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Sickle-cell anaemia
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teeth clenching
I’m titrating NDT Armour over the last year but I’ve got a hypo symptom that’s bothering me, nighttime teeth clenching. I have no knowledge I’m doing this. I take amitriptyline and once I get to sleep midnight to 1am, I’m out for the count. I think the dentist told me September 2023 that I was clenching
I’m titrating NDT Armour over the last year but I’ve got a hypo symptom that’s bothering me, nighttime teeth clenching. I have no knowledge I’m doing this. I take amitriptyline and once I get to sleep midnight to 1am, I’m out for the count. I think the dentist told me September 2023 that I was clenching
Insomania
in
Thyroid UK
1 month ago
Iron Blood Test Results
Hi i’m wondering if anyone could advise on my iron blood test. I had a recent thyroid test which showed Ferritin at 69.1 ug/L (range 30-150). This was through Thriva. I have since tested with Medicheck and my ferritin seems to have reduced. Am just wondering if there was a way I could increase ferritin
Hi i’m wondering if anyone could advise on my iron blood test. I had a recent thyroid test which showed Ferritin at 69.1 ug/L (range 30-150). This was through Thriva. I have since tested with Medicheck and my ferritin seems to have reduced. Am just wondering if there was a way I could increase ferritin
Llobs
in
Thyroid UK
10 months ago
Some Potentially Alarming Changes to Blood
Hi All, CLL Diagnosed less than a year ago. 13 Q del. I am/was hoping for a slow progression of this disease, but my recent blood work is worrying me. I'll meet with my doctor (CLL specialist at U of Chicago) next week, but I value the insight of those who have been dealing with this just as much if
Hi All, CLL Diagnosed less than a year ago. 13 Q del. I am/was hoping for a slow progression of this disease, but my recent blood work is worrying me. I'll meet with my doctor (CLL specialist at U of Chicago) next week, but I value the insight of those who have been dealing with this just as much if
Horsechestnut
in
CLL Support
10 months ago
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Update.
Latest blood results Hb - 119, WBC - 5.9. Plts- 293. I am starting to feel a bit better of late. The steroids I am on has have improved my haemoglobin and I am reducing the dosage over 4 weeks. I am to stay on folic acid tablets for the mean time. The letter I received states that my haematologist cannot
Latest blood results Hb - 119, WBC - 5.9. Plts- 293. I am starting to feel a bit better of late. The steroids I am on has have improved my haemoglobin and I am reducing the dosage over 4 weeks. I am to stay on folic acid tablets for the mean time. The letter I received states that my haematologist cannot
Jacksc06
in
CLL Support
10 months ago
Blood test results
I have recently had a full panel fasting blood test done, and these are the results. I would appreciate your thoughts before I make an appointment with my GP. Serum ferritin level 144 Serum iron 17.8 Serum transferrin 2.44 Iron saturation 32.3% Thank you
I have recently had a full panel fasting blood test done, and these are the results. I would appreciate your thoughts before I make an appointment with my GP. Serum ferritin level 144 Serum iron 17.8 Serum transferrin 2.44 Iron saturation 32.3% Thank you
Flora-Rose
in
Restless Legs Syndrome
1 month ago
Grandmother, 88 being denied B12 injections
This group has always been very supportive, particularly when I began my B12 deficiency ordeal. I was hoping I could get some advice on a very specific issue I am having with my maternal grandmother, who has had Pernicious Anaemia for as long as I can remember and likely where I inherited mine from.
This group has always been very supportive, particularly when I began my B12 deficiency ordeal. I was hoping I could get some advice on a very specific issue I am having with my maternal grandmother, who has had Pernicious Anaemia for as long as I can remember and likely where I inherited mine from.
