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Sialic acid storage disorders
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Positive case studies
Literature trawl - copy the text and paste into Google search to find papers. This is just the best bits. Jo 9 yearWe present a case of a patient with castration-resistant prostate cancer with proven bone lesions 2 years after the onset of the disease and the current survival of over 9 years. In 2013
Literature trawl - copy the text and paste into Google search to find papers. This is just the best bits. Jo 9 yearWe present a case of a patient with castration-resistant prostate cancer with proven bone lesions 2 years after the onset of the disease and the current survival of over 9 years. In 2013
TomsD1
in
Advanced Prostate Cancer
9 days ago
calcium supplements
I have been on zoledronic acid infusion for 1yr 3 months, are you supposed to take a calcium supplement while I am on it.
I have been on zoledronic acid infusion for 1yr 3 months, are you supposed to take a calcium supplement while I am on it.
Radars
in
Advanced Prostate Cancer
10 days ago
Alendronic Acid side effects
Took Evenity for 11 months, then Actonel low does caused bad migraine, then Raloxifine caused 5 day migraine now Alendronic Acid at only 20mg and non stop migraine for nearly a week, plus swollen feet, sleeping heavy and low mood. Has anyone come off Alendronic Acid after bad migraine, how long for
Took Evenity for 11 months, then Actonel low does caused bad migraine, then Raloxifine caused 5 day migraine now Alendronic Acid at only 20mg and non stop migraine for nearly a week, plus swollen feet, sleeping heavy and low mood. Has anyone come off Alendronic Acid after bad migraine, how long for
cmoc
in
Bone Health and Osteoporosis UK
12 days ago
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hiatus hernia
I have been on prednisone since January 2017…it seems a lifetime ago☹️ I was put on Alendronic Acid which in turn gave me a hiatus hernia/GERD (2019) ...the consultant I saw said he was positive it happened because of the AA…☹️ It has undoubtedly had a major affect on my life making PMR almost acceptable
I have been on prednisone since January 2017…it seems a lifetime ago☹️ I was put on Alendronic Acid which in turn gave me a hiatus hernia/GERD (2019) ...the consultant I saw said he was positive it happened because of the AA…☹️ It has undoubtedly had a major affect on my life making PMR almost acceptable
PamJCam
in
PMRGCAuk
12 days ago
Chemotherapy Induced Peripheral Neuropathy
If you develop CIPN during chemotherapy, and it becomes permanent, can you subsequently find it has progressed to another site some years after the original diagnosis? I finished 6 cycles of Docetaxel in October 2019. Once the stabbing pains and feeling of being electrocuted had worn off, I was left
If you develop CIPN during chemotherapy, and it becomes permanent, can you subsequently find it has progressed to another site some years after the original diagnosis? I finished 6 cycles of Docetaxel in October 2019. Once the stabbing pains and feeling of being electrocuted had worn off, I was left
Dastardly
in
Advanced Prostate Cancer
12 days ago
Stay Positive!
Good morning Gentlemen! I wanted to take a moment to Thank each and every one of you that reached out to me after my initial. To recap, I am a 53 year old man and was diagnosed with Prostate Cancer in September with a Gleason Score of 3+4. Immediately, they wanted to do surgery but I knew that based
Good morning Gentlemen! I wanted to take a moment to Thank each and every one of you that reached out to me after my initial. To recap, I am a 53 year old man and was diagnosed with Prostate Cancer in September with a Gleason Score of 3+4. Immediately, they wanted to do surgery but I knew that based
SadandScared
in
Prostate Cancer And Gay Men
6 months ago
seborrheic keratosis management
Hi Everyone, I was hoping to get some guidance on managing Seborrheic Keratosis. I'm 53 and I have a seborrheic keratosis under my eye, on my forehead, right side of my face and left ear. Is there any proven ways of managing them? I started washing my face with a wash that has salicylic acid and
Hi Everyone, I was hoping to get some guidance on managing Seborrheic Keratosis. I'm 53 and I have a seborrheic keratosis under my eye, on my forehead, right side of my face and left ear. Is there any proven ways of managing them? I started washing my face with a wash that has salicylic acid and
Ziggy88
in
MY SKIN
13 days ago
Change of medication or stay with existing regime?
