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help?
I’m 41 with ELD liver disease waiting to see if I can get on transplant list. I’m looking for mental health support with this as I could be terminal if I don’t get the transplant, and I’m doing everything on my own setting up end of life (just in case). Other charities can’t help me cause they just
I’m 41 with ELD liver disease waiting to see if I can get on transplant list. I’m looking for mental health support with this as I could be terminal if I don’t get the transplant, and I’m doing everything on my own setting up end of life (just in case). Other charities can’t help me cause they just
Harriet-sarah
in
British Liver Trust
1 year ago
What are your symptoms of regenerative nodular hyperplasia and is it worth doing a CT scan?
Wanted to ask of those who were diagnonsed with RNH what you symptoms were and how it was eventually diagnosed (and whether you went through a battery of tests, all showing normal liver function)? It appears this has a lot of cirrhosis symptoms but is very difficult to diagnose (only a specialised form
Wanted to ask of those who were diagnonsed with RNH what you symptoms were and how it was eventually diagnosed (and whether you went through a battery of tests, all showing normal liver function)? It appears this has a lot of cirrhosis symptoms but is very difficult to diagnose (only a specialised form
Vkusnyatina
in
British Liver Trust
1 year ago
Bloods
Been off the drink now 14 months been for a assessment for TP just waiting to see if i can get on list, my recent blood test showed my bilirubin is 81 now down from 140, INR still 2.1 is that a big jump forward for the good 140 to 81 if any one with decompensated liver what are yours
Been off the drink now 14 months been for a assessment for TP just waiting to see if i can get on list, my recent blood test showed my bilirubin is 81 now down from 140, INR still 2.1 is that a big jump forward for the good 140 to 81 if any one with decompensated liver what are yours
lonmallin50
in
British Liver Trust
1 year ago
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advise please
can anyone help with more information as I am still unsure what’s going on. I was diagnosed with fatty liver last week. I understand what I have to do to keep a check on it. But I am having problems understanding why this has happened. Last year I had an ultrasound and it showed normal liver but dilated
can anyone help with more information as I am still unsure what’s going on. I was diagnosed with fatty liver last week. I understand what I have to do to keep a check on it. But I am having problems understanding why this has happened. Last year I had an ultrasound and it showed normal liver but dilated
Bettina2023
in
British Liver Trust
1 year ago
fibroscan vs mre/mri
My fibroscan and MRE/MRI result are st totally 2 different spectrum. Which is the correct one? Fibroscan show my CAP is 400 and Kpa of 10.9. MRE/MRI show i have no fatty liver or fibrosis. How can they differ so much?
My fibroscan and MRE/MRI result are st totally 2 different spectrum. Which is the correct one? Fibroscan show my CAP is 400 and Kpa of 10.9. MRE/MRI show i have no fatty liver or fibrosis. How can they differ so much?
