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Sickle-cell anaemia
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HCT above average
Hey, could any one advise if HCT can be dropped / managed with venesection ? I've noticed on a random blood test from GP few months ago my hematocrit was 0.55 I assume this is considered high. In addition I do regular full blood tests in a local hospital and I never noticed Hematocrit on results. Not
Hey, could any one advise if HCT can be dropped / managed with venesection ? I've noticed on a random blood test from GP few months ago my hematocrit was 0.55 I assume this is considered high. In addition I do regular full blood tests in a local hospital and I never noticed Hematocrit on results. Not
kamiilos
in
MPN Voice
9 months ago
So apparently I'm normal...but I'm definitely perplexed!
Having twice weekly injections since my loading dose in mid December as I still have lots of neuro symptoms. Feeling generally better, but have woken up with migraines the last 4 mornings after they were really improving, and felt v sick this morning 🙄 Every day is an unknown! Had about 30/40 different
Having twice weekly injections since my loading dose in mid December as I still have lots of neuro symptoms. Feeling generally better, but have woken up with migraines the last 4 mornings after they were really improving, and felt v sick this morning 🙄 Every day is an unknown! Had about 30/40 different
Myoldcat
in
Pernicious Anaemia Society
6 months ago
Just diagnosed with autoimmune atrophic gastritis with intestinal metaplasia
I assume this is the root cause of my pernicious anemia? I have an appointment this week to discuss with GI, but want to go into the appointment educated. Does anyone else have this? Any treatment for this? I’m already on EOD (for last two weeks) B12 shots and multivitamins. Thanks in advance for your
I assume this is the root cause of my pernicious anemia? I have an appointment this week to discuss with GI, but want to go into the appointment educated. Does anyone else have this? Any treatment for this? I’m already on EOD (for last two weeks) B12 shots and multivitamins. Thanks in advance for your
ReallyWondering
in
Pernicious Anaemia Society
6 months ago
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Could my iron supplement be causing weight gain?
I have been gaining weight despite being very careful in what I eat since starting my gentle iron supplement. A google search has come up with very mixed results re this. Not sure what to believe. Any advice?
I have been gaining weight despite being very careful in what I eat since starting my gentle iron supplement. A google search has come up with very mixed results re this. Not sure what to believe. Any advice?
Hectorsmum2
in
Restless Legs Syndrome
9 months ago
Returning temporal headaches after stopping Tocilizumab, what to do ?
I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan only) 2 years ago. Only minor symptoms experienced (mainly temporal headache). 65mg Prednisolone prescribed daily for 2 weeks, then to reduce by 5mg per month. A couple of "flares" (just headaches) in the following 12 months
I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan only) 2 years ago. Only minor symptoms experienced (mainly temporal headache). 65mg Prednisolone prescribed daily for 2 weeks, then to reduce by 5mg per month. A couple of "flares" (just headaches) in the following 12 months
ghost123uk
in
PMRGCAuk
2 months ago
Neutropenia whilst on Tocilizumab
Hi. Just wondering if anyone has had a similar experience. Diagnosed with PMR and GCA Nov. 2021. For last 2 months I have been on weekly Tocilizumab injections; this followed a further flare up in December 2023 when the entire aorta was inflamed (I have never had cranial symptoms). I was certainly shocked
Hi. Just wondering if anyone has had a similar experience. Diagnosed with PMR and GCA Nov. 2021. For last 2 months I have been on weekly Tocilizumab injections; this followed a further flare up in December 2023 when the entire aorta was inflamed (I have never had cranial symptoms). I was certainly shocked
Magsters123
in
PMRGCAuk
2 months ago
Advice please on blood results especially possible iron issues.
I would be very grateful for any advice on my recent blood results please. I am concerned that for first time ever MCH and MCHC are just over range. My serum B 12 has historically been at top of range without supplementing. This has now dropped lower although still high in range. Never feel well although
I would be very grateful for any advice on my recent blood results please. I am concerned that for first time ever MCH and MCHC are just over range. My serum B 12 has historically been at top of range without supplementing. This has now dropped lower although still high in range. Never feel well although
Eton
in
Thyroid UK
2 days ago
Is iron spray any good for night-time dosing?