I have been diagnosed with psoriatic arthritis/axial and peripheral spondlyarthritis seems to vary. I've been taking COSENTYX 300 for about 3 years, plus MTX currently 15mg. This was working well at the beginning of the year. I started on Alendronic acid in Feb and had a big flare. Stopped Alendronic
I have been diagnosed with psoriatic arthritis/axial and peripheral spondlyarthritis seems to vary. I've been taking COSENTYX 300 for about 3 years, plus MTX currently 15mg. This was working well at the beginning of the year. I started on Alendronic acid in Feb and had a big flare. Stopped Alendronic
Gilliancheche
in
NRAS
21 days ago
New guidelines to prevent skeletal events in metastatic prostate cancer
They are basically discussing denosumab and zoledronic acid in PCa with bone metastasis https://www.urotoday.com/video-lectures/nccn-2024/video/4222-2024-nccn-guidelines-preventing-skeletal-events-in-prostate-cancer-rashid-sayyid-zachary-klaassen.html
They are basically discussing denosumab and zoledronic acid in PCa with bone metastasis https://www.urotoday.com/video-lectures/nccn-2024/video/4222-2024-nccn-guidelines-preventing-skeletal-events-in-prostate-cancer-rashid-sayyid-zachary-klaassen.html
Maxone73
in
Advanced Prostate Cancer
22 days ago
root canal work while on zoledronic acid infusions
I have 6 monthly dental checkups, and for years all has been well. I had my first zoledronic acid infusion 28th December 2023. My last dental checkup was in March. A week ago I started getting intermittent pains in the right side of my jaw, both bottom and top. GP ruled out PMR and recommended I visit
I have 6 monthly dental checkups, and for years all has been well. I had my first zoledronic acid infusion 28th December 2023. My last dental checkup was in March. A week ago I started getting intermittent pains in the right side of my jaw, both bottom and top. GP ruled out PMR and recommended I visit
Angel_doll
in
PMRGCAuk
23 days ago
ALENDRONIC ACID
Thanks everyone for your replies to my previous post re taking Alendronic Acid. All the information posted has been very helpful and answered things I was not told or aware of. Result it my Surgery is giving me a Telephone Consultation next Thursday to my Sister and Carer. Christine Bettany x
Thanks everyone for your replies to my previous post re taking Alendronic Acid. All the information posted has been very helpful and answered things I was not told or aware of. Result it my Surgery is giving me a Telephone Consultation next Thursday to my Sister and Carer. Christine Bettany x
Purple4710
in
NRAS
23 days ago
Ask Your Questions
Prof David Jones is our guest for tomorrows #PBC Q&A joined by the #PBCTeam live from the obeticholic acid protest in Brussels! Click here for the privacy of the room: https://www.pbcfoundation.org.uk/events/qa-pbc/ or watch us on Facebook Live at 2pm UK time.#PBCQuestions #PBCAnswers #SupportForLife
Prof David Jones is our guest for tomorrows #PBC Q&A joined by the #PBCTeam live from the obeticholic acid protest in Brussels! Click here for the privacy of the room: https://www.pbcfoundation.org.uk/events/qa-pbc/ or watch us on Facebook Live at 2pm UK time.#PBCQuestions #PBCAnswers #SupportForLife
DonnaBoll
Administrator
in
PBC Foundation
24 days ago
I haven't posted for a while....
