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Sickle-cell anaemia
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Can my extreme body and muscle pain also be due to Pernicious Anaemia and B12 deficiency?
Thanks for all the informative replies regarding the availability of Schilling test. I have now requested some of the recommended tests from my GP.
Thanks for all the informative replies regarding the availability of Schilling test. I have now requested some of the recommended tests from my GP.
Garrillee
in
Pernicious Anaemia Society
3 years ago
Pernicious Anemia or ALS
My mother died from ALS back in the early 90's. I now have been diagnosed with Pernicious Anemia. I wonder if she really had Pernicious Anemia. Don't have her medical records anymore so I can't check to see how her B12 looked or if it was even tested. It haunts me.
My mother died from ALS back in the early 90's. I now have been diagnosed with Pernicious Anemia. I wonder if she really had Pernicious Anemia. Don't have her medical records anymore so I can't check to see how her B12 looked or if it was even tested. It haunts me.
lavada12
in
Pernicious Anaemia Society
3 years ago
My new iron and thyroid results, help please
So I’ve just had my recent bloods done, last time I came on here it was recommended I increase my Levo dose from 200mcg to 225mcg. As the Aristo brand comes in only 100’s I’ve had to cut the tablets so half every other day with my other 2 tablets. So I’ve been ok been feeling a little anxious and on
So I’ve just had my recent bloods done, last time I came on here it was recommended I increase my Levo dose from 200mcg to 225mcg. As the Aristo brand comes in only 100’s I’ve had to cut the tablets so half every other day with my other 2 tablets. So I’ve been ok been feeling a little anxious and on
Cheekycharlie1981
in
Thyroid UK
3 years ago
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B12 Micro Needle Patch?
I read an article about development of a patch delivery for vaccines. Because I had nothing else to do, I sent and email to one of the companies developing this technology. Here is what I wrote: I just read about your vaccine patch products. I was wondering if patches could be used for medical issues
I read an article about development of a patch delivery for vaccines. Because I had nothing else to do, I sent and email to one of the companies developing this technology. Here is what I wrote: I just read about your vaccine patch products. I was wondering if patches could be used for medical issues
MoKayD
in
Pernicious Anaemia Society
3 years ago
Low hemoglobin
Hi! I'm new on here, Louise. I have been diagnosed as CLL in August 2021. I have low hemoglobin any suggestions for bring ing it up would be appreciated.
Hi! I'm new on here, Louise. I have been diagnosed as CLL in August 2021. I have low hemoglobin any suggestions for bring ing it up would be appreciated.
9896150629
in
CLL Support
3 years ago
optimum levels for blood tests
I have just received a couple of blood test results. I would be grateful if I could be advised of optimum levels I should aim for. Vit D103.3 nmol/L (70-150) Vit B12 492 ng/L (160-800) Folic acid 11.4 ug/L >2.7 These test were organised by the NHS endo. Many thanks
I have just received a couple of blood test results. I would be grateful if I could be advised of optimum levels I should aim for. Vit D103.3 nmol/L (70-150) Vit B12 492 ng/L (160-800) Folic acid 11.4 ug/L >2.7 These test were organised by the NHS endo. Many thanks
Caze
in
Thyroid UK
3 years ago
Repeat blood test after loading dose???
My B12 level was very low <100 and after testing I was diagnosed with pernicious anaemia. A couple of weeks after the loading dose my blood was retested and came back with a B12 level of 2000 - not surprising as I’d had the loading dose. What was worrying is that it came with an added note saying that
My B12 level was very low <100 and after testing I was diagnosed with pernicious anaemia. A couple of weeks after the loading dose my blood was retested and came back with a B12 level of 2000 - not surprising as I’d had the loading dose. What was worrying is that it came with an added note saying that
Patsypar
in
Pernicious Anaemia Society
3 years ago
How I Manage B12 Sickness (at least some of it)
Hello All - I have been reading this blog for a few months now and have gleaned a great deal of good information - thank you! I have especially been reading the posts from those of you who feel so sick after B12 injections - because I do as well. After my diagnosis of autoimmune atrophic gastritis
Hello All - I have been reading this blog for a few months now and have gleaned a great deal of good information - thank you! I have especially been reading the posts from those of you who feel so sick after B12 injections - because I do as well. After my diagnosis of autoimmune atrophic gastritis
Hidden
in
Pernicious Anaemia Society
3 years ago
Vitamin B12 tummy trouble
I’ve been prescribed Vitamin B12 as I am low in this and folate. I am adjusting my diet . Does anyone experiencing mild tummy trouble whilst taking this ? I am to take the B12 for three months and then to repeat the blood test.
