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Repetitive strain injury (RSI)
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New arrival but old and new issues dbs, cbd oil, constipation, Kemadrin
I am new to this. Constipation is a big issue as the dosage of Movicol combined with Senekot does not work consistently and PD medication on time reduces from 3 hours down. I am considering a home enema kit as I seem to be permanently constipated. Anyone tried an enema kit? DBS application now in process
I am new to this. Constipation is a big issue as the dosage of Movicol combined with Senekot does not work consistently and PD medication on time reduces from 3 hours down. I am considering a home enema kit as I seem to be permanently constipated. Anyone tried an enema kit? DBS application now in process
billyboy11
in
Cure Parkinson's
6 years ago
Meningitis and influenza vaccines
Hello everyone, does anyone know if a CLL diagnosed person can take meningitis and influenza vaccine?
Hello everyone, does anyone know if a CLL diagnosed person can take meningitis and influenza vaccine?
JA14
in
CLL Support
6 years ago
Robbed
hi im mick 57 and retired due to Parkinsons i feel robbed of my ability to work as i loved my job and the lads i worked with my weight has increased since retiring as my work was very physical ive undergone DBS surgery but that was not successfull still having treatment (very dissapointed) is there anyone
hi im mick 57 and retired due to Parkinsons i feel robbed of my ability to work as i loved my job and the lads i worked with my weight has increased since retiring as my work was very physical ive undergone DBS surgery but that was not successfull still having treatment (very dissapointed) is there anyone
mckchart
in
Cure Parkinson's
6 years ago
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Viral meningitis
I have just been discharged from hospital following a diagnosis of viral meningitis. My husband remains in hospital and is very poorly. I suspect that we have the same virus but cannot understand why he isn’t responding to treatment. He seems to be getting worse. Doctors are at a loss and are running
I have just been discharged from hospital following a diagnosis of viral meningitis. My husband remains in hospital and is very poorly. I suspect that we have the same virus but cannot understand why he isn’t responding to treatment. He seems to be getting worse. Doctors are at a loss and are running
Rozey
in
Meningitis Now
6 years ago
DBS Surgery in IL
I am hoping to get the OK for DBS surgery soon. Would love to hear from anyone who has had this done in the Rush Shore Medical center Chicago IL or Evanston Hiospital in IL. Good or bad, I need to know.
I am hoping to get the OK for DBS surgery soon. Would love to hear from anyone who has had this done in the Rush Shore Medical center Chicago IL or Evanston Hiospital in IL. Good or bad, I need to know.
luba1
in
Cure Parkinson's
6 years ago
New to all this and looking to reach out to others and stop using Dr Google!!
Hey folks, delighted to find this wee community. My journey started with a visit to ENT to check out what I thought was labyrinthitis and tinnitus. A casual remark from the the doc about the fact I only had a 4 in 100,000 chance of a brain tumour threw me but I put it out of my heid as nonsense. Fast
Hey folks, delighted to find this wee community. My journey started with a visit to ENT to check out what I thought was labyrinthitis and tinnitus. A casual remark from the the doc about the fact I only had a 4 in 100,000 chance of a brain tumour threw me but I put it out of my heid as nonsense. Fast
Ladypurple8
in
Acoustic Neuroma Support
6 years ago
DBS & Balance
Those people who have had DBS done, do you or did you have balance issues, and did the settings have any effect on it. Thanks
Those people who have had DBS done, do you or did you have balance issues, and did the settings have any effect on it. Thanks
Dwest022
in
Cure Parkinson's
6 years ago
Anyone find C/L ineffective?
My husband has never been helped with any meds. Has been on carbo/levo 25-100 6 per day for over a year. He has no "on time or off time". Dr. wants him to go to 8 but I don't understand why since we do not see any change at all. He is now on B1 (Dr. C. said to stay on meds, probably because he doesn't
My husband has never been helped with any meds. Has been on carbo/levo 25-100 6 per day for over a year. He has no "on time or off time". Dr. wants him to go to 8 but I don't understand why since we do not see any change at all. He is now on B1 (Dr. C. said to stay on meds, probably because he doesn't
Basih101
in
Cure Parkinson's
6 years ago
DBS SURGERY
hi I have cervical dystonia i had DBS surgery in 2012 I would love to write about my experiences and promise I will do later but I have a question I charge my battery every 48 hours and will be having keyhole surgery on my knee very shortly I need to know if I can safely turn off the battery while I
hi I have cervical dystonia i had DBS surgery in 2012 I would love to write about my experiences and promise I will do later but I have a question I charge my battery every 48 hours and will be having keyhole surgery on my knee very shortly I need to know if I can safely turn off the battery while I
belle2018
in
Dystonia Society
6 years ago
Meningitis rash
After 7 months of going through all the hell that this brings to viral meningitis I now have the rash...anyone know how long the rash lasts? I am feeling better now but want to get rid of this rash that has now appeared.
After 7 months of going through all the hell that this brings to viral meningitis I now have the rash...anyone know how long the rash lasts? I am feeling better now but want to get rid of this rash that has now appeared.
forbessr
in
Meningitis Now
6 years ago
Most of all I appreciate my beloved wife Eva who accepts me as I am with my brain injury. I am happy at last.
