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Is APS hereditary?
I'm just wondering because my dad's keeping getting these nose bleeds and it's just not stopping. He's just had an operation to cut the artery and doc said that will be the end of nose bleeds. Well it's not. He's got what looks like clots coming out of his nose. So I've said maybe mention me with APS
I'm just wondering because my dad's keeping getting these nose bleeds and it's just not stopping. He's just had an operation to cut the artery and doc said that will be the end of nose bleeds. Well it's not. He's got what looks like clots coming out of his nose. So I've said maybe mention me with APS
Charts
in
Hughes Syndrome APS Forum
8 months ago
RITUXIMAB
HI I HAVE PMR AND MY ANTIBODIES ARE THROUGH THE ROOF. IT HAS CAUSED MY KIDNEY READING TO DROP TO 11% FUNCTION. THE KIDNEY CONSULTANT HAS DECIDED THAT MY IMMUNE SYSTEM NEEDS TO BE LOWERED TO AVOID TOTAL KIDNEY FAILURE BECAUSE IT HAS CAUSED VASCULITIS AND I AM TO START RITUXIMAB NEXT WEEK. I HAVE HAD
HI I HAVE PMR AND MY ANTIBODIES ARE THROUGH THE ROOF. IT HAS CAUSED MY KIDNEY READING TO DROP TO 11% FUNCTION. THE KIDNEY CONSULTANT HAS DECIDED THAT MY IMMUNE SYSTEM NEEDS TO BE LOWERED TO AVOID TOTAL KIDNEY FAILURE BECAUSE IT HAS CAUSED VASCULITIS AND I AM TO START RITUXIMAB NEXT WEEK. I HAVE HAD
eyeBRing
in
PMRGCAuk
8 months ago
Enzalutamide (Xtandi): Start at half standard dose to extend efficacy time span?
Good Morning AllI was disgnosed 6 years ago with oligometastic prostate cancer Gleeson 8, PSA 22. Since January 2018 I have been on ADT, had docetaxel chemo in April 2018, radiotherapy to the prostate, seminal vessel and pelvis in November 2018 when PSA dropped to <0.1. PSMA PET CT scan in March 2019
Good Morning AllI was disgnosed 6 years ago with oligometastic prostate cancer Gleeson 8, PSA 22. Since January 2018 I have been on ADT, had docetaxel chemo in April 2018, radiotherapy to the prostate, seminal vessel and pelvis in November 2018 when PSA dropped to <0.1. PSMA PET CT scan in March 2019
KGU1
in
Advanced Prostate Cancer
8 months ago
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help me
Had my first Cardioversion but it didn’t work they ended up putting drugs in the IV. My Grandfather had a stroke at 59. My Dad had triple bypass at 70 and Mom had A-fib!!! I have to get serious with my health!I don’t drink. But l smoke!!! Hardest damn habit l have ever tried to kick!!!! Anyone tried
Had my first Cardioversion but it didn’t work they ended up putting drugs in the IV. My Grandfather had a stroke at 59. My Dad had triple bypass at 70 and Mom had A-fib!!! I have to get serious with my health!I don’t drink. But l smoke!!! Hardest damn habit l have ever tried to kick!!!! Anyone tried
Chrissygirl62
in
AF Association
5 months ago
Zoloft and parkinson's
I take Zoloft (Sertraline) 100mgs daily. I have been on this medication for many years before the parkinson's diagnosis. My hand tremors are not stopping after starting 6 weeks ago C/L 25/100 (generic Sinemet) 1 pill, three times a day? My family Doc said that maybe the Zoloft is the reason for the continuity
I take Zoloft (Sertraline) 100mgs daily. I have been on this medication for many years before the parkinson's diagnosis. My hand tremors are not stopping after starting 6 weeks ago C/L 25/100 (generic Sinemet) 1 pill, three times a day? My family Doc said that maybe the Zoloft is the reason for the continuity
Patitou
in
Cure Parkinson's
8 months ago
Father a fib
My father died after hospitalized with pneumonia in 1955. Death cert says also atrial fib and cerebral emboli. My brother 8 yrs older than me hit with it in his 70s. Has had 2 ablations. Fine last 4 years. I got it at 70 just had my ablation in May. So far so good. I think researchbsays heart genetics
My father died after hospitalized with pneumonia in 1955. Death cert says also atrial fib and cerebral emboli. My brother 8 yrs older than me hit with it in his 70s. Has had 2 ablations. Fine last 4 years. I got it at 70 just had my ablation in May. So far so good. I think researchbsays heart genetics
Healthyheart11
in
AF Association
5 months ago
Unsure what to do?
