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Second Treatment -Feeling scared
My husband has CLL and finished FCR in April 2019. Due to low platelets, enlarged spleen and ALC doubling he needs to start his next treatment even though he feels wellV&R is the treatment starting on 15th May. I have researched extensively including within this group, and am aware of the treatment
My husband has CLL and finished FCR in April 2019. Due to low platelets, enlarged spleen and ALC doubling he needs to start his next treatment even though he feels wellV&R is the treatment starting on 15th May. I have researched extensively including within this group, and am aware of the treatment
Sanders9
in
CLL Support
5 months ago
Methotrexate and a head cold
Hi, I have been on methotrexate for 9 weeks and am starting with a head cold.Do I need to inform anyone? It's the first "illness" since starting methotrexate.
Hi, I have been on methotrexate for 9 weeks and am starting with a head cold.Do I need to inform anyone? It's the first "illness" since starting methotrexate.
pattypatchwork
in
LUPUS UK
5 months ago
Taking Prolia with Rusolitinib (Jakafi)
I have been taking Jakafi (15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years. I have had osteoporosis for a while, but my T scores from bone density test are really
I have been taking Jakafi (15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years. I have had osteoporosis for a while, but my T scores from bone density test are really
Buggerbear
in
MPN Voice
5 months ago
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pneumonia vaccination
I have been told to get my pneumonia jab , i’m not worried about sore arm, but i’m just a bit concerned i might feel poorly after. I didn’t feel poorly after my flu jab or covid booster. Any reassurance would be appreciated. Thank you.
I have been told to get my pneumonia jab , i’m not worried about sore arm, but i’m just a bit concerned i might feel poorly after. I didn’t feel poorly after my flu jab or covid booster. Any reassurance would be appreciated. Thank you.
Collie4
in
Lung Conditions Community Forum
7 months ago
Stuck cough on the throat
Hi Everyone, My mum had her meal this evening and looks like the food went the wrong way, she has been coughing, she feels like there is cough around her throat that she can’t seem to cough, Has anyone experienced this?
Hi Everyone, My mum had her meal this evening and looks like the food went the wrong way, she has been coughing, she feels like there is cough around her throat that she can’t seem to cough, Has anyone experienced this?
Candor8
in
PSP Association
5 months ago
Cold Calling
I have suddenly started receiving calls from healthcare businesses. Two this week, I must have clicked on something.
I have suddenly started receiving calls from healthcare businesses. Two this week, I must have clicked on something.
Tykelady
in
Lung Conditions Community Forum
5 months ago
Shingles jab refused, ( immune suppressed )
I was 64 ( Oct 2023 ) i inquired about the shingles jab, but was refused ???
I was 64 ( Oct 2023 ) i inquired about the shingles jab, but was refused ???
alast1959
in
NRAS
6 months ago
AFib after 2nd Shingles jab
I only occasionally get Afib now following an ablation in 2020, but I had my 2nd shingles jab 3 days ago and it seems to have kicked off my afib again albeit not constantly. I just wondered if anyone else has had the same effect from the 2nd jab (as it is supposedly worse than the 1st) or is it just
I only occasionally get Afib now following an ablation in 2020, but I had my 2nd shingles jab 3 days ago and it seems to have kicked off my afib again albeit not constantly. I just wondered if anyone else has had the same effect from the 2nd jab (as it is supposedly worse than the 1st) or is it just
destiny234
in
Atrial Fibrillation Support
6 months ago
Cold weather trigger?
Does anyone else find that getting cold or being out in cold weather / air can cause problems?Cold air in the throat while out power walking, or simply realising I'm cold - it happened today - can combine to make me realise I'm going to become tachy and need warmth and to sit down (get a pip Bisoprolol
Does anyone else find that getting cold or being out in cold weather / air can cause problems?Cold air in the throat while out power walking, or simply realising I'm cold - it happened today - can combine to make me realise I'm going to become tachy and need warmth and to sit down (get a pip Bisoprolol
Garaidh
in
Atrial Fibrillation Support
5 months ago
Rituximab- cold- flu - covid
Good day everyone I’m 8 weeks into my Rtx infusion and was exposed to someone who had one of the above. I’m literally …. bricks. Any thoughts please? Thank you
Good day everyone I’m 8 weeks into my Rtx infusion and was exposed to someone who had one of the above. I’m literally …. bricks. Any thoughts please? Thank you
ks1966
in
NRAS
5 months ago
chest infection
I am currently tapering from 30mg to 25mg prednisolone for GCA. (been taking pred since February). I have had a productive cough and what I believe is a chest infection for 2 weeks. It is definitely better this week than last week and the guaifenesin I have taken has helped. I do not feel unwell
I am currently tapering from 30mg to 25mg prednisolone for GCA. (been taking pred since February). I have had a productive cough and what I believe is a chest infection for 2 weeks. It is definitely better this week than last week and the guaifenesin I have taken has helped. I do not feel unwell
kalgoorlie
in
PMRGCAuk
5 months ago
Period flu?
