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B12 Frequency Research
Hi All The frequency of B12 dosing is a regular topic so I thought I would share this in a post if it’s own. Three months ago I revisited "What you need to know about PERNICIOUS ANAEMIA AND B12 DEFICIENCY" by our wonderful Martyn Hooper. The following paragraph on page 143 struck a cord in relation
Hi All The frequency of B12 dosing is a regular topic so I thought I would share this in a post if it’s own. Three months ago I revisited "What you need to know about PERNICIOUS ANAEMIA AND B12 DEFICIENCY" by our wonderful Martyn Hooper. The following paragraph on page 143 struck a cord in relation
Wwwdot
in
Pernicious Anaemia Society
2 months ago
Brothers operation
My brother is in hospital waiting for an operation on a blocked bile duct! I just had a thought about the supplements he is taking.. Should he stop all supplements He is taking B complex Vitamin D ( no K ) Probiotics 2x day Liquid multi ( Metabolics) Spray B12 ( his was very low) My brother
My brother is in hospital waiting for an operation on a blocked bile duct! I just had a thought about the supplements he is taking.. Should he stop all supplements He is taking B complex Vitamin D ( no K ) Probiotics 2x day Liquid multi ( Metabolics) Spray B12 ( his was very low) My brother
Bean101
in
Thyroid UK
2 months ago
Do B Complex vitamins upset the stomach? Advice please
Morning all. Can I please ask for ways to take B complex that won't upset stomach. I bought Igennus Super B complex and took 1 tablet about 30 mins after eating dinner. The next day I had an upset stomach and felt more exhausted that usual the way you can get with a stomach upset. I haven't taken any
Morning all. Can I please ask for ways to take B complex that won't upset stomach. I bought Igennus Super B complex and took 1 tablet about 30 mins after eating dinner. The next day I had an upset stomach and felt more exhausted that usual the way you can get with a stomach upset. I haven't taken any
Irish_Gal
in
Thyroid UK
2 months ago
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Understanding my results
Hi, Would anyone be able to help me make sense of the following blood results? I went to the doctor's as I've been experiencing constant headaches with dizziness. I don't have the headline symptoms of hyperthyroidism. I had the following results in January Serum free T4 level 21.7 pmol/L [11.0 -
Hi, Would anyone be able to help me make sense of the following blood results? I went to the doctor's as I've been experiencing constant headaches with dizziness. I don't have the headline symptoms of hyperthyroidism. I had the following results in January Serum free T4 level 21.7 pmol/L [11.0 -
TechCat
in
Thyroid UK
2 months ago
bizarre turnaround
hello! I posted here about a month ago complaining of lots of issues; dry skin, falling out hair etc, irritable, over emotional. My TSH was 0.8 and lower range T3, ok range T4. Since then I’ve lost 5lbs (diet and exercises) started taking vitamin b complex, vitamin d and a general health vitamin
hello! I posted here about a month ago complaining of lots of issues; dry skin, falling out hair etc, irritable, over emotional. My TSH was 0.8 and lower range T3, ok range T4. Since then I’ve lost 5lbs (diet and exercises) started taking vitamin b complex, vitamin d and a general health vitamin
Littlerhodes
in
Thyroid UK
2 months ago
B12 available from Etsy.
Etsy are selling B12 vials. https://www.etsy.com/uk/listing/1559248520/10-2ml-b12-hydroxocobalamin-5000mcg?click_key=351ed22c28790a7d762da131cfd3542e741f0a1e%3A1559248520&click_sum=a74d7058&external=1&rec_type=cs&ref=pla_similar_listing_top-5&sts=1 Is this legal?