TMur1990
in
Pernicious Anaemia Society
10 months ago
Tigger is bouncing around Winnie the Pooh, because he is happy his RLS is better
I was originally trialing 5 microgram 7 day patches that got me out of that dark tunnel but wasn’t 100% effective so after the initial 3 week trial I wrote to Dr Christopher Murphy explained the situation and he arranged for me to collect 10 microgram 7 day patches from Salford Royal Infirmary. I applied
I was originally trialing 5 microgram 7 day patches that got me out of that dark tunnel but wasn’t 100% effective so after the initial 3 week trial I wrote to Dr Christopher Murphy explained the situation and he arranged for me to collect 10 microgram 7 day patches from Salford Royal Infirmary. I applied
HipHop1972
in
Restless Legs Syndrome
1 month ago
TMS/TBS, Buprenorphine tip
I have just completed TMS/TBS(theta burst stimulation) treatments(36 TMS+10 TMS/TBS) It has been a game changer for the post Dopamine agonist depression, that was quite severe and unresponsive to meds. I currently have no depression symptoms. What I have found is that the RLS symptoms are decreased
I have just completed TMS/TBS(theta burst stimulation) treatments(36 TMS+10 TMS/TBS) It has been a game changer for the post Dopamine agonist depression, that was quite severe and unresponsive to meds. I currently have no depression symptoms. What I have found is that the RLS symptoms are decreased
teakabeagle
in
Restless Legs Syndrome
1 month ago
Recent blood test – Why do I feel so tired?
Hello, Please could you have a look at my recent blood test results and tell me what could be the cause of my constant tiredness? I find it hard to get out of bed in the morning and often wake up with brain fog. I often wake up during the night to pee. I often feel the need to fall asleep in the afternoon
Hello, Please could you have a look at my recent blood test results and tell me what could be the cause of my constant tiredness? I find it hard to get out of bed in the morning and often wake up with brain fog. I often wake up during the night to pee. I often feel the need to fall asleep in the afternoon
Zazbag
in
Thyroid UK
1 month ago
Anyone else with consistently rising neutrophils?
My neutrophils have steadily risen from 67 to 78.2% over one year while my lymphocytes have decreased from 17.2 to 12.1%. My overall WBC went from 9 to 11.4. I’m going to bring this up at my next appointment, but thought I’d see if anyone here has had similar numbers. Platelets are at 731. Hematocrit
My neutrophils have steadily risen from 67 to 78.2% over one year while my lymphocytes have decreased from 17.2 to 12.1%. My overall WBC went from 9 to 11.4. I’m going to bring this up at my next appointment, but thought I’d see if anyone here has had similar numbers. Platelets are at 731. Hematocrit
Lena70
in
MPN Voice
10 months ago
Iron status, thyroid dysfunction and iron deficiency anemia: a two-sample Mendelian randomization study
Time and again, we see members with some level of iron deficiency [u]
and
[/u] thyroid issues. Here is a paper which identifies specific genetic causes. In this case, we desperate need the full paper to understand what they are really saying. [i]Ann Nutr Metab. 2024 Jun 10.[/i] [i]doi: 10.1159
Time and again, we see members with some level of iron deficiency [u]
and
[/u] thyroid issues. Here is a paper which identifies specific genetic causes. In this case, we desperate need the full paper to understand what they are really saying. [i]Ann Nutr Metab. 2024 Jun 10.[/i] [i]doi: 10.1159
helvella
Thyroid UK
in
Thyroid UK
1 month ago
No improvement to tiredness after B12 injections
I have been having B12 injections since being diagnosed with pernicious anaemia 18 years ago. I never feel an improvement in energy levels and tiredness after an injection.When my dad had his injections for P.A. decades ago he would always say he could feel when his injection was due because of increased
I have been having B12 injections since being diagnosed with pernicious anaemia 18 years ago. I never feel an improvement in energy levels and tiredness after an injection.When my dad had his injections for P.A. decades ago he would always say he could feel when his injection was due because of increased
Suesue246
in
Pernicious Anaemia Society
10 months ago
stomach acid
happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips I SI every 7 to 10 days Im 56 and I’m fairly fit and active so I know I’m lucky compared to some what I’m confused about is stomach acid.
happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips I SI every 7 to 10 days Im 56 and I’m fairly fit and active so I know I’m lucky compared to some what I’m confused about is stomach acid.
lifegems
in
Pernicious Anaemia Society
6 months ago
supplementary question ! Ubiquinol
sorry meant to also ask has anyone found taking Ubiquinol helps T4/T3 conversion? Thank you!
sorry meant to also ask has anyone found taking Ubiquinol helps T4/T3 conversion? Thank you!
