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”Placebo effect”
my doctor just told me it’s placebo effect having tiredness, pins and needles, dizziness etc before having my injection at the 12 week point. I’ve never gotten more frustrated and angry at a doctor on the phone in my life. He also said b12 levels don’t drop until after 2 years? How do people get their
my doctor just told me it’s placebo effect having tiredness, pins and needles, dizziness etc before having my injection at the 12 week point. I’ve never gotten more frustrated and angry at a doctor on the phone in my life. He also said b12 levels don’t drop until after 2 years? How do people get their
Ellamae2
in
Pernicious Anaemia Society
4 months ago
Current Trial
Current Trial 1.5 mg hydroxocobalamin/B12 SC injection at 3mg/ml concentration, 1.5mg injection methylcobalamin/B12 at 3mg/ml concentration, 1.5mg injection adenosylcobalamin/B12 at 3mg/ml concentration, 300 mg oral Benforotiamine/B1 and 50 mg oral P-5-P/B6 4-5 times a day and 2000 mg Magnesium L-Threonate
Current Trial 1.5 mg hydroxocobalamin/B12 SC injection at 3mg/ml concentration, 1.5mg injection methylcobalamin/B12 at 3mg/ml concentration, 1.5mg injection adenosylcobalamin/B12 at 3mg/ml concentration, 300 mg oral Benforotiamine/B1 and 50 mg oral P-5-P/B6 4-5 times a day and 2000 mg Magnesium L-Threonate
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
New Blood Results - help please
I’ve received my latest blood results and they seem quite random compared to my last set of results. My GP has asked to speak to me and review them but wanted to ask for some advice from the brilliant people here first… For ref, my levo was increased from 125 to 150mcg in February 24. I’ve been feeling
I’ve received my latest blood results and they seem quite random compared to my last set of results. My GP has asked to speak to me and review them but wanted to ask for some advice from the brilliant people here first… For ref, my levo was increased from 125 to 150mcg in February 24. I’ve been feeling
SleepingDisco
in
Thyroid UK
4 months ago
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B12 and anxiety
Just posted but forgot to add this.. Since loading doses still having headaches, the pins and needles have stopped but I feel weird I think it's anxiety my whole body feels like it's vibrating best I can describe. Is this normal for the loading doses to cause anxiety?
Just posted but forgot to add this.. Since loading doses still having headaches, the pins and needles have stopped but I feel weird I think it's anxiety my whole body feels like it's vibrating best I can describe. Is this normal for the loading doses to cause anxiety?
gemmacampbell
in
Pernicious Anaemia Society
4 months ago
1 1/2yrs of treatment and I’m getting worse again.
Need advice. I’m concerned. I was diagnosed with PA (lack IF via blood test) a year and a half ago. I have been on daily Hydroxo injections since. I started at a high concentrated dose (I’m in US) of 5,000mcg day and dosed it down to 1,750mcg day. I maintained this dose for 6 plus months and still
Need advice. I’m concerned. I was diagnosed with PA (lack IF via blood test) a year and a half ago. I have been on daily Hydroxo injections since. I started at a high concentrated dose (I’m in US) of 5,000mcg day and dosed it down to 1,750mcg day. I maintained this dose for 6 plus months and still
lb9999
in
Pernicious Anaemia Society
4 months ago
Frozen embryo transfer guidance !
