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TSAT low but Ferritin fine/maybe high
Hi everyone, I do appreciate reading all of your posts and am sorry for how much suffering is connected to RLS. It's very encouraging to read about a number of people finding solutions to their RLS. I am seeing improvement but have some questions that I hope you can help me with: RLS has been a
Hi everyone, I do appreciate reading all of your posts and am sorry for how much suffering is connected to RLS. It's very encouraging to read about a number of people finding solutions to their RLS. I am seeing improvement but have some questions that I hope you can help me with: RLS has been a
b1interest
in
Restless Legs Syndrome
13 days ago
High BP, abdominal pain and sickness and UTI
I initially had bouts of anaemia and tiredness throughout the early 2000s and was diagnosed with Hypothyroidism around 2010. I was told that my excess weight would drop off me after being prescribed Levothyroxine. That didn't happen but I did get side effects and symptoms of an underactive thyroid
I initially had bouts of anaemia and tiredness throughout the early 2000s and was diagnosed with Hypothyroidism around 2010. I was told that my excess weight would drop off me after being prescribed Levothyroxine. That didn't happen but I did get side effects and symptoms of an underactive thyroid
Musicfrequency
in
Thyroid UK
4 months ago
Folic acid
My son has had 4 Injections of his 6 starters. When does he need to begin taking folic acid please?
My son has had 4 Injections of his 6 starters. When does he need to begin taking folic acid please?
3rdNettydoon
in
Pernicious Anaemia Society
4 months ago
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CCUS/MDS and B12 def
Best members , I inject hydroxocobalamin EOD since october 2022. I had amongst all other classical symptoms the most terrible kimd of burning parestisias from my waist to my knees, terrible burning waves, I consider this as symptomd from subacute combined degeneration of spinal cord. Last weeks I am
Best members , I inject hydroxocobalamin EOD since october 2022. I had amongst all other classical symptoms the most terrible kimd of burning parestisias from my waist to my knees, terrible burning waves, I consider this as symptomd from subacute combined degeneration of spinal cord. Last weeks I am
Annaunge
in
Pernicious Anaemia Society
4 months ago
B12 supplements which to take?
Hi all, Looking to start B12 supplements to boost levels but unsure which to take. There are alot of different brands out there Please could you advise me which are the most effective to take? Thank you.
Hi all, Looking to start B12 supplements to boost levels but unsure which to take. There are alot of different brands out there Please could you advise me which are the most effective to take? Thank you.
Shellian
in
Thyroid UK
4 months ago
Hypothesis VII
That the human body has an innate ability to adjust to low levels of available B12. Un-discovered to date. —---------------------------------------------------------------------- If this happened to be true it should be a consideration when self treating. The increase in symptoms that some but
That the human body has an innate ability to adjust to low levels of available B12. Un-discovered to date. —---------------------------------------------------------------------- If this happened to be true it should be a consideration when self treating. The increase in symptoms that some but
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
This resonates with me.
Sometimes when a thought comes from someone else it resonates with me. This one is my thought. Treating B12 deficency could be better expressed as treating the damage caused by having been B12 deficient. Severity of symptoms could be better expressed as the amount of damage caused by B12 deficiency
Sometimes when a thought comes from someone else it resonates with me. This one is my thought. Treating B12 deficency could be better expressed as treating the damage caused by having been B12 deficient. Severity of symptoms could be better expressed as the amount of damage caused by B12 deficiency
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
Monitoring when starting Folic Acid and Ferrous fumerate
Hi guys, my Folate wa only midly low, been prescribed Folic Acid and GP just said I can make an appointment in a couple of months "if I want to" Reading on the NICE website, I see it says the following What monitoring is required after treatment for vitamin B12 or folate deficiency has started? Perform
Hi guys, my Folate wa only midly low, been prescribed Folic Acid and GP just said I can make an appointment in a couple of months "if I want to" Reading on the NICE website, I see it says the following What monitoring is required after treatment for vitamin B12 or folate deficiency has started? Perform
yewotc23
in
Thyroid UK
18 days ago
Why is iron over-range yet TIBC shows a need ro take more please?
