Search
Search
About
Log in
Join
Experiences with
Sickle-cell anaemia
Posts
Communities
8,357 public posts
Filter results
Iron test results - advice please
CRP HS X 6.45 mg/L (Range: 0 - 5) - I believe this was high because of infection, as I went down with a temperature the following day. Iron 10.0 umol/L (Range: 5.8 - 34.5) - down from 18.4 six months ago TIBC 43.2 umol/L (Range: 45 - 81) - down from 46.3 six months ago UIBC 33.2 umol/L (Range: 24.2
CRP HS X 6.45 mg/L (Range: 0 - 5) - I believe this was high because of infection, as I went down with a temperature the following day. Iron 10.0 umol/L (Range: 5.8 - 34.5) - down from 18.4 six months ago TIBC 43.2 umol/L (Range: 45 - 81) - down from 46.3 six months ago UIBC 33.2 umol/L (Range: 24.2
Molly161018
in
Thyroid UK
2 years ago
Need some reassurance pls
Hi,I just received my first (Hyrimoz) Adalimumab Injection Kit, I'm really nervous to start 😬 Does anyone have any good experiences with this medication that can help ease my anxiety?
Hi,I just received my first (Hyrimoz) Adalimumab Injection Kit, I'm really nervous to start 😬 Does anyone have any good experiences with this medication that can help ease my anxiety?
Grate4ul
in
NRAS
2 years ago
Stiff feet up to ankles
I have b12 injections every 3 months for pernicious anaemia which I was diagnosed with a couple of years ago. I had breathlessness issues and gastic issues. However my feet have felt stiff and tight before that. I also get more clumsy when my injection is due. However the feet issue never goes away
I have b12 injections every 3 months for pernicious anaemia which I was diagnosed with a couple of years ago. I had breathlessness issues and gastic issues. However my feet have felt stiff and tight before that. I also get more clumsy when my injection is due. However the feet issue never goes away
Kangarooiom
in
Pernicious Anaemia Society
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Fantastic Book for PMR and GCA
On one of my earlier posts, a poster referred me to a book about PMR and GCA. My husband, 73 has been diagnosed with PMR. She recommended this book and it has been fantastic and eye opening and in many ways a Godsend, particularly for asking questions of the rheumatologist and his proactive GP who
On one of my earlier posts, a poster referred me to a book about PMR and GCA. My husband, 73 has been diagnosed with PMR. She recommended this book and it has been fantastic and eye opening and in many ways a Godsend, particularly for asking questions of the rheumatologist and his proactive GP who
Andymegv
in
PMRGCAuk
1 year ago
Husband's last O Infusion rescheduled due to low Neutrophils and WBC
UPDATE: After a week off of all meds, Absolute Neutrofils have gone DOWN to .60, Absolute Eosinophils down to 0. He will start on GCSF Infusions tomorrow for 4 days. His Specialist is confident that his numbers will go up for FINAL infusion next week. At that point dosage of Venetoclax will be reduced
UPDATE: After a week off of all meds, Absolute Neutrofils have gone DOWN to .60, Absolute Eosinophils down to 0. He will start on GCSF Infusions tomorrow for 4 days. His Specialist is confident that his numbers will go up for FINAL infusion next week. At that point dosage of Venetoclax will be reduced
lisakc1
in
CLL Support
2 years ago
Important to know, but sucks to have: TP53 Mutations Confer High Risk in Patients With Myelofibrosis Undergoing HSCT
Patients with myelofibrosis who harbored multi-hit TP53 mutations were at increased risk for relapse, shorter survival, and leukemic transformation after hematopoietic stem cell transplant (HSCT), according to results of a study published in the Blood. “TP53 mutations have been associated with poor
Patients with myelofibrosis who harbored multi-hit TP53 mutations were at increased risk for relapse, shorter survival, and leukemic transformation after hematopoietic stem cell transplant (HSCT), according to results of a study published in the Blood. “TP53 mutations have been associated with poor
PhysAssist
in
MPN Voice
1 year ago
body heat and buprenorphine
Hi, I have been using Buprenorphine patches for 4 weeks and was wondering whether body heat releases more opioids into the system. When I’m really warm I feel spacey and drowsy. Has anyone else experienced this?
Hi, I have been using Buprenorphine patches for 4 weeks and was wondering whether body heat releases more opioids into the system. When I’m really warm I feel spacey and drowsy. Has anyone else experienced this?
