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I have a broken skull, from a double seizure, in Jan. 2018, I suffer from severe equilibrium, dizziness, when getting up, sitting down!
Surely there must be someone else who has broken their skull, and suffers similar symptoms? How do you cope with it? I have epilepsy but maybe someone has broken their skull in an accident, but again suffers bad equilibrium/balance issues?
Surely there must be someone else who has broken their skull, and suffers similar symptoms? How do you cope with it? I have epilepsy but maybe someone has broken their skull in an accident, but again suffers bad equilibrium/balance issues?
Adlon57
in
Bone Health and Osteoporosis UK
27 days ago
Memory loss from long term epilepsy, had JME epilepsy since 1970, aged 67, embarrassing memory short/long loss since, any suggestions?
Ironic an epileptic double
seizure
in Jan 2018, caused terminal damage to my 'brain', at my local health centre, even years later I can identify those same people just by their facial reaction of recognition, and I as "usual" don't remember a thingš¤ Is there ANY way of bringing SOME SORT of remembrance
Ironic an epileptic double
seizure
in Jan 2018, caused terminal damage to my 'brain', at my local health centre, even years later I can identify those same people just by their facial reaction of recognition, and I as "usual" don't remember a thingš¤ Is there ANY way of bringing SOME SORT of remembrance
Adlon57
in
Epilepsy Action
10 months ago
Seeking a reliable smart watch for seizure alerts
My 5 year old daughter has recently been diagnosed with epilepsy with er seizures occurring during sleep.We are hoping to purchase a watch which will alert us if one of these nocturnal seizures occur. Would anyone have any recommendations?
My 5 year old daughter has recently been diagnosed with epilepsy with er seizures occurring during sleep.We are hoping to purchase a watch which will alert us if one of these nocturnal seizures occur. Would anyone have any recommendations?
Pdynes
in
Epilepsy Action
1 year ago
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Hi, I am Blessamanda, the newest member, please i need your help. seizure is a monster
I am Mr Blessed. my daughter was diagnosed of epilepsy last year after she convulsed twice on our home to my village, we stayed two months in the hospital managing. after we finished expending all we have, the
seizure
continued till today. now it is becoming too frequent. please which drug is best for
I am Mr Blessed. my daughter was diagnosed of epilepsy last year after she convulsed twice on our home to my village, we stayed two months in the hospital managing. after we finished expending all we have, the
seizure
continued till today. now it is becoming too frequent. please which drug is best for
Blessamanda
in
Epilepsy Action
1 year ago
electrical flashes/buzzing/sensation/dream/falling asleep etc
was it a
seizure
? was it something astral? was it a reboot or was I dying in my sleep and my body brought me back with an electrical reworking? I would love to know your thoughts. Perhaps this has always happened to lots of people but they didnāt have the ability to share it like this.
was it a
seizure
? was it something astral? was it a reboot or was I dying in my sleep and my body brought me back with an electrical reworking? I would love to know your thoughts. Perhaps this has always happened to lots of people but they didnāt have the ability to share it like this.
ElectricHuman
in
Headway
5 months ago
Seizure Alert App for Apple Watch.
I am trying to find a reliable app you can use on the apple watch which detects seizures and send notifications to a set contact if the situation arises. I would also like it to monitor when Iām asleep to indicate if any seizures occur.
I am trying to find a reliable app you can use on the apple watch which detects seizures and send notifications to a set contact if the situation arises. I would also like it to monitor when Iām asleep to indicate if any seizures occur.
jamiekerby
in
Epilepsy Action
1 year ago
New to Epilepsy
His first
seizure
was back in February at night whilst he was at uni with his girlfriend - and with it being back in February and not having another
seizure
they didnāt think it was epilepsy and was released from hospital checks. We are now waiting for a new neurologist appointment.
His first
seizure
was back in February at night whilst he was at uni with his girlfriend - and with it being back in February and not having another
seizure
they didnāt think it was epilepsy and was released from hospital checks. We are now waiting for a new neurologist appointment.
Melhukin
in
Epilepsy Action
1 year ago
Strokes, ET, treatment options
This time, the nurses recognized that I had a
seizure
. I did not get a new stroke, fortunately. They tried to transfer me to UC Davis and UCSF, but those hospitals were overcrowded and could not accept me. The Hydrea doses were further increased, decreasing the platelet count to 650.
This time, the nurses recognized that I had a
seizure
. I did not get a new stroke, fortunately. They tried to transfer me to UC Davis and UCSF, but those hospitals were overcrowded and could not accept me. The Hydrea doses were further increased, decreasing the platelet count to 650.
sandor13
in
MPN Voice
4 months ago
Double seizure, JME epilepsy, in Jan 2018, irreparable brain damage, one more seizure probably my last!
My brain seems to work faster than normal, find it very hard to get to sleep, is it due to damage! Am living on my own, but try to get to sleep, try about midnight, but whole body system far too alert, just pure fatigue, exhaustion eventually just drop off about 3-4am! Am single retired and live on my
My brain seems to work faster than normal, find it very hard to get to sleep, is it due to damage! Am living on my own, but try to get to sleep, try about midnight, but whole body system far too alert, just pure fatigue, exhaustion eventually just drop off about 3-4am! Am single retired and live on my
Adlon57
in
Epilepsy Action
1 year ago
Disappointing seizureā¦
There were mixes of strong beer and wines, which didnāt cause any specific issue, but I disappointingly did not respect hydration so I suffered a
seizure
at 8am in the morning whilst visiting the bathroom.
