Search
Search
About
Log in
Join
Experiences with
Salvage therapy
Posts
Communities
16,051 public posts
Filter results
Newly Diagnosed
Hi. Thanks for allowing me into the forum. I was diagnosed on Monday that I have 2 anterior tumours. My PSA scores were 9.92 & 10.42. Gleason score of 7 (3 + 4) T3a. No cancer seen in the Lymph nodes. 7 in 11 cores , 5 out of 6 sites with maximum 90% core involvement. It is breaking into the outer casing
Hi. Thanks for allowing me into the forum. I was diagnosed on Monday that I have 2 anterior tumours. My PSA scores were 9.92 & 10.42. Gleason score of 7 (3 + 4) T3a. No cancer seen in the Lymph nodes. 7 in 11 cores , 5 out of 6 sites with maximum 90% core involvement. It is breaking into the outer casing
Tulile
in
Prostate Cancer Network
15 days ago
Bloating - Zoladex/Tibolone
Hi I have been on Zoladex injections for a year now and have had add back HRT (tibolone) for about 6 weeks.The add back HRT has really helped the hot flushes & muscle pain but over the past 2 weeks I have been suffering with awful bloating which increases when I eat or drink anything. Has anybody else
Hi I have been on Zoladex injections for a year now and have had add back HRT (tibolone) for about 6 weeks.The add back HRT has really helped the hot flushes & muscle pain but over the past 2 weeks I have been suffering with awful bloating which increases when I eat or drink anything. Has anybody else
Bookish_Girl
in
Endometriosis UK
15 days ago
Update recent PSMA
Docs did it to me again with the usual bad news. Uptake in new lymph node locations in pelvis. the radiotherapy failed, and preclude more treatment on new nodal areas. (according to Docs.) So expect to add to ADT, abi or enza or darolutamide in a short while, with PSA going up on a fast double.
Docs did it to me again with the usual bad news. Uptake in new lymph node locations in pelvis. the radiotherapy failed, and preclude more treatment on new nodal areas. (according to Docs.) So expect to add to ADT, abi or enza or darolutamide in a short while, with PSA going up on a fast double.
kainasar
in
Advanced Prostate Cancer
16 days ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
CV and Bone Health when ADT is a treatment option.
Thought this provided a useful framework to guide discussion with my medical team when discussing whether or not and what to do about CV and bone health when starting on ADT. https://www.urotoday.com/conference-highlights/eau-2024/eau-2024-prostate-cancer/151136-eau-2024-synchronous-mhspc-what-are-the-treatment-options-and-what-are-the-goals-of-treatment-what-to-test-before-start-of-hormonal-treatment-and-what-to-monitor.html
Thought this provided a useful framework to guide discussion with my medical team when discussing whether or not and what to do about CV and bone health when starting on ADT. https://www.urotoday.com/conference-highlights/eau-2024/eau-2024-prostate-cancer/151136-eau-2024-synchronous-mhspc-what-are-the-treatment-options-and-what-are-the-goals-of-treatment-what-to-test-before-start-of-hormonal-treatment-and-what-to-monitor.html
Hawk56
in
Advanced Prostate Cancer
16 days ago
Latest thyroid test results
Hi everyone, After being underdosed on 25mcg of Levothyroxine for almost a decade, my new GP increased my dose to 50mcg around 6 months ago. The increase was done slowly over 6 weeks, as advised by people in this group. I had some blood tests done two days ago and today I got a message from the GP saying
Hi everyone, After being underdosed on 25mcg of Levothyroxine for almost a decade, my new GP increased my dose to 50mcg around 6 months ago. The increase was done slowly over 6 weeks, as advised by people in this group. I had some blood tests done two days ago and today I got a message from the GP saying
Gecko22
in
Thyroid UK
16 days ago
Treatment options
