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Reminder 'Off Topic'
Good morning everyone, Just a gentle reminder if your topic does not relate directly to Rheumatoid Arthritis please can I ask you to make your post 'Off Topic'. Thank you for your support on the matter. Kind Regards Tim - Head of Services NRAS
Good morning everyone, Just a gentle reminder if your topic does not relate directly to Rheumatoid Arthritis please can I ask you to make your post 'Off Topic'. Thank you for your support on the matter. Kind Regards Tim - Head of Services NRAS
Hidden
in
NRAS
6 months ago
seeking feedback on my case
hi, hoping Tall_Allen and anyone else may have some thoughts...... I posted several mos. ago after being diagnosed with distant only metastatic -- GL7, low PSA, thought to be contained and headed for surgery, but asked for a PSMA -- showed 8-10 lesions in ribs and scapula. Mostly low SUV. Diagnosis
hi, hoping Tall_Allen and anyone else may have some thoughts...... I posted several mos. ago after being diagnosed with distant only metastatic -- GL7, low PSA, thought to be contained and headed for surgery, but asked for a PSMA -- showed 8-10 lesions in ribs and scapula. Mostly low SUV. Diagnosis
tmscat
in
Advanced Prostate Cancer
8 months ago
Collapse then AF
Dad has mixed dementia and is 90 in May. He lives alone with my support. He has a history of collapse dating back to the 1990's but only three in all that time. He had a pacemaker in 2017 due to another collapse and found to have some heart block. A year later he had another and this is when we noticed
Dad has mixed dementia and is 90 in May. He lives alone with my support. He has a history of collapse dating back to the 1990's but only three in all that time. He had a pacemaker in 2017 due to another collapse and found to have some heart block. A year later he had another and this is when we noticed
ian16527
in
AF Association
5 months ago
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Hypereosinofilia with Pbc,ursofalk side effects.
Hello !!I have just been diagnosed with PBC,as you can imagine it was a huge surprise considering I have never had health issues before. Everything started with some gastro problems,mostly bloating and some discomfort in the bowel area. Blood tests shower increased GGT 160 , hypereosinophilia 2400 ,incresed
Hello !!I have just been diagnosed with PBC,as you can imagine it was a huge surprise considering I have never had health issues before. Everything started with some gastro problems,mostly bloating and some discomfort in the bowel area. Blood tests shower increased GGT 160 , hypereosinophilia 2400 ,incresed
Alina8004
in
PBC Foundation
8 months ago
Is it a choice? Pacemaker v Implanted defibrillator?
Hi, it's #chinkoflight here with an update. Things are moving on. I'm in coronary care, and the evidence for my fainting whilst running story has now shown an arrthymia at the time of the fall, effectively stopping my heart functioning, leading to the drop in blood pressure and the syncope event. It's
Hi, it's #chinkoflight here with an update. Things are moving on. I'm in coronary care, and the evidence for my fainting whilst running story has now shown an arrthymia at the time of the fall, effectively stopping my heart functioning, leading to the drop in blood pressure and the syncope event. It's
Chinkoflight
in
Atrial Fibrillation Support
5 months ago
Provenge Underway
Morning folks, Well I completed my first cycle of Provenge yesterday and all seems well so far. I also met with MO to review recent genetic testing results and have confirmed a mutation BRiP1 which is associated with autosomal dominant hereditary ovarian cancer, autosomal recessive Fanconia anemia,
Morning folks, Well I completed my first cycle of Provenge yesterday and all seems well so far. I also met with MO to review recent genetic testing results and have confirmed a mutation BRiP1 which is associated with autosomal dominant hereditary ovarian cancer, autosomal recessive Fanconia anemia,
Pmann
in
Advanced Prostate Cancer
8 months ago
Recommendation for gloves and socks?
