Memory loss from long term epilepsy, had J... - Epilepsy Action

Epilepsy Action

3,064 members1,163 posts

Memory loss from long term epilepsy, had JME epilepsy since 1970, aged 67, embarrassing memory short/long loss since, any suggestions?

Adlon57 profile image
2 Replies

Almost an expert in covering my losses of memory over the years, especially relatives and close friends, trying hard to bluff my way out of remembering events, laughing my way "of course!"🙄I don't remember anything around then, over 400 + seizures, but usually the disastrous side effects of medications, knowing what one might be 'brilliant' for one, life changing [or was it?] over the decades, certain important life events fogged out for ever by that inevitable brain fog, never to be remembered! Ironic an epileptic double seizure in Jan 2018, caused terminal damage to my 'brain', at my local health centre, even years later I can identify those same people just by their facial reaction of recognition, and I as "usual" don't remember a thing😤 Is there ANY way of bringing SOME SORT of remembrance to at least SOME of the memories from my life time?🙄

Written by
Adlon57 profile image
Adlon57
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Bookworm01 profile image
Bookworm01

I know what you mean. I'm only 22 but I've had epilepsy my entire life, only diagnosed when I was 14, but I have huge gaps in my memory from when I was younger. I'm seeing a neurologist at the beginning of December so I'm going to bring it up with him to see what he says. I can always come back to this conversation and let you know what he says :)

Adlon57 profile image
Adlon57 in reply to Bookworm01

Yeh! now aged 67, left school aged 16, some of those 'gaps' were important, finding I actually had a high IQ, intelligent DOH!🙄, but due to medication cannot remember those "good times", medications, sure a lot more of them, but essentially same things happen to me now as they did then, rather depressing I know, but the brain, most complicated organ in the body, I truly hope you have better luck than I did🤞, hopefully more breakthroughs in epilepsy research, than the era I lived in, overall just a few more fancy medication names, categorising various types of epilepsy, no real 🧠💥 moments, that was it? 👍

Not what you're looking for?

You may also like...

Son age 8 epilepsy diagnosis

Hello My son had an absence seizure in November and a second seizure in February which was a left...

Shaky hands side effects of Vimpat [Lacosamide] or Briviact [Brivaracetam] have been taking them since April 2018?

Have very shaky hands can hardly type, various medical mishaps since then, in Jan 2018 had double...

Diagnosed at 61

I had a my first tonic clonic seizure June 23. I'd been having focal seizures for 10 years but...

Strange episodes/auras

Ive been having these a lot just lately, like 3 or 4 some days, none on other days. GP has said...

Help - first time seizure mum - Tonic Clonic

Mu 9 year old son had his first seizure during the night sound asleep. Thankfully and by chance I...