I’ve been prescribed Vitamin B12 as I am low in this and folate. I am adjusting my diet . Does anyone experiencing mild tummy trouble whilst taking this ? I am to take the B12 for three months and then to repeat the blood test.
Elizabethjane7861
in
PMRGCAuk
3 years ago
NHS national COVID Cancer Antibody Survey
I took the opportunity to partake. I received the test kit yesterday and will do the test today. So far, so good. But when applying you have to say how many jabs you've had: none, one or two. I've had three, so I cannot answer accurately. I answered 'two'. Next question was 'how long ago was that jab
I took the opportunity to partake. I received the test kit yesterday and will do the test today. So far, so good. But when applying you have to say how many jabs you've had: none, one or two. I've had three, so I cannot answer accurately. I answered 'two'. Next question was 'how long ago was that jab
flyhigher
in
CLL Support
3 years ago
Sifrol withdrawal, need Help Please.
Hello all together, I took my last Sifrol 66 days ago. I didn't go the cold turkey way, I started in November 2020 tapering to dosage of 0.03 Mg. (I started with 0.09mg 3 years ago) I don't have restlesslegs anymore. Since I quit i think I do have DAWS. Not all symptoms but extremely anxiety, panic
Hello all together, I took my last Sifrol 66 days ago. I didn't go the cold turkey way, I started in November 2020 tapering to dosage of 0.03 Mg. (I started with 0.09mg 3 years ago) I don't have restlesslegs anymore. Since I quit i think I do have DAWS. Not all symptoms but extremely anxiety, panic
Dina1234
in
Restless Legs Syndrome
3 years ago
Daughter’s iron panel And recent thyroid results
Hello I have my daughter’s recent full thyroid and iron panel. Hopefully this can help understand why she still has so many symptoms after starting thyroxine 1.5 years ago …. Thanks so much! TSH - 1.57 (0.27-4.2) FT4 - 23.1 (12-22) FT3 - 5.6 (4.1 -7.9) RT3 - 41 (10-24) Iron - 17.2 (6.6-26) TIBC - 67
Hello I have my daughter’s recent full thyroid and iron panel. Hopefully this can help understand why she still has so many symptoms after starting thyroxine 1.5 years ago …. Thanks so much! TSH - 1.57 (0.27-4.2) FT4 - 23.1 (12-22) FT3 - 5.6 (4.1 -7.9) RT3 - 41 (10-24) Iron - 17.2 (6.6-26) TIBC - 67
Dolphin40
in
Thyroid UK
3 years ago
Is folic acid safe?
There are many articles claiming folic acid is not safe since it's not bioavailable to cells and can be root cause of some cancers and the only way cells absorbable form is methyl folate. So my question is now mist of the vitamin products contain folic acid is it safe to take folic acid? Is there any
There are many articles claiming folic acid is not safe since it's not bioavailable to cells and can be root cause of some cancers and the only way cells absorbable form is methyl folate. So my question is now mist of the vitamin products contain folic acid is it safe to take folic acid? Is there any
Hamayeshguy
in
Pernicious Anaemia Society
3 years ago
Increased reticulocyte count - leukemia?
