So I had my craniotomy on Wednesday afternoon to remove a 4.5cm low grade Glioma in my right temporal lobe that I was diagnosed with in October.
My surgeon was happy with the procedure and the MRI the next morning showed that he fully resected the Tumour, I was discharged from hospital pretty quickly, the next day actually as my surgeon said he was happy for me to go home and begin my recovery. I've finished my course of steroids that they gave me, and I'm still taking Keppra (which I have been since October) for my Temporal Lobe Epilepsy caused by the tumour.
It's now 5 days post surgery and I'm struggling to get back to "reality" like I know who I am and what my life is but everything feels off, like I'm stuck in a dream and haven't fully woken up from my surgery as me.
The pain of the wound isn't too bad, more of a dull ache that paracetamol and codiene isn't hitting quite like the morphine was.
I feel more epileptic than I did before surgery, whilst seizures aren't as harsh, I do feel more genuinely out of touch with reality.
Hoping this will subside in time, I could sleep for hours, but in honestly bored and irritated
Waiting to hear from my biopsy report and having a district nurse contact me to have my stitches removed isn't helping my anxiety as I want this to all be over but I know it isn't the end of the journey yet
That being said, I am physically ok. I don't feel sick, I do have an appetite and I have no signs of fever or infection.
It's just the seizure side of things but I guess I just had my brain cut into so it makes sense.
Wondering on other people's experiences on how long these symptoms will last and what should I do in the meantime? Any brain training apps or something to keep me occupied?
