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First Post for husband and need advice please

MikeLa08 profile image
6 Replies

This is our basic history. We have appt. with RO tomorrow to talk about next steps. Any advice and questions to ask is much appreciated.

PSA- 12/2020 3.3 - 11/2021 4.83 - 04/2022 5.3

Biopsy-06/22- Gleason 3+4,

RARP-09/26/2022, Pathology,

JH -pT3apN1pM

Gleason 3+4 grade 2, 20% pattern 4 of dominant nodule

SV-, LVI+

M+ <1mm involved Gleason score 3+4=7, Grade 2

EPE+

LN+, One of Eight, no extranodal extension, periprostatic LN

% involved 11-20%

Decipher-0.27

PSA-11/22 <0.04

PSA-08/23 0.05

PSA- 11,23 0.66

PSMA Pylarify 01/2024 - 4 left internal iliac lymph nodes, radiotracer avid

T4 Schmorl node ?

MRI 02/2024

MRI Findings suggestive of a T4 vertebral body metastatic lesion with superimposed subacute pathologic compression deformity resulting in less than 25% vertebral body height loss. There is mild bulging/retropulsion of the left posterolateral cortex of the T4 vertebral body which effaces the ventral CSF and abuts the ventral cord resulting in minimal canal narrowing. No convincing evidence of epidural spread of tumor.

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Hi MikeLa08, it looks like you haven't written anything yet. Get the ball

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MikeLa08
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Tall_Allen profile image
Tall_Allen

Have you started ADT yet?

MikeLa08 profile image
MikeLa08 in reply toTall_Allen

No, the Dr. was a let's watch PSA and see what happens. So this is the first visit after the PSMA and MRI

j-o-h-n profile image
j-o-h-n

Remember "Haste makes waste".......... Don't jump in the pool until you test the water (and if there is any)"....

Good Luck, Good Health and Good Humor.

j-o-h-n

pakb profile image
pakb

I would also meet with a medical oncologist (MO) specializing in prostate cancer. Not just a radiation oncologist.

MikeLa08 profile image
MikeLa08

Here is my vent......

The RO wants a biopsy for the spot on his spine. He is just not sure and needs to be sure to focus on next steps. Okay, that is a good step.

I am not feeling good about the process right now. The Medical Oncologist is the Surgeon that performed his surgery, the Doctor that gives the Lupron shot is his Urologist. It is a big one stop Urology center. Everything is done in this building except the surgery. The RO is the RO, but his parting words were, if you see anyone else do not let them give you any medication, it will mess up the biopsy results.

Not our plan to see anyone right now, we need to know what is going on first. Our plan is the Biopsy first and then 2nd opinion at the Cancer center.

We both felt he had great care with Urologist and surgeon but today just bothered me and the husband's wise words, you just need to relax.

Murk profile image
Murk

Yup agree, relax, get a second opinion. I equate this process to American Football.

So you get this PCa news and you become a rookie Quaterback thrown into the game! So its important to relax, stop the happy feet, look off your first receiver, and run through the play. You are in this for the long haul, the drive and win.

Be patient, the PCa game will slow down and decisions after research and listening and second opinions, will come naturally

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