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Sickle-cell anaemia
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Acalabrutinib to treat CLL & AIHA
I have been on W&W since 2018 but in this last year have had four admissions to hospital with Auto Immune Haemolytic Anaemia, all admissions required blood transfusions and I felt pretty poorly with breathlessness, fatigue and very low Hb. My CLL is still relatively low level and ordinarily would not
I have been on W&W since 2018 but in this last year have had four admissions to hospital with Auto Immune Haemolytic Anaemia, all admissions required blood transfusions and I felt pretty poorly with breathlessness, fatigue and very low Hb. My CLL is still relatively low level and ordinarily would not
Wen_dy
in
CLL Support
7 months ago
TSH increase
I recently had blood tests due to feeling really fatigued especially after exercising. I’ve been on levo for 13 years for Hashimoto’s. Levels have been up and down. Last test was 0.75 and I felt fine. That was 9 months ago. Most recent test it was 7.16! No wonder I feel bad. All vits tested on the low
I recently had blood tests due to feeling really fatigued especially after exercising. I’ve been on levo for 13 years for Hashimoto’s. Levels have been up and down. Last test was 0.75 and I felt fine. That was 9 months ago. Most recent test it was 7.16! No wonder I feel bad. All vits tested on the low
Pegasus12
in
Thyroid UK
7 months ago
Iron Panel Results Advice
Hi, could you kindly offer advice on my iron panel:
Results 22 Dec 2023
Iron 22.9 umol-l (5.8-34.5) Ferritin 55.28 ug_l (9.999-120) TIBC 61.0 umol-l (44.8-80.6) Transferrin 2.75 g_l (2.00-3.80) Transferrin Saturation 38 % (15-50) Thank you.
Hi, could you kindly offer advice on my iron panel:
Results 22 Dec 2023
Iron 22.9 umol-l (5.8-34.5) Ferritin 55.28 ug_l (9.999-120) TIBC 61.0 umol-l (44.8-80.6) Transferrin 2.75 g_l (2.00-3.80) Transferrin Saturation 38 % (15-50) Thank you.
Sami-M
in
Thyroid UK
7 months ago
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absorbing b12 in cells with liquid sublingual on days not injecting
hello all, I was wondering if using the liquid sublingual oral drops would be absorbing in the cells on days that I do not inject EOD. also does our b12 that we have in our blood supply get used up if we have the pernicious anemia. like does our b12 that is has not left our body yet get used by our
hello all, I was wondering if using the liquid sublingual oral drops would be absorbing in the cells on days that I do not inject EOD. also does our b12 that we have in our blood supply get used up if we have the pernicious anemia. like does our b12 that is has not left our body yet get used by our
JesusMercy60
in
Pernicious Anaemia Society
19 days ago
Root cause of autoimmune B12 def
Hello- I was just diagnosed with PA and was prescribed injections (cyanocobalamin unfortunately). This was from a hematology referral for low white blood cells. That turned out to be ok, but the doc noticed my B12 was "low" at 310. I was already supplementing B12 so she just said keep doing that.
Hello- I was just diagnosed with PA and was prescribed injections (cyanocobalamin unfortunately). This was from a hematology referral for low white blood cells. That turned out to be ok, but the doc noticed my B12 was "low" at 310. I was already supplementing B12 so she just said keep doing that.
mchimes
in
Pernicious Anaemia Society
7 months ago
pernicious anemia
Hi, Can anyone relate to how I am feeling? I was diagnosed back in Feb this year after my Intrinsic Factor blood test came back positive and I was diagnosed with Pernicious anaemia. I went to the drs with symptoms of exhaustion, pins and needles, heart palpitations and nausea as well as brain fog
Hi, Can anyone relate to how I am feeling? I was diagnosed back in Feb this year after my Intrinsic Factor blood test came back positive and I was diagnosed with Pernicious anaemia. I went to the drs with symptoms of exhaustion, pins and needles, heart palpitations and nausea as well as brain fog
Lucymay82
in
Pernicious Anaemia Society
20 days ago
what is it this time?