Hi Guys, Further to my Post on the Lupus forum (link below) can I ask for recommendations for suitable super warm gloves and socks please? I spent a fortune on some silver lined socks and gloves and found them to be absolutely useless. My M&S bought socks are better than the extortionate silver lined
Hi Guys, Further to my Post on the Lupus forum (link below) can I ask for recommendations for suitable super warm gloves and socks please? I spent a fortune on some silver lined socks and gloves and found them to be absolutely useless. My M&S bought socks are better than the extortionate silver lined
SurferGuy
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
New meta-analysis shows docetaxel benefits those having high grade/low PSA prostate cancer
Reposting with more specific title - no one had replied to Maxone73's original post. Interesting results for those with a poor-prognosis cancer. https://www.miragenews.com/docetaxel-slashes-prostate-cancer-death-in-high-1115466/
Reposting with more specific title - no one had replied to Maxone73's original post. Interesting results for those with a poor-prognosis cancer. https://www.miragenews.com/docetaxel-slashes-prostate-cancer-death-in-high-1115466/
HikerWife
in
Advanced Prostate Cancer
8 months ago
Cause of extremely low ALP on Liver Function Tests
27 years old male, heavy drinker for the past 11 years.I have been having this terrible pain on the right side, just below the ribs, gets worse when laughing or when I sleep on the same side. Also, my palms are red with visible dilated veins all over. Went to the doctor, last year and an abdominal
27 years old male, heavy drinker for the past 11 years.I have been having this terrible pain on the right side, just below the ribs, gets worse when laughing or when I sleep on the same side. Also, my palms are red with visible dilated veins all over. Went to the doctor, last year and an abdominal
African1
in
British Liver Trust
8 months ago
I'm struggling with pain and fatigue but feel my rheumatologist will not permit me to have my mabthera infusion
It look 5 long years to diagnose my rheumatoid until everything seemed to go. My consultant at the time apologised- I think I was sero- negative.. but then it showed up and I finally got treatment. I have tried various combination of drugs and was finally put on mabthera. My new rheumatologist says
It look 5 long years to diagnose my rheumatoid until everything seemed to go. My consultant at the time apologised- I think I was sero- negative.. but then it showed up and I finally got treatment. I have tried various combination of drugs and was finally put on mabthera. My new rheumatologist says
Ardea
in
NRAS
6 months ago
lowering prednisolone
I have had pmg since last September and have very gradually lowered my dose from 15mg to 1mg. which I have been on for the last six weeks. I decided to try to go without steroids for the last two days and apart from the usual shoulder ach when getting up, so far so good, I am now worried about getting
I have had pmg since last September and have very gradually lowered my dose from 15mg to 1mg. which I have been on for the last six weeks. I decided to try to go without steroids for the last two days and apart from the usual shoulder ach when getting up, so far so good, I am now worried about getting
Guilluame
in
PMRGCAuk
8 months ago
Feeling fed up
I’ve had deranged LFTS on and off for at least 6 years now with Alt going up over 1000. Second time seeing specialist and apart from signs in liver biopsy pointing to AIH the scans don’t seem to show much. Don’t seem to get told much by Specialist and don’t seem to keep me updated. Had a MRCP on October
I’ve had deranged LFTS on and off for at least 6 years now with Alt going up over 1000. Second time seeing specialist and apart from signs in liver biopsy pointing to AIH the scans don’t seem to show much. Don’t seem to get told much by Specialist and don’t seem to keep me updated. Had a MRCP on October
MrMidnight2021
in
British Liver Trust
8 months ago
ONCT-534 Earns FDA Fast Track Designation in R/R Metastatic CRPC
Looks like a number of Drug companies are creating drugs that interact with the AR’s N-terminal domain and ligand-binding domain, impeding cell growth and enabling AR degradation. ONCT-534 Earns FDA Fast Track Designation in R/R Metastatic CRPC October 27, 2023 Investigators will assess
Looks like a number of Drug companies are creating drugs that interact with the AR’s N-terminal domain and ligand-binding domain, impeding cell growth and enabling AR degradation. ONCT-534 Earns FDA Fast Track Designation in R/R Metastatic CRPC October 27, 2023 Investigators will assess
Scout4answers
in
Advanced Prostate Cancer
8 months ago
Persistent AF
Hi everyone, I have been to see my cardiologist today. Had all the usual tests done he asked me how I was feeling I said I felt really well. He then told me I was no longer in Paroxysmal AF and I was in Persistent AF. How can they tell? I have got to have an echocardiogram done and a machine fitted
Hi everyone, I have been to see my cardiologist today. Had all the usual tests done he asked me how I was feeling I said I felt really well. He then told me I was no longer in Paroxysmal AF and I was in Persistent AF. How can they tell? I have got to have an echocardiogram done and a machine fitted
Gillybean123
in
AF Association
5 months ago
no transplant needed!