I am 47 years old diagnosed with PC last month with Gleason score 9(5,4) and was advised ADT treatment with Bicalutamide and followed by Lupron 30 mg after two weeks. PSA was 77 in Jan and dropped to 23 after starting ADT treatment and already feeling better with much less urinary symptoms. I was advised
I am 47 years old diagnosed with PC last month with Gleason score 9(5,4) and was advised ADT treatment with Bicalutamide and followed by Lupron 30 mg after two weeks. PSA was 77 in Jan and dropped to 23 after starting ADT treatment and already feeling better with much less urinary symptoms. I was advised
mtechguy
in
Advanced Prostate Cancer
16 days ago
What is done in this case ? ADT not working
In may of 2011 the PSA and Biopsy showed that I had an agressive cancer with Gleason 8 so my prostate was extracted and after this I received radiotherapy. Since during the following 9 years my psa continued very low, I suspended checking it and last september I received the surprise that it had increased
In may of 2011 the PSA and Biopsy showed that I had an agressive cancer with Gleason 8 so my prostate was extracted and after this I received radiotherapy. Since during the following 9 years my psa continued very low, I suspended checking it and last september I received the surprise that it had increased
Alfy47
in
Prostate Cancer Network
17 days ago
XTANDI(Enzalutamide) Granted European Commission Approval for Use in Additional Recurrent Early Prostate Cancer Treatment Setting
...well...the title speaks for itself XTANDI is now the first and only novel hormone therapy available for the treatment of high-risk biochemical recurrent non-metastatic hormone-sensitive prostate cancer in the European Union (EU) XTANDI can be given alone or in combination with androgen deprivation
...well...the title speaks for itself XTANDI is now the first and only novel hormone therapy available for the treatment of high-risk biochemical recurrent non-metastatic hormone-sensitive prostate cancer in the European Union (EU) XTANDI can be given alone or in combination with androgen deprivation
Maxone73
in
Advanced Prostate Cancer
17 days ago
Hormone Replacement
Anyone in there 70's using HRT for osteoporosis? I have been reading a lot of information concerning this.
Anyone in there 70's using HRT for osteoporosis? I have been reading a lot of information concerning this.
KincaidPete
in
Osteoporosis Support
18 days ago
Some advice please
Hi, I'm in surgical menopause and have not felt 'well' for a number of years now. I won't bore you with the backstory of my trials and tribulations with HRT, all in the pursuit of feeling well enough to fully function. I've questioned Thyroid for some time, I had tests last September and posted them
Hi, I'm in surgical menopause and have not felt 'well' for a number of years now. I won't bore you with the backstory of my trials and tribulations with HRT, all in the pursuit of feeling well enough to fully function. I've questioned Thyroid for some time, I had tests last September and posted them
Sunnyyellowlady
in
Thyroid UK
18 days ago
magnesium supplements
Hi all It’s been a while since I posted on here. But I have a question regarding sleep. I have ET, Jak2, had it 7 years, and at the moment take aspirin and hydroxy. Had my telephone consultation yesterday and was pleased to hear my platelets are the lowest they’ve ever been at 355. Even though I
Hi all It’s been a while since I posted on here. But I have a question regarding sleep. I have ET, Jak2, had it 7 years, and at the moment take aspirin and hydroxy. Had my telephone consultation yesterday and was pleased to hear my platelets are the lowest they’ve ever been at 355. Even though I
Grumpyfairy
in
MPN Voice
18 days ago
darolutamide monotherapy experience?
If you’ve had darolutamide mono therapy, I’m interested in your experience with effectiveness and side effects, especially compared to ADT like Lupron.
If you’ve had darolutamide mono therapy, I’m interested in your experience with effectiveness and side effects, especially compared to ADT like Lupron.
