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Finding meaning in life with lupus through seeds and beams of light
How a columnist holds on to hope amid the challenges of her illness by Candace J. Semien | October 4, 2023 Our paths to a lupus diagnosis can vary extensively. The symptoms that trigger a crisis may differ, as do the number of hospital stays and near-death experiences we endure before discovering
How a columnist holds on to hope amid the challenges of her illness by Candace J. Semien | October 4, 2023 Our paths to a lupus diagnosis can vary extensively. The symptoms that trigger a crisis may differ, as do the number of hospital stays and near-death experiences we endure before discovering
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 months ago
IgA deficiency?
I recently posted on here about my son who had a severe facial rash, and had many helpful replies. I'm now hoping someone can help with some test results. Long story short I've had bowel troubles for around 14 years, and have tested negative for coeliac twice in the past year. My IgA TTG came back as
I recently posted on here about my son who had a severe facial rash, and had many helpful replies. I'm now hoping someone can help with some test results. Long story short I've had bowel troubles for around 14 years, and have tested negative for coeliac twice in the past year. My IgA TTG came back as
Nome11
in
Gluten Free Guerrillas
9 months ago
HISTORY OF PERNICIOUS ANAEMIA
our new CEO has written a blog post about the history of Pernicious Anaemia and you can read it here https://pernicious-anaemia-society.org/pernicious-anaemia/one-history-of-pernicious-anaemia/ we have an impressive list of guest bloggers for the future too so watch this space!
our new CEO has written a blog post about the history of Pernicious Anaemia and you can read it here https://pernicious-anaemia-society.org/pernicious-anaemia/one-history-of-pernicious-anaemia/ we have an impressive list of guest bloggers for the future too so watch this space!
PAScomms
in
Pernicious Anaemia Society
7 months ago
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frustrating!!
so I posted my sons blood results being concerned over his very low active b12 and having to wait weeks for an appointment with Gp. Finally seen Gp who question the private bloods and ordered her own. She tested for pernicious anaemia apparently. Other blood results have returned and are Ferritin
so I posted my sons blood results being concerned over his very low active b12 and having to wait weeks for an appointment with Gp. Finally seen Gp who question the private bloods and ordered her own. She tested for pernicious anaemia apparently. Other blood results have returned and are Ferritin
Blister4
in
Pernicious Anaemia Society
7 months ago
Fast heart rate today
I've been back in AF for 4 weeks, and my pulse was 80-90ish most of the time, but this afternoon and evening it's gone up to 100-130bpm, and feels really uncomfortable. I'm on 7.5mg bisoprolol and 20mg rivaroxaban. In my first bout of AF I was on 10mg bisoprolol and my pulse always stayed below
I've been back in AF for 4 weeks, and my pulse was 80-90ish most of the time, but this afternoon and evening it's gone up to 100-130bpm, and feels really uncomfortable. I'm on 7.5mg bisoprolol and 20mg rivaroxaban. In my first bout of AF I was on 10mg bisoprolol and my pulse always stayed below
Belle11
in
AF Association
7 months ago
Random heart rate spike but no missing beats
Hi, does anyone else get random heart rate spikes for no reason which come straight back to normal range? My resting HR is 60, I was just brushing my hair and it spiked to 130, I felt dizzy, could feel my heart pounding in my throat. I couldn't feel beats missing when I felt my pulse. Blood pressure
Hi, does anyone else get random heart rate spikes for no reason which come straight back to normal range? My resting HR is 60, I was just brushing my hair and it spiked to 130, I felt dizzy, could feel my heart pounding in my throat. I couldn't feel beats missing when I felt my pulse. Blood pressure
Sweet-Potato
in
AF Association
7 months ago
Advice and explanation pls
I've had hashi's for 30 + years, last few years my thyroxine dose has been increased then reduced a few times. I had to wait 5 weeks for my bi-annual blood test got the results today, TSH mu/l 0.29 free t4 p/mol 19.0 and a text from gp of a telephone appt in 4 wks time đ I am taking 125mcgs daily for
I've had hashi's for 30 + years, last few years my thyroxine dose has been increased then reduced a few times. I had to wait 5 weeks for my bi-annual blood test got the results today, TSH mu/l 0.29 free t4 p/mol 19.0 and a text from gp of a telephone appt in 4 wks time đ I am taking 125mcgs daily for
Charlie27612
in
Thyroid UK
7 months ago
Lyme Disease
Hello, I hope everyone is feeling as well as possible. Can I ask about links between Lyme Disease and RA? What is actually known? My daughter was talking about ticks the other day (we are both walkers) when I said I had had (in my late teens) a bullseye mark from a tick on my leg, she said âwell that
Hello, I hope everyone is feeling as well as possible. Can I ask about links between Lyme Disease and RA? What is actually known? My daughter was talking about ticks the other day (we are both walkers) when I said I had had (in my late teens) a bullseye mark from a tick on my leg, she said âwell that
Lyndy
in
NRAS
9 months ago
Black History Month and Lupus Awareness Month event this Saturday 7th October - some tickets still remaining!
