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4am and still up!!!
I don't post much because my RLS isn't too bad most nights.I tried adding that both my kidneys have failed because of catching Covid for the second time and already I have a number of health issues. I am on Peritoneal Dialysis and I am diabetic. I treat my RLS with 75mg Pregabalin, I know it's nothing
I don't post much because my RLS isn't too bad most nights.I tried adding that both my kidneys have failed because of catching Covid for the second time and already I have a number of health issues. I am on Peritoneal Dialysis and I am diabetic. I treat my RLS with 75mg Pregabalin, I know it's nothing
Sleeplessinbitola
in
Restless Legs Syndrome
2 days ago
Our story living with ESRD
Hello, my husband was diagnosed with IgA nephropathy about 7 years ago, was told he had about 5 years until possible kidney failure, the Dr was right on timing. May of 2023 he was hospitalized with ESRD, we have been to MUSC and Mayo Clinic to begin the journey to getting a transplant. It is nice to
Hello, my husband was diagnosed with IgA nephropathy about 7 years ago, was told he had about 5 years until possible kidney failure, the Dr was right on timing. May of 2023 he was hospitalized with ESRD, we have been to MUSC and Mayo Clinic to begin the journey to getting a transplant. It is nice to
Bodhi22
in
Kidney Dialysis
1 month ago
info on parathyroid please
Hi. This post isn’t about me but looking for info to help my daughter. She has had low kidney function since she had a tummy bug aged 11. She is now mid 40s and at her latest kidney review was told her parathyroid blood level was high. She showed me the numbers but I can’t remember them - they were not
Hi. This post isn’t about me but looking for info to help my daughter. She has had low kidney function since she had a tummy bug aged 11. She is now mid 40s and at her latest kidney review was told her parathyroid blood level was high. She showed me the numbers but I can’t remember them - they were not
HighlandMo
in
Thyroid UK
1 month ago
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Imnusupressants Post Transplant
Hello,Im wondering how this whole suppressed immune system works? My husband and I have got covid (6 weeks post TP for him). The whole household has pretty much had it all at the same time, but how will hubbys recovery differ? Is he less likely to recover as quick, more prone to secondary infection
Hello,Im wondering how this whole suppressed immune system works? My husband and I have got covid (6 weeks post TP for him). The whole household has pretty much had it all at the same time, but how will hubbys recovery differ? Is he less likely to recover as quick, more prone to secondary infection
Ewife
in
British Liver Trust
3 months ago
Tacrolimus vs cyclosporin
Hi, I am currently working with my rheumatologist to plan for second pregnancy. My daughter is 3.5 years old and I was on tacrolimus during my pregnancy (I usually take MMF). I remained relatively well and stable throughout but there were alot of issues with maintaining the tacrolimus concentration
Hi, I am currently working with my rheumatologist to plan for second pregnancy. My daughter is 3.5 years old and I was on tacrolimus during my pregnancy (I usually take MMF). I remained relatively well and stable throughout but there were alot of issues with maintaining the tacrolimus concentration
SonyaNME
in
LUPUS UK
4 months ago
Good News!!!
My dr. approved the buprenorphine for me. I am thinking positive that it will work. She is giving me the patch. I am excited. I have to discontinue the horizant though which surprised me and of course discontinue the oxycodone. Hopefully now you won't have to listen to me complaining and I will
My dr. approved the buprenorphine for me. I am thinking positive that it will work. She is giving me the patch. I am excited. I have to discontinue the horizant though which surprised me and of course discontinue the oxycodone. Hopefully now you won't have to listen to me complaining and I will
lorri214
in
Restless Legs Syndrome
4 months ago
itching
I had a transplant 18 months ago and 6 days ago the hospital reduced my Tacrolimus and increased my Prednisolone to improve my kidney function (although it was no worse than it has been since the transplant). I’m gradually increasing the Tac and decreasing the Prednisolone but today lve started itching
I had a transplant 18 months ago and 6 days ago the hospital reduced my Tacrolimus and increased my Prednisolone to improve my kidney function (although it was no worse than it has been since the transplant). I’m gradually increasing the Tac and decreasing the Prednisolone but today lve started itching
Pie-eater
in
British Liver Trust
4 months ago
Vasculitis in the pancreas?
