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I had a few questions
My nan had sickle cell anaemia, she pasted away from it in 2003 aged 59, however now I am 17 turning 18 soon i wanted to look in to it abit more. As far as I know I understand that it's on my dads side. My dad has never been tested for it and only found out my nan had sickle cell anaemia shortly after
My nan had sickle cell anaemia, she pasted away from it in 2003 aged 59, however now I am 17 turning 18 soon i wanted to look in to it abit more. As far as I know I understand that it's on my dads side. My dad has never been tested for it and only found out my nan had sickle cell anaemia shortly after
Jasonfaram17
in
Sickle Cell Society
9 years ago
Medicines reduced..
Hi: I am new to this forum. I have been a type2 diabetic from 21 years. I followed LCHF diet from a month and my medications have been reduced as follows: Mornings 1. Victoza injection 1.8 to 0.6 now. 2. Metsmall 1000 mg to nil. Nights. 1. GlimyMP2- 500 mg to nil. 2. Trajenta 5 mg continuing. My HbA1C
Hi: I am new to this forum. I have been a type2 diabetic from 21 years. I followed LCHF diet from a month and my medications have been reduced as follows: Mornings 1. Victoza injection 1.8 to 0.6 now. 2. Metsmall 1000 mg to nil. Nights. 1. GlimyMP2- 500 mg to nil. 2. Trajenta 5 mg continuing. My HbA1C
27parims
in
Diabetes India
9 years ago
Long term
Does anyone take Rayos for their maintenance of PRM? Also any thoughts on eating an anti- inflammatory diet. Trying to wade through all the info that I have found and come up with an eating plan that helps me to stay as pain free as possible. So far I've noticed that sugar and gluten are big triggers
Does anyone take Rayos for their maintenance of PRM? Also any thoughts on eating an anti- inflammatory diet. Trying to wade through all the info that I have found and come up with an eating plan that helps me to stay as pain free as possible. So far I've noticed that sugar and gluten are big triggers
PMRnewbie
in
PMRGCAuk
9 years ago
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Renal parenchyma disease
My fiance has MPO vasculitis. He recently had a kidney biopsy and was diagnosed as having Moderate Echogenic Left Renal Parenchyma. Does anyone know what that is? Is a kidney transplant an option?
My fiance has MPO vasculitis. He recently had a kidney biopsy and was diagnosed as having Moderate Echogenic Left Renal Parenchyma. Does anyone know what that is? Is a kidney transplant an option?
Christina1960
in
Vasculitis UK
9 years ago
HBA1C always around 9
Hi, I am a diabetic type 1 diagnosed in 2002 and since then on Huminsulin 30/70(Morning 38 units and night 40 units) and oral drugs Gluconorm G1 (Daily Twice); 1 mutivitamin tab every night( A to Z vit). In a week, I wake up with Low Sugars almost every alternate day, but still my HBA1C is always around
Hi, I am a diabetic type 1 diagnosed in 2002 and since then on Huminsulin 30/70(Morning 38 units and night 40 units) and oral drugs Gluconorm G1 (Daily Twice); 1 mutivitamin tab every night( A to Z vit). In a week, I wake up with Low Sugars almost every alternate day, but still my HBA1C is always around
vinodbachu
in
Diabetes India
9 years ago
Transplant advice
I was just wondering if any of you have experience a kidney transplant. A friend of mine has been told they need a premtive one. I am just curious how long it will take him to bounce back from the operation and if there is anything I should look out for. It's just a bit scary!!!!
I was just wondering if any of you have experience a kidney transplant. A friend of mine has been told they need a premtive one. I am just curious how long it will take him to bounce back from the operation and if there is anything I should look out for. It's just a bit scary!!!!
aec79
in
Early CKD Support
9 years ago
Kidney waiting list
Hi all can anyone tell on average how long we have to wait on the transpalnt list, I am about to start dialysis but like most people hope to have a kidney transplant in the near future. I do have a couple of family members and a couple of friends that have offered to be tested but if they are not a match
Hi all can anyone tell on average how long we have to wait on the transpalnt list, I am about to start dialysis but like most people hope to have a kidney transplant in the near future. I do have a couple of family members and a couple of friends that have offered to be tested but if they are not a match
goldenboy12345
in
Dialysis Support
9 years ago
Sickle Cell Society please advise me of what you mean when you say the following!!