ron_bucher
in
Advanced Prostate Cancer
18 days ago
3 Abiraterone tabs in place of 4.
Warriors Some time back I posted that my MO had told me to take 3 Abiraterone tablets with 5 mg Prednisone daily instead of 4 to help with an out of control Blood Pressure problem. I was worried (as were some of the responses) that this could impact the ADT therapy. Recently had blood work done
Warriors Some time back I posted that my MO had told me to take 3 Abiraterone tablets with 5 mg Prednisone daily instead of 4 to help with an out of control Blood Pressure problem. I was worried (as were some of the responses) that this could impact the ADT therapy. Recently had blood work done
85236442968
in
Advanced Prostate Cancer
19 days ago
Testosterone Recovery: Orgovyx vs Lupron, Part-II
Here's another plot summarizing data from a 2020 paper in the New England Journal of Medicine by Neil Shore, et al. that shows Orgovyx has much faster "ON" and "OFF" changes in testosterone levels, compared to Lupron. This plot compares the percentage of men who recover their testosterone (defined
Here's another plot summarizing data from a 2020 paper in the New England Journal of Medicine by Neil Shore, et al. that shows Orgovyx has much faster "ON" and "OFF" changes in testosterone levels, compared to Lupron. This plot compares the percentage of men who recover their testosterone (defined
janebob99
in
Prostate Cancer Network
20 days ago
Radiation & Underactive Bladder
Does anyone on this forum have an Underactive Bladder and has also undergone prostate radiation treatments? I will be starting a series of 34 radiation treatments coupled with a 6-month hormone therapy (orgovyx) program. Less than 6 years ago I chose RP over radiation as primary treatment for my PCa
Does anyone on this forum have an Underactive Bladder and has also undergone prostate radiation treatments? I will be starting a series of 34 radiation treatments coupled with a 6-month hormone therapy (orgovyx) program. Less than 6 years ago I chose RP over radiation as primary treatment for my PCa
brilliant17
in
Advanced Prostate Cancer
20 days ago
Does NSAIDS reduce ADT effectiveness?
Hello I have a question about taking NSAIDS while on ADT - up to now I have only used tylenol - I had read somewhere that NSAIDS subtract some effectiveness of the hormone therapy and I have avoided it - but with the amount of inflammation after 8 months, I would like to use some - primarily to let
Hello I have a question about taking NSAIDS while on ADT - up to now I have only used tylenol - I had read somewhere that NSAIDS subtract some effectiveness of the hormone therapy and I have avoided it - but with the amount of inflammation after 8 months, I would like to use some - primarily to let
jackwfrench
in
Advanced Prostate Cancer
21 days ago
Docetaxel Failing
Greetings from Inverness in the beautiful Highlands of Scotland! I would like to share my journey with you and hopefully get some advice on future treatments. In December 2022 following diagnoses of advanced prostate cancer with multiple bone metastasis I started zytiga + prednisone and 6 monthly triptorelin
Greetings from Inverness in the beautiful Highlands of Scotland! I would like to share my journey with you and hopefully get some advice on future treatments. In December 2022 following diagnoses of advanced prostate cancer with multiple bone metastasis I started zytiga + prednisone and 6 monthly triptorelin
Fisherman2
in
Advanced Prostate Cancer
22 days ago
BILLY NEEDS HELP
OK troops, after 26 years of surviving post prostectomy, with a Gleason 4/3, 4/4, some 41 rounds of intermittent hormone therapy using lupron, casadex, advodart, I had a break thru last November as my psa went back up mid on cycle. After having my radiation oncologist ignore the realities of this, I
OK troops, after 26 years of surviving post prostectomy, with a Gleason 4/3, 4/4, some 41 rounds of intermittent hormone therapy using lupron, casadex, advodart, I had a break thru last November as my psa went back up mid on cycle. After having my radiation oncologist ignore the realities of this, I
billyboy3
in
Advanced Prostate Cancer
22 days ago
Vitamin D again: High-dose vit D to attenuate bone loss in patients with prostate cancer on ADT, phase 2 RCT result
I take it for other reasons (and I am taking zometa) but this thing with vit D and bone loss is a never ending story…. https://pubmed.ncbi.nlm.nih.gov/38520382/
I take it for other reasons (and I am taking zometa) but this thing with vit D and bone loss is a never ending story…. https://pubmed.ncbi.nlm.nih.gov/38520382/
Maxone73
in
Advanced Prostate Cancer
22 days ago
Pancreas problems after RT for prostate
I was diagnosed with prostate cancer two years ago. Received radiotherapy and hormone therapy. My PSA levels have dropped and progress seems OK. I have also had M.E. and fibromyalgia for over 25 years and, as part of that, IBS. Since starting the hormone therapy and radiotherapy I became more and more
I was diagnosed with prostate cancer two years ago. Received radiotherapy and hormone therapy. My PSA levels have dropped and progress seems OK. I have also had M.E. and fibromyalgia for over 25 years and, as part of that, IBS. Since starting the hormone therapy and radiotherapy I became more and more
Nomojo56
in
Pelvic Radiation Disease Association
22 days ago
1
...
18
19
20
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
4359 results
Thyroid UK
2343 results
Endometriosis UK
1841 results
View top 10 communities
Sort by
Most Relevant
Newest