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Understanding your blood test
Hi all, Happy New Year etc! I have finally managed to translate my blood test results and for anyone else out there who is also bemused, I am attaching a guide to help you understand the basics. Ranges are often slightly different, or expressed differently in different countries or even clinics but really
Hi all, Happy New Year etc! I have finally managed to translate my blood test results and for anyone else out there who is also bemused, I am attaching a guide to help you understand the basics. Ranges are often slightly different, or expressed differently in different countries or even clinics but really
Quercus53
in
MPN Voice
3 years ago
Gastritis
Gastritis query My Rheumy started me on Etoricixib and it gave me awful gastritis, so stopped the drug and it settled almost back to normal then one day I took a Neurofen and it set me back - awful taste in my mouth, can’t eat much - have been put on Famotidine but no help-I had HPylori a few years ago
Gastritis query My Rheumy started me on Etoricixib and it gave me awful gastritis, so stopped the drug and it settled almost back to normal then one day I took a Neurofen and it set me back - awful taste in my mouth, can’t eat much - have been put on Famotidine but no help-I had HPylori a few years ago
bakingD
in
PMRGCAuk
3 years ago
Vitamins
Can someone please list all the vitamins (including calcium, because I am a woman) that are helpful to take daily for RLS including the amount to take daily, strengths, and times of day to take them? I'm confused because I know you have to be careful not to take magnesium with other things, iron, vitamin
Can someone please list all the vitamins (including calcium, because I am a woman) that are helpful to take daily for RLS including the amount to take daily, strengths, and times of day to take them? I'm confused because I know you have to be careful not to take magnesium with other things, iron, vitamin
LanaCSR
in
Restless Legs Syndrome
3 years ago
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Thank you for your replies to my post about Plavix
I want to thank everyone for replying to my post about Plavix and PV. I have an appointment with my hematologist in late January and will have lots to talk about with him. I hope that I can have some positive blood test results. Wondering if anyone else is experienced fatigue when they started taking
I want to thank everyone for replying to my post about Plavix and PV. I have an appointment with my hematologist in late January and will have lots to talk about with him. I hope that I can have some positive blood test results. Wondering if anyone else is experienced fatigue when they started taking
Bluetoday1
in
MPN Voice
3 years ago
Next-level Dose Given in Trial of Stem Cell Therapy for Bradykinesia
IMAC Holdings has completed dosing the second group of patients in its Phase 1 clinical trial testing umbilical cord-derived mesenchymal stem cell therapy for the treatment of bradykinesia due to Parkinson’s disease. About a year ago, a first group of five patients received a low dose of the therapy
IMAC Holdings has completed dosing the second group of patients in its Phase 1 clinical trial testing umbilical cord-derived mesenchymal stem cell therapy for the treatment of bradykinesia due to Parkinson’s disease. About a year ago, a first group of five patients received a low dose of the therapy
Hidden
in
Cure Parkinson's
2 years ago
Can I quote you?
Hey experts … PMRpro, DorsetLady et al, My local Member of Parliament has just visited me to get information to put to our Federal Health Minister in an attempt to get an exemption so that I can have my allocation of tocilizumab extended, or indeed get the drug made available as it is for RA. Among
Hey experts … PMRpro, DorsetLady et al, My local Member of Parliament has just visited me to get information to put to our Federal Health Minister in an attempt to get an exemption so that I can have my allocation of tocilizumab extended, or indeed get the drug made available as it is for RA. Among
LemonZest11
in
PMRGCAuk
2 years ago
Anemia and Different Blood Test Results Help
I have been taking iron for anemia for some time. My latest CBC had some different test results on it. I researched and they relate to different shapes of red blood cells. I just wonder if they mean anything as relating to the anemia. Here are the findings - Anisocytosis1+ Polychromasia1+ Hypochromia1
I have been taking iron for anemia for some time. My latest CBC had some different test results on it. I researched and they relate to different shapes of red blood cells. I just wonder if they mean anything as relating to the anemia. Here are the findings - Anisocytosis1+ Polychromasia1+ Hypochromia1
Pumpkin2009
in
LUPUS UK
2 years ago
Researchers report third case of HIV remission after stem cell transplant using umbilical cord blood
A US woman has become the third known person who's gone into HIV remission, and the first mixed-race woman, thanks to a transplant of stem cells from umbilical cord blood, according to research presented at a conference Tuesday. https://edition.cnn.com/2022/02/15/health/hiv-third-person-remission/index.html
A US woman has become the third known person who's gone into HIV remission, and the first mixed-race woman, thanks to a transplant of stem cells from umbilical cord blood, according to research presented at a conference Tuesday. https://edition.cnn.com/2022/02/15/health/hiv-third-person-remission/index.html
Farooqji
in
Cure Parkinson's
2 years ago
Official: Hydroxocobalamin increases my nervousness/anxiety
I’ve been trialing Cyanocobalamin for the past month and experienced limited side effects but went for my NHS injection on Monday and subsequently the nervousness and tingling has heightened again 🤯 It’s official that Hydroxocobalamin has a negative effect on my nerves - anyone else suffering?
