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Tirosint
Its been 10.5 months since my thyroidectomy. I was at .69 TSH on levothyroxine 100 mgs a day with mega side effects. Doctors just switched me Tirosint 88 mgs a day. Am I to expect more serious changes, again. I lost my voice, got chubby, lost hair, aged, and more. Its been a life-changing experience
Its been 10.5 months since my thyroidectomy. I was at .69 TSH on levothyroxine 100 mgs a day with mega side effects. Doctors just switched me Tirosint 88 mgs a day. Am I to expect more serious changes, again. I lost my voice, got chubby, lost hair, aged, and more. Its been a life-changing experience
AuthorJAR
in
Thyroid UK
7 months ago
treatment or no treatment?
it’s been almost 3 years since i was diagnosed with a Gleason 8 prostate cancer, confined to the prostate. To date I have elected not to be treated but instead have been monitoring my PSA levels. Originally this was 6 now 15. I am 66 with no symptoms and no other health issues. I have declined treatment
it’s been almost 3 years since i was diagnosed with a Gleason 8 prostate cancer, confined to the prostate. To date I have elected not to be treated but instead have been monitoring my PSA levels. Originally this was 6 now 15. I am 66 with no symptoms and no other health issues. I have declined treatment
Mark2025
in
Advanced Prostate Cancer
7 months ago
Newly diagnosed metastatic PC treatment options
Hi, I'm 68 years old. Here are the key points in my story so far: In July 2023 a blood test showed a PSA value of 45. On September 26 2023, prostate MRI showed a dominant tumor in the prostate with extension into the right seminal vesicle. Also the fat plane between the rectum and prostate is lost
Hi, I'm 68 years old. Here are the key points in my story so far: In July 2023 a blood test showed a PSA value of 45. On September 26 2023, prostate MRI showed a dominant tumor in the prostate with extension into the right seminal vesicle. Also the fat plane between the rectum and prostate is lost
ShorePine
in
Advanced Prostate Cancer
7 months ago
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Good Bye Xeloda
Turns out all my anxiety over taking Xeloda was warranted (for me). I wanted to THANK all of you beautiful people who helped me through my decision. I appreciate ALL of you so much!! I ended up starting it last Wednesday and my doctor lowered my dose to start. She put me on 1500mg twice a day. I
Turns out all my anxiety over taking Xeloda was warranted (for me). I wanted to THANK all of you beautiful people who helped me through my decision. I appreciate ALL of you so much!! I ended up starting it last Wednesday and my doctor lowered my dose to start. She put me on 1500mg twice a day. I
CTGirl1962
in
SHARE Metastatic Breast Cancer
4 months ago
AUS revision surgery?
I'm seeking advice on having a second AUS surgery. My background: I had a prostatectomy in 2016 and radiation a year later because the cancerous tumor had penetrated the sack. I have since had undetected PSA but have suffered with severe stress incontinence. I had AUS surgery in 2018 but it failed because
I'm seeking advice on having a second AUS surgery. My background: I had a prostatectomy in 2016 and radiation a year later because the cancerous tumor had penetrated the sack. I have since had undetected PSA but have suffered with severe stress incontinence. I had AUS surgery in 2018 but it failed because
allnewstuff
in
Advanced Prostate Cancer
4 months ago
I'm new here
Hi I'm new here. I am a couple of days out from skin graft surgery to treat chemical burns to the right side of my face. I have complex mental health problems which I have struggled to gain support with over the years and I'm anxious about reaching out to others as my injury was self-inflicted and I
Hi I'm new here. I am a couple of days out from skin graft surgery to treat chemical burns to the right side of my face. I have complex mental health problems which I have struggled to gain support with over the years and I'm anxious about reaching out to others as my injury was self-inflicted and I
Twirlygirlskates
in
Changing Faces
1 year ago
Feasibility of someone from out of USA joining a clinical trial in USA?
