I will apologise now for the ranting and long winded post!
I have CTD & RA and I take a lowering dose of Prednisolone (down to 6mg a day from 20mg), Lefludomide, Gabapentin, Hydroxychloroquine & Omniprozal. I also had my first 2 cycles of Rituximab in December and touch wood since then have felt better than I have for a long, long time. I think, fingers crossed, that it seems to be working.
My problem is for the last 6 months I have had this burning pain (like pins & needles on steroids!) in my arms & legs. I told my Consultant and she sent me to the Neurophysiology Department for the electric shock tests. They came back saying that they were clear. Since then these pains have got progressively worse and at the moment I am not sleeping for more than 2.5 hours a night at the most. They are literally driving me mad.
I saw my Consultant last Friday and repeated the symptoms and said they were much worse and extremely painful. Her reply was "it was probably a slight case of Neuropathy but there is no cure for it and no medication that I can give you". As I was already on Gabapentin, I could take 3 of them instead of the 2 I take daily. She also said I could try taking Vitamin B Complex which might help.
Under normal circumstances I actually like my Consultant but this time I was a little surprised at her reaction. Because I told her that my CTD & RA seemed to be under control at the moment I got the feeling that she wasn't really interested in this other problem.
I would be grateful to know if anyone else has had these kind of pains and if so if there is anything I can do to make them ease up - Please!