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Radium 223
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Husband progressing quickly
Hi! My husband is 68 years old. He was officially diagnosed with PSP IN 2020 , but has been showing symptoms since 2015. He is barely walking now. He falls very frequently. He is on a rollater or he could not get around at all. Everything is so hard for him to do. He has not driven in 3 or 4 years. He
Hi! My husband is 68 years old. He was officially diagnosed with PSP IN 2020 , but has been showing symptoms since 2015. He is barely walking now. He falls very frequently. He is on a rollater or he could not get around at all. Everything is so hard for him to do. He has not driven in 3 or 4 years. He
Hidden
in
PSP Association
2 years ago
Last one
Hi everyone So I’ve just finished with the zoladex injections. They were useless for me and gave me heavy periods. I’m up for trying anything. Pills patches creams drops. Anything I’ll give a go. Menopause did not stop the pain. ☹️. Crazy really as I first went to see a doctor for heavy periods in
Hi everyone So I’ve just finished with the zoladex injections. They were useless for me and gave me heavy periods. I’m up for trying anything. Pills patches creams drops. Anything I’ll give a go. Menopause did not stop the pain. ☹️. Crazy really as I first went to see a doctor for heavy periods in
Greenlady48
in
Endometriosis UK
2 years ago
Sodium Side effects
Hi I was on Levothyroxine for 6 months 150mg but suffered severe itching, redness around the face and eyes , had to go Private to get on Liothyronine 40mg but still have same problem to a lesser degree, both Tablets have Sodium which seemingly can cause these Side effects. Has anyone else experienced
Hi I was on Levothyroxine for 6 months 150mg but suffered severe itching, redness around the face and eyes , had to go Private to get on Liothyronine 40mg but still have same problem to a lesser degree, both Tablets have Sodium which seemingly can cause these Side effects. Has anyone else experienced
4bboys
in
Thyroid UK
2 years ago
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This episode illuminates what is wrong with medicine, even today!
I read with some anger and dismay an article in today's Sunday Times which showed that despite the medical world being aware of the dangers of valproate treatment for epilepsy in pregnant women on the physical and mental future for the baby, since 1973 this danger has not been properly recognised and
I read with some anger and dismay an article in today's Sunday Times which showed that despite the medical world being aware of the dangers of valproate treatment for epilepsy in pregnant women on the physical and mental future for the baby, since 1973 this danger has not been properly recognised and
diogenes
in
Thyroid UK
2 years ago
Sodium!!!
I was given 30 days to live Boxing day 2016. First off You NEED a doctor that with all due respect does not read from a book. Salt/sodium mist people don’t understand. Yah think adding salt or not adding salt is what matters. My name is Linda Hunt My liver specialist is DR A. LEBER Toronto Ontario
I was given 30 days to live Boxing day 2016. First off You NEED a doctor that with all due respect does not read from a book. Salt/sodium mist people don’t understand. Yah think adding salt or not adding salt is what matters. My name is Linda Hunt My liver specialist is DR A. LEBER Toronto Ontario
Boldad
in
British Liver Trust
2 years ago
GV-971 For Alzheimer's Disease Now and PD Later Next Year....maybe
Although this study is about Alzheimer's Disease (AD), it is very interesting in showing how the gut microbiota can be manipulated to very good effect and that fact is very important for many diseases including PD. It is also worth noting that some of the methods of action that have so far been discovered
Although this study is about Alzheimer's Disease (AD), it is very interesting in showing how the gut microbiota can be manipulated to very good effect and that fact is very important for many diseases including PD. It is also worth noting that some of the methods of action that have so far been discovered
chartist
in
Cure Parkinson's
2 years ago
Change doctor
Salt is in every thing we eat. Look at can of soup. It’s not adding salt!!! Advice. Nothing in can bag or box. You keep going but if you saw how much sodium is in a can of cream of mushroom soup. You’d be shocked. Anything green vege blah blah. You want French fries. Slice up potato put in oven.
