Hi, I am Blessamanda, the newest member, please i need your help. seizure is a monster

[Blessamanda]

I am Mr Blessed. my daughter was diagnosed of epilepsy last year after she convulsed twice on our home to my village, we stayed two months in the hospital managing. after we finished expending all we have, the seizure continued till today. now it is becoming too frequent. please which drug is best for it control?

[GillyA]

Hi Blessamanda, I’m so sorry to read your news. I work in Nigeria and understand how very difficult it can be to get medical care, there are very few neurologists here and it’s extremely hard and expensive to get to see one.

Without this, can you get to see a general care doctor in a bigger town than your village? They will be able to at least suggest what drug to try. This must be extremely worrying for you and your daughter. Maybe your church, mosque or temple can help support you.

For people reading this who aren’t familiar with this type of environment, there are approximately 80 neurologists in a country of more than 200m people. They will work in the biggest cities, mostly in extremely expensive private hospitals. In some other countries the numbers are even worse. It makes me ever more grateful for the NHS, for all its difficulties.

[Anonite]

Hi Blessamanda,

It is awful that you have to go through this with no support. My son has generalised epilepsy so he has tonic clonic seizures without any pre warning. I don’t know if this is the same type as your daughter but he is on Keppra and Lamictal. Xx

[EpilepsyAction1 Partner Epilepsy Action]

Hi Blessamanda,

I hope its been helpful to have replies here and I hope you can get the support and care your daughter needs.

The International Bureau for Epilepsy has an interactive epilepsy organisations map. I'm linking you to this in case there is an epilepsy organisation in your country you can contact for support for your daughter: ibe-epilepsy.org/

The map is near the bottom of the webpage.

Regards

Mags,

Epilepsy Action Helpline Team. 

[Denman1]

Hi Blessamanda

I am so sorry to hear of your daughter's illness and the lack of support you have had to deal with.

I hope you find the help you need in finding effective treatment for your daughter.

Best wishes