Reneling
in
British Liver Trust
1 year ago
Advice if possible
Hi, Apologies in advance for the long story but I have been so worried about this and am hoping there may be someone on here with similar experience who may be able to reassure me. I am a 65 year old female. I rarely drink alcohol, am only 5 lbs into the overweight bracket, do some form of exercise
Hi, Apologies in advance for the long story but I have been so worried about this and am hoping there may be someone on here with similar experience who may be able to reassure me. I am a 65 year old female. I rarely drink alcohol, am only 5 lbs into the overweight bracket, do some form of exercise
Husband2022
in
British Liver Trust
1 year ago
advice please
I was referred for a fibroscan after a blood test. It took approx 11 months for scan which happened a few weeks before Christmas. The scan revealed I had nafld with a score of 36. This was all conducted by a specialist nurse, as yet I have not seen a consultant and had no further tests or scans. I had
I was referred for a fibroscan after a blood test. It took approx 11 months for scan which happened a few weeks before Christmas. The scan revealed I had nafld with a score of 36. This was all conducted by a specialist nurse, as yet I have not seen a consultant and had no further tests or scans. I had
gavinlwright
in
British Liver Trust
1 year ago
1st Egg collection and OHSS risk - FET recommended
Hi everyone, I just wondered if anyone had experience of how FET proceeds following an attempted fresh cycle? It's my first cycle and I had a very painful egg collection today on mild sedation. From reading posts on here, I expected to be more heavily sedated, but I was wrong! They had to stop the
Hi everyone, I just wondered if anyone had experience of how FET proceeds following an attempted fresh cycle? It's my first cycle and I had a very painful egg collection today on mild sedation. From reading posts on here, I expected to be more heavily sedated, but I was wrong! They had to stop the
Minniemouse88
in
Fertility Network UK
2 years ago
Carvedilol
Hi, I've had my second (annual) gastroscopy since my Cirrhosis was diagnosed last year in February. The results were pretty much as the first one, so no change. The doctor who performed this test, different to the first one, suggested that my GP put me on Carvedilol. GP prescribed it and I have now
Hi, I've had my second (annual) gastroscopy since my Cirrhosis was diagnosed last year in February. The results were pretty much as the first one, so no change. The doctor who performed this test, different to the first one, suggested that my GP put me on Carvedilol. GP prescribed it and I have now
eileenet49
in
British Liver Trust
1 year ago
THE “C” WORD
Before I get kicked off this forum, “C” stands for Cirrhosis. And yes on my ultrasound report it mentions the dreaded “C” word. But there really is no difference between Cirrhosis and fybrosis except the degree of fybrosis at some arbitrary stage is classed as Cirrhosis. Immediately we hear or see
Before I get kicked off this forum, “C” stands for Cirrhosis. And yes on my ultrasound report it mentions the dreaded “C” word. But there really is no difference between Cirrhosis and fybrosis except the degree of fybrosis at some arbitrary stage is classed as Cirrhosis. Immediately we hear or see
Oztrax
in
British Liver Trust
1 year ago
Questions
As I stated in my first post here, they told me my MRE results were "mild scarring."I thought it was gonna be a lot worse although I know scarring is to be taken seriously. I am awaiting to see stomach doctor and will no doubt learn more about what I'm dealing with. I have read early fibrosis doesn't
As I stated in my first post here, they told me my MRE results were "mild scarring."I thought it was gonna be a lot worse although I know scarring is to be taken seriously. I am awaiting to see stomach doctor and will no doubt learn more about what I'm dealing with. I have read early fibrosis doesn't
Rbbooks
in
British Liver Trust
1 year ago
Due to have 2 days of tests Starting Monday for TP suitability. Very nervous ! First time I've posted.
So I'm just 60 and diagnosed decompensated ARLD.in September 22. A month later they have found Varices and then a lesion on liver. Have been sober 9 months, on strict diet and keep to it most of the time. Theve banded 2 Varices and put me on beta blockers. You know before I got unwell presenting with
So I'm just 60 and diagnosed decompensated ARLD.in September 22. A month later they have found Varices and then a lesion on liver. Have been sober 9 months, on strict diet and keep to it most of the time. Theve banded 2 Varices and put me on beta blockers. You know before I got unwell presenting with
Gus63
in
British Liver Trust
1 year ago
Hepatic encephalopathy
I've been been diagnosed with fatty liver after CT and 2 ultrasounds and normal bloods but I itch all the time and get confused and really scared I get muscle cramps and stomach cramps chest pain my stomach looks like a football and I've put on 8lb with in 2 weeks I also have spider veins on my chest
I've been been diagnosed with fatty liver after CT and 2 ultrasounds and normal bloods but I itch all the time and get confused and really scared I get muscle cramps and stomach cramps chest pain my stomach looks like a football and I've put on 8lb with in 2 weeks I also have spider veins on my chest
Hidden
in
British Liver Trust
1 year ago
NAFLD
was interested if anyone with NAFLD/NASH diagnosis and F2 fibrosis have a had consistent low or normal AST/ALT ? Basically any blood test I have had is right in the normal range, this includes antibodies, platelets etc. How can I be so fatigued if there are no signs in blood work, ever ? My fibroscan
was interested if anyone with NAFLD/NASH diagnosis and F2 fibrosis have a had consistent low or normal AST/ALT ? Basically any blood test I have had is right in the normal range, this includes antibodies, platelets etc. How can I be so fatigued if there are no signs in blood work, ever ? My fibroscan
Oztrax
in
British Liver Trust
1 year ago
Mild Scarring
Hello, everyone, I've been lurking here since last year. I want to thank you for your inspiring stories and wealth of positive information you exchange and for being brave enough to share your struggles and losses. I am 43 from usa, just diagnosed with mild scarring of my liver through mre. I am not
Hello, everyone, I've been lurking here since last year. I want to thank you for your inspiring stories and wealth of positive information you exchange and for being brave enough to share your struggles and losses. I am 43 from usa, just diagnosed with mild scarring of my liver through mre. I am not
Rbbooks
in
British Liver Trust
1 year ago
Does anyone have experience of Lenvatinib as a treatment for liver cancer?
