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My Stem Cell Journey so far.
Hi everyone just thought I’d share my experience of STC with you. I began the prep treatment over a week ago which consisted of a concoction of IV and oral meds. The day before transplant I had Total Body Irradiation - on the 31st I received “the gift” of stem cells from an anonymous donor 🙏. Im sorry
Hi everyone just thought I’d share my experience of STC with you. I began the prep treatment over a week ago which consisted of a concoction of IV and oral meds. The day before transplant I had Total Body Irradiation - on the 31st I received “the gift” of stem cells from an anonymous donor 🙏. Im sorry
Billarina
in
CLL Support
11 months ago
advice on sulfasalazine and the sun
I have been told by my rheumatologist nurse that I need to start taking sulfasalazine for my reactive arthritis, as I had a steroid injection after taking steroids orally, but it’s still not keeping the joint stiffness at bay completely . I’m not happy as I was under the impression that reactive arthritis
I have been told by my rheumatologist nurse that I need to start taking sulfasalazine for my reactive arthritis, as I had a steroid injection after taking steroids orally, but it’s still not keeping the joint stiffness at bay completely . I’m not happy as I was under the impression that reactive arthritis
Fish1230
in
NRAS
10 months ago
COVID!
After a couple of days feeling under the weather, I (finally) tested positive for COVID this morning. I have a headache, and stuffy nose, nothing else. My wife, from whom I probably caught it has symptoms so mild that she didn't even think to test until I came up positive. They sent her home from work
After a couple of days feeling under the weather, I (finally) tested positive for COVID this morning. I have a headache, and stuffy nose, nothing else. My wife, from whom I probably caught it has symptoms so mild that she didn't even think to test until I came up positive. They sent her home from work
jonathan7176
in
CLL Support
10 months ago
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The dreaded covid
Hi Having recently come home from a holiday, both my husband and I have tested positive for covid. He’s never had it so he’s been quite poorly, I’m the one on watch and wait with CLL, I’m feeling not as rough but I’ve had it a year ago, and have had all the vaccinations offered me and so has hubby.
Hi Having recently come home from a holiday, both my husband and I have tested positive for covid. He’s never had it so he’s been quite poorly, I’m the one on watch and wait with CLL, I’m feeling not as rough but I’ve had it a year ago, and have had all the vaccinations offered me and so has hubby.
robertsw
in
CLL Support
10 months ago
Breathing becomes worse POST COVID
I have COPD without any SOB before COVID, I was infected with COVID few months back and recovered without oxygen support. I am having post Post covid symptoms such as brain fog (light dizzy throughout the day), elevated heart rate. But surprisingly my lung function FEV and FVC has increased, but feeling
I have COPD without any SOB before COVID, I was infected with COVID few months back and recovered without oxygen support. I am having post Post covid symptoms such as brain fog (light dizzy throughout the day), elevated heart rate. But surprisingly my lung function FEV and FVC has increased, but feeling
Maverick2
in
Lung Conditions Community Forum
10 months ago
Sick note
Hello, wondered if anyone could give me some advice. My husband has been off sick from work with Covid for 9 days and he has been quite poorly but back to work now. He only works 3 days a week but needs a sick note to cover him for 2 days. When contacting the GP they told him they don't give sick
Hello, wondered if anyone could give me some advice. My husband has been off sick from work with Covid for 9 days and he has been quite poorly but back to work now. He only works 3 days a week but needs a sick note to cover him for 2 days. When contacting the GP they told him they don't give sick
Newbytoasthma
in
Lung Conditions Community Forum
10 months ago
Chronic shoulder pain
Was initially diagnosed with PMR in April 2022 only to be told a month later by Rheumatologist that it wasn’t PMR but a nasty viral infection. Also had long standing shoulder pain now for over 2 years and neck also very stiff.Had shoulder scanned recently shoeing no tests but SASD bursa distended consistent
Was initially diagnosed with PMR in April 2022 only to be told a month later by Rheumatologist that it wasn’t PMR but a nasty viral infection. Also had long standing shoulder pain now for over 2 years and neck also very stiff.Had shoulder scanned recently shoeing no tests but SASD bursa distended consistent
Countybowler
in
PMRGCAuk
10 months ago
Herpes (or acyclovir usage) affecting implantation after ivf embryo transfer?
