous. I am so upset because I can't drive anymore and I feel horrible with my hand the way it is. I am beginning to believe it will either be my fingers or my life. So of course there is no contest. Now I am worrying about dental treatment I need. I will write down all the questions I have for the doctor and see what they say. I am up now its just going round and round in my head. Thank you for the information I will keep you and the lovely people who have replied. Posted.
Hi … it’s a dilemma when you have different conditions affecting your quality of life just for info I have PBC but have just undergone a complete knee replacement 2 wks ago it’s early days but all went really well and I’m looking forward to a more mobile future I’d tried steroid injections etc but developed a very bad limp and constant pain resulting in so much pain relief meds I felt that was more damaging to my liver x
They are sending me to an anesthetist to see what they think. Thanks for taking the time to post .You are so right saying its a dilemma I had never thought about having other ops and what the consequences might be.
Hi Furpal, you didn't say why your fingers are bent. Just an FYI, my husband, who does NOT have liver disease, has Dupuytrens Contracture in his ring finger, non-dominant hand, the bent finger was getting in the way. He had a Xiaflex shot and a few minutes later the doc physically straightened his finger. It was so painful he passed out. If I remember correctly the 1 shot cost about $5,000 U.S. His finger is straight, but 2 years later it still has no grip and not as much blood supply, it turns white and gets cold. He thinks the operation to release the tendons might have been better. I don't know if Xiaflex is an option, but it doesn't sound like you have many good choices. Good luck!
Many thanks for this information. Apparently there is no particular cause. One of my options was for me to have my fingers "snapped" back. That term was used by the consultant. From what you have mentioned to me I think I will chicken out of that one 😂🐔🐔. They have been on a steady course bending this way for a few years. From what lovely people such as yourself are chatting about. Even though they do annoy me, get in the way and put blocks in the middle of my usual routine It looks like they will stay as they are. It's driving that worries me a lot. I enjoy it but haven't driven now since this started. I do have my blood supply and have feelings in them. Let's see what the Dr has to say.Thank you.
I had a toe amputated in December due to osteoarthritis and had no problems with the operation and recovery.The surgeon said she could try to repair the deformed toe but that more than likely it would revert to how it was before the op. I opted for local anaesthetic rather than general as recovery is much quicker and went out for dinner that evening. Obviously you have to consider amputation of fingers seriously as it will have more effect than losing a toe. Definitely have whatever you decide on by local anaesthetic. I didn’t feel a thing.
Thank you, I received a letter today, the anaesthetist wants to see me before I make a move. At least they are covering all bases.Unfortunately it is my two middle fingers. They showed me a picture of an amputation they did on some end fingers. That didn't look so bad as they shaped the hand. With mine I would just have a big gap in the middle. I nearly drop things as it is. With such a big gap I wouldn't have a chance nor much of my dinner service left either 😆 I have to smile otherwise I would just go to pieces.
Good luck with whatever you decide. I think with fingers I would opt for reconstruction If it is Depuyten’s contracture I believe they get good results
yes, I had to have a fungal mass removed from my right sinus before they would asses me for transplant. I had one option local anaesthetic or be dead in 6 months at most. I could not have a general anaesthetic as they said I would wake up from it.
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