Search
Search
About
Log in
Join
Experiences with
Revesz syndrome
Posts
Communities
3,326 public posts
Filter results
Horizant and Burning Mouth Syndrome
Just when you think you’re getting a break…….so the Horizant is helping my RLS and I’m sleeping ok again finally but lately I noticed some BMS, Burning Mouth Syndrome. I had this before for almost a year due to an allergy to dental metals in my mouth. Three dentists told me it wasn’t possible but when
Just when you think you’re getting a break…….so the Horizant is helping my RLS and I’m sleeping ok again finally but lately I noticed some BMS, Burning Mouth Syndrome. I had this before for almost a year due to an allergy to dental metals in my mouth. Three dentists told me it wasn’t possible but when
Redeyed
in
Restless Legs Syndrome
3 years ago
New Rheumatologist
Saw my new rheumatologist last Thursday, and so far I am impressed. Lupus unit were dismissive as my bloods are normal but she says I could be sero negative. This was at my local hospital, which on the whole does not have a very good reputation, but I have found since covid that they have improved
Saw my new rheumatologist last Thursday, and so far I am impressed. Lupus unit were dismissive as my bloods are normal but she says I could be sero negative. This was at my local hospital, which on the whole does not have a very good reputation, but I have found since covid that they have improved
donnabrain
in
Hughes Syndrome APS Forum
3 years ago
Covid-19 vaccine and getting pregnant
I booked my first dose of Covid-19 vaccine on Thursday. Even if I stopped the Clomid treatment this month I ovulated, which was a nice surprise. We are having timed sex intercourse. Is it safe to have the vaccine on Thursday? I will be on 5 days post ovulation. I will start ivf treatment in July, is
I booked my first dose of Covid-19 vaccine on Thursday. Even if I stopped the Clomid treatment this month I ovulated, which was a nice surprise. We are having timed sex intercourse. Is it safe to have the vaccine on Thursday? I will be on 5 days post ovulation. I will start ivf treatment in July, is
FrancyItaly
in
Fertility Network UK
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Hyper mobility tips
Hi everyone I hope you’re all well I suffer from fibro and hyper mobility and all my joints are hugely affected. I am really struggling with pain management especially with my new job. My employer is not supportive or understanding and I am not sure how long I can bare the pain and lack of support
Hi everyone I hope you’re all well I suffer from fibro and hyper mobility and all my joints are hugely affected. I am really struggling with pain management especially with my new job. My employer is not supportive or understanding and I am not sure how long I can bare the pain and lack of support
egm123
in
Ehlers-Danlos Support UK
3 years ago
Lactulose... Ugh! Please help
So I started taking Lactulose yesterday again. Took it a long time ago with no problems I can remember. 1Tbs 2x a day. Now... 2Tbs 3x a day. I took the first 2Tbs and thought I would die from cramps and gas and then the runs. Drank water like a fish and still awoke dehydrated. Today I am doing 1Tbs 3x
So I started taking Lactulose yesterday again. Took it a long time ago with no problems I can remember. 1Tbs 2x a day. Now... 2Tbs 3x a day. I took the first 2Tbs and thought I would die from cramps and gas and then the runs. Drank water like a fish and still awoke dehydrated. Today I am doing 1Tbs 3x
FLgirl0722
in
British Liver Trust
3 years ago
Surely this can't be right
Hello I am currently taking clonazepam half a tablet every other night as my GP was concerned about the addictive nature of the drug. It does help a little but still up every night 2/3 times but managing to get about 5/6 hrs which is a lot better than I've had at other times. I had a private neurologist
Hello I am currently taking clonazepam half a tablet every other night as my GP was concerned about the addictive nature of the drug. It does help a little but still up every night 2/3 times but managing to get about 5/6 hrs which is a lot better than I've had at other times. I had a private neurologist
Operababe
in
Restless Legs Syndrome
3 years ago
Negative HPT after 40.88 Beta hcg is it negative ?