There were mixes of strong beer and wines, which didnāt cause any specific issue, but I disappointingly did not respect hydration so I suffered a
seizure
at 8am in the morning whilst visiting the bathroom.
DTBI
in
Headway
1 year ago
Post Craniotomy Symptoms
It's just the
seizure
side of things but I guess I just had my brain cut into so it makes sense. Wondering on other people's experiences on how long these symptoms will last and what should I do in the meantime? Any brain training apps or something to keep me occupied?
It's just the
seizure
side of things but I guess I just had my brain cut into so it makes sense. Wondering on other people's experiences on how long these symptoms will last and what should I do in the meantime? Any brain training apps or something to keep me occupied?
Callumsully
in
The Brain Tumour Charity
7 months ago
Psychosis, epilepsy and Lamotrigine
in the classic fit style, around 2015 I had another
seizure
but this time it was very different.
in the classic fit style, around 2015 I had another
seizure
but this time it was very different.
Octocon
in
Epilepsy Action
1 year ago
Epilepsy?
I had an MRI on my small bowel in December (as the GP thought it could be a gastroenterology issue) I felt sick coming out of the MRI and then had what the Doctor witnessed a
seizure
. I have surrendered my driving licence but live out in the sticks so would love to get it back.
I had an MRI on my small bowel in December (as the GP thought it could be a gastroenterology issue) I felt sick coming out of the MRI and then had what the Doctor witnessed a
seizure
. I have surrendered my driving licence but live out in the sticks so would love to get it back.
Louie24
in
Epilepsy Action
9 months ago
Tacrolimus Manufactured by Accord Healthcare
New or worsening side effects to watch for may include an increase compared to normal of headache, tremor, blood pressure, or in very rare cases,
seizure
. You can read more information about the FDA report on the FDA website.
New or worsening side effects to watch for may include an increase compared to normal of headache, tremor, blood pressure, or in very rare cases,
seizure
. You can read more information about the FDA report on the FDA website.
Okralove
in
Kidney Transplant
8 months ago
Unsure if this is a seizure or not.
I'm so worried they take my licence away again but obviously aware that if this is a different type of
seizure
then it needs to be investigated. Thanks in advance
I'm so worried they take my licence away again but obviously aware that if this is a different type of
seizure
then it needs to be investigated. Thanks in advance
Otto11
in
Epilepsy Action
1 year ago
New Recent Life Update
After ct scan they said its not a strokeš¤¦āāļøš¤¦āāļø Even though very very similar to previous stroke they are saying its a Vacant
Seizure
but will resolve within 24 hours. 24 hours on still extremely confused could only remember his first name and nothing else.
After ct scan they said its not a strokeš¤¦āāļøš¤¦āāļø Even though very very similar to previous stroke they are saying its a Vacant
Seizure
but will resolve within 24 hours. 24 hours on still extremely confused could only remember his first name and nothing else.
Shabana1974
in
British Heart Foundation
1 month ago
Coming home
At the moment Iām taking Enoxaparin after injuring myself during a
seizure
. But I donāt know if theyāll let me carry on once Iām home and the CCG wonāt let my GP prescribe it. Iām just dreading trying to sort it all out. Any advice from anyone navigating the NHS gratefully received.
At the moment Iām taking Enoxaparin after injuring myself during a
seizure
. But I donāt know if theyāll let me carry on once Iām home and the CCG wonāt let my GP prescribe it. Iām just dreading trying to sort it all out. Any advice from anyone navigating the NHS gratefully received.
GillyA
in
Hughes Syndrome APS Forum
10 months ago
New to Group
It causes severe
seizure
activity, tremors and other symptoms. I feel like I am on an island because of my illness. I am looking for others who are struggling with the same issues I have and trying to manage each day as they come.
It causes severe
seizure
activity, tremors and other symptoms. I feel like I am on an island because of my illness. I am looking for others who are struggling with the same issues I have and trying to manage each day as they come.
Irietrekker
in
Functional Neurological Disorder - FND Hope
1 year ago
How Long Does it Take to Regain a Full State of Consciousness After a Medically Induced Coma?
Shortly thereafter he suffered a grand mal
seizure
. After the
seizure
the doctors were having difficulty getting him to awaken, so they induced a coma. A few days later on June 5th he was weaned from the sedatives. He was talking and laughing, but also seemed confused and agitated.
Shortly thereafter he suffered a grand mal
seizure
. After the
seizure
the doctors were having difficulty getting him to awaken, so they induced a coma. A few days later on June 5th he was weaned from the sedatives. He was talking and laughing, but also seemed confused and agitated.
natalierosejerome
in
ICUsteps
1 year ago
Tried to cut down cost of living?
Have been trying to downsize for years, terminally ill, irreparably ill, brain damage, from double
seizure
, and incurable rib cage structure.
Have been trying to downsize for years, terminally ill, irreparably ill, brain damage, from double
seizure
, and incurable rib cage structure.
Adlon57
in
Anxiety and Depression Support
11 months ago
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