I was diagnosed with liver cancer at the end of September last year, 2022. After a scan I was told that I had one large tumour and several smaller ones, that the large tumour was near the main artery and was of a size that ruled out conventional treatment, liver transplant, radiotherapy, embolisation
I was diagnosed with liver cancer at the end of September last year, 2022. After a scan I was told that I had one large tumour and several smaller ones, that the large tumour was near the main artery and was of a size that ruled out conventional treatment, liver transplant, radiotherapy, embolisation
majorda
in
British Liver Trust
1 year ago
New to group need help I'm so Scared
My husband went to hospital in Jan and was given ascitic drain, they drained 7 5 litres ans he lost 10kg overnight, they told us he had liver failure, this was genuinely the first we knew. He gave up drinking immediately and we thought he'd improve but...... in reality he has been in bed ever since!
My husband went to hospital in Jan and was given ascitic drain, they drained 7 5 litres ans he lost 10kg overnight, they told us he had liver failure, this was genuinely the first we knew. He gave up drinking immediately and we thought he'd improve but...... in reality he has been in bed ever since!
123toyouto
in
British Liver Trust
1 year ago
Liver fibrosis
i did my fibroscan yesterday and the result came back alarming. My CAP value is at 400 and Fibrosis score 10.9. I’m arranging for a MRE to confirm diagnosis. Doctor says that this is still reversible. I’m so scared tha I’m having living cirrhosis. I’m only 39 yo with 2 young kids. Would appreciate
i did my fibroscan yesterday and the result came back alarming. My CAP value is at 400 and Fibrosis score 10.9. I’m arranging for a MRE to confirm diagnosis. Doctor says that this is still reversible. I’m so scared tha I’m having living cirrhosis. I’m only 39 yo with 2 young kids. Would appreciate
Reneling
in
British Liver Trust
1 year ago
Fatty Liver
Hello. I have recently been diagnosed with fatty liver. I have been a heavy drinker for at least 25 years. My question is: How long will it take for my liver to recover if I abstain from alcohol completely? I understand that there is no set figure but any advice is appreciated. Thanks for your help
Hello. I have recently been diagnosed with fatty liver. I have been a heavy drinker for at least 25 years. My question is: How long will it take for my liver to recover if I abstain from alcohol completely? I understand that there is no set figure but any advice is appreciated. Thanks for your help
Betsy5
in
British Liver Trust
1 year ago
Latest ultrasound and blood results
My second ultrasound and blood can back this morning the bloods were satisfactory and ultrasound says fatty liver should I know stop worrying about thinking my liver is cirrhosis and get on with life
My second ultrasound and blood can back this morning the bloods were satisfactory and ultrasound says fatty liver should I know stop worrying about thinking my liver is cirrhosis and get on with life
Hidden
in
British Liver Trust
1 year ago
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