Salt is in every thing we eat. Look at can of soup. It’s not adding salt!!! Advice. Nothing in can bag or box. You keep going but if you saw how much sodium is in a can of cream of mushroom soup. You’d be shocked. Anything green vege blah blah. You want French fries. Slice up potato put in oven.
Boldad
in
British Liver Trust
2 years ago
Blood test help
Hi I wonder if you'd mind raising any problems with my bloods please. I recently saw an endocrinologist for my chronic insomnia, which I believe is caused by my low cotisol/low DHEA. I am always struggling with low ferritin, and even more now I've gone off liver and liver pate. I am trying to eat
Hi I wonder if you'd mind raising any problems with my bloods please. I recently saw an endocrinologist for my chronic insomnia, which I believe is caused by my low cotisol/low DHEA. I am always struggling with low ferritin, and even more now I've gone off liver and liver pate. I am trying to eat
CornishChick
in
Thyroid UK
2 years ago
Macro’s and sodium limits
Hi all, looking at cleaning up my diet. I’m planning on using “my fitness pal” to track macros. Can anyone advise on break down of carbs, protein and fat best for fatty liver and what I should set the sodium level at. Thanks in advance.
Hi all, looking at cleaning up my diet. I’m planning on using “my fitness pal” to track macros. Can anyone advise on break down of carbs, protein and fat best for fatty liver and what I should set the sodium level at. Thanks in advance.
Kettl
in
Living with Fatty Liver and NASH
2 years ago
Ascites or weight gain
My husband is very thin and been advised on a high calorie diet .He was admitted a few weeks ago with his first bout of ascites. A drip was put up and he was discharged 5 days later. We had a GP appt who took him iff the water tabs that he was prescribed as his legs etc were fine. We had our first liver
My husband is very thin and been advised on a high calorie diet .He was admitted a few weeks ago with his first bout of ascites. A drip was put up and he was discharged 5 days later. We had a GP appt who took him iff the water tabs that he was prescribed as his legs etc were fine. We had our first liver
Moux1
in
British Liver Trust
2 years ago
Can Ketone Esters provide Ketones without a Ketone diet?
Back in 2013, Dr. Mary Newport gave a Ted talk on her re-discovery of MCT oil (she'd been aware of it for several years). In short, it greatly helped her husband with AZ. More recently, Ketone Esters are said to be even more potent than MCT oil. This video is from Dr Newport's talk. I've started looking
Back in 2013, Dr. Mary Newport gave a Ted talk on her re-discovery of MCT oil (she'd been aware of it for several years). In short, it greatly helped her husband with AZ. More recently, Ketone Esters are said to be even more potent than MCT oil. This video is from Dr Newport's talk. I've started looking
JAS9
in
Cure Parkinson's
2 years ago
Some questions answered, some answers questioned, and Chemotherapy scheduled.
I exchanged emails with the MO over the weekend regarding the combination trials of Docetaxel and
Radium
223
. Below is a portion of the exchange. Part 1 explains why there was no treatment for 90 days.
I exchanged emails with the MO over the weekend regarding the combination trials of Docetaxel and
Radium
223
. Below is a portion of the exchange. Part 1 explains why there was no treatment for 90 days.
Philly13
in
Advanced Prostate Cancer
3 years ago
Advice on numbness/Whitening of hands and feet
Hi all, my Dad is on
radium
223
/xtandi & monthly zometa. He has experienced increase episodes of numbness/Whitening in his hands mainly fingers when cold also his feet.
Hi all, my Dad is on
radium
223
/xtandi & monthly zometa. He has experienced increase episodes of numbness/Whitening in his hands mainly fingers when cold also his feet.
Nickhmcg
in
Advanced Prostate Cancer
3 years ago
What is AMX0035, and Why Is It Important for All of Us?