Increased reticulocyte count - ...And decreased ferritin situation. I have manager my PA well for many years now, but forgot to bring my krauterblut Iron on holiday for a week, and since then my ferritin has dropped to 44 while the reticulocytes has gone above range to 110. Now, as I have a breastcancer
Increased reticulocyte count - ...And decreased ferritin situation. I have manager my PA well for many years now, but forgot to bring my krauterblut Iron on holiday for a week, and since then my ferritin has dropped to 44 while the reticulocytes has gone above range to 110. Now, as I have a breastcancer
indywindy
in
Pernicious Anaemia Society
3 years ago
96.7 MCV blood test bad?
I’ve been tested for liver issues for over a year now which keeps coming back fine. My whole life of lab work has shown MCV at 91-93 which is normal. My last blood work which did not show the metabolic numbers said that my Mcv is now 96.7 and just ever so slightly out of range. I’m freaking out because
I’ve been tested for liver issues for over a year now which keeps coming back fine. My whole life of lab work has shown MCV at 91-93 which is normal. My last blood work which did not show the metabolic numbers said that my Mcv is now 96.7 and just ever so slightly out of range. I’m freaking out because
Amethyst91
in
British Liver Trust
3 years ago
Low B12 after oral tablets
Hi all, first time here needing some advice on my B12 results and how to approach this with my GP. I was first diagnosed with B12 deficiency Jan 20 and my GP prescribed B12 & iron tablets. Tests done B12 187 Ferritin 6 Anti intrinsic factor Negative Gastric anti parietal Negative From those test
Hi all, first time here needing some advice on my B12 results and how to approach this with my GP. I was first diagnosed with B12 deficiency Jan 20 and my GP prescribed B12 & iron tablets. Tests done B12 187 Ferritin 6 Anti intrinsic factor Negative Gastric anti parietal Negative From those test
MissyY
in
Pernicious Anaemia Society
3 years ago
NHS app health record says my GCA is minor!
I've just downloaded the NHS app and looked at my health record. I am somewhat disturbed to see this: 29 October 2021 Giant cell arteritis without polymyalgia rheumatica Significance: Minor Status: Active I was diagnosed around 4th October after a diagnosis of PMR a week earlier. This entry is after
I've just downloaded the NHS app and looked at my health record. I am somewhat disturbed to see this: 29 October 2021 Giant cell arteritis without polymyalgia rheumatica Significance: Minor Status: Active I was diagnosed around 4th October after a diagnosis of PMR a week earlier. This entry is after
Broseley
in
PMRGCAuk
3 years ago
Lab results and plan forward
Hello fine people! ✨😍 Deja vu! I feel like I’m having flashbacks. Maybe it is Groundhog Day? Or just an I told you so and now you have wasted one year of my life so I have felt rubbish unnecessarily. ⚠️🆘 So, my Hb wasn’t as low as when I went to donate but it was still clearly in anemic range at 11.7
Hello fine people! ✨😍 Deja vu! I feel like I’m having flashbacks. Maybe it is Groundhog Day? Or just an I told you so and now you have wasted one year of my life so I have felt rubbish unnecessarily. ⚠️🆘 So, my Hb wasn’t as low as when I went to donate but it was still clearly in anemic range at 11.7
DRunnerchick
in
LUPUS UK
3 years ago
What type of injection in NICE guideline is defined for PA or b12 deficiency SC or IM?
After couple if months injection I feel my body is more tolerable to injection and I feel no burning feet and severe dizziness like before. But I have panic attack and anxiety attack which make my situation intolerable. My question is in SC injection can I inject every other day ? Because I think in
After couple if months injection I feel my body is more tolerable to injection and I feel no burning feet and severe dizziness like before. But I have panic attack and anxiety attack which make my situation intolerable. My question is in SC injection can I inject every other day ? Because I think in
Hamayeshguy
in
Pernicious Anaemia Society
3 years ago
Advice on Iron Supplements Please
My GP has agreed that I should have a blood test to check my iron levels but in the meantime has suggested that I should take an iron supplement 2-3 times a day. Based on previous advice seen on this forum, this seems excessive so I am thinking that I will just take gentle iron once a day as shown on
My GP has agreed that I should have a blood test to check my iron levels but in the meantime has suggested that I should take an iron supplement 2-3 times a day. Based on previous advice seen on this forum, this seems excessive so I am thinking that I will just take gentle iron once a day as shown on
Shad0w2
in
Restless Legs Syndrome
3 years ago
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