The Results are in: Hello wonderful people. Just a... - LUPUS UK

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The Results are in

CecilyParsley profile image
87 Replies

Hello wonderful people. Just a quick update as I am so relieved I had to tell you. I have just put the phone down from my fabulous ENT Consultant. She had just received the results of the mass from the lab and wanted to tell me the good news. No cancer but an haemangioma. She confided that she had really thought I had paranasal cancer and she knew that I was worried so wanted to put my mind at rest before my check up two weeks from now.

Such patient led and incredible service. I could not have asked for better. Maybe I can sleep now.

Thank you to everyone who sent me well wishes. I appreciate your kindness so so much. ❤️

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CecilyParsley profile image
CecilyParsley
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87 Replies
Tiggywoos profile image
Tiggywoos

oh my goodness hun that has bought a tear to my eye . The relief for you must enormous beyond enormous . Sending you much love and hugs 😘😘xxxx

CecilyParsley profile image
CecilyParsley in reply toTiggywoos

Thank you so much. I was very shocked that she was calling me in person so assumed it was bad news but thank goodness it wasn’t xxx

Hoofprints profile image
Hoofprints

That's wonderful 😀. I hope you can do something (however modest given energy constraints) to celebrate the good news. Thanks for letting us know.

CecilyParsley profile image
CecilyParsley in reply toHoofprints

It is my hubby’s birthday on Monday so we are going to have a Thai takeaway with friends as a double celebration xxx

Hoofprints profile image
Hoofprints

That's wonderful 😀. I hope you can do something (however modest given energy constraints) to celebrate the good news. Thanks for letting us know.

Great news !

CecilyParsley profile image
CecilyParsley in reply toMary-intussuception

Thank you Mary xxx

Oshgosh profile image
Oshgosh

xxx

CarolMcl profile image
CarolMcl

Fantastic news 🌹

CecilyParsley profile image
CecilyParsley in reply toCarolMcl

Thank you Carol xxx

MEGS53 profile image
MEGS53

such good news 😁

Sleep well xxx

CecilyParsley profile image
CecilyParsley in reply toMEGS53

Thank you Meg…sleep is not my thing currently Pudendal Nerve Entrapment is a killer xxx

MEGS53 profile image
MEGS53 in reply toCecilyParsley

Ouch - it certainly sounds it. 😣😣😣

Maybe lots of fur baby cuddles would help 😀

Sending gentle hugs 🤗 🤗🤗

CecilyParsley profile image
CecilyParsley in reply toMEGS53

They certainly do. Finlay is so gentle with me bless him but I need to be a bit wary of Skye who is a mini bulldozer 🤣. They missed me so much I has such a fabulous welcome home. I love them dearly ❤️🐾🐾

MEGS53 profile image
MEGS53 in reply toCecilyParsley

🥰🥰🥰🥰🥰

pancake-5 profile image
pancake-5

fantastic news! So pleased for you ! Now enjoy your celebrations !

CecilyParsley profile image
CecilyParsley in reply topancake-5

Thank you Pancaje xx

Barbara17 profile image
Barbara17

fabulous news! I’m so pleased for you. Now you can really start to recover. 💐🌹🥳

CecilyParsley profile image
CecilyParsley in reply toBarbara17

Thank you Barbara xx

Krazykat26 profile image
Krazykat26

That's wonderful news Cecily 🤗What a huge relief!! Now you can get on with your recovery and enjoy life to the full. Well done lovely 👏👏💜🌈💐xx

CecilyParsley profile image
CecilyParsley in reply toKrazykat26

Thank you Kat. I was convinced that it was paranasal cancer, I had all the symptoms. When I stop dripping snot, my cold sores have gone, my eye infection has cleared I will go out and celebrate that I will be around to see my boys grow up ❤️🐾🐾 but for now I will be happy with a take away lol Next to tackle the internal nerve blockers and perhaps I will sleep more than a few hours, then who knows knee replacement so that I can walk instead of hobble 🙏🏻 xxx

Bobbydoodle profile image
Bobbydoodle

What a lovely doctor putting you out of the unknown known anxiety as soon as she could.