Has anyone any experience with using iron supplement in spray format? Presumably you’d need a few squirts but better tolerated? Contains iron in the form ferric sodium edtate & ferric ammonium citrate.
Has anyone any experience with using iron supplement in spray format? Presumably you’d need a few squirts but better tolerated? Contains iron in the form ferric sodium edtate & ferric ammonium citrate.
SunnyJim100
in
Restless Legs Syndrome
4 days ago
Help!
I am a 57 year old male. I've been feeling very tired and run down over the past months. I've been suffering from bouts of dizziness and my balance has become a real problem. My G.P. has run a whole range of blood tests. One of the tests carried out was Iron Profile and another was the Haematinics
I am a 57 year old male. I've been feeling very tired and run down over the past months. I've been suffering from bouts of dizziness and my balance has become a real problem. My G.P. has run a whole range of blood tests. One of the tests carried out was Iron Profile and another was the Haematinics
Henbud
in
Pernicious Anaemia Society
5 days ago
Is there concerning interactions with cytomel/T3?
Hey folks Was wondering, are there any potentially dangerous interactions that me/people should bê aware of ? Wondering as i deal with some stuff,só i take some chemicals, as for example i take tropisetron an 5ht3 antagonist /nicotinc receptor agonist, Tudca/Udca (bile acids) but also others as sometimes
Hey folks Was wondering, are there any potentially dangerous interactions that me/people should bê aware of ? Wondering as i deal with some stuff,só i take some chemicals, as for example i take tropisetron an 5ht3 antagonist /nicotinc receptor agonist, Tudca/Udca (bile acids) but also others as sometimes
Mobilepirate
in
Thyroid UK
7 days ago
Iron problem?
Hi,I have a low iron saturation - latest blood tests show range = just out (low side). Apologies I haven't got details atm. Although I do supplement with iron it's obviously not enough? I'm not too sure regarding Folate and Ferritin? What exactly do I purchase? Love to you all
Hi,I have a low iron saturation - latest blood tests show range = just out (low side). Apologies I haven't got details atm. Although I do supplement with iron it's obviously not enough? I'm not too sure regarding Folate and Ferritin? What exactly do I purchase? Love to you all
Booblet
in
Thyroid UK
9 days ago
Qualifying for Tocilizumab
Hello, I have had a relapse of GCA and have been put on a reduction plan. Was on 40mg pred now reducing by 10mg every two weeks. I had an emergency ultrasound of temporal and axillary arteries but it was three weeks after going on 40mg of pred so my consultant radiologist did say that nothing would
Hello, I have had a relapse of GCA and have been put on a reduction plan. Was on 40mg pred now reducing by 10mg every two weeks. I had an emergency ultrasound of temporal and axillary arteries but it was three weeks after going on 40mg of pred so my consultant radiologist did say that nothing would
Golfers1
in
PMRGCAuk
2 months ago
ferritin still low
As mentioned before my ferritin is 13, can’t tolerate any oral form and have had infusions in the past. Am being denied infusion as Full bloods are within range, no idea what to do now, eating plenty of iron rich foods, feeling really unwell and down. Recent test results: B12=651(187-883), vit D=92(
As mentioned before my ferritin is 13, can’t tolerate any oral form and have had infusions in the past. Am being denied infusion as Full bloods are within range, no idea what to do now, eating plenty of iron rich foods, feeling really unwell and down. Recent test results: B12=651(187-883), vit D=92(
Pennypingu
in
Thyroid UK
21 days ago
The Origin of Ferritin Reference Intervals: A Systematic Review
I've slightly altered the formatting of the abstract in the hope of making it easier to read. ... Authors : Judy Truong, Kanza Naveed, Daniel Beriault, David Lightfoot, Michael Fralick, Michelle Sholzberg Link : https://ashpublications.org/blood/article/140/Supplement%201/11078/490505/The-Origin-of-Ferritin-Reference-Intervals-A
I've slightly altered the formatting of the abstract in the hope of making it easier to read. ... Authors : Judy Truong, Kanza Naveed, Daniel Beriault, David Lightfoot, Michael Fralick, Michelle Sholzberg Link : https://ashpublications.org/blood/article/140/Supplement%201/11078/490505/The-Origin-of-Ferritin-Reference-Intervals-A
