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A very difficult decision (children)
The impact on my transplant could be significant, it could mean a reduced life for Kevin (my transplanted kidney) or it could even force end stage
renal
failure
(again). That would leave me with a baby while on dialysis.
The impact on my transplant could be significant, it could mean a reduced life for Kevin (my transplanted kidney) or it could even force end stage
renal
failure
(again). That would leave me with a baby while on dialysis.
Hidden
in
Hughes Syndrome APS Forum
13 years ago
Life can be cruel sometimes...
I have a puppy with chronic
renal
failure
. He is 10 months old and it looks likely that we will only have him for a few more days and I feel terrible.
I have a puppy with chronic
renal
failure
. He is 10 months old and it looks likely that we will only have him for a few more days and I feel terrible.
Hidden
in
Hughes Syndrome APS Forum
13 years ago
My Life Story: Part 1 - aged 19 (Living with Lupus and Hughes Syndrome)
But the results showed chronic
renal
failure
. My dad, Tony, had taken the day off work to be with me and as he snored in the background, the consultant decided that it would be necessary for me to have a kidney biopsy, to find out 'the extent of the damage'.
But the results showed chronic
renal
failure
. My dad, Tony, had taken the day off work to be with me and as he snored in the background, the consultant decided that it would be necessary for me to have a kidney biopsy, to find out 'the extent of the damage'.
Hidden
in
Hughes Syndrome APS Forum
13 years ago
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Anyone else here with Vasculitis related heart conditions ?
Hi everyone, I had a heart attack just over two years ago and luckily the heart consultant had the foresight to drag in a whole raft of other specialists to work out why. Eventually the Rheumatologist diagnosed HUV and began treatment with steroids and immunosuppressants. Initially after the
Hi everyone, I had a heart attack just over two years ago and luckily the heart consultant had the foresight to drag in a whole raft of other specialists to work out why. Eventually the Rheumatologist diagnosed HUV and began treatment with steroids and immunosuppressants. Initially after the
RichardE
Volunteer
in
Vasculitis UK
12 years ago
I cant get Life Insurance !!
I have Chronic
Renal
Failure
, and a few other add on's to go with it (big names, cant spell!!) I have applied for life insurance on many occasions and been refused point blank! guess they think Im gonna die soon! I have a family to think of and no security for them. Can anyone help.
I have Chronic
Renal
Failure
, and a few other add on's to go with it (big names, cant spell!!) I have applied for life insurance on many occasions and been refused point blank! guess they think Im gonna die soon! I have a family to think of and no security for them. Can anyone help.
Paula1968
in
LUPUS UK
13 years ago
Please someone tell me it just isnt me!!!
Believe me I'm a fighter I have in the last 3 years survived a broken neck and living with chronic
renal
failure
so I'm not being a baby I just cant see any way out of this hell hole. The Dr says after the radiation my tests are all normal well if this is normal I don't know what to say.
Believe me I'm a fighter I have in the last 3 years survived a broken neck and living with chronic
renal
failure
so I'm not being a baby I just cant see any way out of this hell hole. The Dr says after the radiation my tests are all normal well if this is normal I don't know what to say.
Dancerfromparis
in
Thyroid UK
14 years ago
Totaly confused please help.
Are there any other tests that can be helpful...I have explained this before so excuse me for repeating myself im also in Chronic
renal
failure
waiting for a kidney transplant.
Are there any other tests that can be helpful...I have explained this before so excuse me for repeating myself im also in Chronic
renal
failure
waiting for a kidney transplant.
Dancerfromparis
in
Thyroid UK
14 years ago
about.com - heart health center
Hello to my fellow thyroid uk-ers Thank you to Trw99 for bringing to light the above site, with Richard N fogoros MD as their quide. I have been onto the site and would suggest you all check it out. For the last 14 - 15 years I have lived with the fact that my heart 'doesn't pump right' this is the
Hello to my fellow thyroid uk-ers Thank you to Trw99 for bringing to light the above site, with Richard N fogoros MD as their quide. I have been onto the site and would suggest you all check it out. For the last 14 - 15 years I have lived with the fact that my heart 'doesn't pump right' this is the
jugemvicsar
in
Thyroid UK
14 years ago
5HTP
Can anyone please tell me if it is safe to take 5HTP for depression and anxiety with
renal
failure
Ive looked all over the internet and cant get a straight answer. Many thanks Sandie.
Can anyone please tell me if it is safe to take 5HTP for depression and anxiety with
renal
failure
Ive looked all over the internet and cant get a straight answer. Many thanks Sandie.
Dancerfromparis
in
Thyroid UK
14 years ago
Someone tell me they feel the same please!
Believe me I'm a fighter I have in the last 3 years survived a broken neck and living with chronic
renal
failure
so I'm not being a baby I just cant see any way out of this hell hole. The Dr says after the radiation my tests are all normal well if this is normal I don't know what to say.
Believe me I'm a fighter I have in the last 3 years survived a broken neck and living with chronic
renal
failure
so I'm not being a baby I just cant see any way out of this hell hole. The Dr says after the radiation my tests are all normal well if this is normal I don't know what to say.
