Help me plz linzess and Amitiza: Hello everyone... - IBS Network

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Help me plz linzess and Amitiza

craigers618 profile image
6 Replies

Hello everyone I been having this problem all my life encoperisis and enuresis now I know its more ibs-c i just turn 28 I been trying to get this better but nothing is helping. My gi doctor gave me Linzess 290mg 1 a day but when I go to CvS to pick it up they want 1k for 90 pills yeah no sorry cant pay that now he want me to take Amitiza24mg 2 times a day and Lactulose. I been taking senna 8.6 mg 2 a day and stool softener 250 mg a day still not really going poop I mostly go every 4-5 day without pooping then when I do go I poop for 2 days and still have accident plus I have bedwetting accident. Can someone help me what meds work good and what mg or what should I do thank you.

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auntyjean profile image
auntyjean

First I would say have you had tests to try to find reasons for this. I had linzess as we have NHS in UK. It helped but gave me diarrhea. Have you tried home colonic irrigation. I was prescribed this by a biofeedback nurse. I used the peristeen system. I have paid privately for a comprehensive stool test and found I have 2 parasites and very little good bacteria in my gut. I'm trying to eradicate the parasites now. Hope you get help.

Chel00 profile image
Chel00 in reply to auntyjean

Have you ever had helicobactor pylori infection only my boyfriend was diagnosed with this about ten years ago and his stomach has never been right since he’s now been diagnosed with ibs he’s been prescribed linaclotide what I think are linzess he’s wary of taking them because he feels so ill and is worried about the affect they will have on his stomach and bowel

auntyjean profile image
auntyjean in reply to Chel00

No I've never had that infection. Linaclotide is quite strong. Hope he gets help.

Hi, I just read a little about your problem, did not know the medical words for this. You did not say if you worked, family etc. Anyway have you seen a urologist, I’am on a pill called Trospium Chloride 20 mg one in morning one at night, keeps me from bladder leakage. For stool problem I would drink plenty water and eat lots of fruits and veggies. Hope this might help. Keep us posted!

Alphanes profile image
Alphanes

It's 900 dollers because it's like 24 dollers per pill, I know it's outrageous. And the pill really does help so much but they know we really need it so they make it expensive. When you take it tho you'll go from in pain to relief in an hour. It will give you the runs big time but is so worth it if your having pains from being so backed up. My insurence stopped paying for mine.

craigers618 profile image
craigers618 in reply to Alphanes

Thank you

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