Etsy are selling B12 vials. https://www.etsy.com/uk/listing/1559248520/10-2ml-b12-hydroxocobalamin-5000mcg?click_key=351ed22c28790a7d762da131cfd3542e741f0a1e%3A1559248520&click_sum=a74d7058&external=1&rec_type=cs&ref=pla_similar_listing_top-5&sts=1 Is this legal?
charks
in
Pernicious Anaemia Society
2 months ago
results and getting it right
did do everything properly when doing the test had TT dew to goitre and other nodules and being overactive once removed and tested a very small amount of cancer found I take 75mg one day and 100 mg another saw NP today regarding symptoms but just said it take time and won’t do anything cause results
did do everything properly when doing the test had TT dew to goitre and other nodules and being overactive once removed and tested a very small amount of cancer found I take 75mg one day and 100 mg another saw NP today regarding symptoms but just said it take time and won’t do anything cause results
Bobbin5
in
Thyroid UK
2 months ago
Are my results looking ok
had TT oct had recent blood test done with medicheck im aching, tired headaches ringing in my ears restless legs my ferritin was on the lower side of normal 32 so seen hp today but won’t prescribe anything cause results are in normal range so I asked for a iron tablet I can buy over the counter which
had TT oct had recent blood test done with medicheck im aching, tired headaches ringing in my ears restless legs my ferritin was on the lower side of normal 32 so seen hp today but won’t prescribe anything cause results are in normal range so I asked for a iron tablet I can buy over the counter which
Bobbin5
in
Thyroid UK
2 months ago
Confusing first results on T4/T3
Hi all, I'm reposting this as I didn't get any replies 😊 Please see my first results 6 weeks after introducing T3. I'm on 125mcg of levo and 10mcg of lio. I am very confused because I was certain that my current symptoms were due to being undermedicated! And how can my T4 be top of range again despite
Hi all, I'm reposting this as I didn't get any replies 😊 Please see my first results 6 weeks after introducing T3. I'm on 125mcg of levo and 10mcg of lio. I am very confused because I was certain that my current symptoms were due to being undermedicated! And how can my T4 be top of range again despite
Cassav
in
Thyroid UK
2 months ago
Reaction to B12 injection?
I have B12 jabs every 4 months, usually PA neuropathy flares up when it's due but this time it didn't. I felt ill about an hour after the jab, severely dizzy, bit of a headache. I'm not sure if this is a sign I've had more B12 than I need? I'm a bit scared to run it by the GP as one time they stopped
I have B12 jabs every 4 months, usually PA neuropathy flares up when it's due but this time it didn't. I felt ill about an hour after the jab, severely dizzy, bit of a headache. I'm not sure if this is a sign I've had more B12 than I need? I'm a bit scared to run it by the GP as one time they stopped
Ix49
in
Pernicious Anaemia Society
2 months ago
Guide for medical practitioners and providers regarding B12 (NICE) Guidelines.
1, https://www.nice.org.uk/guidance/ng239/documents/draft-guideline 2. https://www.bmj.com/content/383/bmj-2022-071725 MaryF
1, https://www.nice.org.uk/guidance/ng239/documents/draft-guideline 2. https://www.bmj.com/content/383/bmj-2022-071725 MaryF
MaryF
Administrator
in
Hughes Syndrome APS Forum
2 months ago
Notes
This is my current system of keeping track of injections. When I first started and was experiencing severe symptoms including brain fog I took a piece of paper and wrote dates on a single page. I would then inject and take the syringe and roll it in the paper that way I would know if I had injected.
This is my current system of keeping track of injections. When I first started and was experiencing severe symptoms including brain fog I took a piece of paper and wrote dates on a single page. I would then inject and take the syringe and roll it in the paper that way I would know if I had injected.
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
Reset - depleted
I talk about doing well after daily injections for 3 years. This is true. however I went to Italy, walked 9 hours a day, plus wine daily. The two things that can surely deplete B12 ... AND had forgot my B12!!! I thought 12 days without it wouldn't matter. Wrong! All my symptoms returned.
I talk about doing well after daily injections for 3 years. This is true. however I went to Italy, walked 9 hours a day, plus wine daily. The two things that can surely deplete B12 ... AND had forgot my B12!!! I thought 12 days without it wouldn't matter. Wrong! All my symptoms returned.
B12life
in
Pernicious Anaemia Society
2 months ago
Low B12
My private blood test shows low B12 at 48.1 pmol/l. Is this something my GP should follow up with? I take daily B12 supplements but obviously this isn’t sufficient. Many thanks.
My private blood test shows low B12 at 48.1 pmol/l. Is this something my GP should follow up with? I take daily B12 supplements but obviously this isn’t sufficient. Many thanks.
