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Sjogren-Larsson syndrome
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Update
Thought I'd update you all I had my baby boy on the 8th June at 12.11am he weighed 5lb14oz I was induced due to him measuring small it was a very traumatic experience something I'd never want to go through again made worse that baby had a poo so I was kept in longer after his birth now at 30 days old
Thought I'd update you all I had my baby boy on the 8th June at 12.11am he weighed 5lb14oz I was induced due to him measuring small it was a very traumatic experience something I'd never want to go through again made worse that baby had a poo so I was kept in longer after his birth now at 30 days old
Emilylouise-
in
Pregnancy and Parenting Support
5 years ago
Colofac versus Buscopan
I found Buscopan really helped my IBS (wind on left hand side and pain plus general feeling ill) but the GP said it had been associated with dementia so I stopped. I’m thinking of trying Colofac as peppermint capsules don’t seem to help. Anyone found Colofac helpful?
I found Buscopan really helped my IBS (wind on left hand side and pain plus general feeling ill) but the GP said it had been associated with dementia so I stopped. I’m thinking of trying Colofac as peppermint capsules don’t seem to help. Anyone found Colofac helpful?
Wifflesnook
in
IBS Network
5 years ago
Struggling and has anyone had a scratch before treatment?
Really struggling today. Tuesdays are always awful as it’s the day I lost my little girl. I’ve had the go ahead that my hyperplasia is not an issue so I can start IVF again. This time the consultant has suggest the short protocol (reckons I will get more good quality embryos) as the long only produced
Really struggling today. Tuesdays are always awful as it’s the day I lost my little girl. I’ve had the go ahead that my hyperplasia is not an issue so I can start IVF again. This time the consultant has suggest the short protocol (reckons I will get more good quality embryos) as the long only produced
Hopeandhell
in
Fertility Network UK
5 years ago
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Desperate for sleep. Cannabis?
Ropinerole and Gabapentin haven't worked for me. My body has become tolerant of Codeine and Tramadol for the time being so I need to have a long holiday from them to reset my receptors. The torture of extreme sleep deprivation is driving me to consider illegal cannabis as an edible. If anyone on here
Ropinerole and Gabapentin haven't worked for me. My body has become tolerant of Codeine and Tramadol for the time being so I need to have a long holiday from them to reset my receptors. The torture of extreme sleep deprivation is driving me to consider illegal cannabis as an edible. If anyone on here
Jumpey
in
Restless Legs Syndrome
5 years ago
Help me plz linzess and Amitiza
Hello everyone I been having this problem all my life encoperisis and enuresis now I know its more ibs-c i just turn 28 I been trying to get this better but nothing is helping. My gi doctor gave me Linzess 290mg 1 a day but when I go to CvS to pick it up they want 1k for 90 pills yeah no sorry cant pay
Hello everyone I been having this problem all my life encoperisis and enuresis now I know its more ibs-c i just turn 28 I been trying to get this better but nothing is helping. My gi doctor gave me Linzess 290mg 1 a day but when I go to CvS to pick it up they want 1k for 90 pills yeah no sorry cant pay
craigers618
in
IBS Network
5 years ago
Tortured by a Butterfly -- Dermatology and extreme sun reactions
Hi Guys, Got my Rheumatology letter yesterday, which threw me in multiple directions (and upset me about the breast explant situation again -- but I'll save that for another day). Because forefront on my mind is my Dermatology appt this afternoon. Yesterday, I provoked 2 bright red, painful burns
Hi Guys, Got my Rheumatology letter yesterday, which threw me in multiple directions (and upset me about the breast explant situation again -- but I'll save that for another day). Because forefront on my mind is my Dermatology appt this afternoon. Yesterday, I provoked 2 bright red, painful burns
panda2
in
LUPUS UK
5 years ago
Neurobechets
Hi guys, a few months ago I was admitted to hospital with neurobechets (where the bechets affects your brain and brain stem) that was sorted and I’ve been fine for a couple months, but today I’ve felt the exact same way expect the pain isn’t in my head it’s in my neck, but still feeling the same symptoms
Hi guys, a few months ago I was admitted to hospital with neurobechets (where the bechets affects your brain and brain stem) that was sorted and I’ve been fine for a couple months, but today I’ve felt the exact same way expect the pain isn’t in my head it’s in my neck, but still feeling the same symptoms
Katebbb
in
Behçet's UK
5 years ago
CatoG
