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Blood biopsy
My last PET scan showed progression in my T1, manumbrium (top part of the sternum) and in my pelvis. My oncologist ordered a blood biopsy and the results show that there is no treatment for my mutations. So I had 5 sessions of radiation, each time treating all 3 of my lesions. She is keeping me on
My last PET scan showed progression in my T1, manumbrium (top part of the sternum) and in my pelvis. My oncologist ordered a blood biopsy and the results show that there is no treatment for my mutations. So I had 5 sessions of radiation, each time treating all 3 of my lesions. She is keeping me on
sevoia
in
SHARE Metastatic Breast Cancer
5 months ago
Sword of Damocles
Hi, I am a month away from completing my initial treatment (external beam and brachytherapy, followed by 2 years of Lupron, Zytiga, and prednisone). I am not sure what to expect as my oncologist was not effusive in showing me a life I can expect. I expect that withing 3-4 months my psa will tell me
Hi, I am a month away from completing my initial treatment (external beam and brachytherapy, followed by 2 years of Lupron, Zytiga, and prednisone). I am not sure what to expect as my oncologist was not effusive in showing me a life I can expect. I expect that withing 3-4 months my psa will tell me
JayJinxed8112
in
Advanced Prostate Cancer
8 months ago
New results soon (hopefully): A Phase 1 Study of FOR46 in Patients With Metastatic Castration-Resistant Prostate Cancer (mCRPC)
Not the latest, but some more insight, since results should be on their way https://clinicaltrials.ucsf.edu/trial/NCT03575819 but they are already working on another CD46-targeted alpha therapy based on YS5, a radioimmunoconjugate. https://jeccr.biomedcentral.com/articles/10.1186/s13046-023-02636
Not the latest, but some more insight, since results should be on their way https://clinicaltrials.ucsf.edu/trial/NCT03575819 but they are already working on another CD46-targeted alpha therapy based on YS5, a radioimmunoconjugate. https://jeccr.biomedcentral.com/articles/10.1186/s13046-023-02636
Maxone73
in
Advanced Prostate Cancer
8 months ago
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Father with Stage 4 prostate cancer in 8 bones.
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
lgutman
in
Advanced Prostate Cancer
5 months ago
Risk vs reward in clinical trials
Morning folks, I just finished reading my clinical protocol consent paperwork and don’t get the good warm feeling that the risk is worth the reward. This trial is through Sarah Cannon Research and involves a first in human investigational drug called TAK 280. It utilizes an approach already in clinical
Morning folks, I just finished reading my clinical protocol consent paperwork and don’t get the good warm feeling that the risk is worth the reward. This trial is through Sarah Cannon Research and involves a first in human investigational drug called TAK 280. It utilizes an approach already in clinical
Pmann
in
Advanced Prostate Cancer
6 months ago
What should I do - follow-ups not feeling thorough
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
OrdinarySoul
in
My Ovacome
6 months ago
Mum has lung cancer stage 4 BRAF Tumour
Hello Everyone My 84 year old Mum has just had a diagnosis of Lung Cancer Stage 4. It’s a BRAF tumour which is quite unusual. She has until now been fit and healthy walking and swimming regularly and has had only problems with her Thyroid. She has been told her prognosis is 3-6 months with treatment
Hello Everyone My 84 year old Mum has just had a diagnosis of Lung Cancer Stage 4. It’s a BRAF tumour which is quite unusual. She has until now been fit and healthy walking and swimming regularly and has had only problems with her Thyroid. She has been told her prognosis is 3-6 months with treatment
Beetro84
in
The Roy Castle Lung Cancer Foundation
8 months ago
Treatment for bone pain?
A friend of mine is experiencing severe bone pain from advanced prostate cancer. His MO is prescribing morphine ( tablets). He says it does help. But I was wondering if there are other medications that can be used for the pain? He is currently on Lupron + aberaterone. He is in his seventh year fighting
A friend of mine is experiencing severe bone pain from advanced prostate cancer. His MO is prescribing morphine ( tablets). He says it does help. But I was wondering if there are other medications that can be used for the pain? He is currently on Lupron + aberaterone. He is in his seventh year fighting
mandrake248
in
Advanced Prostate Cancer
8 months ago
treatment side effects vs cancer side effects
”Pain” vs “discomfort” in abdomen region following radiation and on Lupron- is it side effects or the cancer itself? Dad was diagnosed November 2023 and received radiation for 5 weeks that ended Jan 3rd. Started Lupron end of November. Cancer has spread to part of hip bone and pelvic lymph nodes.
”Pain” vs “discomfort” in abdomen region following radiation and on Lupron- is it side effects or the cancer itself? Dad was diagnosed November 2023 and received radiation for 5 weeks that ended Jan 3rd. Started Lupron end of November. Cancer has spread to part of hip bone and pelvic lymph nodes.