Just wondering if anyone is experiencing what I am. I underwent excision surgery for stage 3 endo in November, however more recently the pain is worsening again but right now that’s not the worst symptom- the last 3/4 months, either during or instantly after my period I’m hit with the WORST flu/cold
Just wondering if anyone is experiencing what I am. I underwent excision surgery for stage 3 endo in November, however more recently the pain is worsening again but right now that’s not the worst symptom- the last 3/4 months, either during or instantly after my period I’m hit with the WORST flu/cold
Ps-endo
in
Endometriosis UK
5 months ago
Asthma
I’m on a course of steroids for my asthma is it normal to feel tired after a flare up as I wake up coughing in the night with a silly tickly cough and it has just left me feeling really tired , also what cough syrups are good for nighttime with out upsetting my asthma.
I’m on a course of steroids for my asthma is it normal to feel tired after a flare up as I wake up coughing in the night with a silly tickly cough and it has just left me feeling really tired , also what cough syrups are good for nighttime with out upsetting my asthma.
E44E44
in
Asthma Community Forum
5 months ago
Illness and taking T3 - something to consider?
just a thought I wanted to put out there and see what everyone else thinks… I am now prescribed T4 and T3 and it has been a bit of a life changer for me. Previous to the T3 being added, I was on mono T4 for years. To get out of bed and function, I had to have my T4 over range, whilst my T3 was scrapping
just a thought I wanted to put out there and see what everyone else thinks… I am now prescribed T4 and T3 and it has been a bit of a life changer for me. Previous to the T3 being added, I was on mono T4 for years. To get out of bed and function, I had to have my T4 over range, whilst my T3 was scrapping
Gilbo72
in
Thyroid UK
11 months ago
shingles vaccination
hello. Has anyone had the shingles vaccination, I have PV and on Hydroxycarbamide. Wondering if to have it or not. take care x
hello. Has anyone had the shingles vaccination, I have PV and on Hydroxycarbamide. Wondering if to have it or not. take care x
Maisie10
in
MPN Voice
11 months ago
Pain Concern
Hello Again. Has anyone had an epidural steroid injection for shingles pain? I am scheduled for one and I'm scared. I have had trigger point injections in the past, but those go into muscle where this would go to the nerves that shingles infect. This doctor is very good at what she does so I have no
Hello Again. Has anyone had an epidural steroid injection for shingles pain? I am scheduled for one and I'm scared. I have had trigger point injections in the past, but those go into muscle where this would go to the nerves that shingles infect. This doctor is very good at what she does so I have no
mlp3434
in
Atrial Fibrillation Support
7 months ago
Issues sleeping, and other things
Diagnosed with chronic bronchitis 2 years ago. I had some sort of flare in Jan that never settled. Two weeks ago I started doxy followed by azithro & 10 days of steroids. Some mild SOB on incline walking in the last month. Normally I clear my mucus with sea swimming (fit & active 40 yr old M). A week
Diagnosed with chronic bronchitis 2 years ago. I had some sort of flare in Jan that never settled. Two weeks ago I started doxy followed by azithro & 10 days of steroids. Some mild SOB on incline walking in the last month. Normally I clear my mucus with sea swimming (fit & active 40 yr old M). A week
PW_R
in
Lung Conditions Community Forum
6 months ago
Epidural Injection for shingles pain
Hello Again. Has anyone had an epidural steroid injection for shingles pain? I am scheduled for one and I'm scared. I have had trigger point injections in the past, but those go into muscle where this would go to the nerves that shingles infect. This doctor is very good at what she does so I have no
Hello Again. Has anyone had an epidural steroid injection for shingles pain? I am scheduled for one and I'm scared. I have had trigger point injections in the past, but those go into muscle where this would go to the nerves that shingles infect. This doctor is very good at what she does so I have no
mlp3434
in
AF Association
7 months ago
Round and round
had last O treatment end of June. I have been sick since 3 rounds of upper respiratory which has turned to pneumonia I can’t get out of this cycle. Supposed to see ms dr tomorrow to discuss pushing O back to 6 months I’ve been on 5 month. X-ray showed Mass on lungs which is either pneumonia or the big
had last O treatment end of June. I have been sick since 3 rounds of upper respiratory which has turned to pneumonia I can’t get out of this cycle. Supposed to see ms dr tomorrow to discuss pushing O back to 6 months I’ve been on 5 month. X-ray showed Mass on lungs which is either pneumonia or the big
NanaCC179
in
My MSAA Community
11 months ago
Review of medication at GP.
Just seen on my GP notes on line my medication review. I have not seen this gp or any other for this review.i am on 4 sheets of prescription pad.is this normal? I would have thought with 3 previous heart attacks ,14 stents, bronchitis, constant pain in legs and feet, diabetes I would have been consulted
Just seen on my GP notes on line my medication review. I have not seen this gp or any other for this review.i am on 4 sheets of prescription pad.is this normal? I would have thought with 3 previous heart attacks ,14 stents, bronchitis, constant pain in legs and feet, diabetes I would have been consulted
jhorsf
in
Lung Conditions Community Forum
6 months ago
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