Navy20
in
Restless Legs Syndrome
2 years ago
Steroid sparing agents
Could anyone tell me more about Steroid sparing agents please? I have read about Methotrexate and Tocilizumab (?) but not really sure when or if I would go on them ( I was only diagnosed with GCA at the end of January) - also, side effects etc? I see my Rheumatologist next Monday and want to armed with
Could anyone tell me more about Steroid sparing agents please? I have read about Methotrexate and Tocilizumab (?) but not really sure when or if I would go on them ( I was only diagnosed with GCA at the end of January) - also, side effects etc? I see my Rheumatologist next Monday and want to armed with
Janeval
in
PMRGCAuk
1 year ago
anaemia
I’ve recently finished taking pred after a four year struggle. I am now diagnosed with anaemia ! I’ve had two blood tests so far, a urine check, a bowel kit done and am now waiting for a colonoscopy. This is to eliminate anything like internal bleeding. I do not have Celiac disease either. In the mean
I’ve recently finished taking pred after a four year struggle. I am now diagnosed with anaemia ! I’ve had two blood tests so far, a urine check, a bowel kit done and am now waiting for a colonoscopy. This is to eliminate anything like internal bleeding. I do not have Celiac disease either. In the mean
Gardendaffodil
in
PMRGCAuk
1 year ago
Test results advice high b12 and iron
Hi all,Have been on 25mcg levothroxine for 6 weeks so here are my review results (taken first thing before levo dose that day). I have been taking vitamin d as it was 33 in October and have managed to get it up to 77. Also take 1 x igennus b complex, zinc, biocult prebiotic and magnesium glycinate daily
Hi all,Have been on 25mcg levothroxine for 6 weeks so here are my review results (taken first thing before levo dose that day). I have been taking vitamin d as it was 33 in October and have managed to get it up to 77. Also take 1 x igennus b complex, zinc, biocult prebiotic and magnesium glycinate daily
clairel996
in
Thyroid UK
1 year ago
Fibro & Severe Stiffness.
Hello all. So it's been a while since I posted last. Many of you were so incredibly helpful and knowledgeable on many questions about fibro. I had never realised or put the two together when it came down to severe stiffness that some people experienced this as a symptom of fibro. Can anybody explain
Hello all. So it's been a while since I posted last. Many of you were so incredibly helpful and knowledgeable on many questions about fibro. I had never realised or put the two together when it came down to severe stiffness that some people experienced this as a symptom of fibro. Can anybody explain
catcalling
in
Fibromyalgia Action UK
1 year ago
Zanabrutinib
Happy New year, everyone! I was treated with Ibrutinib for about 2 years, and taken off after a grade 3 event (SVT Tachycardia). It was decided I would stay off treatment until progression. Although I should get somewhere between one and three years in remission, my consultant has already started to
Happy New year, everyone! I was treated with Ibrutinib for about 2 years, and taken off after a grade 3 event (SVT Tachycardia). It was decided I would stay off treatment until progression. Although I should get somewhere between one and three years in remission, my consultant has already started to
MovingForward4423
in
CLL Support
2 years ago
Statins
Apologies, this is a very long post! Statins are known by members of this forum to trigger/exacerbate RLS, although the NHS doesn’t formally recognise this. Statins are the most prescribed drug in the world, recommended for the reduction of cholesterol. Many doctors will say that they are essential,
Apologies, this is a very long post! Statins are known by members of this forum to trigger/exacerbate RLS, although the NHS doesn’t formally recognise this. Statins are the most prescribed drug in the world, recommended for the reduction of cholesterol. Many doctors will say that they are essential,
ChrisColumbus
in
Restless Legs Syndrome
2 years ago
Vitamin test
Can I have advice with my testPlease B12.......376ng/L (211.0-911.0 Serum iron Level 17.4......umoi/L (9.0-30.0 Serum Transferrin Level 3.00gL.....(2.5-3.8) Red Bloodcell count 4.68.....3.8-5.8) Serum B12...376ng/L (211.0-911.0) Serum Folate Level 22.1ug /L (>4.0) Serum FreeT4 Level 17.7pmoi
Can I have advice with my testPlease B12.......376ng/L (211.0-911.0 Serum iron Level 17.4......umoi/L (9.0-30.0 Serum Transferrin Level 3.00gL.....(2.5-3.8) Red Bloodcell count 4.68.....3.8-5.8) Serum B12...376ng/L (211.0-911.0) Serum Folate Level 22.1ug /L (>4.0) Serum FreeT4 Level 17.7pmoi
Madge72
in
Thyroid UK
1 year ago
Effect of exercise on thyroid blood tests?