Has anyone with GPA or MPA been diagnosed with pancreatic issues due to vasculitis? Hubby had has GPA for 15 years, kidney transplant and sinus involvement and most often in remission until now. He has lost 40 pounds( not trying) and must take enzymes to digest food with a very bland diet. All this happened
Has anyone with GPA or MPA been diagnosed with pancreatic issues due to vasculitis? Hubby had has GPA for 15 years, kidney transplant and sinus involvement and most often in remission until now. He has lost 40 pounds( not trying) and must take enzymes to digest food with a very bland diet. All this happened
Sandalsforever
in
Vasculitis UK
4 months ago
Changing Medication
Hi I’m just looking for some advice on Targinact and just Oxycodone please. My neurologist wrote to my GP requesting that I be prescribed Targinact 10mg at night and 5mg mornings increasing if necessary by 5mg increments to maximum of 20mg twice a day, also changing the Venlafaxine I take to either
Hi I’m just looking for some advice on Targinact and just Oxycodone please. My neurologist wrote to my GP requesting that I be prescribed Targinact 10mg at night and 5mg mornings increasing if necessary by 5mg increments to maximum of 20mg twice a day, also changing the Venlafaxine I take to either
Felixstowe
in
Restless Legs Syndrome
5 months ago
B LARGE CELL DIFFUSE LYMPHOMA AFTER 5 YEAR OF POST KIDNEY TRANSPLANT
I got my kidney transplant in dec 2018 now In nov 2024 suffered from NON hodgkin lymphoma now only on tacrolimus 5mg daily .Any advice regarding this then plz
I got my kidney transplant in dec 2018 now In nov 2024 suffered from NON hodgkin lymphoma now only on tacrolimus 5mg daily .Any advice regarding this then plz
bal_123
in
Kidney Transplant Patient Support
6 months ago
My Ckd journey
Hi my name is Dineshwaran.i was diagnosed with kidney failure in year 2003 when I was 19.was on dialysis for two years and did transplant on 2005. Donated by my cousin.it was a perfect match until 2017 where my sugar level was very high. Was on all type of medication and insulin but didn't came down
Hi my name is Dineshwaran.i was diagnosed with kidney failure in year 2003 when I was 19.was on dialysis for two years and did transplant on 2005. Donated by my cousin.it was a perfect match until 2017 where my sugar level was very high. Was on all type of medication and insulin but didn't came down
Dineshwaran
in
Kidney Dialysis
6 months ago
looking for a neurologist
Can anyone recommend a neurologist knowledgeable in RLS in the Bristol/ Bath (England) area ? I currently have a neurologist whom I rate quite highly but who cannot prescribe opioids as they are not on the formulary of the hospital where she practises. She has however asked my GP to prescribe Oxycodone
Can anyone recommend a neurologist knowledgeable in RLS in the Bristol/ Bath (England) area ? I currently have a neurologist whom I rate quite highly but who cannot prescribe opioids as they are not on the formulary of the hospital where she practises. She has however asked my GP to prescribe Oxycodone
etchea33
in
Restless Legs Syndrome
7 months ago
PMR and brachial neuritis
It looks like I have developed a fairly rare condition called Parsonage-Turner syndrome (PTS), also called brachial neuritis. It started with terrible pain in the shoulder, so initially I thought it would appear in the other shoulder and be the beginning of a PMR relapse. But it is taking a different
It looks like I have developed a fairly rare condition called Parsonage-Turner syndrome (PTS), also called brachial neuritis. It started with terrible pain in the shoulder, so initially I thought it would appear in the other shoulder and be the beginning of a PMR relapse. But it is taking a different
dmart7
in
PMRGCAuk
7 months ago
Request for experiences with Vitamin D
If anyone of you would be willing to share your personal experience with Vitamin D that would be appreciated. All good with what is thought to be true in the medicial field I am well versed in that angle. I have taken D3 with K2 and the results were not definitive so I discontinued. I have lived
If anyone of you would be willing to share your personal experience with Vitamin D that would be appreciated. All good with what is thought to be true in the medicial field I am well versed in that angle. I have taken D3 with K2 and the results were not definitive so I discontinued. I have lived
WIZARD6787
in
Pernicious Anaemia Society
1 month ago
Throat tightness
Hello has anyone had tightness in throat like pressure feeling? I can breathe and swallow ok but it's so annoying. I've been suffering severe fatigue and feeling like my body is full of led my GP continues to take blood and did mention I have hyperthyroidism before Christmas but didn't give me any
Hello has anyone had tightness in throat like pressure feeling? I can breathe and swallow ok but it's so annoying. I've been suffering severe fatigue and feeling like my body is full of led my GP continues to take blood and did mention I have hyperthyroidism before Christmas but didn't give me any
Joylene123
in
Thyroid UK
7 months ago
ACR (Microalbumin/Creatinine Ratio)
My Urine’s ACR result is 8.4 mg/mmol. HbA1C is 8.5. I am very worried. Kindly advise or provide insights.
My Urine’s ACR result is 8.4 mg/mmol. HbA1C is 8.5. I am very worried. Kindly advise or provide insights.
Limeandlemon
in
Diabetes India
7 months ago
Sugar Alcohols Ruined My Health: Learn from My Mistakes
Given the number of members who are intolerant to Teva levothyroxine, this video might be of some interest. Many suspect it is the mannitol content of Teva levothyroxine that lies behind the intolerance. After all, there were also many complaints around the world as Merck have slowly move from lactose
Given the number of members who are intolerant to Teva levothyroxine, this video might be of some interest. Many suspect it is the mannitol content of Teva levothyroxine that lies behind the intolerance. After all, there were also many complaints around the world as Merck have slowly move from lactose
helvella
Thyroid UK
in
Thyroid UK
8 months ago
Hi everyone and Happy New Year
my name is Jill and it’s been along while since I’ve posted anything. I was diagnosed in 1999. Aged 39. Despite being very unwell for months and being ‘fobbed ’ off by my Gp. By the time I was diagnosed I had Saddle Nose deformity. Like alot of you even as a nurse I was very scared and felt alone
my name is Jill and it’s been along while since I’ve posted anything. I was diagnosed in 1999. Aged 39. Despite being very unwell for months and being ‘fobbed ’ off by my Gp. By the time I was diagnosed I had Saddle Nose deformity. Like alot of you even as a nurse I was very scared and felt alone
Essex-jill
in
Vasculitis UK
8 months ago
NICE: Teprotumumab for treating thyroid eye disease ID 6432 - being scoped
I have just noticed a new NICE guideline has been started. Only a skeleton at present - in the guideline scoping state. It will probably be years before it is completed. It is good that it has been selected for further work but must be devastating for anyone suffering TED to see how far away this (potential
I have just noticed a new NICE guideline has been started. Only a skeleton at present - in the guideline scoping state. It will probably be years before it is completed. It is good that it has been selected for further work but must be devastating for anyone suffering TED to see how far away this (potential
helvella
Thyroid UK
in
Thyroid UK
5 months ago
Polyneuropathy.
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
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