I’ve been trialing Cyanocobalamin for the past month and experienced limited side effects but went for my NHS injection on Monday and subsequently the nervousness and tingling has heightened again 🤯 It’s official that Hydroxocobalamin has a negative effect on my nerves - anyone else suffering?
User2020-1
in
Pernicious Anaemia Society
3 years ago
Buprenorphine annual review
Every year I am required to visit to drug and Alcohol clinic this is a legal requirement in Queensland in doing so this allows my GP to prescribed my buprenorphine. I was the first person on this new program. Restless legs was not a Disease that Dr Jeremy Hayllar was overly familiar with. Both my GP
Every year I am required to visit to drug and Alcohol clinic this is a legal requirement in Queensland in doing so this allows my GP to prescribed my buprenorphine. I was the first person on this new program. Restless legs was not a Disease that Dr Jeremy Hayllar was overly familiar with. Both my GP
Shumbah
in
Restless Legs Syndrome
3 years ago
Is this possibly GCA again?
I am looking for some advice please. I was diagnosed with PMR 4four years ago and this was followed by Giant Cell Arteritis. I was given 60 mgs Prenisolone and gradually tapered down. Unfortunately I had a flare a few months later and I was not given appropriate advice and the sight in my left eye
I am looking for some advice please. I was diagnosed with PMR 4four years ago and this was followed by Giant Cell Arteritis. I was given 60 mgs Prenisolone and gradually tapered down. Unfortunately I had a flare a few months later and I was not given appropriate advice and the sight in my left eye
pamela4215
in
PMRGCAuk
2 years ago
Pred sick day rules.
I'm currently on 2mg of Pred and weekly Tocilizumab and doing Ok as far as PMR and GCA symptoms go. However I've caught the dratted cold that's doing the rounds and wonder whether this means I should increase the Pred in line with the Sick Day Rules leaflet. I'm only using Paracetamol for the cold so
I'm currently on 2mg of Pred and weekly Tocilizumab and doing Ok as far as PMR and GCA symptoms go. However I've caught the dratted cold that's doing the rounds and wonder whether this means I should increase the Pred in line with the Sick Day Rules leaflet. I'm only using Paracetamol for the cold so
PastelsinArt
in
PMRGCAuk
2 years ago
Cord blood donation Northern Ireland
Does anyone know much about this? I’m very early on in pregnancy but heard about this years ago when beother in law had to have a stem cell transplant. I’m not sure if it’s available in Northern Ireland. Does it have to be donated or can it be froze for possible future use for child?
Does anyone know much about this? I’m very early on in pregnancy but heard about this years ago when beother in law had to have a stem cell transplant. I’m not sure if it’s available in Northern Ireland. Does it have to be donated or can it be froze for possible future use for child?
Babytwinkle
in
Pregnancy and Parenting Support
2 years ago
WARWICK's Latest Update on his POST ASCT journey thus far...