Hello everyone, I haven't posted for a while, but have been reading the daily updates coming into my email account. I'm not too good at the moment, lots going on that I won't bore you with, a quick summary: After paying for MRIs which showed florid synovitis, bone erosions and more I was switched
Hello everyone, I haven't posted for a while, but have been reading the daily updates coming into my email account. I'm not too good at the moment, lots going on that I won't bore you with, a quick summary: After paying for MRIs which showed florid synovitis, bone erosions and more I was switched
Mmrr
in
NRAS
24 days ago
Alendronic Acid
I have been taking the above for 5 years and until a visit to my Dentist to have a loose tooth removed, I wasn't aware taking it can cause dental problems and hair loss.How long should it be taken for? Christine
I have been taking the above for 5 years and until a visit to my Dentist to have a loose tooth removed, I wasn't aware taking it can cause dental problems and hair loss.How long should it be taken for? Christine
Purple4710
in
NRAS
24 days ago
Hi, this is my story
I broke my foot following a fall off a high kerb in August 2021 and should have been referred for a DEXA scan by the minor injuries unit who treated this, but wasn't until I asked my GP for one, following a tip off from a friend who knew that that is NHS guidance. Following the DEXA scan and recommendation
I broke my foot following a fall off a high kerb in August 2021 and should have been referred for a DEXA scan by the minor injuries unit who treated this, but wasn't until I asked my GP for one, following a tip off from a friend who knew that that is NHS guidance. Following the DEXA scan and recommendation
GadgetBuster
in
Bone Health and Osteoporosis UK
27 days ago
Alendronic acid
Do you really need to keep taking those tablets when your managing to reduce your pred successfully? I must admit I don't tend to forget sometimes. Has anyone stopped taking them?
Do you really need to keep taking those tablets when your managing to reduce your pred successfully? I must admit I don't tend to forget sometimes. Has anyone stopped taking them?
Caulkhead63
in
PMRGCAuk
28 days ago
Calcium/vit d tabs
Alongside alendronic acid, I have been prescribed calcium tabs. I started them, but every time I take 1, I'm getting awful constipation, tried halving and separating dose, same problem. Do I really need to take these?? I am now taking more calcium in diet than I was before. I'm happy to take my vit
Alongside alendronic acid, I have been prescribed calcium tabs. I started them, but every time I take 1, I'm getting awful constipation, tried halving and separating dose, same problem. Do I really need to take these?? I am now taking more calcium in diet than I was before. I'm happy to take my vit
Sleeplessinlife
in
Bone Health and Osteoporosis UK
29 days ago
Please Take Note.....
from the PBC Foundation · If you missed it in your inbox we have important videos for you: Short version https://youtu.be/VE95QEAdo2I Long long https://youtu.be/XkeQX0Q2vQo The latest news article for Obeticholic Acid in Europe has also been updated on the website https://www.pbcfoundation.org.uk
from the PBC Foundation · If you missed it in your inbox we have important videos for you: Short version https://youtu.be/VE95QEAdo2I Long long https://youtu.be/XkeQX0Q2vQo The latest news article for Obeticholic Acid in Europe has also been updated on the website https://www.pbcfoundation.org.uk
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
Posted on The PBC Foundation FB page
Prof David Jones talks us through the current situation around the future of obeticholic acid (OCA) in Europe and what this means. Ckick here for the video: https://ow.ly/enRi50SzrF6 Read the news article on our website: https://ow.ly/PYh150SzrF7 Please add your voice by signing the petition here:
Prof David Jones talks us through the current situation around the future of obeticholic acid (OCA) in Europe and what this means. Ckick here for the video: https://ow.ly/enRi50SzrF6 Read the news article on our website: https://ow.ly/PYh150SzrF7 Please add your voice by signing the petition here:
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
Alendronic acid for oa ?
Having had a dexa scan, my doctor wants me to take Alendrolic acid, once a week 75 mg. Having read the leaflet, it says not to take steroids whilst using? I have at least 4 lung infections every year and prednisolone has to be taken with antibiotics and dies help a lot. I am concerned that I can’t
Having had a dexa scan, my doctor wants me to take Alendrolic acid, once a week 75 mg. Having read the leaflet, it says not to take steroids whilst using? I have at least 4 lung infections every year and prednisolone has to be taken with antibiotics and dies help a lot. I am concerned that I can’t
Shalz
in
Lung Conditions Community Forum
1 month ago
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