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R/A PMR to Vasculitis: Positive update 11months into (Rituximab intrusion) treatment.
Quick update on my farther who turns 70 next week and he is in a position to enjoy it, in the best way he knows how to PARTY with the family (Miracle considering were he was 12 months ago) As stated in the title he is now into his 11 month of
Rituximab
treatment.
Quick update on my farther who turns 70 next week and he is in a position to enjoy it, in the best way he knows how to PARTY with the family (Miracle considering were he was 12 months ago) As stated in the title he is now into his 11 month of
Rituximab
treatment.
Sonofjimmy
in
PMRGCAuk
5 years ago
Prednisolone
Rheumy nurse said I could have 5 days supply to tide me over till next
Rituximab
infusion. The last one ( my first ) had reaction, so only had third of the dose. So pain eased a lot after one 20mg dose of steroid pills, but only 4 hours sleep. That’s what it does to me, insomnia!!
Rheumy nurse said I could have 5 days supply to tide me over till next
Rituximab
infusion. The last one ( my first ) had reaction, so only had third of the dose. So pain eased a lot after one 20mg dose of steroid pills, but only 4 hours sleep. That’s what it does to me, insomnia!!
Callabag64
in
NRAS
5 years ago
Another Rituximab post
Hi After some info from others on here that are on Ritux. I've just started my treatment (2 infusions 2 weeks apart) and am now playing the waiting game to see if it helps. I was wondering how long others have had to wait until they started to notice it working. I've been told it could be 8-10 weeks.
Hi After some info from others on here that are on Ritux. I've just started my treatment (2 infusions 2 weeks apart) and am now playing the waiting game to see if it helps. I was wondering how long others have had to wait until they started to notice it working. I've been told it could be 8-10 weeks.
Snippers
in
NRAS
5 years ago
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Newly diagnosed with Chronic Lymphocytic Leukemia or Small Lymphocytic Lymphoma - CLL/SLL or just found us? This post is for you!
Welcome to the CLL Support community on HealthUnlocked, a very active community with 23,000 members. This pinned post is specifically for new members, in particular those that have been recently diagnosed with Chronic Lymphocytic Leukaemia/Small Lymphocytic Lymphoma CLL/SLL. (CLL and SLL are the same
Welcome to the CLL Support community on HealthUnlocked, a very active community with 23,000 members. This pinned post is specifically for new members, in particular those that have been recently diagnosed with Chronic Lymphocytic Leukaemia/Small Lymphocytic Lymphoma CLL/SLL. (CLL and SLL are the same
AussieNeil
Partner
in
CLL Support
5 years ago
Entry Requirements for Lupus Nephritis Clinical Trials Exclude Majority of Patients in UK Registry, Study Says
Rituxan (
rituximab
), an antibody that dampens some immune cells, has been used off-label to treat some with lupus nephritis, but has not shown efficacy across several clinical trials. Finding better treatments for these people requires clinical studies that determine safety and effectiveness.
Rituxan (
rituximab
), an antibody that dampens some immune cells, has been used off-label to treat some with lupus nephritis, but has not shown efficacy across several clinical trials. Finding better treatments for these people requires clinical studies that determine safety and effectiveness.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
MRD-U Baby your one of four in two million!
So had a consultation with the amazing Prof Hillmen who is based in Leeds, but occasionally sees patients in Harley Street. He is great as a second opinion and to talk about odd things or decision points with. He explained that one of the tests that had been done in my bone marrow had a sensitivity
So had a consultation with the amazing Prof Hillmen who is based in Leeds, but occasionally sees patients in Harley Street. He is great as a second opinion and to talk about odd things or decision points with. He explained that one of the tests that had been done in my bone marrow had a sensitivity
AdrianUK
in
CLL Support
5 years ago
Anyone used Belimumab to suppress their APS?
