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Big decisions regarding SRT and ADT for BCR
My husband was had a robotic radical prostatectomy 1/2019 with no major complications or side effects. Gleason 4+3, negative margins and no positive lymph nodes. There was cribiform invasion of a nerve but all margins of the prostate and 0/13 LN were negative after surgery. His post surgical PSA was
My husband was had a robotic radical prostatectomy 1/2019 with no major complications or side effects. Gleason 4+3, negative margins and no positive lymph nodes. There was cribiform invasion of a nerve but all margins of the prostate and 0/13 LN were negative after surgery. His post surgical PSA was
shihtzu124
in
Prostate Cancer Network
7 months ago
PSA Doubled in 2 Months
PSA end of August was 0.12 now 0.24. I met with 2 ROs to discuss treatment when my PSA was 0.20 a week ago . One suggested ADT 18-24 months and prostate bed radiation. Second RO says we can avoid ADT for now as he sees 0.70 as the value he believes requires ADT. I'm scheduled for F18 PSMA scan in early
PSA end of August was 0.12 now 0.24. I met with 2 ROs to discuss treatment when my PSA was 0.20 a week ago . One suggested ADT 18-24 months and prostate bed radiation. Second RO says we can avoid ADT for now as he sees 0.70 as the value he believes requires ADT. I'm scheduled for F18 PSMA scan in early
NJWarrior
in
Advanced Prostate Cancer
7 months ago
The Results are in
Hello wonderful people. Just a quick update as I am so relieved I had to tell you. I have just put the phone down from my fabulous ENT Consultant. She had just received the results of the mass from the lab and wanted to tell me the good news. No cancer but an haemangioma. She confided that she had really
Hello wonderful people. Just a quick update as I am so relieved I had to tell you. I have just put the phone down from my fabulous ENT Consultant. She had just received the results of the mass from the lab and wanted to tell me the good news. No cancer but an haemangioma. She confided that she had really
CecilyParsley
in
LUPUS UK
4 months ago
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Good Bye Xeloda
Turns out all my anxiety over taking Xeloda was warranted (for me). I wanted to THANK all of you beautiful people who helped me through my decision. I appreciate ALL of you so much!! I ended up starting it last Wednesday and my doctor lowered my dose to start. She put me on 1500mg twice a day. I
Turns out all my anxiety over taking Xeloda was warranted (for me). I wanted to THANK all of you beautiful people who helped me through my decision. I appreciate ALL of you so much!! I ended up starting it last Wednesday and my doctor lowered my dose to start. She put me on 1500mg twice a day. I
CTGirl1962
in
SHARE Metastatic Breast Cancer
4 months ago
Whats high PSA? ( when you havent been diagnosed with prostate cancer)
After father was diagnosed. Several family member went and tested themselves with PSA tests. My husband was 39 years old and his PSA test came back 1,9 and this year at 40 years his PSA was 1,6, free PSA added 0,4 ( which was good). I read somewhere that PSA 1,5 and higher is of concern. I feel
After father was diagnosed. Several family member went and tested themselves with PSA tests. My husband was 39 years old and his PSA test came back 1,9 and this year at 40 years his PSA was 1,6, free PSA added 0,4 ( which was good). I read somewhere that PSA 1,5 and higher is of concern. I feel
Daddysgirl83
in
Advanced Prostate Cancer
7 months ago
AUS revision surgery?
I'm seeking advice on having a second AUS surgery. My background: I had a prostatectomy in 2016 and radiation a year later because the cancerous tumor had penetrated the sack. I have since had undetected PSA but have suffered with severe stress incontinence. I had AUS surgery in 2018 but it failed because
I'm seeking advice on having a second AUS surgery. My background: I had a prostatectomy in 2016 and radiation a year later because the cancerous tumor had penetrated the sack. I have since had undetected PSA but have suffered with severe stress incontinence. I had AUS surgery in 2018 but it failed because
allnewstuff
in
Advanced Prostate Cancer
4 months ago
PSA bounce after LDR brachytherapy?
Hi all, First, an update, as my last full update about various issues was five weeks after LDR brachytherapy (almost two years ago), in which I reported that, thankfully, I had no urinary, bowel, or sexual function issues. That update is here in the link below, and I'm happy to report that it's all
Hi all, First, an update, as my last full update about various issues was five weeks after LDR brachytherapy (almost two years ago), in which I reported that, thankfully, I had no urinary, bowel, or sexual function issues. That update is here in the link below, and I'm happy to report that it's all
NYC_talker
in
Prostate Cancer Network
7 months ago
Feasibility of someone from out of USA joining a clinical trial in USA?