Hello everyone, I am to this post. I have suffered with RLS for over 40 years. I have tried all the usual methods of dealing with it and am presently on ropinole. I take 6 mg a night (not knowing until recently what s high dose that is). I am experiencing abreaction and need to get off it. I have
Hello everyone, I am to this post. I have suffered with RLS for over 40 years. I have tried all the usual methods of dealing with it and am presently on ropinole. I take 6 mg a night (not knowing until recently what s high dose that is). I am experiencing abreaction and need to get off it. I have
CatoG
in
Restless Legs Syndrome
5 years ago
Progress but not supported enough at work
Hi, my first post after reading loads. I fractured my skull in 2014 and caused damage to my frontal lobe and have suffered ups and downs since but I have made a great recovery. I’m a curriculum leader in an fe college and from the point where I didn’t feel comfortable teaching children due to feeling
Hi, my first post after reading loads. I fractured my skull in 2014 and caused damage to my frontal lobe and have suffered ups and downs since but I have made a great recovery. I’m a curriculum leader in an fe college and from the point where I didn’t feel comfortable teaching children due to feeling
Davidwoods78
in
Headway
5 years ago
Additional IVF Techniques - HELP!
I had no idea there are so many optional add-ons for IVF! We are doing our second load of consent forms and they are asking us if we want: -Embryo Glue -Assisted Hatching -Endometrial Scratch -Embryoscope -PICSI Other than the scratch, this is the first I am hearing of any of these and it's really stressing
I had no idea there are so many optional add-ons for IVF! We are doing our second load of consent forms and they are asking us if we want: -Embryo Glue -Assisted Hatching -Endometrial Scratch -Embryoscope -PICSI Other than the scratch, this is the first I am hearing of any of these and it's really stressing
thepregnantpause
in
Fertility Network UK
5 years ago
Looking bad for one twin after IVF
Hi ladies I hope you are all ok and feeling strong. I am writing this in case anyone has gone through anything similar. After 3 rounds of IVF at 40 I finally became pregnant after a very good last round of IVF, ending in two transferred grade A and even some frosties (which we never had before). At
Hi ladies I hope you are all ok and feeling strong. I am writing this in case anyone has gone through anything similar. After 3 rounds of IVF at 40 I finally became pregnant after a very good last round of IVF, ending in two transferred grade A and even some frosties (which we never had before). At
CAS2
in
Fertility Network UK
5 years ago
Hit a brick wall!
I'm currently trying to get off Ropinirole and I've hit a brick wall! This last week has been a nightmare. Since getting down to .05mg of the drug my RLS has gone crazy. I've only had co cocamol to help with the pain, which hasn't helped my legs very much. I've had so little sleep and last night I
I'm currently trying to get off Ropinirole and I've hit a brick wall! This last week has been a nightmare. Since getting down to .05mg of the drug my RLS has gone crazy. I've only had co cocamol to help with the pain, which hasn't helped my legs very much. I've had so little sleep and last night I
Scattypatty
in
Restless Legs Syndrome
5 years ago
Ultrasound Scans - Results
Quite often posters ask whether they find out their Ultrasound Scan result from the technician performing the scan. I found this from the NHS website on Ultrasound scan procedures which may help... “You may be told the results of your scan soon after it's been carried out, but in most cases the
Quite often posters ask whether they find out their Ultrasound Scan result from the technician performing the scan. I found this from the NHS website on Ultrasound scan procedures which may help... “You may be told the results of your scan soon after it's been carried out, but in most cases the
Hidden
in
British Liver Trust
5 years ago
Looking for advice
My husband acquired a brain injury in 2001 from a RTA. I met him after his accident and we've been together for 10 years. We've managed his behaviour on our own and although we've had our ups and downs we've muddled through. This last year though his behaviour has deteriorated (memory, confusion, obsessive
My husband acquired a brain injury in 2001 from a RTA. I met him after his accident and we've been together for 10 years. We've managed his behaviour on our own and although we've had our ups and downs we've muddled through. This last year though his behaviour has deteriorated (memory, confusion, obsessive
Laylablue
in
Headway
5 years ago
Pregabalin
Well its 4.39 in the morning and Ive decided that lyrica is not working for me. Its just over 3 weeks and it still doesnt work. Im exhausted. Hardly any sleep. My question is , Is horizant the same.as lyrica. Has anyone had good results with it.