hi all I am going for transfer soon . I am taking optibac women at the moment took almost more then 3 weeks I wanted to know shall I stop on transfer day or shall I keep taking them. Please guide also anything special I need to do. My first whole cycle failed first transfer failed too.. Now going for
hi all I am going for transfer soon . I am taking optibac women at the moment took almost more then 3 weeks I wanted to know shall I stop on transfer day or shall I keep taking them. Please guide also anything special I need to do. My first whole cycle failed first transfer failed too.. Now going for
Nabsal
in
Fertility Network UK
4 months ago
Recovery from stress/burnout
Hi everyone, I am currently off work since end of April with dizziness/light-headedness, fatigue, brain fog, headaches and palpitations. I had a cardiology appt yesterday and all is well with my heart (the episode started with a trip to A & E with sudden onset pain in left arm, heart rate of 122, shortness
Hi everyone, I am currently off work since end of April with dizziness/light-headedness, fatigue, brain fog, headaches and palpitations. I had a cardiology appt yesterday and all is well with my heart (the episode started with a trip to A & E with sudden onset pain in left arm, heart rate of 122, shortness
DaisyTed
in
Thyroid UK
4 months ago
vitamins to help thyroid
Hello, has anyone got any tips of vitamin complexes to help under active thyroid? I have recently upped my vit d, my B12 and found a complex that says it helps the body convert t4 to t3. I’ve been taking them all about two weeks and I do think that I’m less exhausted than I was. I’m hopeful that it
Hello, has anyone got any tips of vitamin complexes to help under active thyroid? I have recently upped my vit d, my B12 and found a complex that says it helps the body convert t4 to t3. I’ve been taking them all about two weeks and I do think that I’m less exhausted than I was. I’m hopeful that it
Kimmi01
in
Thyroid UK
4 months ago
Latest blood results help please
Serum folate 9.2ug/L [3.1 - 20.5] B12 420 ng/ L [187.0 - 883.0 ] Ana (Elisa) screen 0.3 [0.0-1.0] Serum urate 322 umol [140.0 - 360.0 ] Serum TSH 1.59 [0.35 - 4.94] HbAlc Alc level - IFCC 41 mmol / mol [<48.0] Serum ferritin 278 ug/L [23.0 - 300.0] These are my latest results, done after my blue
Serum folate 9.2ug/L [3.1 - 20.5] B12 420 ng/ L [187.0 - 883.0 ] Ana (Elisa) screen 0.3 [0.0-1.0] Serum urate 322 umol [140.0 - 360.0 ] Serum TSH 1.59 [0.35 - 4.94] HbAlc Alc level - IFCC 41 mmol / mol [<48.0] Serum ferritin 278 ug/L [23.0 - 300.0] These are my latest results, done after my blue
PurpleOliver
in
Thyroid UK
4 months ago
recent tests results
T3 120.7 ( 80.0 - 200.00) ng/dL T4 9.23 (5.10-q4.10) pg/dL TSH 0.215 (low) 0.27-4.20 poi/mL Vit D 20.9 low insufficient 20. -30 I got these tests abroad and the doctor said I should reduce my Levo to 75…. I’m presently on 100 mg ? Appreciate your thoughts ? 🙏🏻
T3 120.7 ( 80.0 - 200.00) ng/dL T4 9.23 (5.10-q4.10) pg/dL TSH 0.215 (low) 0.27-4.20 poi/mL Vit D 20.9 low insufficient 20. -30 I got these tests abroad and the doctor said I should reduce my Levo to 75…. I’m presently on 100 mg ? Appreciate your thoughts ? 🙏🏻
Nambo
in
Thyroid UK
4 months ago
B12 Deficiency, recently diagnosed, seeking advice.
Hi, I was initially diagnosed with carpal tunnel syndrome about 18 months ago, due to numbness, pins and needles and burning sensations in my left arm / hand and left leg. I was given a cortisone injection from which I felt no benefit whatsoever from. I explained the GP that along with the numbness
Hi, I was initially diagnosed with carpal tunnel syndrome about 18 months ago, due to numbness, pins and needles and burning sensations in my left arm / hand and left leg. I was given a cortisone injection from which I felt no benefit whatsoever from. I explained the GP that along with the numbness
Dfthbhjj
in
Pernicious Anaemia Society
4 months ago
Is it harmful to take Vitamin D & not Vitamin K?
I read that taking vitamin D while not supplementing with vitamin K also can be dangerous as it can lead to calcification of the arteries. I am on warfarin and have been told that I really need to up my Vitamin D, but what do I do about vitamin K?
I read that taking vitamin D while not supplementing with vitamin K also can be dangerous as it can lead to calcification of the arteries. I am on warfarin and have been told that I really need to up my Vitamin D, but what do I do about vitamin K?
gazaeee
in
Anticoagulation Support
4 months ago
Thyroid labs
I have usually have hypothyroid. And on levo 75mg and 12 mg of T3. Now i have come back 0.33 TSH ( classed abnormal) I do have symptoms face heart rate, insomnia, exhaustion, skin fkushing. Sun sensitivity. In middle of Range T4 and T3 ( classed as normal) TPO 2,000 And low parathyroid levels
I have usually have hypothyroid. And on levo 75mg and 12 mg of T3. Now i have come back 0.33 TSH ( classed abnormal) I do have symptoms face heart rate, insomnia, exhaustion, skin fkushing. Sun sensitivity. In middle of Range T4 and T3 ( classed as normal) TPO 2,000 And low parathyroid levels
Chaseandcherry
in
Thyroid UK
4 months ago
Struggling with fatigue
Hello everyone, I have started to take quite a bit of vitamins (pregnacare, bio-quinone, folic acid and vit D) in January, but I really struggle at times with fatigue. We had a failed fresh transfer last year, but since we have unexplained infertility, I thought I would try vitamins as well. My mood
Hello everyone, I have started to take quite a bit of vitamins (pregnacare, bio-quinone, folic acid and vit D) in January, but I really struggle at times with fatigue. We had a failed fresh transfer last year, but since we have unexplained infertility, I thought I would try vitamins as well. My mood
Cridog
in
Fertility Network UK
4 months ago
Tip on how to get my body in the best position for my next transfer.
