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Update and first time referral to a neph...
Hi everyone, This is my second post. My first post, my husband had been leaking protein and was told it would go away. A year later, he still has it. Now he's being referred to a Nephrologist for the first time. Does anyone have any suggestions or tips on what to ask? He's not diabetic and his blood
Hi everyone, This is my second post. My first post, my husband had been leaking protein and was told it would go away. A year later, he still has it. Now he's being referred to a Nephrologist for the first time. Does anyone have any suggestions or tips on what to ask? He's not diabetic and his blood
Bananas2007
in
Kidney Disease
2 years ago
Diet & CKD
Good morning, I was wondering if anyone else has had this experience? I told my neph that I was limiting protein, sodium and foods bad for the kidneys. She said that limiting protein etc is old school and instructed me not to add salt to any food. I am at a stage 3b. I have been reading posts on this
Good morning, I was wondering if anyone else has had this experience? I told my neph that I was limiting protein, sodium and foods bad for the kidneys. She said that limiting protein etc is old school and instructed me not to add salt to any food. I am at a stage 3b. I have been reading posts on this
Hello67
in
Kidney Disease
2 years ago
Nervous about having blood work done
Hello, does anyone else feel like they are in panic mode knowing it is time to have blood work done. I am so afraid to see my numbers. I have been drinking my water and eating a mostly vegan diet (I eat no meat, no poultry, no processed foods, and watch my sodium very carefully). I will eat a piece
Hello, does anyone else feel like they are in panic mode knowing it is time to have blood work done. I am so afraid to see my numbers. I have been drinking my water and eating a mostly vegan diet (I eat no meat, no poultry, no processed foods, and watch my sodium very carefully). I will eat a piece
Yankees28
in
Kidney Disease
2 years ago
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tremors shaking jerking
Hello psp family so my dad has psp, now is peg fed, and has urethral catheter. stopped talking, very rigid most of the time, sometimes he has these shaking episodes, they happen every other month, thank god they arent a regular thing, but recently it seems like it is happening more than before. His
Hello psp family so my dad has psp, now is peg fed, and has urethral catheter. stopped talking, very rigid most of the time, sometimes he has these shaking episodes, they happen every other month, thank god they arent a regular thing, but recently it seems like it is happening more than before. His
Mustafa128h
in
PSP Association
2 years ago
And another ER visit and hospital stay
Jeff went back in for chemo and his blood pressure had plummeted and he was running 102 + fever. They nixed chemo and sent him immediately to the ER. He was discharged yesterday, although we didn’t really get a lot of answers. His sodium is too low and he was advised to eat more salt. They almost didn
Jeff went back in for chemo and his blood pressure had plummeted and he was running 102 + fever. They nixed chemo and sent him immediately to the ER. He was discharged yesterday, although we didn’t really get a lot of answers. His sodium is too low and he was advised to eat more salt. They almost didn
Pancake_Lefse
in
Advanced Prostate Cancer
2 years ago
Latest lab results, GFR increased
Hi everyone, just wanted to give an update about my latest lab results. My gfr is back up to 30 (previously 26) Bun 20 (prev. 24) and Creatinine is down to 2.13 (prev. 2.38) I am down 10.4lbs since December. Lifestyle changes I have made have been exercising 3-4 times a week, drinking more water daily
Hi everyone, just wanted to give an update about my latest lab results. My gfr is back up to 30 (previously 26) Bun 20 (prev. 24) and Creatinine is down to 2.13 (prev. 2.38) I am down 10.4lbs since December. Lifestyle changes I have made have been exercising 3-4 times a week, drinking more water daily
DMH200435
in
Kidney Disease
2 years ago
COVID brain impact similar to Chronic Fatigue Syndrome
Apart from the AMN, I am generally healthy and not particularly worried about Covid. Maybe because I had my three vaccines and always wear a mask outdoors. I do, however, have one friend who [i]had Long Covid for over a yea[/i]r. And I have posted here before about various of these diseases having
Apart from the AMN, I am generally healthy and not particularly worried about Covid. Maybe because I had my three vaccines and always wear a mask outdoors. I do, however, have one friend who [i]had Long Covid for over a yea[/i]r. And I have posted here before about various of these diseases having