My new rheumatologist mentioned
Rituximab
(which I had a bad experience w/ in 2006), Plaquenil, and Belimumab as possible drugs to suppress my Lupus Anticoagulant. Anyone heard of it or tried it? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3198539/
My new rheumatologist mentioned
Rituximab
(which I had a bad experience w/ in 2006), Plaquenil, and Belimumab as possible drugs to suppress my Lupus Anticoagulant. Anyone heard of it or tried it? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3198539/
Holley
in
Hughes Syndrome APS Forum
5 years ago
3 years since starting chemo ...son to do Iron Man!
I'm constantly dipping into this forum but sometimes it feels hard to read stories of people newly diagnosed with CLL...it makes the trauma that we've been through come flooding back... 3 years ago this week I started FCR and it is this weekend that my son Dan takes part in an Iron Man (Bolton). He has
I'm constantly dipping into this forum but sometimes it feels hard to read stories of people newly diagnosed with CLL...it makes the trauma that we've been through come flooding back... 3 years ago this week I started FCR and it is this weekend that my son Dan takes part in an Iron Man (Bolton). He has
Bethan49
in
CLL Support
5 years ago
RITUXIMAB
Hi my name is Nancy im 21 years of age I’m New to lupus and rheumatoid arthritis I have been on methotrexate however it’s not working good enough so now I’ve been told today I will be on
RITUXIMAB
drip I’m so nervous can anyone who is on this drip contact me and let me know how there experience is going
Hi my name is Nancy im 21 years of age I’m New to lupus and rheumatoid arthritis I have been on methotrexate however it’s not working good enough so now I’ve been told today I will be on
RITUXIMAB
drip I’m so nervous can anyone who is on this drip contact me and let me know how there experience is going
nancyannexo
in
NRAS
5 years ago
The CLL Society Tribune: full of research, news, advice, art and sharing
Heading home from lecturing in Germany. Very proud of this quarter's CLL Society Tribune: https://cllsociety.org/quarter-2-2019-volume-5-issue-2/ this quarter. I have an interview with Dr. Shanafelt, the lead on the ECOG trial that showed the superiority of Ibrutinib over FCR in nearly all frontline
Heading home from lecturing in Germany. Very proud of this quarter's CLL Society Tribune: https://cllsociety.org/quarter-2-2019-volume-5-issue-2/ this quarter. I have an interview with Dr. Shanafelt, the lead on the ECOG trial that showed the superiority of Ibrutinib over FCR in nearly all frontline
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Lupus, Vasculitis and Blocked Blood Vessels
High-dose steroids and cyclophosphamide, and some newer drugs like
rituximab
, are needed to reverse it as soon as possible. A number of newer drugs are also being considered and/or used in patients with this type of vasculitis.
High-dose steroids and cyclophosphamide, and some newer drugs like
rituximab
, are needed to reverse it as soon as possible. A number of newer drugs are also being considered and/or used in patients with this type of vasculitis.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Hi everyone who had FCR chemo
I am to have it for the first time, is it likely to have side effects when I will get back home after the drip ? I live alone, how did You feel ?
I am to have it for the first time, is it likely to have side effects when I will get back home after the drip ? I live alone, how did You feel ?
Ankakoza
in
CLL Support
5 years ago
CLL Society Tribune!