Indigourchin
in
Thyroid UK
2 months ago
updated iron results - best next steps?
Hey everyone, I had some great advice on here a couple of weeks ago. I just had a full blood test completed (given the RLS had gotten significantly worse recently) and my iron results came back low: Iron 14.3 umol/L (Range: 10 - 30) TIBC 54.2 umol/L (Range: 45 - 81) UIBC 39.9 umol/L (Range: 12 -
Hey everyone, I had some great advice on here a couple of weeks ago. I just had a full blood test completed (given the RLS had gotten significantly worse recently) and my iron results came back low: Iron 14.3 umol/L (Range: 10 - 30) TIBC 54.2 umol/L (Range: 45 - 81) UIBC 39.9 umol/L (Range: 12 -
BOWENATOR
in
Restless Legs Syndrome
2 months ago
New ER for low hemoglobin
I am preaching to the choir to tell you that the US healthcare is a mess. I still do not have answers or a transfusion. My hem/onc wanted me back in the ER, and last night’s ER doctor did not do all the bloodwork she wanted even though the two hospitals are in the same system. I chose to go to Yale Nee
I am preaching to the choir to tell you that the US healthcare is a mess. I still do not have answers or a transfusion. My hem/onc wanted me back in the ER, and last night’s ER doctor did not do all the bloodwork she wanted even though the two hospitals are in the same system. I chose to go to Yale Nee
Goopteal
in
CLL Support
10 months ago
History of continued low and fluctuating iron levels - advice?
hi folks. Just had my latest bloods back from helpful GP (he’s actually happy for me to sort my thyroid with Roseway! TSH barely exists) My iron is pretty abysmal tho .. Last time i had my transferrin saturation index done it was 40% so bang on mid way. January I think it was. It’s now dropped to19%
hi folks. Just had my latest bloods back from helpful GP (he’s actually happy for me to sort my thyroid with Roseway! TSH barely exists) My iron is pretty abysmal tho .. Last time i had my transferrin saturation index done it was 40% so bang on mid way. January I think it was. It’s now dropped to19%
Starseed56
in
Thyroid UK
2 months ago
My Efforts to Educate the Scientific Community
I have written an article about my RLS experience which I have been working to disseminate in the medical and research communities. The bulk of the article follows: The medical community is generally unaware of the benefit of a low oxalate diet for treatment of RLS. In 2015, after 5 years of closely
I have written an article about my RLS experience which I have been working to disseminate in the medical and research communities. The bulk of the article follows: The medical community is generally unaware of the benefit of a low oxalate diet for treatment of RLS. In 2015, after 5 years of closely
notnowdad
in
Restless Legs Syndrome
10 months ago
Coopersmummy7
Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long story short,2 relapses,yo yo ing of f prednisilone,could not tolerate Metho, or leflunomide,and now looks like I will be starting on Tocilzumab.Am
Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long story short,2 relapses,yo yo ing of f prednisilone,could not tolerate Metho, or leflunomide,and now looks like I will be starting on Tocilzumab.Am
Angelsmummy
in
PMRGCAuk
3 months ago
supplements
I am on various medication and unsure when the best time to take each are, any ideas? Levothyroxine B12 injections Starting iron heme tablets shortly Vitamin d Folate
I am on various medication and unsure when the best time to take each are, any ideas? Levothyroxine B12 injections Starting iron heme tablets shortly Vitamin d Folate
Lilymayjean
in
Thyroid UK
2 months ago
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