DBS: Hello! Has anyone done DBS? Would be... - Cure Parkinson's

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DBS

luba1 profile image
9 Replies

Hello! Has anyone done DBS? Would be curious to know how it went, if things got better and for how long, etc. Any post surgery info would be super helpful! Thank you!

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luba1
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9 Replies
movinngroovin profile image
movinngroovin

4 years! It saved my life!!

luba1 profile image
luba1 in reply tomovinngroovin

Thank you so much!! I am thinking about DBS too. My doctor suggested me to do it almost 2 years ago. I take every 2.5 hours 1 comtan and 1.5 sinemet 25/100, but it is really working 1.5 hours. I have left side tremor hand tremor very severe left food stiffness very slow movements (between my medications), swallowing, brain fog and other PD related problems. Also I start feeling tremor on the right side. I am very scare to go to surgery, but my daughter insist it. I am 64 years old. I have to think about it more seriously! Thank you so much again!!

movinngroovin profile image
movinngroovin in reply toluba1

That was my age too when I had DBS! It has only gotten better in the last 4 years. i.e. Now they put you to sleep for the whole operation, the device has gotten smaller & more efficient! Lucky you! My neurologist had recommended it 5 years prior. It take care of all 3 of the symptoms you present with.

luba1 profile image
luba1 in reply tomovinngroovin

Do you live in USA?

movinngroovin profile image
movinngroovin in reply toluba1

Yes-Front Royal VA

luba1 profile image
luba1 in reply tomovinngroovin

Thank you very much!!! You gave me a hope!!!

CplParkinson profile image
CplParkinson

2 years ago, USA, turned my life around. Much better and able to do so much I couldn't before.

luba1 profile image
luba1 in reply toCplParkinson

Thank you so much!!

matthias_baum profile image
matthias_baum in reply toluba1

I have DBS since 2011. The effect is not overwhelmingly, but as fundament not bad.So of someone offers you a DBS.The op risk is low, you have an optimaĺ risk/benefit ratio.

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