Its almost time to celebrate Black History Month & Lupus Awareness Month, this Saturday and there are still some tickets left! It will be a great opportunity to meet other people with lupus and learn more about the disease from a range of excellent speakers. Everyone is welcome. Details: Saturday 7th
Its almost time to celebrate Black History Month & Lupus Awareness Month, this Saturday and there are still some tickets left! It will be a great opportunity to meet other people with lupus and learn more about the disease from a range of excellent speakers. Everyone is welcome. Details: Saturday 7th
michaellasmith
Administrator
in
LUPUS UK
7 months ago
LINQ ECG implant - what follow up have people had.
Hi everyone with or similar LINQ ECG implant fitted. My LINQ device was fitted in February of this year. In May I received a telephone call from the cardiology team, who I have not met, that an Afib event was detected and a medication change to EDOXABAN was prescribed. I have not had any further
Hi everyone with or similar LINQ ECG implant fitted. My LINQ device was fitted in February of this year. In May I received a telephone call from the cardiology team, who I have not met, that an Afib event was detected and a medication change to EDOXABAN was prescribed. I have not had any further
Chinkoflight
in
Atrial Fibrillation Support
7 months ago
v non-invasive treatment may offer significant relief to and restore gait function in patients with neurological disorders
To this end, the clinical researchers from Japan recruited twenty-three patients with PD or Parkinsonâs syndrome. All study participants were randomly assigned to receive either the active treatment or a âshamâ treatment that mimics the active treatment but does not offer any therapeutic benefit.
To this end, the clinical researchers from Japan recruited twenty-three patients with PD or Parkinsonâs syndrome. All study participants were randomly assigned to receive either the active treatment or a âshamâ treatment that mimics the active treatment but does not offer any therapeutic benefit.
Farooqji
in
Cure Parkinson's
9 months ago
taxotere and PSA
adt stopped 9/22, daralutamide mono therapy until 7/23. Three rounds of docetaxel until 7/17/23. PSA rose from 4.9 to 5.1. PSMA scan showed decline in bone Mets. Tried a bit of fasting. Just switched to cabitaxel due to seeming failure of docetaxel based on PSA rise. Wondering if PSA increase was the
adt stopped 9/22, daralutamide mono therapy until 7/23. Three rounds of docetaxel until 7/17/23. PSA rose from 4.9 to 5.1. PSMA scan showed decline in bone Mets. Tried a bit of fasting. Just switched to cabitaxel due to seeming failure of docetaxel based on PSA rise. Wondering if PSA increase was the
CWT53
in
Advanced Prostate Cancer
9 months ago
COVID-19 immune cell vaccine eases SLE symptoms in girl: Report
Therapy helped 13-year-old by increasing immune tolerance, researchers say
A personalized vaccine kit designed to prevent COVID-19 infection eased systemic lupus erythematosus (SLE) manifestations in an adolescent girl in Indonesia whose symptoms had not been well-controlled with immunosuppressive
Therapy helped 13-year-old by increasing immune tolerance, researchers say
A personalized vaccine kit designed to prevent COVID-19 infection eased systemic lupus erythematosus (SLE) manifestations in an adolescent girl in Indonesia whose symptoms had not been well-controlled with immunosuppressive
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 months ago
Wrist and hand operation.
