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Revesz syndrome
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Lupus, Sjogrens or something else?
Last December my blood test showed positive ANA titre 1:1000 with dsDNA and histone antibodies which are typical for Lupus. I went to see rheumatologist who said that my symptoms (sinus problems for years etc.) would match to Sjogrens but he still wanted to double check results few months later. Last
Last December my blood test showed positive ANA titre 1:1000 with dsDNA and histone antibodies which are typical for Lupus. I went to see rheumatologist who said that my symptoms (sinus problems for years etc.) would match to Sjogrens but he still wanted to double check results few months later. Last
Nasty_Tony
in
LUPUS UK
3 years ago
Steroids with general anaesthetic
Do I need to double the dose of my steroids (currently 11.5) on the day of hysteroscopy under general anaesthetic and also on the day afterwards? Preop assessment didn't mention it have just been reading around and feel really nervous now. Especially as I've been taking steroids for 21 years.
Do I need to double the dose of my steroids (currently 11.5) on the day of hysteroscopy under general anaesthetic and also on the day afterwards? Preop assessment didn't mention it have just been reading around and feel really nervous now. Especially as I've been taking steroids for 21 years.
maria40
in
PMRGCAuk
3 years ago
Starting Ropinirole as a first med for RLS?
I have had more severe RLS since last March, which is possibly a Long-Covid symptom. So far I have had my iron/ferritin tested. My ferritin was on 25 initially but has gone up to 45 after taking oral iron supplement which I still continue to take. My RSL has not improved much yet though. It is still
I have had more severe RLS since last March, which is possibly a Long-Covid symptom. So far I have had my iron/ferritin tested. My ferritin was on 25 initially but has gone up to 45 after taking oral iron supplement which I still continue to take. My RSL has not improved much yet though. It is still
KassandraTroy
in
Restless Legs Syndrome
3 years ago
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NAD IV ? Anyone tried
Is it a cure ? Is there any way to get IV benefit by other means. ? What is the best brand for intra nasal NAD ? R suppositories better ? NR or NMN. What's better.? What boosters (ex Resveratrol) I just want my dad to have DNA repair and have more energy! Thankyou for any guidance . Kind regards
Is it a cure ? Is there any way to get IV benefit by other means. ? What is the best brand for intra nasal NAD ? R suppositories better ? NR or NMN. What's better.? What boosters (ex Resveratrol) I just want my dad to have DNA repair and have more energy! Thankyou for any guidance . Kind regards
Vegegardner
in
Cure Parkinson's
3 years ago
Small lumps on neck
Hi, I noticed 2 small pea sized lumps on the side/back of my neck a few weeks ago. They are soft/rubbery, moveable and not painful. I have Sjogrens, so I am very used to my glands under my jaw & front of my neck swelling up & getting sore when I'm tired or in a flare, but this is different as they don't
Hi, I noticed 2 small pea sized lumps on the side/back of my neck a few weeks ago. They are soft/rubbery, moveable and not painful. I have Sjogrens, so I am very used to my glands under my jaw & front of my neck swelling up & getting sore when I'm tired or in a flare, but this is different as they don't
Tempname
in
LUPUS UK
3 years ago
Anyone else with EDS have severe asthma?
I’m just wondering if anyone else is in the same situation as me and has EDS and severe, uncontrolled asthma? Now I know that the two aren’t linked but I’m just curious. I have many other health issues that aren’t related to EDS and are very rare so I rarely find anyone to talk to that has similar
I’m just wondering if anyone else is in the same situation as me and has EDS and severe, uncontrolled asthma? Now I know that the two aren’t linked but I’m just curious. I have many other health issues that aren’t related to EDS and are very rare so I rarely find anyone to talk to that has similar
WheezyZebra
in
Ehlers-Danlos Support UK
3 years ago
RLS and Magnesium
Has anyone experienced this? I started taking Magnesium for my RLS but each time I take it I get terrible cramps in my legs and toes several times a night. Yet Magnesium is used to get rid of cramp. I am not subject to cramp normally. Perhaps it’s the same mechanism as Homeopathic remedies whereby a
Has anyone experienced this? I started taking Magnesium for my RLS but each time I take it I get terrible cramps in my legs and toes several times a night. Yet Magnesium is used to get rid of cramp. I am not subject to cramp normally. Perhaps it’s the same mechanism as Homeopathic remedies whereby a
Bruxelles
in
Restless Legs Syndrome
3 years ago
Any thoughts here?