humanbean
in
Thyroid UK
21 days ago
switch from jakafi (RUX) to Ojjara/momelotinib
has anyone made the switch yet ? The doctor is planning to switch my husband over. He is 74 yrs old with high risk MF. Had taken HU since 2020 then switched to jakifi five months ago but made him more anemic with hemoglobin down to 6.6-7.5 so required blood transfusions monthly Just curious if anyone
has anyone made the switch yet ? The doctor is planning to switch my husband over. He is 74 yrs old with high risk MF. Had taken HU since 2020 then switched to jakifi five months ago but made him more anemic with hemoglobin down to 6.6-7.5 so required blood transfusions monthly Just curious if anyone
Bainbridge
in
MPN Voice
9 months ago
Second opinion for my daughter (ruling out thyroid, opinion on vitamins)
17 year old daughter has complained of headaches and fatigue for years. Chalked it up to teenager, pandemic, and irregular sleeping patterns. As all those things resolved, and the headaches and fatigue didn't, I ordered bloodwork to rule out Hashis and Hypo; and hopefully pinpoint a treatment to get
17 year old daughter has complained of headaches and fatigue for years. Chalked it up to teenager, pandemic, and irregular sleeping patterns. As all those things resolved, and the headaches and fatigue didn't, I ordered bloodwork to rule out Hashis and Hypo; and hopefully pinpoint a treatment to get
FallingInReverse
in
Thyroid UK
9 months ago
Pegasus and hematocrit spike
Hi just wondering if anyone else has experienced this. I started peg 2 months ago 45mg every 2 weeks all seemed to go well HCT and platlets lowered, platlets were never majorly high were around 480 I have HCT target of 43 after 2 sets of bloods Guys seemed happy so far, 3 weeks ago HCT 41.9 platlets
Hi just wondering if anyone else has experienced this. I started peg 2 months ago 45mg every 2 weeks all seemed to go well HCT and platlets lowered, platlets were never majorly high were around 480 I have HCT target of 43 after 2 sets of bloods Guys seemed happy so far, 3 weeks ago HCT 41.9 platlets
Cityreach
in
MPN Voice
9 months ago
Recent blood test results advice please
I have just received some blood test results, having had an iron infusion in October 2023, I would love advice please, bearing in mind my serum ferritin is still over reference range. I have not taken iron tablets since the iron infusion. Serum folate 5.5 ug/L (ref. range 3.0-20.5) Serum ferritin
I have just received some blood test results, having had an iron infusion in October 2023, I would love advice please, bearing in mind my serum ferritin is still over reference range. I have not taken iron tablets since the iron infusion. Serum folate 5.5 ug/L (ref. range 3.0-20.5) Serum ferritin
yorkshiregirl4
in
Thyroid UK
27 days ago
Please advise on iron panel blood test results
Please can anyone advise if I need to take iron tablets with these results. I feel so tired. Due to see the endo on Monday but I know he might say it is in range.The blood tests are as follows: I sent the TSH, T3and t4 in a previous email. Folic acid 9.6 range e >2.7 B12 695 ng/L range 160-800ng/L MCV
Please can anyone advise if I need to take iron tablets with these results. I feel so tired. Due to see the endo on Monday but I know he might say it is in range.The blood tests are as follows: I sent the TSH, T3and t4 in a previous email. Folic acid 9.6 range e >2.7 B12 695 ng/L range 160-800ng/L MCV
cbraffe
in
Thyroid UK
1 month ago
Massachusetts Opioid Register Year 4 results
I attach the latest Massachusetts Opioid Register results, showing the medications taken by participants and the doses. Dr Winkelman set up the Register to show that addiction and tolerance are unlikely to happen when low dose opioids are used for RLS. For those who have augmented on dopamine agonists
I attach the latest Massachusetts Opioid Register results, showing the medications taken by participants and the doses. Dr Winkelman set up the Register to show that addiction and tolerance are unlikely to happen when low dose opioids are used for RLS. For those who have augmented on dopamine agonists
Joolsg
in
Restless Legs Syndrome
1 month ago
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