I have had herpes for about 10 years. I have noticed more outbreaks during stims. I've already had 2 failed transfers and am worried both that having herpes and /or taking acyclovir will affect implantation for my last transfer. I've read some conflicting studies on acyclovir and it's effect on implantation
I have had herpes for about 10 years. I have noticed more outbreaks during stims. I've already had 2 failed transfers and am worried both that having herpes and /or taking acyclovir will affect implantation for my last transfer. I've read some conflicting studies on acyclovir and it's effect on implantation
Norregirl
in
Fertility Network UK
5 months ago
Dr. "Snuffy" Myers daughter talks about the day she heard about her Dad's diagnosis
https://youtu.be/k0vmB-fgxQc Click here to subscribe: https://www.youtube.com/c/malecare?sub_confirmation=1 Jessie Myers, daughter of prostate cancer legend Dr. "Snuffy" Myers, talks about the day she heard about her Dad's diagnosis and how she and her family came to terms with death and prostate
https://youtu.be/k0vmB-fgxQc Click here to subscribe: https://www.youtube.com/c/malecare?sub_confirmation=1 Jessie Myers, daughter of prostate cancer legend Dr. "Snuffy" Myers, talks about the day she heard about her Dad's diagnosis and how she and her family came to terms with death and prostate
Darryl
Partner
in
Advanced Prostate Cancer
5 months ago
MODERNA SPIKEVAX (2022) COVID Vaccine Availability Autumn 2023 Uk
Hi all, As anyone had a Moderna COVID vaccine (2022 version Bivalent Spikevax) this autumn in the UK, I have a clinical need to avoid Pfizer and that is all that is being sent out at present. I have been in touch with UKHSA, NHS England, local Vaccine authority, Haematologist and GP without any joy.
Hi all, As anyone had a Moderna COVID vaccine (2022 version Bivalent Spikevax) this autumn in the UK, I have a clinical need to avoid Pfizer and that is all that is being sent out at present. I have been in touch with UKHSA, NHS England, local Vaccine authority, Haematologist and GP without any joy.
thyreoidea
in
Thyroid UK
10 months ago
covid vaccine
My Hematologist suggested I not take the flu or covid vaccine. She is concerned it will trigger another episode of low platelets. I had been in remission for 15 months last year and I thought I had beaten ITP. I got the vaccines last year then about 2 months later my platelets were back down to 1.
My Hematologist suggested I not take the flu or covid vaccine. She is concerned it will trigger another episode of low platelets. I had been in remission for 15 months last year and I thought I had beaten ITP. I got the vaccines last year then about 2 months later my platelets were back down to 1.
joecirillo
in
ITP Support Association
10 months ago
Not what I expected!
After feeling unwell, I’ve had a lousy night, tested in the early hours and have Covid! Had the booster 12 days ago and the flu jab on Saturday. it’s Sod’s Law , I was going to say a flare and low adrenal function feels like Covid with Mumps . Hopefully i can get antivirals , they wouldn’t give them
After feeling unwell, I’ve had a lousy night, tested in the early hours and have Covid! Had the booster 12 days ago and the flu jab on Saturday. it’s Sod’s Law , I was going to say a flare and low adrenal function feels like Covid with Mumps . Hopefully i can get antivirals , they wouldn’t give them
Greensleeves
in
PMRGCAuk
10 months ago
recovery from pneumonia and going back to work
Hi, little back story Roughly, 10 days ago I went to work, had a bit of a cold but feeling ok after an hour of being at work I had an asthma attack. Lucky for me I work in the hospital so went straight to a&e when it wouldn’t settle. Had nebulisers, steroids and blood tests and was sent home once it
Hi, little back story Roughly, 10 days ago I went to work, had a bit of a cold but feeling ok after an hour of being at work I had an asthma attack. Lucky for me I work in the hospital so went straight to a&e when it wouldn’t settle. Had nebulisers, steroids and blood tests and was sent home once it
Shorty_89
in
Asthma Community Forum
1 year ago
Flue or RLS
as I mentioned a day or so back I had my flue jab last Sunday 1st October and my RLS has got progressively worse Monday and Tuesday virtually all day and constant headaches. Went to bed at 9.45 Monday night woke at 11.30 pm had to get up and walk around tried to go back to sleep by gave up till 6am went