My father has Prostate cancer (stage IV) and High Grade Neuro-endocrine cancer / Small Cell Carcinoma in liver. His six doses of Chemotherapy (carboplatin + etoposide) that ended seven weeks earlier. My understanding is that chemotherapy is the established regimen for High Grade NE Cancer/SCC. Are
My father has Prostate cancer (stage IV) and High Grade Neuro-endocrine cancer / Small Cell Carcinoma in liver. His six doses of Chemotherapy (carboplatin + etoposide) that ended seven weeks earlier. My understanding is that chemotherapy is the established regimen for High Grade NE Cancer/SCC. Are
RindaMan
in
Advanced Prostate Cancer
4 months ago
PSA level six months Eligard
I was diagnosed with PC in September 2022 with PSA level of 35 and had my prostate removed in January 2023. Since then, I started ADT in June 2023 and went through 39 sessions of SRT. My current PSA is 0.008 ng/mL. My doctor gave me a choice of continue with ADT for another six months which I already
I was diagnosed with PC in September 2022 with PSA level of 35 and had my prostate removed in January 2023. Since then, I started ADT in June 2023 and went through 39 sessions of SRT. My current PSA is 0.008 ng/mL. My doctor gave me a choice of continue with ADT for another six months which I already
toyman79912
in
Advanced Prostate Cancer
7 months ago
twisedsis
waiting for breast cancer index test results to see if continuing Anastrozole will help prevent recurrence. Diagnosed at age 60 w/IDC St1bn0 Oncoscore 33 so did 4 rounds of tc, radiation after lumpectomy. Did 18 mo of Tamoxifen and switched to Anastrozole due to liver changes and had gallbladder removed
waiting for breast cancer index test results to see if continuing Anastrozole will help prevent recurrence. Diagnosed at age 60 w/IDC St1bn0 Oncoscore 33 so did 4 rounds of tc, radiation after lumpectomy. Did 18 mo of Tamoxifen and switched to Anastrozole due to liver changes and had gallbladder removed
Twistedsis
in
SHARE Breast Cancer Support
7 months ago
Nano Knife Surgery
I recently underwent a brand new surgical procedure called nano knife. Dr. Mayank Patel in Encino California, a da Vinci robotic and TULSA pro expert surgeon recommended this procedure after a panel of doctors examined my MRI and CT scans. The procedure was successful and five months post surgery
I recently underwent a brand new surgical procedure called nano knife. Dr. Mayank Patel in Encino California, a da Vinci robotic and TULSA pro expert surgeon recommended this procedure after a panel of doctors examined my MRI and CT scans. The procedure was successful and five months post surgery
HangIn66
in
Prostate Cancer Network
4 months ago
Zolodex/Letrozole help?
Hi, I’m hoping someone on here can help me. I was diagnosed with metastatic BC in August last year. I was pre-menopause so I was put on Zolodex injections in October and 6 weeks ago I started Letrozole. A few days ago I started to have some gyne symptoms which had all gone away since being on the
Hi, I’m hoping someone on here can help me. I was diagnosed with metastatic BC in August last year. I was pre-menopause so I was put on Zolodex injections in October and 6 weeks ago I started Letrozole. A few days ago I started to have some gyne symptoms which had all gone away since being on the
CrazyHoundLady
in
SHARE Metastatic Breast Cancer
4 months ago
Progresión
Hi inspiring ladies!! After only 4 months into diagnosis of stage 4 MBC and 3 months on Verzenio and Fulvestrant, my medication has been completely suspended due to progression. More lesions on the bones - pelvis and vértebra. My oncologist has sent off 4 blood samples to a specialist hospital to
Hi inspiring ladies!! After only 4 months into diagnosis of stage 4 MBC and 3 months on Verzenio and Fulvestrant, my medication has been completely suspended due to progression. More lesions on the bones - pelvis and vértebra. My oncologist has sent off 4 blood samples to a specialist hospital to
Tanyateresa
in
SHARE Metastatic Breast Cancer
4 months ago
Moving on to hospice care
many of you have heard from me before at this point. My dad (68, diagnosed almost 2 years ago) had his last appointment with his MO two weeks ago or so. Radium 223 is out of the picture for him as he is just not well and it would not aid his survival at this point. They suggested some radiation for the
many of you have heard from me before at this point. My dad (68, diagnosed almost 2 years ago) had his last appointment with his MO two weeks ago or so. Radium 223 is out of the picture for him as he is just not well and it would not aid his survival at this point. They suggested some radiation for the
StayingSTRNG
in
Advanced Prostate Cancer
4 months ago
Next Steps
My brother was dDiagnosed in March 2023 with widespread prostate cancer metastasized to the spine, pelvic bones, ribs both left and right, and skull and lymph nodes. No progression to any organs. He had a orchiectomy, is on ABIRATERONE 500MG and has just completed six treatments of Doxetaxel .