Could you please explain to me why on you website it adamtly states, and I quote "People who ONLY (are you for real?) Have Sickle Cell Trait do not suffer any of the symptoms of Sickle Cell Anemia. Sickle Cell Trait is NOT an illness and people with trait are completely healthy" I feel that this is
Could you please explain to me why on you website it adamtly states, and I quote "People who ONLY (are you for real?) Have Sickle Cell Trait do not suffer any of the symptoms of Sickle Cell Anemia. Sickle Cell Trait is NOT an illness and people with trait are completely healthy" I feel that this is
benhudson444
in
Sickle Cell Society
9 years ago
Food Food Food.
Hey guys, I'm wondering if anyone can help me with some advice. My name is Shane, I'm 30 years old. I am living with stage 5 renal failure. Although my treatment is going well ( peritoneal dialysis ) I find myself struggling with food. Especially with everything I have to keep an eye on. I'm thinking
Hey guys, I'm wondering if anyone can help me with some advice. My name is Shane, I'm 30 years old. I am living with stage 5 renal failure. Although my treatment is going well ( peritoneal dialysis ) I find myself struggling with food. Especially with everything I have to keep an eye on. I'm thinking
Shane84
in
Early CKD Support
9 years ago
Adcal-D3 caplets
Hi everyone again. Grateful thanks for yesterday's input. Today my query is about taking Adcal-D3 which my surgery has changed from Calcichew. The Calcichew was not a problem to take as they could be sucked or chewed, I kept mine by the bed and had the morning one before I got up and the evening one
Hi everyone again. Grateful thanks for yesterday's input. Today my query is about taking Adcal-D3 which my surgery has changed from Calcichew. The Calcichew was not a problem to take as they could be sucked or chewed, I kept mine by the bed and had the morning one before I got up and the evening one
Sandybo
in
PMRGCAuk
9 years ago
is this the correct viles ?
could anyone set my mind at rest before i complete my order, are these the right viles of b12 i need to self inject? sorry to keep asking but i want to get it right, Vitamin B12 METHYLCOBALAMIN 20mg: Sterile Diluent 5ml: Ideal for Self-Administration via Injection/Sublingual Dropper/Nasal Spray: Each
could anyone set my mind at rest before i complete my order, are these the right viles of b12 i need to self inject? sorry to keep asking but i want to get it right, Vitamin B12 METHYLCOBALAMIN 20mg: Sterile Diluent 5ml: Ideal for Self-Administration via Injection/Sublingual Dropper/Nasal Spray: Each
catherinejordan
in
Pernicious Anaemia Society
9 years ago
Newbie looking for help ๐
Hi everyone I have had type 1 diabetes for 38 yrs now but unfortunately the combination of time and mismanagement in my youth have given me a variety of complications The most severe is renal failure and because of this I am facing transplant surgery I am pre dialysis and have been given options of kidney
Hi everyone I have had type 1 diabetes for 38 yrs now but unfortunately the combination of time and mismanagement in my youth have given me a variety of complications The most severe is renal failure and because of this I am facing transplant surgery I am pre dialysis and have been given options of kidney
Mark3365
in
Kidney Transplant Patient Support
9 years ago
Kidney or pancreas kidney - ??????????