I am giving myself 14 weeks before I plan to contact the clinic for what will be my 4th transfer. I know I need to loose weight, which I will be doing with calorie counting. I already take folic acid and vitamin D daily. However, I was wondering if there are any other tips and advice, supplements or
I am giving myself 14 weeks before I plan to contact the clinic for what will be my 4th transfer. I know I need to loose weight, which I will be doing with calorie counting. I already take folic acid and vitamin D daily. However, I was wondering if there are any other tips and advice, supplements or
JadeH92
in
Fertility Network UK
4 months ago
Bench mark blood tests before switching to NDT
I would welcome any comments or advice on these results and on the process of switching from levothyroxine to NDT. Thank you! Hypothyroidism I have been taking levothyroxin 100 mg for over 30 years since my early 40s. (This is my only medication. Otherwise I keep healthy with yoga, regular exercise
I would welcome any comments or advice on these results and on the process of switching from levothyroxine to NDT. Thank you! Hypothyroidism I have been taking levothyroxin 100 mg for over 30 years since my early 40s. (This is my only medication. Otherwise I keep healthy with yoga, regular exercise
Hipp0cratix
in
Thyroid UK
4 months ago
Help with my son's (41) results please?
I asked my son to check his thyroid (he is chronically tired all the time) as I have hashimoto's (TPO 345 & ultrasound confirm, not medicated as fall within ratio's) medichecks blood test revealed:Ferritin 263 (30-518) CRP 0.31 (0-3) Folate serum 7.7 (7-35) B12 active 80.8 (37.5-188) Vitamin D
I asked my son to check his thyroid (he is chronically tired all the time) as I have hashimoto's (TPO 345 & ultrasound confirm, not medicated as fall within ratio's) medichecks blood test revealed:Ferritin 263 (30-518) CRP 0.31 (0-3) Folate serum 7.7 (7-35) B12 active 80.8 (37.5-188) Vitamin D
Elle137
in
Thyroid UK
4 months ago
tired
I’ve been trying to get my t3 levels up getting a private prescription from a gp. Im now on 15 mcg split into 3 doses plus 50 mcg levothyroxine. I still feel awful and worry that as I was only sub clinical I’ve maybe overdone it I did have clinical symptoms of fatigue, weight gain, low mood raynauds
I’ve been trying to get my t3 levels up getting a private prescription from a gp. Im now on 15 mcg split into 3 doses plus 50 mcg levothyroxine. I still feel awful and worry that as I was only sub clinical I’ve maybe overdone it I did have clinical symptoms of fatigue, weight gain, low mood raynauds
Mag999
in
Thyroid UK
4 months ago
Neurology Doc advice
saw neurology consultant few days ago re the MRI scan I had after a stroke last year. And when I mentioned how my memory banks were badly affected and also said I was getting 2 monthly injections of B12 he told me that B12 would improve my memory losses so hopefully I can get my Doc to agree to more
saw neurology consultant few days ago re the MRI scan I had after a stroke last year. And when I mentioned how my memory banks were badly affected and also said I was getting 2 monthly injections of B12 he told me that B12 would improve my memory losses so hopefully I can get my Doc to agree to more
Beadbuddy
in
Pernicious Anaemia Society
4 months ago
Vitamin D plus K2 advice please.
Hi guys, So I have recently had my bloods done and some very helpful and appreciated guidance from your good selves. I have used the Grassroots Vit D calculator as advised and it has given me the following numbers based on my stats and blood results. Loading dose - 25,000 iu per day x 10 Followed
Hi guys, So I have recently had my bloods done and some very helpful and appreciated guidance from your good selves. I have used the Grassroots Vit D calculator as advised and it has given me the following numbers based on my stats and blood results. Loading dose - 25,000 iu per day x 10 Followed
Totoro25
in
Thyroid UK
4 months ago
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