Maldeerum
in
Thyroid UK
2 months ago
Blood results
Hi all. Just had my blood test results back, which I’m told are all normal. Just thought I’d ask if anyone can confirm they are in fact normal, as I certainly don’t feel normal 😂 I’ll set it out June 23 v. March 24 for comparison. June 23 Serum folate 14.7 ug/L Serum ferritin 16 ug/L Serum B12
Hi all. Just had my blood test results back, which I’m told are all normal. Just thought I’d ask if anyone can confirm they are in fact normal, as I certainly don’t feel normal 😂 I’ll set it out June 23 v. March 24 for comparison. June 23 Serum folate 14.7 ug/L Serum ferritin 16 ug/L Serum B12
MLJ2024
in
Pernicious Anaemia Society
2 months ago
Increase T4 or stick and natural antidepressants?
Good morning lovely people. Wonder if I could have some advise please? Latest blood results from MMH (eventually!) 4/3/24. FT3 6 (3.1-6.8) FT4 13.9 (12-22) TSH 0.23 (0.27-4.2) Taking 20mcg Thybon Henning and 75mcg 3 days and 50mcg 4 days of Levo Medichecks 15/1/24 FT3 5.1 (3.1-6.8) FT4 12.2 (
Good morning lovely people. Wonder if I could have some advise please? Latest blood results from MMH (eventually!) 4/3/24. FT3 6 (3.1-6.8) FT4 13.9 (12-22) TSH 0.23 (0.27-4.2) Taking 20mcg Thybon Henning and 75mcg 3 days and 50mcg 4 days of Levo Medichecks 15/1/24 FT3 5.1 (3.1-6.8) FT4 12.2 (
Auders
in
Thyroid UK
2 months ago
How often to increase t3
I started on 6.25 mcg of t3 and increased by 6.25 every 5-7 days. I've been on 31.25 mcg for 2 weeks now and feel exactly the same= dreadful. Shall I keep increasing or wait? I'm also taking 50 mcg of t4. I'm monitoring and taking iron, b12 and vitamin d. I was also taking selenium but stopped now.
I started on 6.25 mcg of t3 and increased by 6.25 every 5-7 days. I've been on 31.25 mcg for 2 weeks now and feel exactly the same= dreadful. Shall I keep increasing or wait? I'm also taking 50 mcg of t4. I'm monitoring and taking iron, b12 and vitamin d. I was also taking selenium but stopped now.
PinkSkittles
in
Thyroid UK
2 months ago
Periodic need for more B12
I'd appreciate knowing your experiences about periodically recognising the need to up your B12 injections? My journey has lasted some years and after the initial disasters with GPs dismissing me and becoming very ill, I started to SI. Eventually I found that fortnightly jabs worked brilliantly for me
I'd appreciate knowing your experiences about periodically recognising the need to up your B12 injections? My journey has lasted some years and after the initial disasters with GPs dismissing me and becoming very ill, I started to SI. Eventually I found that fortnightly jabs worked brilliantly for me
Baggy8
in
Pernicious Anaemia Society
2 months ago
NICE 2024 B12
Still trying to decipher the new guidelines. Does anyone know or had a : Cobasorb test? I've never heard of it . Name suggests it tests absorption of Cobalamin
Still trying to decipher the new guidelines. Does anyone know or had a : Cobasorb test? I've never heard of it . Name suggests it tests absorption of Cobalamin
Nackapan
in
Pernicious Anaemia Society
2 months ago
Adding more T3? or keep as is?
Hello All, I am looking to see any suggestions regarding adding more T3 to my current regimen. I am on 175 Tirosint T4 and 10mcg T3; I have Hashimoto’s and have been working on my iron by adding iron bisglycinate, which has helped as I am not dizzy, lightheaded, and have more focus. I also noticed
Hello All, I am looking to see any suggestions regarding adding more T3 to my current regimen. I am on 175 Tirosint T4 and 10mcg T3; I have Hashimoto’s and have been working on my iron by adding iron bisglycinate, which has helped as I am not dizzy, lightheaded, and have more focus. I also noticed
Kava3
in
Thyroid UK
2 months ago
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