I had my TBI when I was 13 in 1983 and have been just about coping ever since. I'm not at all angry with my UK family who all abandoned me and forced me to just get on with life, they did the right thing in the end. My journey nearly ended when I tried to visit my dad in Australia (he had wanted to emigrate
I had my TBI when I was 13 in 1983 and have been just about coping ever since. I'm not at all angry with my UK family who all abandoned me and forced me to just get on with life, they did the right thing in the end. My journey nearly ended when I tried to visit my dad in Australia (he had wanted to emigrate
Bright2018
in
Headway
6 years ago
Shortness of breath
Shortness of breath I’m 76 years old diagnosed six years ago but first symptoms 25 years ago with loss of smell. At that time they didn’t put it together that it may be the beginning of Parkinson’s disease. I am on pretty heavy doses of Sinemet, having to take two tablets of 25/100 every two hours
Shortness of breath I’m 76 years old diagnosed six years ago but first symptoms 25 years ago with loss of smell. At that time they didn’t put it together that it may be the beginning of Parkinson’s disease. I am on pretty heavy doses of Sinemet, having to take two tablets of 25/100 every two hours
martinstevens1
in
Cure Parkinson's
6 years ago
WHY should people with TBI and other disabilities be expected to drive cars?
In The Philippines it is quite OK to have a Brain Injury and be a bit confused about life. When I am out alone people look after me. Jeepney drivers are especially helpful. In any civilised country like The Philippines there are public jeepneys, tricycles, buses, trams, boats and Philippine National
In The Philippines it is quite OK to have a Brain Injury and be a bit confused about life. When I am out alone people look after me. Jeepney drivers are especially helpful. In any civilised country like The Philippines there are public jeepneys, tricycles, buses, trams, boats and Philippine National
Bright2018
in
Headway
6 years ago
Thiamine question
I have been taking 2Gm Thiamine twice a day for about 1 month now. I have had DBS approx 10 yrs ago. I was diagnosed with PD about 20 years ago, fortunately the only symptoms I have are balance issues and bradykinesia. My question is; Does the length of time taking Thiamine have any correlation with
I have been taking 2Gm Thiamine twice a day for about 1 month now. I have had DBS approx 10 yrs ago. I was diagnosed with PD about 20 years ago, fortunately the only symptoms I have are balance issues and bradykinesia. My question is; Does the length of time taking Thiamine have any correlation with
Dwest022
in
Cure Parkinson's
6 years ago
Fixin to get DBS and very nervous
Ive never done anything like sharing my issues with strangers but .pardon my punctuation ,it usually stinks ..ive had Parkinson's now for just over 4 years .im 44 ,I just got finished jumping through a ton of hoops and finally ,i go in for dbs surgery on the 22nd of Aug . Basically, im scared ,im not
Ive never done anything like sharing my issues with strangers but .pardon my punctuation ,it usually stinks ..ive had Parkinson's now for just over 4 years .im 44 ,I just got finished jumping through a ton of hoops and finally ,i go in for dbs surgery on the 22nd of Aug . Basically, im scared ,im not
Ou812
in
Cure Parkinson's
6 years ago
Bad Role Model
-Potential trigger warning- My very supportive grandfather (the only member of my childhood family who’s still in my life), was telling me yesterday that his good friend’s daughter tried to hang herself the other day, but the belt broke. Apparently she’s a young teenager, and she sees a therapist for
-Potential trigger warning- My very supportive grandfather (the only member of my childhood family who’s still in my life), was telling me yesterday that his good friend’s daughter tried to hang herself the other day, but the belt broke. Apparently she’s a young teenager, and she sees a therapist for
ZenGiraffe
in
Anxiety and Depression Support
6 years ago
DBS programming specialist in Jackson, MS
Does anyone know if a good movement disorder specialist in Jackson Mississippi, that can do DBS programming. My search have brought up Merit Health Hospital.
Does anyone know if a good movement disorder specialist in Jackson Mississippi, that can do DBS programming. My search have brought up Merit Health Hospital.
CplParkinson
in
Cure Parkinson's
6 years ago
meningioma
In November I had an incident.... It resembles a stroke. The hospital/neurologist assessed it as a migraine on the right side of my brain. They sent me for MRI'S and found a meningioma on the right hemisphere of my brain. When they first showed me the MRI scan on their computer they didn’t notice the
In November I had an incident.... It resembles a stroke. The hospital/neurologist assessed it as a migraine on the right side of my brain. They sent me for MRI'S and found a meningioma on the right hemisphere of my brain. When they first showed me the MRI scan on their computer they didn’t notice the
grafkimber
in
Thyroid UK
6 years ago
DBS
Hello! Has anyone done DBS? Would be curious to know how it went, if things got better and for how long, etc. Any post surgery info would be super helpful! Thank you!
Hello! Has anyone done DBS? Would be curious to know how it went, if things got better and for how long, etc. Any post surgery info would be super helpful! Thank you!
luba1
in
Cure Parkinson's
6 years ago
Brain Death and recovery with Deep Brain Stimulation
In March 1983 I was a victim of a Hit and deny responsibility attack by an insane motorist who was driving way too fast. My brain apparently had died and the NHS staff at Plymouth Freedom Fields hospital were about to turn off the life support machine. Only thanks to the intervention of my loving parents
In March 1983 I was a victim of a Hit and deny responsibility attack by an insane motorist who was driving way too fast. My brain apparently had died and the NHS staff at Plymouth Freedom Fields hospital were about to turn off the life support machine. Only thanks to the intervention of my loving parents
Bright2018
in
Headway
6 years ago
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