hi all just wanted to share what is happening to me to date. It’s been a long journey but I think (I hope) I’ve got there. After recovering from a Decompensated liver from just 2 weeks to live, then it was 3 months, then 1-2 years then 5 years to live, I have now been given the news that ive done so
hi all just wanted to share what is happening to me to date. It’s been a long journey but I think (I hope) I’ve got there. After recovering from a Decompensated liver from just 2 weeks to live, then it was 3 months, then 1-2 years then 5 years to live, I have now been given the news that ive done so
Harriet-sarah
in
British Liver Trust
8 months ago
Have you visited the Arrhythmia Alliance website?
If you are new to the Forum, or would like updated information relating to a new medication, a scheduled procedure? an information booklet? Make a donation? Register for our monthly patient e-newsletter or simply just find out more about the charity and how we can help you. Our website contains a
If you are new to the Forum, or would like updated information relating to a new medication, a scheduled procedure? an information booklet? Make a donation? Register for our monthly patient e-newsletter or simply just find out more about the charity and how we can help you. Our website contains a
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
5 months ago
Creatine For Advanced Prostate Cancer Patients
A new study at Huntsman Cancer Institute is going to look at potential benefits of creatine for maintaining muscle mass in APC patients. Here's the link: https://www.onclive.com/view/new-clinical-trials-test-innovative-ways-to-preserve-muscle-mass-during-metastatic-prostate-cancer?utm_medium=email&
A new study at Huntsman Cancer Institute is going to look at potential benefits of creatine for maintaining muscle mass in APC patients. Here's the link: https://www.onclive.com/view/new-clinical-trials-test-innovative-ways-to-preserve-muscle-mass-during-metastatic-prostate-cancer?utm_medium=email&
CocoTheAlphaCat
in
Advanced Prostate Cancer
8 months ago
Abalation Fears
Hi All Today I went and seen my Electrophysiology specialist and have booked in for an ablation in 2 weeks time. I am quite anxious about this whole procedure. He advised me it would be a 70% success rate and mentioned he does not like quoting over this rate. 70% is based on having no more AF episodes
Hi All Today I went and seen my Electrophysiology specialist and have booked in for an ablation in 2 weeks time. I am quite anxious about this whole procedure. He advised me it would be a 70% success rate and mentioned he does not like quoting over this rate. 70% is based on having no more AF episodes
Murphy10
in
Atrial Fibrillation Support
5 months ago
Oral care tip
Just to share in case it helps someone: My mother has very advanced disease and her tongue doesn’t move well; she has difficulty swallowing and her mouth is usually open, so she mouth-breathes all day. She is immobile and nonverbal and stays in a care facility. On her last trip to the dentist (a caregiver
Just to share in case it helps someone: My mother has very advanced disease and her tongue doesn’t move well; she has difficulty swallowing and her mouth is usually open, so she mouth-breathes all day. She is immobile and nonverbal and stays in a care facility. On her last trip to the dentist (a caregiver
Martina_MP
in
PSP Association
8 months ago
Has anyone had Peritoneal from Prostate Cancer ?
PSA on the rise and fluid observed on Mild Peritoneal thickening and uptake on PSMA Pet scan.
PSA on the rise and fluid observed on Mild Peritoneal thickening and uptake on PSMA Pet scan.
Drum55
in
Advanced Prostate Cancer
8 months ago
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