Just wondering,what effect have people noticed on their blood tests if exercising the day before/same day/other time? SlowDragon has previously shared that the ideal time for thyroid blood tests is just before 9am, and I'm wondering if exercising should also be taken into account? https://pubmed.ncbi.nlm.nih.gov
Just wondering,what effect have people noticed on their blood tests if exercising the day before/same day/other time? SlowDragon has previously shared that the ideal time for thyroid blood tests is just before 9am, and I'm wondering if exercising should also be taken into account? https://pubmed.ncbi.nlm.nih.gov
Hidden
in
Thyroid UK
1 year ago
Glenmark Levothyroxine
Whilst we saw their levothyroxine withdrawn last year, I just saw something that made me wonder if it is coming back. The dm+d is a database of all medicines. Much else in the NHS uses the dm+d data as a starting point. It is a legal requirement for new medicines to be added to dm+d within something
Whilst we saw their levothyroxine withdrawn last year, I just saw something that made me wonder if it is coming back. The dm+d is a database of all medicines. Much else in the NHS uses the dm+d data as a starting point. It is a legal requirement for new medicines to be added to dm+d within something
helvella
Thyroid UK
in
Thyroid UK
1 year ago
Help with Iron test results please
Inflammation CRP HS 0.46 mg/L ( 0 - 5) Iron Status Iron 22.2 umol/L (5.8 - 34.5) TIBC 58.0 umol/L (45 - 81) UIBC 35.8 umol/L (24.2 - 70.1) Transferrin Saturation 38.3 % (20 - 50) Ferritin 53.4 ug/L (13 - 150) These are my results from medichecks iron test. This was a retest and Interestingly
Inflammation CRP HS 0.46 mg/L ( 0 - 5) Iron Status Iron 22.2 umol/L (5.8 - 34.5) TIBC 58.0 umol/L (45 - 81) UIBC 35.8 umol/L (24.2 - 70.1) Transferrin Saturation 38.3 % (20 - 50) Ferritin 53.4 ug/L (13 - 150) These are my results from medichecks iron test. This was a retest and Interestingly
BiscuitBaby
in
Thyroid UK
1 year ago
Protein and B12
The information in this article on protein deficiency seemed interesting to me. It seems like some of the symptoms I was attributing to B12 deficiency symptoms might be due in part to insufficient protein. The entire article is available at no charge. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4439950
The information in this article on protein deficiency seemed interesting to me. It seems like some of the symptoms I was attributing to B12 deficiency symptoms might be due in part to insufficient protein. The entire article is available at no charge. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4439950
WiscGuy
in
Pernicious Anaemia Society
2 years ago
Protein deficiency and B12?
I was diagnosed with B12 deficiency with neural symptoms in the spring of 2021. After bouncing around in treatment that I later learned was appropriate for hematologic symptoms, in August of 2021 I began injecting cyanocobalamin daily, and have continued since. Some symptoms improved, others did not,
I was diagnosed with B12 deficiency with neural symptoms in the spring of 2021. After bouncing around in treatment that I later learned was appropriate for hematologic symptoms, in August of 2021 I began injecting cyanocobalamin daily, and have continued since. Some symptoms improved, others did not,
WiscGuy
in
Pernicious Anaemia Society
2 years ago
13 days on +5mg but still not completely sorted. Link to covid jab? Also dex scan disappointing.
After chat on here with PMRpro and others I added 5mg. I had gone through an awful fatigue etc very slow drop from 6.5mg to 6mg. It took me about 5 weeks and was feeling good after 2 weeks on 6 every day but stiffness started at week3. Now had 13 days on higher dose...11/12mg.It was better some days
After chat on here with PMRpro and others I added 5mg. I had gone through an awful fatigue etc very slow drop from 6.5mg to 6mg. It took me about 5 weeks and was feeling good after 2 weeks on 6 every day but stiffness started at week3. Now had 13 days on higher dose...11/12mg.It was better some days
Ebiker
in
PMRGCAuk
2 years ago
1
...
58
59
60
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
3540 results
Thyroid UK
2438 results
MPN Voice
363 results
View top 10 communities
Sort by
Most Relevant
Newest