alysona828
in
Advanced Prostate Cancer
6 months ago
Pluvicto going well
Am coming to my third injection. So far: Aug 16: PSA 99.7 Aug 21: Pluvicto #1 Sep 11: PSA 106 Sep 28: PSA 91.8 Oct 05: Pluvicto #2 Oct 25: PSA 57.8 Nov 09: PSA 47.4 So it appears to continue to work. I know that doubling time is important so I was just wondering if halving time
Am coming to my third injection. So far: Aug 16: PSA 99.7 Aug 21: Pluvicto #1 Sep 11: PSA 106 Sep 28: PSA 91.8 Oct 05: Pluvicto #2 Oct 25: PSA 57.8 Nov 09: PSA 47.4 So it appears to continue to work. I know that doubling time is important so I was just wondering if halving time
Miccoman
in
Advanced Prostate Cancer
8 months ago
Tips for Xeloda
Mom is to start Xeloda next week . Looks like 1500 morning and 1500 night . I think that’s correct. She’s also on metformin right now from the anfintor and Faslodex spiking her sugar. She’s been off anfintor a week now but still doesn’t feel great . Awful taste in her mouth and not a great appetite
Mom is to start Xeloda next week . Looks like 1500 morning and 1500 night . I think that’s correct. She’s also on metformin right now from the anfintor and Faslodex spiking her sugar. She’s been off anfintor a week now but still doesn’t feel great . Awful taste in her mouth and not a great appetite
Flower1513
in
SHARE Metastatic Breast Cancer
8 months ago
PALB2 genetic defect-Lynparza
I have PALB2 genetic defect. Just completed six cycles of Taxotere as part of triple therapy (chemo, Nubeqa and ADT) for about 20 Mets (PSMA scan) mostly skeletal (no organs). Only four Mets still lit up on PSMA scan after four cycles of chemo/Lupron/Nubeqa. Next PSMA scan in Jan. 2024. Oncologist recommends
I have PALB2 genetic defect. Just completed six cycles of Taxotere as part of triple therapy (chemo, Nubeqa and ADT) for about 20 Mets (PSMA scan) mostly skeletal (no organs). Only four Mets still lit up on PSMA scan after four cycles of chemo/Lupron/Nubeqa. Next PSMA scan in Jan. 2024. Oncologist recommends
Azores1
in
Advanced Prostate Cancer
8 months ago
Durability of Pluvicto treatment?
Just completed Pluvicto treatment #5 of 6 and extremely thankful for the good results. Had a PSMA Pet scan before #5 and it shows that PCa continues to disappear (read from right to left — pre-treatment, after two treatments, and after four treatments). Hoping for pretty much 100% remission after #6
Just completed Pluvicto treatment #5 of 6 and extremely thankful for the good results. Had a PSMA Pet scan before #5 and it shows that PCa continues to disappear (read from right to left — pre-treatment, after two treatments, and after four treatments). Hoping for pretty much 100% remission after #6
Skifanatic
in
Advanced Prostate Cancer
8 months ago
radiotherapy
Does anyone know if radio therapy (breast) if you’re already on thyroxine might affect levels/ blood tests at all? I had radio this week but a test coming up in 6weeks to check levels following a thyroxine increase while on tamoxifen. I know it can induce, this is is yourre already on a stable dose
Does anyone know if radio therapy (breast) if you’re already on thyroxine might affect levels/ blood tests at all? I had radio this week but a test coming up in 6weeks to check levels following a thyroxine increase while on tamoxifen. I know it can induce, this is is yourre already on a stable dose
haggisplant
in
Thyroid UK
8 months ago
Use hormone therapy or not with Proton therapy
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and psa doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad. should
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and psa doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad. should
jbsnv
in
Prostate Cancer Network
6 months ago
Chronic pain after prostatectomy
My friend had robotic prostatectomy in May 2019. In the almost 5 years since he has experienced daily abdominal pain. He has seen numerous doctors but none of them have been able to diagnose the source of the pain. He is an invalid due to this problem. Does anyone else know of a similar case? Any
My friend had robotic prostatectomy in May 2019. In the almost 5 years since he has experienced daily abdominal pain. He has seen numerous doctors but none of them have been able to diagnose the source of the pain. He is an invalid due to this problem. Does anyone else know of a similar case? Any
Sineah
in
Advanced Prostate Cancer
6 months ago
TruQap progress-lower TM
I posted about beginning this newly approved FDA drug in December. My blood tests last week showed that my TM dropped by 135 points. This is added to the Fulvestrant jabs I started around spring 2023. The combination seems to be going well so far. I was previously on Ibrance for several years until
I posted about beginning this newly approved FDA drug in December. My blood tests last week showed that my TM dropped by 135 points. This is added to the Fulvestrant jabs I started around spring 2023. The combination seems to be going well so far. I was previously on Ibrance for several years until
Yikes123
in
SHARE Metastatic Breast Cancer
6 months ago
Changing the name of cancer...would speed up research
I thought it wasn't something that had an impact, but thanks to the patience of an acquaintance of mine who works in clinical research, I finally understood the significance of what some newspapers (Italian and European, but maybe in the USA as well) are saying about the need to change the names of various
I thought it wasn't something that had an impact, but thanks to the patience of an acquaintance of mine who works in clinical research, I finally understood the significance of what some newspapers (Italian and European, but maybe in the USA as well) are saying about the need to change the names of various
Maxone73
in
Advanced Prostate Cancer
6 months ago
Profile
I have a profile in advanced prostate cancer. When I set it up I didn't realize there was more than one prostate cancer network/forum. People in the advanced prostate form suggested I join this one. It's been awhile, but here I am. I'm a 63 year old who had an RP in March 2021. So far my psa tests have
I have a profile in advanced prostate cancer. When I set it up I didn't realize there was more than one prostate cancer network/forum. People in the advanced prostate form suggested I join this one. It's been awhile, but here I am. I'm a 63 year old who had an RP in March 2021. So far my psa tests have
twostrats79
in
Prostate Cancer Network
8 months ago
How can one person be so Lucky?
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Condor77
in
Advanced Prostate Cancer
6 months ago
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