My father has Prostate cancer (stage IV) and High Grade Neuro-endocrine cancer / Small Cell Carcinoma in liver. His six doses of Chemotherapy (carboplatin + etoposide) that ended seven weeks earlier. My understanding is that chemotherapy is the established regimen for High Grade NE Cancer/SCC. Are
My father has Prostate cancer (stage IV) and High Grade Neuro-endocrine cancer / Small Cell Carcinoma in liver. His six doses of Chemotherapy (carboplatin + etoposide) that ended seven weeks earlier. My understanding is that chemotherapy is the established regimen for High Grade NE Cancer/SCC. Are
RindaMan
in
Advanced Prostate Cancer
4 months ago
Nano Knife Surgery
I recently underwent a brand new surgical procedure called nano knife. Dr. Mayank Patel in Encino California, a da Vinci robotic and TULSA pro expert surgeon recommended this procedure after a panel of doctors examined my MRI and CT scans. The procedure was successful and five months post surgery
I recently underwent a brand new surgical procedure called nano knife. Dr. Mayank Patel in Encino California, a da Vinci robotic and TULSA pro expert surgeon recommended this procedure after a panel of doctors examined my MRI and CT scans. The procedure was successful and five months post surgery
HangIn66
in
Prostate Cancer Network
4 months ago
Zolodex/Letrozole help?
Hi, I’m hoping someone on here can help me. I was diagnosed with metastatic BC in August last year. I was pre-menopause so I was put on Zolodex injections in October and 6 weeks ago I started Letrozole. A few days ago I started to have some gyne symptoms which had all gone away since being on the
Hi, I’m hoping someone on here can help me. I was diagnosed with metastatic BC in August last year. I was pre-menopause so I was put on Zolodex injections in October and 6 weeks ago I started Letrozole. A few days ago I started to have some gyne symptoms which had all gone away since being on the
CrazyHoundLady
in
SHARE Metastatic Breast Cancer
4 months ago
Progresión
Hi inspiring ladies!! After only 4 months into diagnosis of stage 4 MBC and 3 months on Verzenio and Fulvestrant, my medication has been completely suspended due to progression. More lesions on the bones - pelvis and vértebra. My oncologist has sent off 4 blood samples to a specialist hospital to
Hi inspiring ladies!! After only 4 months into diagnosis of stage 4 MBC and 3 months on Verzenio and Fulvestrant, my medication has been completely suspended due to progression. More lesions on the bones - pelvis and vértebra. My oncologist has sent off 4 blood samples to a specialist hospital to
Tanyateresa
in
SHARE Metastatic Breast Cancer
4 months ago
Moving on to hospice care
many of you have heard from me before at this point. My dad (68, diagnosed almost 2 years ago) had his last appointment with his MO two weeks ago or so. Radium 223 is out of the picture for him as he is just not well and it would not aid his survival at this point. They suggested some radiation for the
many of you have heard from me before at this point. My dad (68, diagnosed almost 2 years ago) had his last appointment with his MO two weeks ago or so. Radium 223 is out of the picture for him as he is just not well and it would not aid his survival at this point. They suggested some radiation for the
StayingSTRNG
in
Advanced Prostate Cancer
4 months ago
Next Steps
My brother was dDiagnosed in March 2023 with widespread prostate cancer metastasized to the spine, pelvic bones, ribs both left and right, and skull and lymph nodes. No progression to any organs. He had a orchiectomy, is on ABIRATERONE 500MG and has just completed six treatments of Doxetaxel .
My brother was dDiagnosed in March 2023 with widespread prostate cancer metastasized to the spine, pelvic bones, ribs both left and right, and skull and lymph nodes. No progression to any organs. He had a orchiectomy, is on ABIRATERONE 500MG and has just completed six treatments of Doxetaxel .
Sparlingo
in
Advanced Prostate Cancer
4 months ago
Caelyx side effects and duration of treatment plus follow up with target therapy or immunotherapy.
Dearest,Thank you for this great forum. Sorry to bug you again with questions about Caelyx...is that I've been reading all your post and some information does not match with my doctor told me ( tomorrow I'm going for a third opinion) >First my doctor told me the side effects from Caelyx are minimum
Dearest,Thank you for this great forum. Sorry to bug you again with questions about Caelyx...is that I've been reading all your post and some information does not match with my doctor told me ( tomorrow I'm going for a third opinion) >First my doctor told me the side effects from Caelyx are minimum
Pumpkininja
in
My Ovacome
7 months ago
1, 3 or 6 month ADT?
