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Signing off, happy New Year to all
Hi all, didn't want to leave this site without saying goodbye and wishing everyone all the very best for the coming New Year.The last year has been intense for me and looks to continue in the same vein into 2024 and as I haven't posted/ commented for so long it's become obvious to me that I simply
Hi all, didn't want to leave this site without saying goodbye and wishing everyone all the very best for the coming New Year.The last year has been intense for me and looks to continue in the same vein into 2024 and as I haven't posted/ commented for so long it's become obvious to me that I simply
Hidden
in
Macular Society
4 months ago
Promising (maybe for PCa): World’s First Allogenic mRNA CAR-T Treatment for Solid Tumor by Ever Supreme Bio Technology, Phase 1 started.
The world's first to use mRNA electroporation technology, enhancing product safety. The world's first to use artificial intelligence to identify Target HLA-G, employing AI to identify critical tumor targets of human leukocyte antigen-G (HLA-G). The technology, “Allogeneic Non-viral Gene-Edited Multi-targeted
The world's first to use mRNA electroporation technology, enhancing product safety. The world's first to use artificial intelligence to identify Target HLA-G, employing AI to identify critical tumor targets of human leukocyte antigen-G (HLA-G). The technology, “Allogeneic Non-viral Gene-Edited Multi-targeted
Maxone73
in
Advanced Prostate Cancer
4 months ago
pT3b just diagnosed
on 9/18/2023 had prostatectomy. Resection margins clear but right seminal vesicles invasion identified along with lymphovascular and perineural invasion present. Any ideas on next step thanks Ed
on 9/18/2023 had prostatectomy. Resection margins clear but right seminal vesicles invasion identified along with lymphovascular and perineural invasion present. Any ideas on next step thanks Ed
bargerat
in
Advanced Prostate Cancer
8 months ago
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Has anyones Endo returning after hysterectomy?
It's been awhile since I've posted.I got an MRI report back, after urologist found abnormality after bladder stretch. The MRI found endometriotic deposits by the rectosigmoid colon. I have extensive surgery and hysterectomy in January. Having a bowel shave, rectosigmoid colon as well DIE within the
It's been awhile since I've posted.I got an MRI report back, after urologist found abnormality after bladder stretch. The MRI found endometriotic deposits by the rectosigmoid colon. I have extensive surgery and hysterectomy in January. Having a bowel shave, rectosigmoid colon as well DIE within the
Jasmin24
in
Endometriosis UK
4 months ago
colonoscopy query
I’m scheduled to endure a colonoscopy on 16th January. We are booked on a flight to Thailand on 1st February (14 hours) . Guidelines say two weeks should pass before flight so in theory ok. However this is a trip of a lifetime for us, much delayed and all booked before this cancer worry. I’ve no idea
I’m scheduled to endure a colonoscopy on 16th January. We are booked on a flight to Thailand on 1st February (14 hours) . Guidelines say two weeks should pass before flight so in theory ok. However this is a trip of a lifetime for us, much delayed and all booked before this cancer worry. I’ve no idea
Stills
in
LUPUS UK
4 months ago
Xeloda
I’m only on second round of six total. So far, labs are looking good except LDH is slightly higher than normal. I, like you, ask my oncologist for info. Mostly, I focus on how am I doing today…. What’s my energy level, status of my hands and feet (hand and foot syndrome for which I use Voltaren
I’m only on second round of six total. So far, labs are looking good except LDH is slightly higher than normal. I, like you, ask my oncologist for info. Mostly, I focus on how am I doing today…. What’s my energy level, status of my hands and feet (hand and foot syndrome for which I use Voltaren
YogaGRL52
in
SHARE Metastatic Breast Cancer
4 months ago
Biopsy Results
Hi all, went to clinic today and as I suspected, my adenoid cystic carcinoma has metastersised to my lungs. I am told I am being refered to the head & neck cancer in Liverpool where I sent 21yrs ago! Still no idea of treatment until I go for my appointment whenever that may be! Frustrating 3 months on
Hi all, went to clinic today and as I suspected, my adenoid cystic carcinoma has metastersised to my lungs. I am told I am being refered to the head & neck cancer in Liverpool where I sent 21yrs ago! Still no idea of treatment until I go for my appointment whenever that may be! Frustrating 3 months on
Mindini1964
in
The Roy Castle Lung Cancer Foundation
4 months ago
AML update
Hello MPN friends, I thought I would post an update on my AML. I am now having Azacitadine and Venetoclax as an in-patient and so far so good - I just have red marks around the injection sites and constipation. I am otherwise well. Shockingly, my husband has been diagnosed with a melanoma just last
Hello MPN friends, I thought I would post an update on my AML. I am now having Azacitadine and Venetoclax as an in-patient and so far so good - I just have red marks around the injection sites and constipation. I am otherwise well. Shockingly, my husband has been diagnosed with a melanoma just last
Otterfield
in
MPN Voice
4 months ago
Now what?