My husband was put on GABApentin, stilnox and madopar. He only used madopar once. He’s afraid to continue it. Although he did notice last night his legs were more restless without it . This process is so frustrating as he’s been withdrawing from opiates since one month. Any feedback from anyone is helpful
My husband was put on GABApentin, stilnox and madopar. He only used madopar once. He’s afraid to continue it. Although he did notice last night his legs were more restless without it . This process is so frustrating as he’s been withdrawing from opiates since one month. Any feedback from anyone is helpful
RCHD
in
Restless Legs Syndrome
3 years ago
Codeine
I have been taking one 15mg codeine phosphate before bed and I have slept all night with no restless legs.
I have been taking one 15mg codeine phosphate before bed and I have slept all night with no restless legs.
Bridall
in
Restless Legs Syndrome
3 years ago
Postnatal thyroiditis ??? Test results
Hi im looking for some help. I have been getting thyroid symptoms for many years on and off never have I been medicated. I have had 4 children in 5 years and become unwel after giving birth with my previous children but I had my little boy 10 weeks ago and 6 weeks ago I became ill with all thyroid
Hi im looking for some help. I have been getting thyroid symptoms for many years on and off never have I been medicated. I have had 4 children in 5 years and become unwel after giving birth with my previous children but I had my little boy 10 weeks ago and 6 weeks ago I became ill with all thyroid
Youngandbroken
in
Thyroid UK
3 years ago
Get woken up by Restless Legs
So whilst I tend to have fidgety legs during the day, I'm not bothered by them. However, night times are a different matter. I have no problems falling asleep but approx. 90 mins into my sleep I'm awoken by me restless legs and am often then awake for 2-4 hours before falling asleep again. I was originally
So whilst I tend to have fidgety legs during the day, I'm not bothered by them. However, night times are a different matter. I have no problems falling asleep but approx. 90 mins into my sleep I'm awoken by me restless legs and am often then awake for 2-4 hours before falling asleep again. I was originally
Mchmav
in
Restless Legs Syndrome
3 years ago
More advice please prior to GP consultation
Hi experts. I upped my pred dose to 20 mg 2 weeks ago believing I had PMR flare after dropping to 15 for 2 weeks. But with your knowledge and experience you suggested Piriformis syndrome - am still struggling with the PS pains but am fortunately having some sports therapy massage and stretching and exercising
Hi experts. I upped my pred dose to 20 mg 2 weeks ago believing I had PMR flare after dropping to 15 for 2 weeks. But with your knowledge and experience you suggested Piriformis syndrome - am still struggling with the PS pains but am fortunately having some sports therapy massage and stretching and exercising
Pocketdog
in
PMRGCAuk
3 years ago
Nebivolol timing and low blood pressure
I take 2.5mg Nebivolol and 200mg Flecainide daily, taking the Nebivolol in the mornings. I have low normal BP but recently have had readings in the 80/50 range which make me feel pretty bad. I drink water and keep my salt level up but every day down it goes about 2 hours after I take the Nebivolol
I take 2.5mg Nebivolol and 200mg Flecainide daily, taking the Nebivolol in the mornings. I have low normal BP but recently have had readings in the 80/50 range which make me feel pretty bad. I drink water and keep my salt level up but every day down it goes about 2 hours after I take the Nebivolol
Finvola
in
AF Association
3 years ago
Dry mouth
Hi all , please can you help me , I have APS (diagnosed 3 years ago ) now I have a very dry mouth , I am pretty sure it's going to be Sjorgrens as I am very achey and tired too , waiting for a referral! I do know that these rotten Immune diseases seem to multiply with time , 7 years I'm told and that
Hi all , please can you help me , I have APS (diagnosed 3 years ago ) now I have a very dry mouth , I am pretty sure it's going to be Sjorgrens as I am very achey and tired too , waiting for a referral! I do know that these rotten Immune diseases seem to multiply with time , 7 years I'm told and that
Sevenstar
in
The Australian Sjögren's Syndrome Association
3 years ago
Please advise!