Great news x

CecilyParsley profile image
CecilyParsley in reply toBobbydoodle

I was so fortunate to have her as my Consultant thank you xx

honeybug profile image
honeybug

👍🏼🙏🕊🤗♥️🥰🌿🌸🦋☀️💔

CecilyParsley profile image
CecilyParsley in reply tohoneybug

Thank you Honeybug xxx

honeybug profile image
honeybug in reply toCecilyParsley

Most welcome sweetie 🥰

Stills profile image
Stills

fantastic news CP 😃

CecilyParsley profile image
CecilyParsley in reply toStills

Thank you Stills and a sincere and heartfelt thank you to you for all your kindness over the past few weeks too xxx

StriatedCaracara profile image
StriatedCaracara

That is fantastic news. What a massive relief. Really kind doctor too.

Life can now get back on track more again. Have a really good chill out and rest up.🌸😊

CecilyParsley profile image
CecilyParsley in reply toStriatedCaracara

Thank you so very much xx

Lily25 profile image
Lily25

I am sooooo happy for you 🙏🙏🙏🙏

CecilyParsley profile image
CecilyParsley in reply toLily25

Thank you so much Lily xx

rosebud52 profile image
rosebud52

Very happy 😊 news xx

CecilyParsley profile image
CecilyParsley in reply torosebud52

Thank you Rosebud xx

RosieA profile image
RosieA

How wonderful. Compassionate service and such a relief. x

CecilyParsley profile image
CecilyParsley in reply toRosieA

Exactly. It is such a shame we cannot all experience this all of the time xx

Chris21 profile image
Chris21

so happy to hear such good news cecily and such a lovely doctor who thought to put your mind at rest. Enjoy your celebrations. happy birthday to hubby, for Monday. x

CecilyParsley profile image
CecilyParsley in reply toChris21

Thank you so much Chris. Yes such a wonderful Consultant. Thank you for my hubby’s birthday wishes too xx

Naladog profile image
Naladog

I'm so happy for you, what good news! You must have been going through a very hard time😪. Now to celebrate every moment. 💫

CecilyParsley profile image
CecilyParsley in reply toNaladog

Absolutely. Honestly I cannot be seen in public with cold sores, infected eyes, and gunk running from my nostrils but a takeaway sounds really good xx

lupime profile image
lupime

Now that has made my day! I shall have a warm glow all day despite the wind and rain lashing outside. Thanks for letting us know. Enjoy your anniversary. xx

CecilyParsley profile image
CecilyParsley in reply tolupime

Thank you so much, that is so kind of you xxx

soul22 profile image
soul22

Wonderful news that it's not cancer, that's really kind and thoughtful of her to ring straight away to relieve your concerns.

Waiting is hardest part

Any plan to deal with what is found I'm sure shego into at your next appointment in two weeks if she didn't by phone.

Good to hear good news so happy for you😁🙏🦋❤️

CecilyParsley profile image
CecilyParsley in reply tosoul22

Thank you so much. Yes she is such an amazing Doctor, very grounded and approachable. Apparently there is no need for further treatment. She has removed as much as she could . Most haemangioma need no treatment but the cavernous type can fill your airway, cause loss of sight or even stroke if they grow into the brain so it had to come out.I am very, very fortunate xxx

soul22 profile image
soul22 in reply toCecilyParsley

That's great 😃 news no further treatment needed.Oh my yes indeed very fortunate 🙏🫂

Diane65 profile image
Diane65

that's fantastic news, what a relief. X

CecilyParsley profile image
CecilyParsley in reply toDiane65

Yes it really is thank you Diane xx

GloomyEeyore profile image
GloomyEeyore

That is fantastic news! You must be so relieved. Excellent care from your consultant too. There are still excellent doctors out there. Xx 💐

CecilyParsley profile image
CecilyParsley in reply toGloomyEeyore

Honestly she has been so amazing it makes me emotional. I was sent fir a CT scan two days after she saw me for the first time, I had two post op checks and despite severe reservations she agreed to do the op by local anaesthetic as I am high risk for general anaesthesia. In the operating theatre she told me I have never done it this way before so if I hurt you please tell me. She explained the different tools she was using, told me not to worry when I coughed blood all over her. Throughout she told me how well I was doing and how brave she thought I was. She laughed and said she would need to be out cold to let someone shave the bone in her nose or use a claw scissors to rip off lumps of tumour. We actually laughed about Greys Anatomy which she said was a load of crap. She roared with laughter when I said “ what do you mean you are not all having sex in the dressings room”. 🤣