Post by MPN-MATE Admin » Sat Feb 12, 2022 10:39 pm Evening all... :D As some of you may recall, sometime ago in 2021, Warwick, (one of our committee members), underwent his Allogenic Stem Cell Transplant (ASCT) journey. While his condition is deemed a success, the journey itself remains ongoing w/
Post by MPN-MATE Admin » Sat Feb 12, 2022 10:39 pm Evening all... :D As some of you may recall, sometime ago in 2021, Warwick, (one of our committee members), underwent his Allogenic Stem Cell Transplant (ASCT) journey. While his condition is deemed a success, the journey itself remains ongoing w/
socrates_8
in
MPN Voice
2 years ago
10 Years With CLL: Two Trials & Lifesaving CAR T-Cell Therapy
I rarely cross post to Patient Power but today there is a story by a fellow CLL patient I have known for many years as DebinOz. She is one of the few I know of with a more aggressive form of CLL than mine. And I think she has more air miles than my 750,000 with United. Len - See: https://patientpower.info
I rarely cross post to Patient Power but today there is a story by a fellow CLL patient I have known for many years as DebinOz. She is one of the few I know of with a more aggressive form of CLL than mine. And I think she has more air miles than my 750,000 with United. Len - See: https://patientpower.info
lankisterguy
Volunteer
in
CLL Support
2 years ago
Why muscles soon after taking B12 timed release or taking iron pills show improvement?
I had severe muscle pain and extreme muscle weakness but by taking B12 timed release and iron almost they improved, but as soon as I carry an object or do anything put sine pressure in my muscles those symptoms return back back after taking iron pills and B12 timed release they get improved. I think
I had severe muscle pain and extreme muscle weakness but by taking B12 timed release and iron almost they improved, but as soon as I carry an object or do anything put sine pressure in my muscles those symptoms return back back after taking iron pills and B12 timed release they get improved. I think
Hamayeshguy
in
Pernicious Anaemia Society
3 years ago
Dipyridamole update
I have been on 100mg x2, one at about 4pm and one closer to 8pm. It is recommended to take Dipyridamole on an empty stomach. This is still lower than the effective dosage in the study and I intend to increase it. I have cut pregabalin from 300mg to 150mg. My goal is to cut it again when the 150mg
I have been on 100mg x2, one at about 4pm and one closer to 8pm. It is recommended to take Dipyridamole on an empty stomach. This is still lower than the effective dosage in the study and I intend to increase it. I have cut pregabalin from 300mg to 150mg. My goal is to cut it again when the 150mg
WideBody
in
Restless Legs Syndrome
2 years ago
Possible way GCA can turn on.
I was watching a YouTube channel yesterday that had to do with women getting fillers on their face. The doctor was teaching a class and had a woman in the chair and he was marking up her face for the fillers and was extremely careful about showing exactly where needles cannot be hit on our face because
I was watching a YouTube channel yesterday that had to do with women getting fillers on their face. The doctor was teaching a class and had a woman in the chair and he was marking up her face for the fillers and was extremely careful about showing exactly where needles cannot be hit on our face because
Aleish
in
PMRGCAuk
3 years ago
Help with Blood Test Results Please
Hi there I was hoping to see if anyone could help me with my latest blood test results please: Active Vitamin B12 67 pmol/L (Range 25-108) Homocysteine 14.0 (range 3.7-13.9 umol/L) Methylmalonic acid 0.14 (Range 0.29 umol/L) Intrinsic Factor 0 (Range 0-6 U/mL) Vitamin D 37 (Range 76-250 nmol/L) Serum
Hi there I was hoping to see if anyone could help me with my latest blood test results please: Active Vitamin B12 67 pmol/L (Range 25-108) Homocysteine 14.0 (range 3.7-13.9 umol/L) Methylmalonic acid 0.14 (Range 0.29 umol/L) Intrinsic Factor 0 (Range 0-6 U/mL) Vitamin D 37 (Range 76-250 nmol/L) Serum
Mrss25
in
Pernicious Anaemia Society
3 years ago
JCVI advice recommending a fourth Covid jab for LVV-GCA patients on Tocilizumab?
I have been on (self-injected) Ro Actemra (Tocilizumab) since July 2019 for LVV-GCA, and it enabled me to cease all other medications (mainly the dreadful Prednisolone) over the course of the first 9 months.( All of my blood results have been totally normal from 2 weeks after starting Tocilizumab and
I have been on (self-injected) Ro Actemra (Tocilizumab) since July 2019 for LVV-GCA, and it enabled me to cease all other medications (mainly the dreadful Prednisolone) over the course of the first 9 months.( All of my blood results have been totally normal from 2 weeks after starting Tocilizumab and
Suzita76
in
PMRGCAuk
2 years ago
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