monkeybus
in
AMN EASIER
2 years ago
10 Foods High in Glutamate and Why You Should Avoid Them!
Glutamate is an amino acid that is produced in the body and also occurs naturally in many foods. Monosodium glutamate (MSG) is the sodium salt of glutamic acid and is a common food additive. MSG is made from fermented starch or sugar and is used to enhance the flavor of savory sauces, salad dressings
Glutamate is an amino acid that is produced in the body and also occurs naturally in many foods. Monosodium glutamate (MSG) is the sodium salt of glutamic acid and is a common food additive. MSG is made from fermented starch or sugar and is used to enhance the flavor of savory sauces, salad dressings
Kia17
in
Cure Parkinson's
2 years ago
Butyrate , TUDCA or UDCA : trials for PD, ALS, ALZ - Slows ALS decline
Sodium phenylbutyrate is a pharmaceutical form of butyrate. Similar non pharma butyrate is available. UDCA requires a prescription. TUDCA does not. Here I will be culminating information on how these compounds and studies relate. This is a continuation of my message that what benefits ALS and
Sodium phenylbutyrate is a pharmaceutical form of butyrate. Similar non pharma butyrate is available. UDCA requires a prescription. TUDCA does not. Here I will be culminating information on how these compounds and studies relate. This is a continuation of my message that what benefits ALS and
Hidden
in
Cure Parkinson's
2 years ago
Liothyronine News
As I often do, I have been checking the UK's MHRA website. https://products.mhra.gov.uk/ I have identified two changes to liothyronine licences. First, an
Accord
20 microgram tablet is now listed. Does not contain lactose, mannitol or acacia. Accord contains: [i]6.1 List of excipients[/i]
As I often do, I have been checking the UK's MHRA website. https://products.mhra.gov.uk/ I have identified two changes to liothyronine licences. First, an
Accord
20 microgram tablet is now listed. Does not contain lactose, mannitol or acacia. Accord contains: [i]6.1 List of excipients[/i]
helvella
Thyroid UK
in
Thyroid UK
2 years ago
GFR drop-potassium high
Just had labs and my GRF dropped from 15 to 10 & creatinine went from 3.16 to 4.67. Potassium level went up too over 5( critical value). I drink at least 64 oz of water a day and watch my potassium, salt & protein intake. Started adding in some plant based proteins. I also take sodium bicarb twice
Just had labs and my GRF dropped from 15 to 10 & creatinine went from 3.16 to 4.67. Potassium level went up too over 5( critical value). I drink at least 64 oz of water a day and watch my potassium, salt & protein intake. Started adding in some plant based proteins. I also take sodium bicarb twice
Hawaiilover
in
Kidney Disease
2 years ago
Nalcrom (sodium cromoglicate) Availability
Hi, Does anyone know what the latest information is on the availability of Nalcrom (sodium cromoglicate)? Our daughter has just been prescribed it for the first time, and despite what it says on the website I am being met with “Nalcrom has been discontinued and sodium cromoglicate is out of stock.”
Hi, Does anyone know what the latest information is on the availability of Nalcrom (sodium cromoglicate)? Our daughter has just been prescribed it for the first time, and despite what it says on the website I am being met with “Nalcrom has been discontinued and sodium cromoglicate is out of stock.”
PCAD
in
The UK Mastocytosis Support Group
2 years ago
Treatment of damages due to radiation
asked him why we do not use the know-how of doctors dealing with nuclear exposure. Many of us suffer from damages produced by radiation....like blood in stool, urine and other damages. However when I visit doctors, it seems they are ignorant of treatment for damages due to Radiation. I feel we should
asked him why we do not use the know-how of doctors dealing with nuclear exposure. Many of us suffer from damages produced by radiation....like blood in stool, urine and other damages. However when I visit doctors, it seems they are ignorant of treatment for damages due to Radiation. I feel we should
Karmaji
in
Advanced Prostate Cancer
2 years ago
ANYONE WITH LOW BLOOD PRESSURE ISSUES WHILE TAKING ACALABRUTINIB?