Ok, so I’ve been SI for just under a month, moving from twice weekly to about EOD following symptoms response. I was initially taking 3mg folic acid each morning with food along with magnesium at night. Two days ago I bought a new brand of folic and increased my dosage to 5mg (following recommendations
Ok, so I’ve been SI for just under a month, moving from twice weekly to about EOD following symptoms response. I was initially taking 3mg folic acid each morning with food along with magnesium at night. Two days ago I bought a new brand of folic and increased my dosage to 5mg (following recommendations
PlatypusProfit8077
in
Pernicious Anaemia Society
23 days ago
A clinical picture of a B12 deficiency and PA explained.........
Hopefully the following will be of interest to newbies on the sight and give a little insight of the condition and how to treat............ https://www.bmj.com/content/383/bmj-2022-071725
What is a patient with a lack of B12 would have pa?
Pernicious anemia (PA) is a decrease in red blood
Hopefully the following will be of interest to newbies on the sight and give a little insight of the condition and how to treat............ https://www.bmj.com/content/383/bmj-2022-071725
What is a patient with a lack of B12 would have pa?
Pernicious anemia (PA) is a decrease in red blood
Jillymo
in
Pernicious Anaemia Society
23 days ago
Pins and needles help
Friends, I have been diagnosed with Pernicious Anemia and am suffering the classical pins and needles sensation in my arms and legs. B12 jabs have significantly reduced the sensation but I still have some remaining. Is there any over the counter or “home grown” products which can help relief?
Friends, I have been diagnosed with Pernicious Anemia and am suffering the classical pins and needles sensation in my arms and legs. B12 jabs have significantly reduced the sensation but I still have some remaining. Is there any over the counter or “home grown” products which can help relief?
mallard16
in
Pernicious Anaemia Society
24 days ago
Is it worth doing pernicious anemia test with active B12 of 68?
I'm working on getting my levels of B12, folate, ferritin and D up to ideal levels, if I can, for my thyroid. I recently got a B12 result from monitor my health of 68 pmol/L (range 38-210). I have read that you can still have B12 deficiency even if your B12 is around my level (I heard over 70 is needed
I'm working on getting my levels of B12, folate, ferritin and D up to ideal levels, if I can, for my thyroid. I recently got a B12 result from monitor my health of 68 pmol/L (range 38-210). I have read that you can still have B12 deficiency even if your B12 is around my level (I heard over 70 is needed
Carrie234
in
Thyroid UK
24 days ago
Folate/Folic acid supplement
I have been using Folic Acid 5mg oral supplement EOD since starting b12 injections just over three weeks ago. I was getting some loose bowel, so was advised to try Methylfolate every day instead. However I am wondering if I should be using injectable Folic 5mg instead. My problem is malabsorption due
I have been using Folic Acid 5mg oral supplement EOD since starting b12 injections just over three weeks ago. I was getting some loose bowel, so was advised to try Methylfolate every day instead. However I am wondering if I should be using injectable Folic 5mg instead. My problem is malabsorption due
Chickens44
in
Pernicious Anaemia Society
27 days ago
Strange definition of pernicious anemia
Found this questionable definition of pernicious anemia on a Johns Hopkins web page about gastritis: [i]
Pernicious anemia
. This is a form of anemia that happens when your stomach can't digest vitamin B-12.[/i] Even the best seem to get it wrong. https://www.hopkinsmedicine.org/health/conditions-and-diseases
Found this questionable definition of pernicious anemia on a Johns Hopkins web page about gastritis: [i]
Pernicious anemia
. This is a form of anemia that happens when your stomach can't digest vitamin B-12.[/i] Even the best seem to get it wrong. https://www.hopkinsmedicine.org/health/conditions-and-diseases
palmier
in
Pernicious Anaemia Society
28 days ago
Once I start supplementing B12, will my B12 blood tests still be accurate?