I could not have had better treatment . It was a real shame that I haemorrhaged because the 4 inch rubber balloon plugs were the most painful things I have ever experienced in my life. I actually told the junior doctors that if they did not work and aI bled badly again I would discharge myself and bleed to death before I would let them put them back in. They hurt so badly going in I screamed and passed out. Then they blew them up and I thought my face would explode. They pressed on the roof of my mouth and every single tooth in my head experienced pain, I had earache, headache and pressure. I paced for 50 hours dragging my drip. It was only when a fabulous nurse persuaded me to hold an Oramorph and paracetamol mixture in my mouth and gave he an anti sickness through the cannula. I slept like a baby then lol xxx

Barbara17 profile image
Barbara17 in reply toCecilyParsley

OMG!!! The whole thing sounds horrendous. You deserve a medal.

CecilyParsley profile image
CecilyParsley in reply toBarbara17

It was not pleasant but at least I was delighted to have got through the op. The rubber balloon packers were hell though xx

GloomyEeyore profile image
GloomyEeyore in reply toCecilyParsley

Sounds like a terrible experience but thankfully you are now through it. At my local hospital you can nominate members of staff, (not just medics), for awards. Is there anything like this at yours as your consultant certainly sounds like she deserves one. Xx

CecilyParsley profile image
CecilyParsley in reply toGloomyEeyore

I will definitely look at that and I am in the process of writing a compliment about the whole team xxx

JCZW profile image
JCZW

So pleased to hear your news. Such a relief for you.Big hugs 🤗 xx

CecilyParsley profile image
CecilyParsley in reply toJCZW

Thank you so much xx

Pumpkin2009 profile image
Pumpkin2009

So happy for your good news! Now just recover and get ready to enjoy the joys of spring.

Healing hugs.

CecilyParsley profile image
CecilyParsley in reply toPumpkin2009

Thank you very much Pumpkin. Awful weather today, my garden has tuned into a mud bath. The dogs love it 😩 xx

Tykle profile image
Tykle

Fantastic news! 😁

CecilyParsley profile image
CecilyParsley in reply toTykle

Thank you so much xx

MusicalFurbaby profile image
MusicalFurbaby

Yay! No cancer is the best news of all! Hope you can get some rest now ☺️🌈🌻

CecilyParsley profile image
CecilyParsley in reply toMusicalFurbaby

It is indeed such good news. Thank you so much xxx

daisydayz profile image
daisydayz

So very pleased for you, brave lady!

..best news ever😀

🩷🩷🩷

CecilyParsley profile image
CecilyParsley in reply todaisydayz

Thank you so much xxx

Muguet28 profile image
Muguet28

That’s such great news, thanks for sharing the good news and great that you have a caring ENT consultant. I hope the harmangioma doesn’t cause too much pain for you. Take care

CecilyParsley profile image
CecilyParsley in reply toMuguet28

Thank you so much. Hopefully the damned thing is gone. Apparently they grow for a year then stop but with a cavernous type like I had it affected my breathing and would have cost me vision in my left eye if they hadn’t caught it quickly. Xx

Muguet28 profile image
Muguet28 in reply toCecilyParsley

That’s so good you had a great consultant who was on it and diagnosed it quickly and all removed, it must have been such a worry and a difficult experience for you. I hope you recover well now x

CecilyParsley profile image
CecilyParsley in reply toMuguet28

Yes I have nominated her for an award with our Health Board and written a letter of compliment about the whole team. I cannot talk about her without becoming emotional to be honest. She had never done this op under local before, she was out of her comfort zone and what usually would have taken 20 minutes took 2 1/2 hours. I was encouraged and told I was doing so well throughout. She talked about her dogs and gave me a break in between cuts, showed me the instruments she was using and why, showed me the bit of mass she extracted and a before and after of my nostril. To then call me herself with the good news was just exceptionally good practice. I have seen so many Doctors and Consultants over the 15 years I have been sick and can honestly say I have never been treated with such care and respect before.