Originally, after a prostatectomy and 40 radiation treatments, I had a one month shot of Lupron followed by a six month shot of Lupron. My PSA went to undetectable. Seven years later my PSA crept up to seven and I was put on a monthly shot of Firmagon for life. My PSA is again undetectable and all scans
Originally, after a prostatectomy and 40 radiation treatments, I had a one month shot of Lupron followed by a six month shot of Lupron. My PSA went to undetectable. Seven years later my PSA crept up to seven and I was put on a monthly shot of Firmagon for life. My PSA is again undetectable and all scans
epfj3333
in
Advanced Prostate Cancer
7 months ago
Prostate Biopsy / Ibrutinib
I am on Ibrutinib for my CLL. Do I stop taking my Ibrutinib for a few days prior and after the biopsy? Thank you.
I am on Ibrutinib for my CLL. Do I stop taking my Ibrutinib for a few days prior and after the biopsy? Thank you.
Dyba
in
CLL Support
4 months ago
Big decsions regarding SRT/ADT due to BCR post RP
My husband was had a robotic radical prostatectomy 1/2019 with no major complications or side effects. Gleason 4+3, negative margins and no positive lymph nodes. There was cribiform invasion of a nerve but all margins of the prostate and 0/13 LN were negative after surgery. His post surgical PSA was
My husband was had a robotic radical prostatectomy 1/2019 with no major complications or side effects. Gleason 4+3, negative margins and no positive lymph nodes. There was cribiform invasion of a nerve but all margins of the prostate and 0/13 LN were negative after surgery. His post surgical PSA was
shihtzu124
in
Advanced Prostate Cancer
7 months ago
Big decisions regarding SRT and ADT for BCR
My husband was had a robotic radical prostatectomy 1/2019 with no major complications or side effects. Gleason 4+3, negative margins and no positive lymph nodes. There was cribiform invasion of a nerve but all margins of the prostate and 0/13 LN were negative after surgery. His post surgical PSA was
My husband was had a robotic radical prostatectomy 1/2019 with no major complications or side effects. Gleason 4+3, negative margins and no positive lymph nodes. There was cribiform invasion of a nerve but all margins of the prostate and 0/13 LN were negative after surgery. His post surgical PSA was
shihtzu124
in
Prostate Cancer Network
7 months ago
PSA Doubled in 2 Months
PSA end of August was 0.12 now 0.24. I met with 2 ROs to discuss treatment when my PSA was 0.20 a week ago . One suggested ADT 18-24 months and prostate bed radiation. Second RO says we can avoid ADT for now as he sees 0.70 as the value he believes requires ADT. I'm scheduled for F18 PSMA scan in early
PSA end of August was 0.12 now 0.24. I met with 2 ROs to discuss treatment when my PSA was 0.20 a week ago . One suggested ADT 18-24 months and prostate bed radiation. Second RO says we can avoid ADT for now as he sees 0.70 as the value he believes requires ADT. I'm scheduled for F18 PSMA scan in early
NJWarrior
in
Advanced Prostate Cancer
7 months ago
First Post for husband and need advice please
This is our basic history. We have appt. with RO tomorrow to talk about next steps. Any advice and questions to ask is much appreciated. PSA- 12/2020 3.3 - 11/2021 4.83 - 04/2022 5.3 Biopsy-06/22- Gleason 3+4, RARP-09/26/2022, Pathology, JH -pT3apN1pM Gleason 3+4 grade 2, 20% pattern 4 of dominant
This is our basic history. We have appt. with RO tomorrow to talk about next steps. Any advice and questions to ask is much appreciated. PSA- 12/2020 3.3 - 11/2021 4.83 - 04/2022 5.3 Biopsy-06/22- Gleason 3+4, RARP-09/26/2022, Pathology, JH -pT3apN1pM Gleason 3+4 grade 2, 20% pattern 4 of dominant
MikeLa08
in
Prostate Cancer Network
4 months ago
radiation or no radiation
I Just updated my profile and am G-9 with PNI, IDC and lymphovascular invasion. Check 2 mutation as well but Decipher at .41. RP Dr V Patel march 2020 (T3b, negative margins and negative lymph nodes) and PSA undetectable until Sept 2023. Started at 0.021 and now Feb 22nd 2024 at 0.052. Seeing Dr
I Just updated my profile and am G-9 with PNI, IDC and lymphovascular invasion. Check 2 mutation as well but Decipher at .41. RP Dr V Patel march 2020 (T3b, negative margins and negative lymph nodes) and PSA undetectable until Sept 2023. Started at 0.021 and now Feb 22nd 2024 at 0.052. Seeing Dr
Peppertree602
in
Advanced Prostate Cancer
4 months ago
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