I started treatment with Acalabrutinib June 2020. During first 2 months my only side effect was lightheadedness due to low Blood Pressure (BP), especially during first few hours of taking Acalabrutinib. In October and November 2021 I had gallbladder issues and suspended treatment. I lost 20 lbs and
I started treatment with Acalabrutinib June 2020. During first 2 months my only side effect was lightheadedness due to low Blood Pressure (BP), especially during first few hours of taking Acalabrutinib. In October and November 2021 I had gallbladder issues and suspended treatment. I lost 20 lbs and
CADreamer
in
CLL Support
2 years ago
Latest blood test results, where do I start?!
Afternoon everyone, I posted recently and went away to get some more blood tests, I've now got the bulk of the recent results. I'm on the waitlist for a total thyroidectomy but until then I'm just trying to improve my symptoms (mainly lack of patience, irritability, low libido, fatigue, anxiety etc
Afternoon everyone, I posted recently and went away to get some more blood tests, I've now got the bulk of the recent results. I'm on the waitlist for a total thyroidectomy but until then I'm just trying to improve my symptoms (mainly lack of patience, irritability, low libido, fatigue, anxiety etc
CTun
in
Thyroid UK
2 years ago
Update with Nephrology, Losartan discontinued from my treatment plan
To give an update for today, I talked with Nephrology and losartan was discontinued for now. I was told that hypoglycemia was a rare side effect of the medication so they would like for me to repeat labs in 2-4 weeks. As for my kidney function decreasing, I was told that the increase in BUN and Creatinine
To give an update for today, I talked with Nephrology and losartan was discontinued for now. I was told that hypoglycemia was a rare side effect of the medication so they would like for me to repeat labs in 2-4 weeks. As for my kidney function decreasing, I was told that the increase in BUN and Creatinine
DMH200435
in
Kidney Disease
2 years ago
Some food questions.
It's slow going but I'm heading to a vegetarian eating experience. I'm finding it hard to figure out where I should start, protein, potassium or sodium, not to mention calories or carbs. I spill protein, potassium has been way to high at times and I have a lot of edema (currently on a diuretics)
It's slow going but I'm heading to a vegetarian eating experience. I'm finding it hard to figure out where I should start, protein, potassium or sodium, not to mention calories or carbs. I spill protein, potassium has been way to high at times and I have a lot of edema (currently on a diuretics)
jodaer
in
Kidney Disease
2 years ago
Low sodium levels after bypass
Hi, had a bypass in October 2021 and still have low sodium levels - anybody else had similar? Many thanks.
Hi, had a bypass in October 2021 and still have low sodium levels - anybody else had similar? Many thanks.
Whitbyreds
in
British Heart Foundation
2 years ago
Thursday 9/9/2021 was D for Decision Day--Locked and Loaded for Chemotherapy
As time went on, he suggested that the top 2 options, for the moment, were chemotherapy and
radium
223
. The oncologist said there isn’t a rush to begin, with no evidence of cancer moving forward. He said I should think about it and get back to him in the next couple of weeks.
As time went on, he suggested that the top 2 options, for the moment, were chemotherapy and
radium
223
. The oncologist said there isn’t a rush to begin, with no evidence of cancer moving forward. He said I should think about it and get back to him in the next couple of weeks.
Philly13
in
Advanced Prostate Cancer
3 years ago
Efficacy of oral administration of licorice as an adjunct therapy on improving the symptoms of patients with Parkinson's disease, A randomiz
I don't have the complete paper, but this link shows a lot of it. They gave 5cc of licorice twice a day, which equals 136 mg of polyphenol-rich extract of licorice. I don't know how this relates to my Organic Licorice Root Extract 20:1 Powder https://www.amazon.com/gp/product/B079N4Z72C/ref=ppx_yo_dt_b_asin_title_o06
I don't have the complete paper, but this link shows a lot of it. They gave 5cc of licorice twice a day, which equals 136 mg of polyphenol-rich extract of licorice. I don't know how this relates to my Organic Licorice Root Extract 20:1 Powder https://www.amazon.com/gp/product/B079N4Z72C/ref=ppx_yo_dt_b_asin_title_o06
Bolt_Upright
in
Cure Parkinson's
2 years ago
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