Hi somebody please suggest me i had beta hcg 40.88 2 days before and test need to be repeated after 3 days as per ivf lab.Today i did UPT but it was negative can i consider it a negative pregnancy?
Hi somebody please suggest me i had beta hcg 40.88 2 days before and test need to be repeated after 3 days as per ivf lab.Today i did UPT but it was negative can i consider it a negative pregnancy?
Arya1234
in
Fertility Network UK
3 years ago
Using Kratom to come off pramipexole
I’ve been taking Pramipexole now for 13 years, two 0.088 a day. I’ve just ordered red vein kratom, which I realise can be addictive, but was wondering if anyone has used this to come off Pramipexole successfully? My last attempt was cold turkey........hellish and I know that the tramadol I was prescribed
I’ve been taking Pramipexole now for 13 years, two 0.088 a day. I’ve just ordered red vein kratom, which I realise can be addictive, but was wondering if anyone has used this to come off Pramipexole successfully? My last attempt was cold turkey........hellish and I know that the tramadol I was prescribed
Deeperside
in
Restless Legs Syndrome
3 years ago
Advice - NK cells
Hi fellow warriors, I hope you’re all okay. I haven’t logged in for a number of months as I needed a break from all things IVF after our two failed cycles last year. I hope there have been lots more BFPs and happy news for you all. We are currently planning our next cycle and potentially my last cycle
Hi fellow warriors, I hope you’re all okay. I haven’t logged in for a number of months as I needed a break from all things IVF after our two failed cycles last year. I hope there have been lots more BFPs and happy news for you all. We are currently planning our next cycle and potentially my last cycle
Kat_15
in
Fertility Network UK
3 years ago
**sensitive post** screening results
Hi everyone I had my 12 week scan yesterday and I was very anxious about my screening results and unfortunately I got put into the high risk category for Down syndrome with a 1 in 57 chance, where the national average for my age is 1 in 245. Everything looked normal on the ultrasound, heartbeat was
Hi everyone I had my 12 week scan yesterday and I was very anxious about my screening results and unfortunately I got put into the high risk category for Down syndrome with a 1 in 57 chance, where the national average for my age is 1 in 245. Everything looked normal on the ultrasound, heartbeat was
Sukibubs
in
Fertility Network UK
3 years ago
Carrie Ann Inaba "Sjogren's syndrome, lupus, fibromyalgia, rheumatoid arthritis, "and I have the markers for antiphospholipid syndrome' "
https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
Piscesdreamer
in
LUPUS UK
3 years ago
Carrie Ann Inaba "Sjogren's syndrome, lupus, fibromyalgia, rheumatoid arthritis, "and I have the markers for antiphospholipid syndrome"
(You may need to sign up for a free patient account, I find their emails to be VERY informative) https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
(You may need to sign up for a free patient account, I find their emails to be VERY informative) https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
Piscesdreamer
in
Hughes Syndrome APS Forum
3 years ago
Anyone else have painful knee joints after prolonged ICU stay?
I spent a month in ICU and was intubated most of the time through a tracheostomy (due to double pneumonia caused by Legionnaire's Disease). I also spend a considerable amount of that time in an induced coma and had to relearn walking, hand movements, etc. Two months later I am still suffering from very
I spent a month in ICU and was intubated most of the time through a tracheostomy (due to double pneumonia caused by Legionnaire's Disease). I also spend a considerable amount of that time in an induced coma and had to relearn walking, hand movements, etc. Two months later I am still suffering from very
holdtheprozac
in
ICUsteps
3 years ago
Hypoxia?
I posted a question on a video by Dr Neale Barnard regarding RLS. A kind person posted this in response: Finnish doctor found out that the root cause of restless legs is hypoxia. So, enhancing the blood flow by lifestyle that is beneficial to glycocalyx and eNOS, is a cure 😊 Dr Dean Ornish, Campbell
I posted a question on a video by Dr Neale Barnard regarding RLS. A kind person posted this in response: Finnish doctor found out that the root cause of restless legs is hypoxia. So, enhancing the blood flow by lifestyle that is beneficial to glycocalyx and eNOS, is a cure 😊 Dr Dean Ornish, Campbell
kicker2
in
Restless Legs Syndrome
3 years ago
Can I start taking the pill before my period?