Things don't seem to be getting better at night. While I have foot tightening and spasm like sensations during the day, I get an irresistible urge to stretch my legs at night so I can never get comfortable in bed. Sometimes I have to lie on top of the blankets to get any relief. I had a chat with my
Things don't seem to be getting better at night. While I have foot tightening and spasm like sensations during the day, I get an irresistible urge to stretch my legs at night so I can never get comfortable in bed. Sometimes I have to lie on top of the blankets to get any relief. I had a chat with my
Boomerang83
in
Restless Legs Syndrome
3 years ago
Emerging concepts on bradykinesia in non‐parkinsonian conditions
Bradykinesia is one of the cardinal motor symptoms of Parkinson’s disease. However, clinical and experimental studies indicate that bradykinesia may also be observed in various neurological diseases not primarily characterized by parkinsonism. These conditions include hyperkinetic movement disorders,
Bradykinesia is one of the cardinal motor symptoms of Parkinson’s disease. However, clinical and experimental studies indicate that bradykinesia may also be observed in various neurological diseases not primarily characterized by parkinsonism. These conditions include hyperkinetic movement disorders,
Farooqji
in
Cure Parkinson's
3 years ago
Total shock re operation
Hi everyone, I’ve just been asked to attend a pre op appt for 26th April . My last op was cancelled just as lockdown started. The op is for muscle reattachment of my hip, I’ve had nothing but trouble with a metal on metal which was first done 1999, it was fine for 6 years and from then on I’ve had
Hi everyone, I’ve just been asked to attend a pre op appt for 26th April . My last op was cancelled just as lockdown started. The op is for muscle reattachment of my hip, I’ve had nothing but trouble with a metal on metal which was first done 1999, it was fine for 6 years and from then on I’ve had
2013mayo
in
PMRGCAuk
3 years ago
Possible Polychondritis and RA
Hello, I’m having investigations into what is going on with me, they think it’s possibly RA and want to start me on hydroxychloroquine. My bloods only showed a positive for ANA. Other than aching swollen joints, lumps and tingling, my other biggest symptom is the cartilage in my nose is slowly deteriorating
Hello, I’m having investigations into what is going on with me, they think it’s possibly RA and want to start me on hydroxychloroquine. My bloods only showed a positive for ANA. Other than aching swollen joints, lumps and tingling, my other biggest symptom is the cartilage in my nose is slowly deteriorating
Antonia39
in
NRAS
3 years ago
General anaesthetic recovery period
I have a problem in that I have to have a hysteroscopy under general anaesthetic the day after tomorrow and it had been arranged that my daughter would stay with me for 24 hours as advised by hospital. She now finds that she can't do this - for reasons I don't fully understand - and that she would stay
I have a problem in that I have to have a hysteroscopy under general anaesthetic the day after tomorrow and it had been arranged that my daughter would stay with me for 24 hours as advised by hospital. She now finds that she can't do this - for reasons I don't fully understand - and that she would stay
maria40
in
PMRGCAuk
3 years ago
Cyst Aspiration - has anyone had?
I’ve 12 days into down regulation, I had my baseline yesterday and I have a large cyst on my left ovary :( - I was so ready to start stims yesterday but it is what it is and I want the best outcome this cycle as it’s my 3rd! I have another scan on Monday and I am praying it has gone itself but if it
I’ve 12 days into down regulation, I had my baseline yesterday and I have a large cyst on my left ovary :( - I was so ready to start stims yesterday but it is what it is and I want the best outcome this cycle as it’s my 3rd! I have another scan on Monday and I am praying it has gone itself but if it
Amy1122
in
Fertility Network UK
3 years ago
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