Yesterday [Friday 22nd Sept] I recieved a call from the Hospital treating my Cirrhosis to inform me they have had a request from my Heptoligy Doctor for a Biopsy due to them not being able to determine the cause of continued elevating blood results, they have had a cancellation for Monday [25th]. This
Yesterday [Friday 22nd Sept] I recieved a call from the Hospital treating my Cirrhosis to inform me they have had a request from my Heptoligy Doctor for a Biopsy due to them not being able to determine the cause of continued elevating blood results, they have had a cancellation for Monday [25th]. This
tipovtong
in
British Liver Trust
8 months ago
Bradyarrythmia
I had an ablation almost 4 years ago in feb 2020. Since then I have rarely had any arrhythmias, that is until now. They started out of the blue almost two weeks ago and are constant. However , they are not like before, this time the average beats are 60 per minute. They go as low as 42 and as high as
I had an ablation almost 4 years ago in feb 2020. Since then I have rarely had any arrhythmias, that is until now. They started out of the blue almost two weeks ago and are constant. However , they are not like before, this time the average beats are 60 per minute. They go as low as 42 and as high as
destiny234
in
Atrial Fibrillation Support
5 months ago
cholesterol results
hi, I have just received my cholesterol results. My mum has high cholesterol and my Nan had high cholesterol. Cholesterol =7.1 mmol High density lipoprotein = 1.51 mmol/l Non -hDL cholesterol = 5.6mmol Triglycerides 1.42mmol I haven’t eaten before and tested at 8.30am I am 38 years old ~ diagnosed
hi, I have just received my cholesterol results. My mum has high cholesterol and my Nan had high cholesterol. Cholesterol =7.1 mmol High density lipoprotein = 1.51 mmol/l Non -hDL cholesterol = 5.6mmol Triglycerides 1.42mmol I haven’t eaten before and tested at 8.30am I am 38 years old ~ diagnosed
Luckygirl1
in
Cholesterol Support
5 months ago
Zanubrutinib and ACE inhibitors
I am approaching the start of treatment for the first time. I have for many years been taking an ACE inhibitor (perindropril) for high blood pressure, which is now well controlled. I have CLL, my lymphocyte count is doubling quickly (~2 months) and my haematologist is considering options for treatment
I am approaching the start of treatment for the first time. I have for many years been taking an ACE inhibitor (perindropril) for high blood pressure, which is now well controlled. I have CLL, my lymphocyte count is doubling quickly (~2 months) and my haematologist is considering options for treatment
Fogey
in
CLL Support
7 months ago
New To Group
Hello! My name is AR57 & I became a "Pensioner" this September just gone!! :) I have had Rheumatoid Arthritis since 2001 & I had been stable with it for a good few years until quite recently, but it has now started to give a few wobbles again!! :( It will be good to talk with others who may have similar
Hello! My name is AR57 & I became a "Pensioner" this September just gone!! :) I have had Rheumatoid Arthritis since 2001 & I had been stable with it for a good few years until quite recently, but it has now started to give a few wobbles again!! :( It will be good to talk with others who may have similar
Ghost87
in
NRAS
6 months ago
Help Develop a Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer
Please consider being part of the COMPASS Study here: https://malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men
Please consider being part of the COMPASS Study here: https://malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men
Darryl
Partner
in
Advanced Prostate Cancer
8 months ago
AF and MAD
anyone else have AF and MAD (mitral annular disjunction) . It was picked up during cardiac MRI. The displacement is 5mm, mild mitral valve prolapse and regurgitation. Neither my cardiologist or EP have said anything about it apart from put me on another very long waiting list to see a more specialist
anyone else have AF and MAD (mitral annular disjunction) . It was picked up during cardiac MRI. The displacement is 5mm, mild mitral valve prolapse and regurgitation. Neither my cardiologist or EP have said anything about it apart from put me on another very long waiting list to see a more specialist
LoveRowing
in
Atrial Fibrillation Support
2 days ago
Atrial fibrillation
Had an ablation procedure 6 yrs ago and this halted my first experience of atrial fibrillation. Now has started back up again. Leaves you feeling dreadful,short of breath and scared. Obviously went to A n E ,13 hrs to be discharged with app at GP for ECG 8 days later. Still waiting for that. Over the