My brother was dDiagnosed in March 2023 with widespread prostate cancer metastasized to the spine, pelvic bones, ribs both left and right, and skull and lymph nodes. No progression to any organs. He had a orchiectomy, is on ABIRATERONE 500MG and has just completed six treatments of Doxetaxel .
Sparlingo
in
Advanced Prostate Cancer
4 months ago
Prostate Biopsy / Ibrutinib
I am on Ibrutinib for my CLL. Do I stop taking my Ibrutinib for a few days prior and after the biopsy? Thank you.
I am on Ibrutinib for my CLL. Do I stop taking my Ibrutinib for a few days prior and after the biopsy? Thank you.
Dyba
in
CLL Support
4 months ago
First Post for husband and need advice please
This is our basic history. We have appt. with RO tomorrow to talk about next steps. Any advice and questions to ask is much appreciated. PSA- 12/2020 3.3 - 11/2021 4.83 - 04/2022 5.3 Biopsy-06/22- Gleason 3+4, RARP-09/26/2022, Pathology, JH -pT3apN1pM Gleason 3+4 grade 2, 20% pattern 4 of dominant
This is our basic history. We have appt. with RO tomorrow to talk about next steps. Any advice and questions to ask is much appreciated. PSA- 12/2020 3.3 - 11/2021 4.83 - 04/2022 5.3 Biopsy-06/22- Gleason 3+4, RARP-09/26/2022, Pathology, JH -pT3apN1pM Gleason 3+4 grade 2, 20% pattern 4 of dominant
MikeLa08
in
Prostate Cancer Network
4 months ago
radiation or no radiation
I Just updated my profile and am G-9 with PNI, IDC and lymphovascular invasion. Check 2 mutation as well but Decipher at .41. RP Dr V Patel march 2020 (T3b, negative margins and negative lymph nodes) and PSA undetectable until Sept 2023. Started at 0.021 and now Feb 22nd 2024 at 0.052. Seeing Dr
I Just updated my profile and am G-9 with PNI, IDC and lymphovascular invasion. Check 2 mutation as well but Decipher at .41. RP Dr V Patel march 2020 (T3b, negative margins and negative lymph nodes) and PSA undetectable until Sept 2023. Started at 0.021 and now Feb 22nd 2024 at 0.052. Seeing Dr
Peppertree602
in
Advanced Prostate Cancer
4 months ago
Opinion sought for ADT treatment duration
I started taking Orgovyx tablets last April. Then I went through the typical 45 radiation treatments of the prostate. 3 months ago my PSA had dropped from 8 to 0.7. Last week it had dropped to 0.1 ng/ml. A biopsy last year showed 1 sample identified as Gleason 8. My urologist thinks I can stop taking
I started taking Orgovyx tablets last April. Then I went through the typical 45 radiation treatments of the prostate. 3 months ago my PSA had dropped from 8 to 0.7. Last week it had dropped to 0.1 ng/ml. A biopsy last year showed 1 sample identified as Gleason 8. My urologist thinks I can stop taking
Doodlebun
in
Advanced Prostate Cancer
7 months ago
Dry frizzy hair due to MBC medication,
I’ve been on Ibrance and Faslodex for 4-1/2 years. Although I’m thankful that the meds have helped me so far, I would like to know if anyone has found a good shampoo and conditioner to help with dry, straight and frizzy hair, My old shiny and wavy hair changed significantly since start of MBC drugs
I’ve been on Ibrance and Faslodex for 4-1/2 years. Although I’m thankful that the meds have helped me so far, I would like to know if anyone has found a good shampoo and conditioner to help with dry, straight and frizzy hair, My old shiny and wavy hair changed significantly since start of MBC drugs
mspti8383
in
SHARE Metastatic Breast Cancer
4 months ago
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