as I mentioned a day or so back I had my flue jab last Sunday 1st October and my RLS has got progressively worse Monday and Tuesday virtually all day and constant headaches. Went to bed at 9.45 Monday night woke at 11.30 pm had to get up and walk around tried to go back to sleep by gave up till 6am went
HipHop1972
in
Restless Legs Syndrome
10 months ago
Probiotics
Hi I wondered if anyone has used the Inessa advanced biotic complex? i've read that bifidobacterium infantis is good for gas and bloating ( and i have alot of gas!) and the inessa probiotic contains it whereas the one i'm using at the moment which is Time health probiotic doesn't. If not does anyone
Hi I wondered if anyone has used the Inessa advanced biotic complex? i've read that bifidobacterium infantis is good for gas and bloating ( and i have alot of gas!) and the inessa probiotic contains it whereas the one i'm using at the moment which is Time health probiotic doesn't. If not does anyone
catpurple7
in
Thyroid UK
11 months ago
COVID-19 immune cell vaccine eases SLE symptoms in girl: Report
Therapy helped 13-year-old by increasing immune tolerance, researchers say
A personalized vaccine kit designed to prevent COVID-19 infection eased systemic lupus erythematosus (SLE) manifestations in an adolescent girl in Indonesia whose symptoms had not been well-controlled with immunosuppressive
Therapy helped 13-year-old by increasing immune tolerance, researchers say
A personalized vaccine kit designed to prevent COVID-19 infection eased systemic lupus erythematosus (SLE) manifestations in an adolescent girl in Indonesia whose symptoms had not been well-controlled with immunosuppressive
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
10 months ago
Workplace Injury
I work in the dental field and was trimming an imperino I was taking on a patient. When trimming the impression, he scalpel slipped and cut my finger fairly deeply. I checked the impression and there was no obvious blood contamination, likely only a small amount of saliva. After following proper protocol
I work in the dental field and was trimming an imperino I was taking on a patient. When trimming the impression, he scalpel slipped and cut my finger fairly deeply. I checked the impression and there was no obvious blood contamination, likely only a small amount of saliva. After following proper protocol
Lc06091
in
British Liver Trust
5 months ago
Treating PVCS on a virtual ward
I have posted on here a number of times about the burden of persistent PVCs. Anyway, after 5 days of feeling very dizzy and nauseous, I went to see my GP. She sent me straight to my local hospital which is a big teaching hospital. I was seen in the Same Day Emergency Medicine unit who were thorough and
I have posted on here a number of times about the burden of persistent PVCs. Anyway, after 5 days of feeling very dizzy and nauseous, I went to see my GP. She sent me straight to my local hospital which is a big teaching hospital. I was seen in the Same Day Emergency Medicine unit who were thorough and
Norfolk_spaniel
in
AF Association
11 months ago
A very special interview with Dr Patrick Harrington regarding Covid vaccines and MPN patients
In this interview Dr Patrick Harrington, Consultant Haematologist, Guy’s & St Thomas’ Hospital, talks to Nona about Covid vaccines for MPN patients, he starts off by describing the research he carried out at the start of the Covid pandemic, with Covid being a new condition it was an area that needed
In this interview Dr Patrick Harrington, Consultant Haematologist, Guy’s & St Thomas’ Hospital, talks to Nona about Covid vaccines for MPN patients, he starts off by describing the research he carried out at the start of the Covid pandemic, with Covid being a new condition it was an area that needed
Mazcd
MPNVoice
in
MPN Voice
10 months ago
First Post
Hi all, although this is my first post I have visited this site for the last 2 1/2 years. I was diagnosed with RA. Just as covid hit, I went from a healthy 52 year old to literally not being able to get out of bed overnight. I have never experienced pain like it, and I spiralled quickly in to a very
Hi all, although this is my first post I have visited this site for the last 2 1/2 years. I was diagnosed with RA. Just as covid hit, I went from a healthy 52 year old to literally not being able to get out of bed overnight. I have never experienced pain like it, and I spiralled quickly in to a very
Ryshta
in
NRAS
10 months ago
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