I would like to know if blood tests will still be a useful measure of my B12 levels, once I have started supplementing B12. I would be testing active B12. The reason I ask is that I have read pernicious anemia people saying that once they start injections (and supplements too maybe), that the B12 blood
I would like to know if blood tests will still be a useful measure of my B12 levels, once I have started supplementing B12. I would be testing active B12. The reason I ask is that I have read pernicious anemia people saying that once they start injections (and supplements too maybe), that the B12 blood
Carrie234
in
Thyroid UK
28 days ago
buprenorphine Patches For Fibromyalgia Head Hair Loss
Been on buprenorphine patches & have noticed head hair loss.Now changing from 5mg to 15 mg shortly as 5 mg doesn't work on me nor does 10mg. Not clumps of hair more like loose strands of hair. Anyone else having these issues etc I'm male by the way. Kindest Regards
Been on buprenorphine patches & have noticed head hair loss.Now changing from 5mg to 15 mg shortly as 5 mg doesn't work on me nor does 10mg. Not clumps of hair more like loose strands of hair. Anyone else having these issues etc I'm male by the way. Kindest Regards
Fibroguy66
in
Fibromyalgia Action UK
29 days ago
Monitoring
Hello everyone Its been a while since i've been on this forum so apologies if this is a common question or if it has been asked recently but I'll make it short and sweet. I am a pernicious anemia sufferer since diagnosis in 2012 and have been on injections ever since now I don't know if it's just me
Hello everyone Its been a while since i've been on this forum so apologies if this is a common question or if it has been asked recently but I'll make it short and sweet. I am a pernicious anemia sufferer since diagnosis in 2012 and have been on injections ever since now I don't know if it's just me
Davy28
in
Pernicious Anaemia Society
1 month ago
14 day trial of methylcobalamin and adenosylcobalamin
After 3 years of researching I was able to obtain pharmaceutical grade adenosylcobalamin to. I choose not to share my source due to risk to myself and my source. Unfortunate but the reality. I considered if I wanted to post at all about it and went with I would want to know. I injected 1mg/1ml of
After 3 years of researching I was able to obtain pharmaceutical grade adenosylcobalamin to. I choose not to share my source due to risk to myself and my source. Unfortunate but the reality. I considered if I wanted to post at all about it and went with I would want to know. I injected 1mg/1ml of
WIZARD6787
in
Pernicious Anaemia Society
7 months ago
blood results
hi, I hope you can help me understand my blood test results. The first and only time asking questions on here I was given 100% answers thanks. It’s been a little over three months since I started B12 self injections every other day for two weeks and some of my issues went so I si once a week and they
hi, I hope you can help me understand my blood test results. The first and only time asking questions on here I was given 100% answers thanks. It’s been a little over three months since I started B12 self injections every other day for two weeks and some of my issues went so I si once a week and they
Tattlee
in
Pernicious Anaemia Society
7 months ago
Blood test results..interpretation/advice.
I was diagnosed with B12 deficiency at the beginning of the month and have received a prescription for loading dose (I self administered without approval or support as the first appointment was nearly 2 months away).I've since had a further blood test which revealed no anaemia or macrocytic anaemia but
I was diagnosed with B12 deficiency at the beginning of the month and have received a prescription for loading dose (I self administered without approval or support as the first appointment was nearly 2 months away).I've since had a further blood test which revealed no anaemia or macrocytic anaemia but
Betwelvepatient
in
Pernicious Anaemia Society
7 months ago
Prolia
I have just received an email from my GP who has arranged for a F2F appointment to see me beginning January to discuss me starting to take Prolia. My last Dexascan in 2021 did show that I have osteoporosis, and I did take Alendronic Acid for the first two years of having Polymyalgia. Since then I have
I have just received an email from my GP who has arranged for a F2F appointment to see me beginning January to discuss me starting to take Prolia. My last Dexascan in 2021 did show that I have osteoporosis, and I did take Alendronic Acid for the first two years of having Polymyalgia. Since then I have
Purplegloss
in
PMRGCAuk
7 months ago
Bloating
Hey guys, quick question, I have pernicious anemia/ gastritis and recently no matter what I eat or drink even it's only a probiotic drink or an apple and water for that day my stomach bloats up so big and tight but when morning comes, I go to the restroom and my stomach goes back down until I drink
Hey guys, quick question, I have pernicious anemia/ gastritis and recently no matter what I eat or drink even it's only a probiotic drink or an apple and water for that day my stomach bloats up so big and tight but when morning comes, I go to the restroom and my stomach goes back down until I drink
25092
in
Pernicious Anaemia Society
2 months ago
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