My husband, 52, Kansas was diagnosed July 2017. I have been reading lots of posts since then, but have never posted his story.
We were initially given the diagnosis of Non-Hodgkin's Lymphoma. It hit us like a ton of bricks. He had a brother pass away from NHL when he was 35. I know there is lots of new technology since then. We were referred to a Cancer center and was told my husband has CLL. That we may have 10 years on W&W before treatment was needed. We felt the weight lifted some. We have been on W&W going every 3 months for blood work. He has had a PET scan, Ultrasound of spleen, FISH test and labs. Trying to understand all the tests and what they mean....
We just had an appt last week and his platelets have stayed under 100 for 2 appt in a row, so his CLL specialist talked to us that he may need treatment soon. He is having NO symptoms. She sent us for a Bone Marrow test and another ultrasound to look at his spleen. She talked to us about 2 types of treatment Ibrutinib or a combo of Rituximab/Bendamustine. Waiting on results from the BM test.
Trying to read up on them, what are some of the markers from his tests that I need to look for? I know she said he was unmutated IGVH.