I am having a bad day today, headache, earache, toothache and a lovely flare to keep me on my toes but I know things will improve now xxx

Muguet28 profile image
Muguet28 in reply toCecilyParsley

That’s amazing and you should be nominated for an award too going through it without full anaesthetics! Not surprised you’re having a flare up now after what you’ve been through and after hearing the good news it still would have had an impact on you. Take care x

CecilyParsley profile image
CecilyParsley in reply toMuguet28

All I did was lie there and spit lots of blood everywhere. At one point the Consultant said clean up, Julia`s chest looks like a bloody abattoir. We all laughed. The anaesthetist who has a whippet said keep coughing it and spitting it, don’t worry about us and stop apologising. If you swallow that amount of blood you will be very sick later. We even joked about Casualty and Greys Anatomy, for an operation it was remarkably jovial and calm. It cannot have been easy for any of them to have me there watching and listening. All the junior doctors came for a look too. They asked if I minded I said of course not. As I left theatre they were all patting me as I went past. Such a shame I haemorrhaged and ruined it but still I am hone safe and sound thanks to them xxx

StriatedCaracara profile image
StriatedCaracara in reply toCecilyParsley

Probably one of those bit delayed flares. Thinking back on it all and also natural steroid really reduced with the relief of it all. Think you deserve gold medal, and the doctor.👩‍⚕️😷🎖

CecilyParsley profile image
CecilyParsley in reply toStriatedCaracara

Bless you thank you. It is horrible to have pain constantly . I cannot keep still today xxx

StriatedCaracara profile image
StriatedCaracara in reply toCecilyParsley

Did they change meds in prep for this?

Take things easy, you probably completely exhausted. Chill out big time.

Think it is hard to take in what we go through and the rest we need even with million times smaller things.

(And there are your hubby's birthday celebrations as well. Hope can pace Monday perfectly. You have the excuse to have months of treats)

CecilyParsley profile image
CecilyParsley in reply toStriatedCaracara

No they changed nothing and afterwards made me waited hiurs for pain relief. In the end I took my own and told them why. They tried to confiscate them but I refused. It wasn’t the nurses fault they could not get the Doctors to ratify it. Sadly the junior doctors were under such huge pressure even on the critical Care Ward.

I have hade hubby a large cheesecake this afternoon ( his choice) and he has agreed to have a take away as I feel so self conscious of my draining nostrils and cold sores. We will celebrate properly when I can put some slap on and wash my hair xxx

StriatedCaracara profile image
StriatedCaracara in reply toCecilyParsley

Cheesecake sounds wonderful.

My mum, in her nineties, wants us to go and get McDonalds for birthday in the next few days.

CecilyParsley profile image
CecilyParsley in reply toStriatedCaracara

Oh bless her. Delivery and Just Eat will deliver it for her. Happy Birthday to your lovely Mum 🎂🍾🥂💐🎉 xxx

Muguet28 profile image
Muguet28 in reply toCecilyParsley

Must have been really scary, I’m glad you’re getting nice cake and got good news on the results

CecilyParsley profile image
CecilyParsley in reply toMuguet28

Thank you so much xx

KayHimm profile image
KayHimm

😀😀 Such good news! You have been through a lot of worry. Hope you can rest and heal.

😘😘

CecilyParsley profile image
CecilyParsley in reply toKayHimm

Thank you so much Kay xxx

KnitSewPurl profile image
KnitSewPurl

That is fab news Cecily 😊 🙏 for your continued speedy recovery.

CecilyParsley profile image
CecilyParsley in reply toKnitSewPurl

Thank you so much xxx

BonnyB profile image
BonnyB

Whoop,whoop!!! So happy to hear this news. Hope you are recovering well xxx

CecilyParsley profile image
CecilyParsley in reply toBonnyB

Thank you so much Bonny. Yes I think today is the first day my nose isn’t running constantly, my cold sores and clearing and I slept got five hours last night so all positive 🙂 xxx

BonnyB profile image
BonnyB in reply toCecilyParsley

So you are turning a corner, that's good to hear. Take care and rest up xxx

CecilyParsley profile image
CecilyParsley in reply toBonnyB

Thank you Bonny xxx

stiff19 profile image
stiff19

I just logged in and so happy to see this👏👏👏👏sleep well friend , I know what an understandable worry this has been for you and feel the enormity of relief. wish you never had this to begin with as you've been through it but the good news is fantastic 🤗💐

CecilyParsley profile image
CecilyParsley in reply tostiff19

Thank you so much. You have been so very kind and supportive and I sincerely appreciate it xxx

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