Welcome to the Second 2019 Issue of The CLL Society Tribune. https://cllsociety.org/quarter-2-2019-volume-5-issue-2/?utm_source=CLL+Tribune+Q2+2019&utm_campaign=Quarter+2+2019%3A+Volume+5+Issue+2&utm_medium=email Dear Friends and Supporters of the CLL Society. Welcome to the growing and evolving
Welcome to the Second 2019 Issue of The CLL Society Tribune. https://cllsociety.org/quarter-2-2019-volume-5-issue-2/?utm_source=CLL+Tribune+Q2+2019&utm_campaign=Quarter+2+2019%3A+Volume+5+Issue+2&utm_medium=email Dear Friends and Supporters of the CLL Society. Welcome to the growing and evolving
lankisterguy
Volunteer
in
CLL Support
5 years ago
RITUXIMAB infusion
Hi my name is Nancy im 21 years of age I’m New to lupus and rheumatoid arthritis I have been on methotrexate however it’s not working good enough so now I’ve been told today I will be on
RITUXIMAB
drip I’m so nervous can anyone who is on this drip contact me and let me know how there experience is going
Hi my name is Nancy im 21 years of age I’m New to lupus and rheumatoid arthritis I have been on methotrexate however it’s not working good enough so now I’ve been told today I will be on
RITUXIMAB
drip I’m so nervous can anyone who is on this drip contact me and let me know how there experience is going
nancyannexo
in
LUPUS UK
5 years ago
Cheap Ibrutinib for B Cell Prolymphocitic Leukemia Patient in Pakistan
He received 6 Cycles of Chemotherapy (
Rituximab
+Bendamestine). Last cycle was received in January 2018. Now the disease has relapsed and doctor has advised Ibrutinib. In Pakistan Ibrutinib costs Pakistani Rupees 200,000/- per month course.
He received 6 Cycles of Chemotherapy (
Rituximab
+Bendamestine). Last cycle was received in January 2018. Now the disease has relapsed and doctor has advised Ibrutinib. In Pakistan Ibrutinib costs Pakistani Rupees 200,000/- per month course.
B-PLL_Pakistan
in
Leukaemia Support
5 years ago
Cheap Ibrutinib for B Cell Prolymphocitic Leukemia Patient in Pakistan
He received 6 Cycles of Chemotherapy (
Rituximab
+Bendamestine). Last cycle was received in January 2018. Now the disease has relapsed and doctor has advised Ibrutinib. In Pakistan Ibrutinib costs Pakistani Rupees 200,000/- per month course.
He received 6 Cycles of Chemotherapy (
Rituximab
+Bendamestine). Last cycle was received in January 2018. Now the disease has relapsed and doctor has advised Ibrutinib. In Pakistan Ibrutinib costs Pakistani Rupees 200,000/- per month course.
B-PLL_Pakistan
in
CLL Support
5 years ago
Rituximab 1 month ago
Last year I had my first
rituximab
infusion and never got to have the second half as I got shingles so had to wait and start over. I finally tried again last month and managed to complete both infusions.
Last year I had my first
rituximab
infusion and never got to have the second half as I got shingles so had to wait and start over. I finally tried again last month and managed to complete both infusions.
Laura_dilcock
in
NRAS
5 years ago
Chimeric antigen receptor-modified T cell therapy in chronic lymphocytic leukemia
[i]Journal of Hematology & Oncology, November 2018[/i] CAR-T therapy, a promising adoptive T cell immunotherapy, has become more and more important in the treatment of CLL. In the last 2 years, enormous progress has been witnessed in CAR-T therapy for CLL. However, no comprehensive review had been reported
[i]Journal of Hematology & Oncology, November 2018[/i] CAR-T therapy, a promising adoptive T cell immunotherapy, has become more and more important in the treatment of CLL. In the last 2 years, enormous progress has been witnessed in CAR-T therapy for CLL. However, no comprehensive review had been reported
Jm954
Administrator
in
CLL Support
5 years ago
Mycophenolate Mofetil (MMF) - How is it for you ?
I was diagnosed in 2006 and had previously had good responses from Prednisolone (5 times) and
Rituximab
(twice) but side effects of both stopped my specialist and me from going on them again at my last relapse in 2016. So we started MMF with good results (thank goodness).
I was diagnosed in 2006 and had previously had good responses from Prednisolone (5 times) and
Rituximab
(twice) but side effects of both stopped my specialist and me from going on them again at my last relapse in 2016. So we started MMF with good results (thank goodness).
AnthonyHeard
ITP Support Association
in
ITP Support Association
5 years ago
MS
I took 2 dosage of
Rituximab
as prescribed by doctor. In how many days can I expect a result ?
I took 2 dosage of
Rituximab
as prescribed by doctor. In how many days can I expect a result ?
Rinku_
in
ITP Support Association
5 years ago
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