I'm wondering if the following could be explained please?In past ferritin has been 48 ug/L & obv considered normal by Dr. On doing private iron profile results like the following have come up,on more than one occasion. Iron 24.19 (6,6,-22) Tibc 115.49 (41-77) Transferrin saturation 20.95% (20-55) Kind
I'm wondering if the following could be explained please?In past ferritin has been 48 ug/L & obv considered normal by Dr. On doing private iron profile results like the following have come up,on more than one occasion. Iron 24.19 (6,6,-22) Tibc 115.49 (41-77) Transferrin saturation 20.95% (20-55) Kind
Jo5454
in
Pernicious Anaemia Society
18 days ago
Vitamin B Complex
Hi All! Please could you advise if this b complex is good? I just bought it. I’d like to ask if the folic acid is sufficient for supplementation? It says to take 2 a day. I don’t have my results on me but my folic acid was low in range. Also I’m taking 1000mcg of b12 in active form (methylconalamin
Hi All! Please could you advise if this b complex is good? I just bought it. I’d like to ask if the folic acid is sufficient for supplementation? It says to take 2 a day. I don’t have my results on me but my folic acid was low in range. Also I’m taking 1000mcg of b12 in active form (methylconalamin
Angie10116
in
Thyroid UK
4 months ago
Vitamin B6 Toxicity: Available Testing of B6 Plasma Level Does NOT Tell You What You Need to Know
[u]
Background
[/u]: Vitamin B6 participates as a coenzyme in over 100 different biochemical reactions. When it does so it is converted to the inactive form, pyridoxine. The body contains a recycling loop that restores the pyridoxine to the active form, P5P. Vitamin B2 is required for this process
[u]
Background
[/u]: Vitamin B6 participates as a coenzyme in over 100 different biochemical reactions. When it does so it is converted to the inactive form, pyridoxine. The body contains a recycling loop that restores the pyridoxine to the active form, P5P. Vitamin B2 is required for this process
park_bear
in
Cure Parkinson's
4 months ago
Active B12 test results
Hi I had been unwell for sometime and wasn't sure what it was. I was very anxious and had terrible tummy trouble & hideous indegestion. Dr order Bloods and they all came back normal except Magnesium and potassium and I think Folate? for which i took a course of meds. The Potassium and Folate seemed
Hi I had been unwell for sometime and wasn't sure what it was. I was very anxious and had terrible tummy trouble & hideous indegestion. Dr order Bloods and they all came back normal except Magnesium and potassium and I think Folate? for which i took a course of meds. The Potassium and Folate seemed
Doeyditdot
in
Pernicious Anaemia Society
20 days ago
help with thyroid
hi, I have just had my thyroid checked. It’s all within the normal but would just like someone to confirm that it is ok? vitamin D is 54nmol thanks
hi, I have just had my thyroid checked. It’s all within the normal but would just like someone to confirm that it is ok? vitamin D is 54nmol thanks
Luckygirl1
in
Thyroid UK
4 months ago
Just need some advice on self injecting.
Just need to come up with a safe plan for what to do about my B12 injections. After several years of symptoms like chronic fatigue, brain fog, dizziness, pins and needles, sore lips, dry skin, breathlessness etc I was finally diagnosed with a B12 deficiency in 2011. My B12 level was 154. By this
Just need to come up with a safe plan for what to do about my B12 injections. After several years of symptoms like chronic fatigue, brain fog, dizziness, pins and needles, sore lips, dry skin, breathlessness etc I was finally diagnosed with a B12 deficiency in 2011. My B12 level was 154. By this
Hayley31
in
Pernicious Anaemia Society
21 days ago
Mid and South Essex (MSE) Intergrated care board
I wrote on October 10th 2023 ( apparently ,as a vague recollection as alot going on ) Had a reply today. My complaint about inconsistency in prescribing b12 . Lack of training with Gps and nurses. Ignoring clear NICE guidelines. Challenging my prescription time and time again. Withholding treatment
I wrote on October 10th 2023 ( apparently ,as a vague recollection as alot going on ) Had a reply today. My complaint about inconsistency in prescribing b12 . Lack of training with Gps and nurses. Ignoring clear NICE guidelines. Challenging my prescription time and time again. Withholding treatment
Nackapan
in
Pernicious Anaemia Society
4 months ago
New diagnosis - MBL or CLL?
Hello again - updated name and avatar. Previously Dogsta. Well, after a strange 3 or 4 weeks I finally was given a diagnosis of CLL by the Haematologist but after checking on here and elsewhere I am now a bit confused. The flow cytometry came back with MBL (CLL phenotype) but just below the threshold
Hello again - updated name and avatar. Previously Dogsta. Well, after a strange 3 or 4 weeks I finally was given a diagnosis of CLL by the Haematologist but after checking on here and elsewhere I am now a bit confused. The flow cytometry came back with MBL (CLL phenotype) but just below the threshold
Geoff_S
in
CLL Support
4 months ago
Frequency of B12 injections
I have just been for my usual injection after 10 weeks and 2 days and it has been refused because it's not 12 weeks since the last one.I have had injections every 10 weeks for 18 years since I was diagnosed with pernicious anaemia. I was told at the start the injections were due every 10 to 12 weeks
I have just been for my usual injection after 10 weeks and 2 days and it has been refused because it's not 12 weeks since the last one.I have had injections every 10 weeks for 18 years since I was diagnosed with pernicious anaemia. I was told at the start the injections were due every 10 to 12 weeks
Suesue246
in
Pernicious Anaemia Society
4 months ago
Latest blood test
Had my latest blood test done at my local hospital yesturday as the nurse at my surgery was unsuccessful in extracting any. Had a text from my surgery last night from what they c all a sessional GP which I think is the same as a locum most of my results are normal or satisfactory apart from vitamin D
Had my latest blood test done at my local hospital yesturday as the nurse at my surgery was unsuccessful in extracting any. Had a text from my surgery last night from what they c all a sessional GP which I think is the same as a locum most of my results are normal or satisfactory apart from vitamin D
Coopergirl52
in
British Heart Foundation
4 months ago
Dr John Campbell - Vitamin D
”Why aren’t we shouting it from the rooftops” ? Now conclusive This is for everything https://youtu.be/x5sc7G4s4CY?si=lVLVjfPasxtRJFHG
”Why aren’t we shouting it from the rooftops” ? Now conclusive This is for everything https://youtu.be/x5sc7G4s4CY?si=lVLVjfPasxtRJFHG
Polaris
in
LUPUS UK
4 months ago
Hypothesis IV
That the body when injected less than every 4 to six hours (I have not yet determined what interval or amount that is appropriate for me) goes through a process that is detrimental to healing as the body waits for the next injection. Over time infrequent injections may result in improvement. AKA
That the body when injected less than every 4 to six hours (I have not yet determined what interval or amount that is appropriate for me) goes through a process that is detrimental to healing as the body waits for the next injection. Over time infrequent injections may result in improvement. AKA
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
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