Had an ablation procedure 6 yrs ago and this halted my first experience of atrial fibrillation. Now has started back up again. Leaves you feeling dreadful,short of breath and scared. Obviously went to A n E ,13 hrs to be discharged with app at GP for ECG 8 days later. Still waiting for that. Over the
chux
in
Anxiety Support
5 months ago
Portable air purifier for outdoor exercise with allergic asthma
It is the peak of spring allergy season here, as well as other great stuff like air pollution. So I just wanted to share the results of today's testing of my wearable air purifier for asthma. I am lucky to have wooded hills out of my door, so I do not have to scare people while walking there. The device
It is the peak of spring allergy season here, as well as other great stuff like air pollution. So I just wanted to share the results of today's testing of my wearable air purifier for asthma. I am lucky to have wooded hills out of my door, so I do not have to scare people while walking there. The device
runcyclexcski
in
Asthma Community Forum
8 days ago
Heart Pain
I wonder if somebody can assist with a question. I'm a 46 year old with a minor mitral valve prolapse. Possible sinus nerve damage on the lower ventricle but minor. I'm not on medication. There is no known 'major' issue or treatment plan suggested by cardiologist. I am very fit with low heart beat. Have
I wonder if somebody can assist with a question. I'm a 46 year old with a minor mitral valve prolapse. Possible sinus nerve damage on the lower ventricle but minor. I'm not on medication. There is no known 'major' issue or treatment plan suggested by cardiologist. I am very fit with low heart beat. Have
MathewHerbert
in
Atrial Fibrillation Support
8 days ago
Low Oxygen linked to Afib?
My Apple Series 8 watch has been showing drops of oxygen. It has shown 71-83% but then can go up to 100%. Sometimes during day I have a very hard time breathing but night even sleeping elevated I am short of breath. Even side sleeping . Back is the worst. I am not on any meds, not overweight. 55,
My Apple Series 8 watch has been showing drops of oxygen. It has shown 71-83% but then can go up to 100%. Sometimes during day I have a very hard time breathing but night even sleeping elevated I am short of breath. Even side sleeping . Back is the worst. I am not on any meds, not overweight. 55,
Krissy55
in
Atrial Fibrillation Support
5 months ago
Abaris
Hello everyone, I'm still on the quest for wellness. I was wondering if anyone had tried Abaris which is a TRH . Quite new on the market I think. I'm piling the weight on as I can't treat my thyroid without reacting to the meds. I was looking further upstream at TRH. I live in the UK so probably wouldn't
Hello everyone, I'm still on the quest for wellness. I was wondering if anyone had tried Abaris which is a TRH . Quite new on the market I think. I'm piling the weight on as I can't treat my thyroid without reacting to the meds. I was looking further upstream at TRH. I live in the UK so probably wouldn't
Sooty101
in
Thyroid UK
8 months ago
Some good news at last.
Some good news at last. Saw EP for 6 week follow up, 2 weeks ago, reduced Bisoprolol to 1.25mg but continue with heart failure meds and booked echocardiogram which I had yesterday. Sonographer was lovely, very chatty, I had my previous report from Late January 24 with me, Ejection Fraction 28%, severe
Some good news at last. Saw EP for 6 week follow up, 2 weeks ago, reduced Bisoprolol to 1.25mg but continue with heart failure meds and booked echocardiogram which I had yesterday. Sonographer was lovely, very chatty, I had my previous report from Late January 24 with me, Ejection Fraction 28%, severe
AmandaLouise77
in
Atrial Fibrillation Support
16 days ago
Musselburgh Coffee and Chat meeting - 2nd December!
Join the Musselburgh Lupus Group for our next Coffee and Chat meeting on Saturday 2nd December, from 10am until 12pm. Meeting at Brunton Hall Bistro, Brunton Hall, Ladywell Way, Musselburgh, EH21 6AF. This is a great way to connect with others affected by lupus, learn more about lupus and share your
Join the Musselburgh Lupus Group for our next Coffee and Chat meeting on Saturday 2nd December, from 10am until 12pm. Meeting at Brunton Hall Bistro, Brunton Hall, Ladywell Way, Musselburgh, EH21 6AF. This is a great way to connect with others affected by lupus, learn more about lupus and share your
michaellasmith
Administrator
in
LUPUS UK
6 months ago
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