So I take a combined pill, 21 days on 7 off, it’s called Levest. I’ve never taken contraception pills before. Can I start it before I start my period? I read that you didn’t have to start it during your period you just have to give it a bit longer to take effect, is this true?
So I take a combined pill, 21 days on 7 off, it’s called Levest. I’ve never taken contraception pills before. Can I start it before I start my period? I read that you didn’t have to start it during your period you just have to give it a bit longer to take effect, is this true?
Turquoise27
in
BASHH
3 years ago
MMC after heartbeat
Hi all, I found out last week my baby stopped growing at 9 weeks 1 day. Up until this point it was spot on for growth, and heart was beating perfectly. I had bleeding in the pregnancy but that was fine and due to it being an FET and not connected to the pregnancy. My question is, when a pregnancy is
Hi all, I found out last week my baby stopped growing at 9 weeks 1 day. Up until this point it was spot on for growth, and heart was beating perfectly. I had bleeding in the pregnancy but that was fine and due to it being an FET and not connected to the pregnancy. My question is, when a pregnancy is
strawberriesandcream
in
Fertility Network UK
3 years ago
Do I really need my fallopian tubes checked?
I was diagnosed with PCOS last year and was told by a gynecologist that I'd need to have a fallopian tube test (HyCoSy) prior to starting ovulation medication (Clomid I believe). I've been waiting 4 months for the test and this month is yet another cycle they're unable to fit me in for! They seem to
I was diagnosed with PCOS last year and was told by a gynecologist that I'd need to have a fallopian tube test (HyCoSy) prior to starting ovulation medication (Clomid I believe). I've been waiting 4 months for the test and this month is yet another cycle they're unable to fit me in for! They seem to
CoralCats
in
Fertility Network UK
3 years ago
Too much fluid around baby??
Hi I am carrying twin boys DCDA, and I went for my first growth scan at 24wks the sonographer told me one of my babies has a little extra fluid I was sent for an early GTT test came back normal.. Haven't heard anything else since. Was wondering if anyone has had the same experience? If so what was the
Hi I am carrying twin boys DCDA, and I went for my first growth scan at 24wks the sonographer told me one of my babies has a little extra fluid I was sent for an early GTT test came back normal.. Haven't heard anything else since. Was wondering if anyone has had the same experience? If so what was the
Sev36
in
Pregnancy and Parenting Support
3 years ago
Ropinirole and Gabapentin
Hi All, I'm 53 and based in the UK. I've had steadily worsening RLS and been taking 2mg of Ropinirole for around 8 years now. Over the last year my symptoms have got a lot worse and in the last couple of months I've developed spasms and jerking, mainly in my right shoulder (I've nearly punched myself
Hi All, I'm 53 and based in the UK. I've had steadily worsening RLS and been taking 2mg of Ropinirole for around 8 years now. Over the last year my symptoms have got a lot worse and in the last couple of months I've developed spasms and jerking, mainly in my right shoulder (I've nearly punched myself
Shaunygee
in
Restless Legs Syndrome
3 years ago
RLS and now apnea
I've had RLS for over 5 decades now, and have survived by changing drugs when each one has become ineffective. The latest drug--a semi-opioid called buprenorphine--has been the best! However, I now have central sleep apnea greatly interfering with sleep. I wake up tired and am tired throughout the day
I've had RLS for over 5 decades now, and have survived by changing drugs when each one has become ineffective. The latest drug--a semi-opioid called buprenorphine--has been the best! However, I now have central sleep apnea greatly interfering with sleep. I wake up tired and am tired throughout the day
grandpianoman
in
Restless Legs Syndrome
3 years ago
1
...
48
49
50
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1453 results
Fertility Network UK
362 results
PMRGCAuk
135 results
View top 10 communities
Sort by
Most Relevant
Newest