My husband was DX April 2021 MPc, Stage IV, PSA 335, BRACA2. Lupron, Erleada, Provenge, Lynparza (still on), Zytiga/Pred (still on). PSA rose from 2.64 Feb 2023 to 44 Sept 2023. Biggest jumps on the last three months, 10 to 44. He is approved for 177lu, but there are a lot of unsuccessful stories
My husband was DX April 2021 MPc, Stage IV, PSA 335, BRACA2. Lupron, Erleada, Provenge, Lynparza (still on), Zytiga/Pred (still on). PSA rose from 2.64 Feb 2023 to 44 Sept 2023. Biggest jumps on the last three months, 10 to 44. He is approved for 177lu, but there are a lot of unsuccessful stories
Hidden
in
Advanced Prostate Cancer
8 months ago
long term disability LTD
has anyone had to go onto LTD from work and if so has it been beneficial or not? Reason I ask is that I went on Short Term in May which is approved for 6 months. At that time (November) for me I either have to be well enough to go back to work or go on LTD. I have been paying for LTD Insurance for about
has anyone had to go onto LTD from work and if so has it been beneficial or not? Reason I ask is that I went on Short Term in May which is approved for 6 months. At that time (November) for me I either have to be well enough to go back to work or go on LTD. I have been paying for LTD Insurance for about
PC-22
in
Advanced Prostate Cancer
8 months ago
Help Develop a Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer
Please consider being part of the COMPASS Study here: https://malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men
Please consider being part of the COMPASS Study here: https://malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men
Darryl
Partner
in
Prostate Cancer Network
8 months ago
Help Develop a Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer
Please consider being part of the COMPASS Study here: https://malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men
Please consider being part of the COMPASS Study here: https://malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men
Darryl
Partner
in
Advanced Prostate Cancer
8 months ago
Metabolic Syndrome [MetS] and PCa
A new study [1]: "
Association of metabolic syndrome {MetS} and its components with the risk of urologic cancers: a prospective cohort study
" reports that "[i]Compared to the non-MetS group, the risk of developing ... prostate [HR ... = 1.47 ...] cancer was significantly higher in the MetS
A new study [1]: "
Association of metabolic syndrome {MetS} and its components with the risk of urologic cancers: a prospective cohort study
" reports that "[i]Compared to the non-MetS group, the risk of developing ... prostate [HR ... = 1.47 ...] cancer was significantly higher in the MetS
pca2004
in
Fight Prostate Cancer
8 months ago
PSA still low but cancer progressing
I've been on ADT plus Xtandi for about a year (see my profile) and my PSA has steadily reduced and stayed low. However, my latest CT scan shows that the tumours on my bones and lymph nodes are increasing in size and there are now a few small lesions appearing in my liver for the first time. Not the news
I've been on ADT plus Xtandi for about a year (see my profile) and my PSA has steadily reduced and stayed low. However, my latest CT scan shows that the tumours on my bones and lymph nodes are increasing in size and there are now a few small lesions appearing in my liver for the first time. Not the news
Benkaymel
in
Advanced Prostate Cancer
8 months ago
Does biopsy spread cancer?
I've been diagnosed with Stage 2/3 PC. I wonder whether biopsies, by piercing the prostrate wall, allow cancer sells to migrate outside the prostate. Certainly e-coli can be pushed into it, since I got sepsis from my directed biopsy. What is the danger of METS being introduced to organs outside it with
I've been diagnosed with Stage 2/3 PC. I wonder whether biopsies, by piercing the prostrate wall, allow cancer sells to migrate outside the prostate. Certainly e-coli can be pushed into it, since I got sepsis from my directed biopsy. What is the danger of METS being introduced to organs outside it with
Eadgbe
in
Prostate Cancer Network
4 months ago
Am I candidate for AS?
66 year old, Dx January 2022 PSA peak 5.76 [u]Biopsy 3/15/22[/u] 3 of 14 cores PCa 1 of 4 cores, 4+3, 80% Gr 4, <5% of tissue, left posterior 2 of 2 cores, 3+4, 20% Gr 4, 20% of tissue, left mid Decipher .34, cut off for low aggression is .45 NanoKnife June 6, 2022 PSA nadir 1.21 [u]Biopsy 5/16
66 year old, Dx January 2022 PSA peak 5.76 [u]Biopsy 3/15/22[/u] 3 of 14 cores PCa 1 of 4 cores, 4+3, 80% Gr 4, <5% of tissue, left posterior 2 of 2 cores, 3+4, 20% Gr 4, 20% of tissue, left mid Decipher .34, cut off for low aggression is .45 NanoKnife June 6, 2022 PSA nadir 1.21 [u]Biopsy 5/16
Piano777
in
Prostate Cancer Network
8 months ago
Adding Kisqali to Letrozale treatment
It was just suggested to me to add Kisqali to my treatment of Letrozole. I am "cancer free" since I had a masectomy and everything was taken out. Are there any others on this chat with the same experience?
It was just suggested to me to add Kisqali to my treatment of Letrozole. I am "cancer free" since I had a masectomy and everything was taken out. Are there any others on this chat with the same experience?
mimosa412
in
SHARE Metastatic Breast Cancer
4 months ago
Before Fireworks and BallDrops, Where ever you live, please read this now
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Darryl
Partner
in
Prostate Cancer Network
4 months ago
Before Fireworks and BallDrops, Where ever you live, please read this now.
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Darryl
Partner
in
Advanced Prostate Cancer
4 months ago
Docetaxel not working so stopped
I promised I would update you after my scan to see how the chemo was progressing. Well, the main reason for the chemo was that spots had appeared in my liver. Last week's CT scan showed that the spots have grown "significantly" so the chemo is not working. Also, my liver function blood test results -
I promised I would update you after my scan to see how the chemo was progressing. Well, the main reason for the chemo was that spots had appeared in my liver. Last week's CT scan showed that the spots have grown "significantly" so the chemo is not working. Also, my liver function blood test results -
Benkaymel
in
Advanced Prostate Cancer
4 months ago
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