I'm not trying to accuse anybody of "moaning". As I'm sure you are all aware lupus sufferers are made to feel they are always whinging and problems are passed back and forth and can take an incredible amount of time to be brought under control.
However, as a young man with Lupus (which is even more isolating) I feel the only message we give to newly diagnosed patients is that of doom and gloom. Does any body have anything positive to say? I.e..problems they've had that are under control? or how they manage their condition well on a day to day basis? I think this would be a great help to lupus sufferers so they don't all think there is no life after sunlight, or are going to die of renal failure!...anybody?