Well its 4.39 in the morning and Ive decided that lyrica is not working for me. Its just over 3 weeks and it still doesnt work. Im exhausted. Hardly any sleep. My question is , Is horizant the same.as lyrica. Has anyone had good results with it.
Memmy
in
Restless Legs Syndrome
5 years ago
Sjogren Syndrome
Could someone tell me if you know have a right to see an eye specialist if you have Sjogrens Syndrome. I asked my Rheumatologist and was refused saying it looked like I was doing everything I could do myself so there was no point. I also take Plaquenil for my Lupus which they are insisting I cut down
Could someone tell me if you know have a right to see an eye specialist if you have Sjogrens Syndrome. I asked my Rheumatologist and was refused saying it looked like I was doing everything I could do myself so there was no point. I also take Plaquenil for my Lupus which they are insisting I cut down
Gillyg
in
LUPUS UK
5 years ago
Ropinirole update
I love being able to share on this website!! It's been awhile since I've written and so many have shared on topics that I can relate to and get advice, ideas, and support. As an AA member I learned in the beginning that when I share it helps me but also others!! Anyhow...on 6 mg ropinirole for many years
I love being able to share on this website!! It's been awhile since I've written and so many have shared on topics that I can relate to and get advice, ideas, and support. As an AA member I learned in the beginning that when I share it helps me but also others!! Anyhow...on 6 mg ropinirole for many years
tweedy66
in
Restless Legs Syndrome
5 years ago
What to take after coming off Ropinirole
I'm quite new to this site, my Last post was about the gambling problem I have with taking Ropinirole. I'm now desperate to come off Ropinirole and have been trying to reduce my dosage. I have reduced it from 2mg to 0.75 but at a price. I'm going through augmentation and since trying to reduce the
I'm quite new to this site, my Last post was about the gambling problem I have with taking Ropinirole. I'm now desperate to come off Ropinirole and have been trying to reduce my dosage. I have reduced it from 2mg to 0.75 but at a price. I'm going through augmentation and since trying to reduce the
Scattypatty
in
Restless Legs Syndrome
5 years ago
Relief from intense RLS
Hi, just thought I'd mention an experience I had with rls that might be helpful. About 10 years ago, I went through the horrible rls associated with opiate withdrawal (more like restless body syndrome). It lasted about a month. I didn't have access to any meds like gabapentin, but I did have a ton of
Hi, just thought I'd mention an experience I had with rls that might be helpful. About 10 years ago, I went through the horrible rls associated with opiate withdrawal (more like restless body syndrome). It lasted about a month. I didn't have access to any meds like gabapentin, but I did have a ton of
Jwunder
in
Restless Legs Syndrome
5 years ago
Living in Anquish
I am 51 years old. I cant stay still because of my legs. No sleep, no rest for my mind. I can barely concentrate on what I'mvwriting right now. I go on walks & bikerides everyday which is very hard cuz I have 5 herniated discs. I am taking magnesium tablets, i only drink water for fear of caffeine
I am 51 years old. I cant stay still because of my legs. No sleep, no rest for my mind. I can barely concentrate on what I'mvwriting right now. I go on walks & bikerides everyday which is very hard cuz I have 5 herniated discs. I am taking magnesium tablets, i only drink water for fear of caffeine
gammypaula
in
Restless Legs Syndrome
5 years ago
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