Dancerfromparis
in
Thyroid UK
14 years ago
Joining up
Hi my name is Dawn and I am sorry to all those at HUK that it as taken me so long to join up, at last a quiet Tuesday at work has allowed me to join. I am a sort of postive outcome, of living with FH, severe heart disease and heart failure. Through many medical interventions and a great support network
Hi my name is Dawn and I am sorry to all those at HUK that it as taken me so long to join up, at last a quiet Tuesday at work has allowed me to join. I am a sort of postive outcome, of living with FH, severe heart disease and heart failure. Through many medical interventions and a great support network
Dawnydreakbreak
in
Cholesterol Support
13 years ago
Anyone on dialysis in need of support
I was diagnosed with SLE in 1997 age 15 and now have end stage
renal
failure
and I have finally met the criteria for going on the transplant waiting list. If there is anyone out there in a similar position who would like to share coping strategies then please drop me a line.
I was diagnosed with SLE in 1997 age 15 and now have end stage
renal
failure
and I have finally met the criteria for going on the transplant waiting list. If there is anyone out there in a similar position who would like to share coping strategies then please drop me a line.
charm81
in
LUPUS UK
13 years ago
Breast lump
My partner was diagnosed with Vasculitis in Sept 2011, a day before he had resp failure and spent 3 mths in ICU on a ventilator after pulmonary hemmorhage. Recently we've been told he has WG anca neg. He's doing really well on 30mg pred reducing to 25mg and 50mg aza increasing to 100 next week. Yesterday
My partner was diagnosed with Vasculitis in Sept 2011, a day before he had resp failure and spent 3 mths in ICU on a ventilator after pulmonary hemmorhage. Recently we've been told he has WG anca neg. He's doing really well on 30mg pred reducing to 25mg and 50mg aza increasing to 100 next week. Yesterday
louiseevs
in
Vasculitis UK
12 years ago
So do we have any positive stories about living with Lupus or do we communicate on these sites to share our woes?
I think this would be a great help to lupus sufferers so they don't all think there is no life after sunlight, or are going to die of
renal
failure
!...anybody?
I think this would be a great help to lupus sufferers so they don't all think there is no life after sunlight, or are going to die of
renal
failure
!...anybody?
Lewy
in
LUPUS UK
13 years ago
WG Kidney Damage, will other parts of the body be effected by the WG??
Some hope please!!!!!!!!: My 49 year old husband was admitted to hospital with sudden onset Kidney Failure and has been diagnosed with WG, he is having ten treatments of Plasma Exchange ,dialysis and so many drugs we can't keep up with them all. It has been a real shock to us, someone cheer me up! will
Some hope please!!!!!!!!: My 49 year old husband was admitted to hospital with sudden onset Kidney Failure and has been diagnosed with WG, he is having ten treatments of Plasma Exchange ,dialysis and so many drugs we can't keep up with them all. It has been a real shock to us, someone cheer me up! will
Sharonkaty
in
Vasculitis UK
13 years ago
Can anyone reccommend any good travel insurance ?
Can anyone reccommend any good travel insurance company's ? Having had lupus for over thirty years & kidney transplant for sixteen years always a worry when travelling abroad. Any imput with be much appreciated ! Thanks Hayley
Can anyone reccommend any good travel insurance company's ? Having had lupus for over thirty years & kidney transplant for sixteen years always a worry when travelling abroad. Any imput with be much appreciated ! Thanks Hayley
tremarel
in
LUPUS UK
12 years ago
I have WG and i'am now experiencing intermittent twitching under my right eye, has anyone else had this?
At present i'am not having any treatment, last Rutixmab was in May, Dr Jayne does not want me to have anymore as he is worried it will destroy my good antibodies. ( I have had many many infusions ) I also feel extreme fatigue at the moment but I do have chronic
renal
failure
( stage 4 ) caused
At present i'am not having any treatment, last Rutixmab was in May, Dr Jayne does not want me to have anymore as he is worried it will destroy my good antibodies. ( I have had many many infusions ) I also feel extreme fatigue at the moment but I do have chronic
renal
failure
( stage 4 ) caused
Essex-jill
in
Vasculitis UK
13 years ago
Hi, I was diagnosed with WG approx 12 years ago and had been a nurse for over 20 years but had never heard of this condition.
The ENT consultant took one look at me and then asked me was it normal for me to have many bruises on my arms and legs, informed him renal specialist said it was because by now I had chronic
renal
failure
!!
The ENT consultant took one look at me and then asked me was it normal for me to have many bruises on my arms and legs, informed him renal specialist said it was because by now I had chronic
renal
failure
!!
Essex-jill
in
Vasculitis UK
13 years ago
Are any members with WG ANCA negative ?
i was diagnosed with WG 13 years ago and have always remained ANCA negative. My saddle nose deformity and nasal biopsy confirmed WG. I wondered how many other members are also ANCA negative. Because of this it can be difficult to monitor my condition. Thankfully Dr Jayne at Addenbrookes always listens
i was diagnosed with WG 13 years ago and have always remained ANCA negative. My saddle nose deformity and nasal biopsy confirmed WG. I wondered how many other members are also ANCA negative. Because of this it can be difficult to monitor my condition. Thankfully Dr Jayne at Addenbrookes always listens
Essex-jill
in
Vasculitis UK
13 years ago
Carnitine, brand name carnitor
type of drug;Thyroid Hormone Uses;To treat deficiency of Carnitine, a chemical which is vital in the process of changing fat to energy, due to genetic defects or dialysis. How it works; it helps to transport long chain fatty acids into cells to be burned to produce energy Caution; to be used with
type of drug;Thyroid Hormone Uses;To treat deficiency of Carnitine, a chemical which is vital in the process of changing fat to energy, due to genetic defects or dialysis. How it works; it helps to transport long chain fatty acids into cells to be burned to produce energy Caution; to be used with
Hidden
in
Thyroid UK
14 years ago
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