Hi Ive just been made aware of this site (thankyou) I am a type 1 diabetic diagnosed 38 yrs ago. The combination of time and mismanagement in my youth has left me with a variety of problems. The most serious being renal impairment - I am not yet on dialysis but Im guessing its not to far away My mind
Hi Ive just been made aware of this site (thankyou) I am a type 1 diabetic diagnosed 38 yrs ago. The combination of time and mismanagement in my youth has left me with a variety of problems. The most serious being renal impairment - I am not yet on dialysis but Im guessing its not to far away My mind
Mark3365
in
Kidney Transplant Patient Support
9 years ago
Tacrolimus (advagraf)
Hello - hope everyone is as well as they can be ๐๐ We are having some problems with Robs 'tacrolimus' - he forgets if he has taken it and we have said that 'I' will give it to him and then he says 'he has already taken it' and then asks hours later if he has had it ?????? Does anyone have any experience
Hello - hope everyone is as well as they can be ๐๐ We are having some problems with Robs 'tacrolimus' - he forgets if he has taken it and we have said that 'I' will give it to him and then he says 'he has already taken it' and then asks hours later if he has had it ?????? Does anyone have any experience
Hidden
in
British Liver Trust
9 years ago
Withdrawal seizures
Hi, first post in here so forgive me. I went on a 3 month booze binge due to some distressing events that occurred in my life once again. Did the same thing 2 yrs ago and doc said I had AH. But no meds or recommendations to do anything but cut down?! Which I did and went first 3 months of this year sober
Hi, first post in here so forgive me. I went on a 3 month booze binge due to some distressing events that occurred in my life once again. Did the same thing 2 yrs ago and doc said I had AH. But no meds or recommendations to do anything but cut down?! Which I did and went first 3 months of this year sober
tgillies
in
British Liver Trust
9 years ago
Clicking noise when breathing
I was diagnosed with WG over 16 years ago and have Saddle Nose Deformity. My partner is quite concerned that when I'm asleep my breathing sounds like a regular loud clicking sound down a hollow tube and at times the ' death 'rattle ' !!!! his been so concerned at times he has sat up a lot of the
I was diagnosed with WG over 16 years ago and have Saddle Nose Deformity. My partner is quite concerned that when I'm asleep my breathing sounds like a regular loud clicking sound down a hollow tube and at times the ' death 'rattle ' !!!! his been so concerned at times he has sat up a lot of the
Essex-jill
in
Vasculitis UK
9 years ago
Auto Imun
Hi my name is diana and i am new to this group. So happy that i found this site, it make me feel not alone and can read information and success story from the member. I had kidney failure due to auto imune, is there anyone have the same case with me? Doctor said that if i got transplant there is a possibility
Hi my name is diana and i am new to this group. So happy that i found this site, it make me feel not alone and can read information and success story from the member. I had kidney failure due to auto imune, is there anyone have the same case with me? Doctor said that if i got transplant there is a possibility
DianaSa
in
Kidney Transplant Patient Support
9 years ago
Diabetes
I am 71 years old diabetic since1984. living in chennai I checked my sugar level in may 15 .The results were abnormal , hospitalised for 3 days sugar level brought under control ,my prostate glands have also enlarged. I am now under AMaryl M1 tab-2 times a day ( m+n) Jalra tablet -2 times a day. (
I am 71 years old diabetic since1984. living in chennai I checked my sugar level in may 15 .The results were abnormal , hospitalised for 3 days sugar level brought under control ,my prostate glands have also enlarged. I am now under AMaryl M1 tab-2 times a day ( m+n) Jalra tablet -2 times a day. (
tlsubramanian
in
Diabetes India
9 years ago
ANCA C vasculitis
Hi. In 2009 my husband was diagnosed with anca positive vasculitis. It attacked and destroyed his kidneys. He has peritoneal dialysis using a machine overnight. For 2 years he had a cough on which antibiotics had no effects. He started passing blood in the small amount if urine he could pass. He
Hi. In 2009 my husband was diagnosed with anca positive vasculitis. It attacked and destroyed his kidneys. He has peritoneal dialysis using a machine overnight. For 2 years he had a cough on which antibiotics had no effects. He started passing blood in the small amount if urine he could pass. He
sunigirl
in
Vasculitis UK
9 years ago
NDT fillers/binders?
If cellulose binds thyroid hormone, and sugar on the other hand makes absorption easier, why would Forest replace sugar with cellulose? I read somewhere that they wanted to make Armour more diabetic-friendly, but wasn't there any other filler they could have chosen, instead of cellulose? Although, I
If cellulose binds thyroid hormone, and sugar on the other hand makes absorption easier, why would Forest replace sugar with cellulose? I read somewhere that they wanted to make Armour more diabetic-friendly, but wasn't there any other filler they could have chosen, instead of cellulose? Although, I
Hidden
in
Thyroid UK
9 years ago
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