Hi again lovely helpful people. I am due to have a wrist and knuckle replacements (MCPJ silastic replacement) and intrinsic releases (tendons I think). Itâs a big deal and not without risks Iâm very worried. I was wondering if anyone else had a similar operation? Thank you đ
Hi again lovely helpful people. I am due to have a wrist and knuckle replacements (MCPJ silastic replacement) and intrinsic releases (tendons I think). Itâs a big deal and not without risks Iâm very worried. I was wondering if anyone else had a similar operation? Thank you đ
debjw
in
NRAS
7 months ago
Poem on MS (from artificial intelligence)
I asked ChatGPT to write a poem about MS: Multiple sclerosis, a disease unknown A monster that lurks and leaves people alone It attacks the body and the mind Leaves its victims feeling confined It strikes without warning, no time to prepare Leaves us stranded and without a care It takes away
I asked ChatGPT to write a poem about MS: Multiple sclerosis, a disease unknown A monster that lurks and leaves people alone It attacks the body and the mind Leaves its victims feeling confined It strikes without warning, no time to prepare Leaves us stranded and without a care It takes away
anaishunter
in
My MSAA Community
7 months ago
Cerelle desogestrel
I've been taking 2x desogestrl tablets daily since January and have noticed the past few months cramping but no period, I've had to go to hospital for morphine to calm this, could this mean my endo has grown back even thought i only had a lap in March 22?
I've been taking 2x desogestrl tablets daily since January and have noticed the past few months cramping but no period, I've had to go to hospital for morphine to calm this, could this mean my endo has grown back even thought i only had a lap in March 22?
Surfingblue
in
Endometriosis UK
9 months ago
Narirutin found in lemons, oranges, passion fruit, bergamot and grapefruit may be chemopreventive agent for hormone-resistant PC
Narirutin. A flavonoid found in citrus fruits modulates cell cycle phases and inhibits the proliferation of hormone-refractory prostate cancer cells by targeting hyaluronidase Author links open overlay panelShilpi Singh a b, Akhilesh Kumar Maurya c, Abha Meena a b, Nidhi Mishra c, Suaib Luqman a b
Narirutin. A flavonoid found in citrus fruits modulates cell cycle phases and inhibits the proliferation of hormone-refractory prostate cancer cells by targeting hyaluronidase Author links open overlay panelShilpi Singh a b, Akhilesh Kumar Maurya c, Abha Meena a b, Nidhi Mishra c, Suaib Luqman a b
Graham49
in
Advanced Prostate Cancer
9 months ago
Black History Month and Lupus Awareness Month Event - This Saturday 7th October - Tickets still available!
There is still time to get your free ticket and join us this Saturday to celebrate Black History Month & Lupus Awareness Month combined! It will be a great opportunity to meet other people with lupus and learn more about the disease from a range of excellent speakers. Everyone is welcome. Details: Saturday
There is still time to get your free ticket and join us this Saturday to celebrate Black History Month & Lupus Awareness Month combined! It will be a great opportunity to meet other people with lupus and learn more about the disease from a range of excellent speakers. Everyone is welcome. Details: Saturday
michaellasmith
Administrator
in
LUPUS UK
7 months ago
Nailfold infection
I have my second nailfold infection in 2 months - it is proving difficult to resolve and a few days ago a telangectasia bled profusely for no reason. Is this connected to my Systemic Sclerosis or just a coincident. Thanks for any thoughts on this.
I have my second nailfold infection in 2 months - it is proving difficult to resolve and a few days ago a telangectasia bled profusely for no reason. Is this connected to my Systemic Sclerosis or just a coincident. Thanks for any thoughts on this.
janetfmauk
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
Long term Steroids.
Many thanks for all your replies to my post.As I stated before, I am due to see my new Rheumatoid Consultant next week, so I'm very hopeful that she will help me on my journey and give me a suitable Rheumy drug that will suit me. I can then hopefully, slowly come off the Predisolone.
Many thanks for all your replies to my post.As I stated before, I am due to see my new Rheumatoid Consultant next week, so I'm very hopeful that she will help me on my journey and give me a suitable Rheumy drug that will suit me. I can then hopefully, slowly come off the Predisolone.
Chanelady
in
NRAS
7 months ago
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