AMX0035 is a drug combination of sodium phenylbutyrate (PB) and tauroursodeoxycholic acid (TUDCA). It works by regulating the mitochondrial (cell power supply) and endoplasmic reticulum (quality control centers). Put simply, both processes should work in unison, but when they don’t, cells in the body
AMX0035 is a drug combination of sodium phenylbutyrate (PB) and tauroursodeoxycholic acid (TUDCA). It works by regulating the mitochondrial (cell power supply) and endoplasmic reticulum (quality control centers). Put simply, both processes should work in unison, but when they don’t, cells in the body
SilentEchoes
in
Cure Parkinson's
2 years ago
Options after Zytiga fails
I'm in Canada and think my next options are either
Radium
223
or chemo. I've had genetic testing and BRAC 2. If I go with
Radium
223
(complete the 6 sessions) can I do
Radium
223
later, ie a year later? Thanks.
I'm in Canada and think my next options are either
Radium
223
or chemo. I've had genetic testing and BRAC 2. If I go with
Radium
223
(complete the 6 sessions) can I do
Radium
223
later, ie a year later? Thanks.
davebliz
in
Advanced Prostate Cancer
3 years ago
Besremi -Six Week Update
I had another CMP and CBC yesterday. Background: I got my first Besremi shot on January 28. I asked to start at 50 mcg. Second shot was 60 mcg and third was 70mcg. After six weeks, I'm thrilled to see changes in my counts: My WBC went from 15 to 10.8 (while it can fluctuate, it doesn't have a drop
I had another CMP and CBC yesterday. Background: I got my first Besremi shot on January 28. I asked to start at 50 mcg. Second shot was 60 mcg and third was 70mcg. After six weeks, I'm thrilled to see changes in my counts: My WBC went from 15 to 10.8 (while it can fluctuate, it doesn't have a drop
Elizka
in
MPN Voice
2 years ago
Blood test results, can anyone help?
I have been having multiple symptoms which i thought were due to the start of the menopause. A hormone test came back indicating this was not the case but my TSH was right on the limit of normality at 4.2. As my symptoms also match an under active thyroid I paid for a blood test and my TSH came back
I have been having multiple symptoms which i thought were due to the start of the menopause. A hormone test came back indicating this was not the case but my TSH was right on the limit of normality at 4.2. As my symptoms also match an under active thyroid I paid for a blood test and my TSH came back
Whirlygig
in
Thyroid UK
2 years ago
Top of stomach pain
Hi I’m 12 months post op Ivor Lewis been doing ok last week had a bit of pain and soreness inside think it’s where oesophagus joins stomach feels a little bit like reflux and when eating feels sore 🤷♀️ I had a barium meal 2 weeks ago and surgeon said I need a stretch in valve in stomach do you think
Hi I’m 12 months post op Ivor Lewis been doing ok last week had a bit of pain and soreness inside think it’s where oesophagus joins stomach feels a little bit like reflux and when eating feels sore 🤷♀️ I had a barium meal 2 weeks ago and surgeon said I need a stretch in valve in stomach do you think
Von66
in
Oesophageal & Gastric Cancer
2 years ago
IBS general: my experience
Dear all, it's been a while since I posted this, so here it is: This is my general approach to help people understand and repair their gastro-intestinal (GI) performance after being diagnosed with IBS. Firstly, IBS must be diagnosed by your doctor or consultant, after checks and treatment for gastro-intestinal
Dear all, it's been a while since I posted this, so here it is: This is my general approach to help people understand and repair their gastro-intestinal (GI) performance after being diagnosed with IBS. Firstly, IBS must be diagnosed by your doctor or consultant, after checks and treatment for gastro-intestinal
Stuart24
in
IBS Network
2 years ago
Do I need to be checked out
Hi I had an AF episode a week ago and then went into fast Sinus with a heart beat of 140. 6 days later I went into Kings for a routine endoscopy for my 3 yearly verecies check for my liver cirrhosis. My heart was still tackicardic. First they could not get the camera down my throat due to severe swallowing
Hi I had an AF episode a week ago and then went into fast Sinus with a heart beat of 140. 6 days later I went into Kings for a routine endoscopy for my 3 yearly verecies check for my liver cirrhosis. My heart was still tackicardic. First they could not get the camera down my throat due to severe swallowing
MalcolmCClark
in
Atrial Fibrillation Support
2 years ago
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